Reaction to Keratin Hair Treatment

My hair is frizz free after paying two hundred dollars to my hair stylist. I did have to sit through the harsh smell while I wore the mask while the hairstylist was wearing his mask and straightening my hair.

However,I have a big dilemma. My hair has been shedding, almost falling out, from the follicle. I'll run my fingers through it and 7 or 8 strands of hair will be removed at a time.

This is heart breaking to me,and I'm thinking maybe at some point it will stop, however, it has been almost 3 weeks and it's still happening.
I almost wish my hair was frizzy again and that it wasn't shedding like this.

Can someone please advise if there is a way to reverse the process?



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Jun 20, 2017
Hair treatment to try!
by: Anonymous

Hey girls, My BB took place last summer. I didn't notice problems with my hair until Oct when it quit growing and breaking off at the ends. My hair dresser would just cut the dead ends off as usual and then people starting saying - Oh you cut your hair! Oh you have gone short. And I realized, dang, how much hair has broken off. My hair dresser had no clue why my hair was acting like this. She asked if I was doing anything different and I was not and I told her it had to have been that BB. She said, oh no, those are good for your hair, not bad. It should have helped. It wasn't until a few weeks ago that I thought, enough is enough and started researching. I had been taking all kinds of vitiamins for over 6 months and nothing was helping. So after reading everyones testimonies, I read a few that said to use jojoba oil. However they said to be careful and make sure it is organic. I'm willing to try anything. I have already tried masks of all kinds for months including coconut oil at night. Well I put this on my hair and it is like giving a dried plant water. It has only been 3 weeks and I'm amazing at how it is growing and coming back to life and filling back up and shiny already! I highly recommend getting this. I went on Amazon and had it ordered that week and will continue using it until my hair gets back to it's old ways. Thank God I only did one because others that had 2-3 have permanent damage. It's worth a try ladies and I wish everyone luck. And spread that word! That is also what I am doing - anti-BB!!!

Jun 06, 2017
My update story
by: Sam

Hello to everyone, its been almost a month since my last post, and my one year anniversity from the Brazilian blowout has past may 26 2016 one of the worst decision of my life I call that day the death of my hair, no point in getting mad but trust me im still very upset at the hair stylist for leaving that stuff on my hair and telling me its ok to just wash it in three days I can't really say if washing it would have help I guess that's not important now the damage is done and what little hair I have left its very sad to see myself. Ok now since my last post my 35th birthday went really well I actually used my real hair and tons and tons of hair spray it was huge !!!!and puffy on the top but I tooked it and by the grace of all the Angeles and a special man above it looked awesome 😊no body could tell what i am going through (hair loss) so ill close that chapter by saying I was happy for that day. Now my current situation both good and bad ok my itching and bumps in the back part of my hair are gone !!!!!! So happy but the stubborn top of my head man oh man I just can't get it to stop itching its still driving me crazy just the top right were the crown is just a circle portion that's it and that's were the hair fall continues, so it is better but not so , im just trying to live with it and the thickness still declines and shrinks my hair is shrinking it just gets thinner and thinner I swear by next fall I will be totally bald on top in the worse way possible, now I demanded to my doctor that he gives me propecia its a male pattern baldness medicine for men, im happy that he gave it to me and I want to say he believes some thing in the Brazilian blowout did harm to my hormones and caused me to have male pattern baldness early instead of its natural state just because of my family history and all of no baldness in my family and trust me the family I have we can makes 500,000 fur coast for winter that's how much hair we have lol. Well I just hopes it at least helps to slow down the lost and to help save the little bite I have left I also no that this medicine does not help in autoimmune disease or alopecia but like I said before all my blood testing comes up positive for lupus but 4 doctors tell me im fine and i don't have it so im like ok but surely I have some kind of autoimmune activity I mean my voice is messed up my tummy always hurts now I have no arm hair no eyebrows spots of hair missing on my legs so what the hell is wrong with me im about to donate myself to NASA and tell them I'm an alien maybe they can help me but with my luck they'll send me to space just to get rid of me lol. Today I took my first pill of propecia and if it works I should no in 4 months so ill keep updating my progress on this medication and also a side effect of this meds is a loss of mans libido sex drive, who cares about that!!!!! Just give me my hair back !!!!!! If you tap on Maurice blog from the beginning a guy who went though this years ago I think he was a or one of the first people to blog on this post he talks about not taking this medication because of the risky side effects, me there isn't nothing I can't handle that the Brazilian blowout hasn't already side effected me the only thing the Brazilian blowout hasn't done to me is turn me green and grow a tail lol or with my luck that probably will happen now just because I said it lol well i really hope all of you are doing good and thanks so much for the birthday wishes g hair and Andrea hope you both are doing well. End with my prayer I am strong, I am weak, I am who you are , I am perfect in your eyes , I am a mirror reflection of you, shield by glass, to protect you from me. Sam, ok I wrote this phrase like in 2010 I always loved it its simple no real meaning but gods knows what it symbolizes to me to him I will always protect him even from myself. God bless everyone and i promise no offense to any one on religion I no we all have our own beliefs and I respect that it just makes me happy to share my work all my short prayers, I write from my heart . Sam

Jun 03, 2017
New comer
by: Anonymous

Please keep it here. It's hard to find things on FB, etccan you post pics?

I had a lot of hair loss after using keratin.

I use "Hair Surge" shampoo. It has stooped the hair loss cold. But I have lost more than half of my hair. I'm seeing regrowth start in some places.

Thanks

Jun 01, 2017
Maria thank you xxxx
by: Sandra

Maria, thank you so,so much for taking the time to respond - I'm going to look into this product .. it's worth a try ! And I'm delighted to hear that it's working for you ..

And IICTBT , if somebody set up an instagram account with photos we could add messages and tag photos of ourselves from our own instagram account ? Would that work ?

May 31, 2017
For Sandra
by: Maria

Hi Sandra and everyone.
Yes,the "treatment" I got from trichologist still seems to work.I am close to normal hair loss now on each wash day.Probably about 1/4 of what I have been loosing before.
Weird thing is,this is cosmetics,not medication.The only medication I use is minoxidil but I always used it.Works realy well on me.
Anyhow,to answer your question,it's called Cinical derm and it's made by comp.Vivipharma.Apparenty Itaian trichology products. I use Glycosan shampoo which degreases scalp.I don't use it on hair,just on scalp.I leave it on for 3-5min,rinse and follow with colagen shampoo and conditioner from the same company.It came with 6 ampules of liquid which regulates sebum and I put that in after I towel dry and leave in. I finished the ampules last week and I could see my hair became instanty more greasy ao I ordered just that liquid in the botte and will use it from tomorrow again.
Now the question is if any other,strong degreasing shampoo/treatment wouldn't do the same.Maybe...posibly..I just can't say.My hair looks dry but scalp used to get greasy after 12 hours or so and next day my hair and scalp would look just dirty and greasy. Now it looks ok for 2 days.
Since I lose less hair,I have regrowth very visible all over my head.Especially at hairline you can see like 3cm hair everywhere.
I have no scalp pain and I can wear pony tail without feeling pain for 2 month now.It's great. If hair loss doesn't pick up again,I am confident I'll have all my hair back within a year.Already now they don't look too bad and people cannot tell anything was wrong while before they were asking me if I was sick (meaning chemo).
So I am very optimistic here.
Happy recovery to you all.Not all of you are sick,your hair just needs time to recover from the shock and that takes years. Keep fighting and keep busy to take your mind off this issue.M

May 28, 2017
How do we get in better contact? Share photos
by: IICTBT

My loss is mostly around the perimeter as well, but I feel there has been an over all thinning too. At this point I truly believe it would be beneficial for us to share photos and to find a way for us to communicate more privately. I'm not sure if these products are still being used, if the solutions have changed, or if the stylists have been retrained? So I'm not sure if there will be new victims that are UNKNOWINGLY EXPOSED TO FORMALDEHYDE or not. So, I'm not saying I'd like to excluded new comers at all; I'd just like a more private forum to share pics and to exclude people that spout off with ignorant, unsympathetic comments. Instagram? Facebook? How do we do it? Any ideas GH?

May 28, 2017
Formaldehyde
by: Sandra

Oh Cynthia, please don't ask us why we are poisoning ourselves with formaldehyde! Can't you see how much pain we are all in.. please don't add to it! It's too late to say this to us - we did it and obviously we either didn't realise that formaldehyde was so dangerous as our hairdressers reassured us that the product was good or we were unaware that the product even contained formaldehyde.. Don't make us feel worse than we already are! We are human .. we made a mistake through being unaware.. And we are paying a heavy price. Our purpose here is to share our experience in order to support each other, possibly protect others from making the same mistake and offer possible solutions if we can. Im praying for healthy hair growth for everyone that has been affected by this.. please keep us updated .. MG how are you doing? You were an 'old timer' that messaged on here frequently but I haven't heard anything from you for a while .. are you doing ok?

May 28, 2017
Cynthia
by: Gh

Thanks for the info.

I can't speak for everyone, but I believe that most of us did not know the products contained formaldehyde. I think many start doing their research after the damage had been done.

I'll be the first to admit that I had never requested to see all of the chemicals of every hair product I received at a salon until now. A long time ago I would get "No-Lye" relaxers at a salon. The "no-lye" part was the only chemical that I believed I was avoiding. I don't really know what else was in there, and I don't know if the manufacturer was truthful.

What I have found with researching keratin treatments is that some manufacturers aren't honest; make the print too small to read; or list formaldehyde under one of its alternate names. They make it hard for the consumers to protect themselves. It's very unfortunate.

Telling recent writers on this website to stop using formaldehyde is like preaching to the choir. I don't recall reading any recent comments about someone wanting to get a keratin treatment. Most of the discussion is about healing after the damage had been done.

May 28, 2017
Why are you using formaldehyde?
by: Cynthia White

I am bewildered by some of these stories here. Yeah obviously there are going to be some issues with keratin treatments because of the formaldehyde. Stop poising yourselves.

There are lots of links online to products which can serve as alternatives without formaldehyde.

Here are two links for your perusal:

https://softerhair.com/non-toxic-alternatives-to-brazilian-keratin-treatment/

http://www.allure.com/story/keratin-hair-smoothing-treatments

May 25, 2017
Andrea
by: gh

My hair loss was most noticeable at the front hair line and nape of the neck. The sides around my ears seemed to be less affected or just less noticeable. I also have thinning of the crown/top of my head. The combination of two overlapping hair loss patterns leads some to give the most common/simple diagnoses. When they got down to the nitty-gritty, there were two distinct causes for my hair loss. The rapid onset of androgenetic alopecia (probably related to sudden hormonal changes) can be misleading and cause doctors to overlook other contributing factors like an overactive immune system.

My biopsy specimens were taking from the receding hairline and the nape of the neck. The results were identical.

Andrea, I really hope everything goes well with your visit. I know you won't be getting results the same day, and waiting can be torture, but eventually you will have answers. Best wishes!

May 25, 2017
Just a question
by: Andrea

I get my biopsy next week I am freaking out but I need to know for my own sake. I do have a question though does everyone here have the same hairloss pattern nape area and sides it seems to me that I have more hairloss around the perimeter.

May 25, 2017
A cell
by: KitKat

Hello everyone, I've posted on here twice as anonymous but I decided to give myself a name now. I did the A Cell PRP treatment almost a year ago. Initially I thought it didn't work. I was wrong. It did work. My thinning hair is getting thicker. Last year I paid $3000 and I wasn't able to go back for another treatment. I was able to find a doctor in my area. I received my second treatment and paid $600. A lot cheaper. Hope this helps. Plus, I'm also taking spiro 100mg.

May 25, 2017
No regrowth
by: Lisa

I have no noticeable regrowth. I would love some fluffy flyaways, but I just don't see anything except very thin hair :(. Like I said it's been almost 3 years for me. I'm still using the hair powder to hide my scalp. Is there anyone else out there with this experience? I am not losing as much as before, but I haven't seen any real regrowth.

May 22, 2017
Sandra
by: gh

I have those light, fluffy, less cooperative hairs on top. I think many others have had the fluff as well. I manipulate them with leave-in conditioner, and two-strand twisting. I do this on my off day, and I take the twists apart before I go out. This creates somewhat of spiral curl, and helps me blend the fluff with the good part.

For the adrogenetic part of the hair loss, I have my theories. I think that part happened rapidly, because I had a sudden drop in estrogen. Sure my estrogen is still in the normal range, but that does tell me much.

Normally, your estrogen would decrease over time after the child-baring years. Likewise, your hair would thin over time as you become menopausal. Typically, you'd see less periods, but it's a gradual process. Unfortunately, some of us have had a cold-turkey change in our menstrual cycle which is directly connected to our estrogen level.

A significant drop in estrogen can still cause menopausal-like symptoms while still being in the normal range. This is why some women lose their hair after going off of their birth control pill. Stopping a birth control pill that contains estrogen is a small decrease, but can be just enough to cause hair loss in some people. It's not rare that this happens, and sometimes women may chose to continue their birth control if they are not actively trying to conceive.

The same goes for pregnancy. After pregnancy, we have a quick decline in estrogen, and we appear to be losing hair. Of course, eventually it returns to normal just as you would start getting regular periods.

Unlike a healthy pregnant woman, not many of us can say that hormones and menstruation will return to normal after nine months or so. Honestly, I don't know if it ever will without some type of intervention.

Considering that our ovaries/hormones are obviously being impacted. It might be worthwhile addressing this particular symptom at the source. While many of us won't qualify for estrogen replacement therapy, you may want to discuss other options with your doctor.

It would be great if someone on this website had had their estrogen level checked prior to the BB, and now had it checked again. Again, if it was 250 before, and now it's 100, both are within the normal range, but that would be a significant drop. A result of 100 is not enough to declare full menopause, but it may still be enough to cause menopause-like symptoms such as androgenetic thinning, vaginal dryness, weight gain, urinary issues, and depression.

All I'm really saying is it is something to look into. Estrogen levels are not a one-size fits all. And while you may be in the normal range, it may be lower than where you were when your body was healthy and your were getting regular menstrual periods.

As I mentioned previously, I was started back on the BC pill for a trial period. I'm doing months along with my Rogaine, steroid injections, and vitamins. I'll let you all know how it turns out.

Sorry Sam, because I know this doesn't help you much. I hope you are doing well. I was wondering how you were doing with the Ustekinumab. Has that new medication, Ustekinumab, gotten you some relief from the other symptoms or helped with hair growth? I'm dying to hear. There has been some research that suggests that this medication and medications like it can successfully treat alopecia areata. Check out the link below.

https://www.naaf.org/news-room/hot-off-the-press-another-treatment-shows-promise-in-alopecia-areata

Hugs to all!

May 22, 2017
Update
by: Sandra

I thought I'd add an update too as a few of you have .. Also coming up to 3 years (end of June).. I noticed my daughter's hair loss decreased after 9 months (I was no longer picking hairs from her pillow every morning).. she tells me that noticed a significant decrease in hair loss after a year. She never had a lot of itching like many of you .. perhaps the first couple of months. She also had dandruff but again the first couple of months.. The first nine months the top of her head was almost completely bald. I wish she would agree for me to show you photographs on an instagram account (I took many whilst she wasn't looking as I wanted to record what was happening) but I simply can't betray her trust in that way .. she's 19 now and although her face isn't visible I can't do that do her so you'll have to imagine - it was horrific enough that people mentioned it to her and that her scalp became sunburnt. The hair grew back for which I am so so grateful but at the same time as this happened there was further all over hair loss.. whether that was all in the first year when it fell out quickly or whether the hair simply isn't growing back when it fell out at the end of the hair cycle, I have no idea .. All I know is that she now has thin hair (with the sides and top at the front thinner than the rest).. it's crazy I know and none of it makes any sense . What makes me so angry is that the manafacturers of this product get away with it because the hair loss mimics any number of legitimate hair loss conditions unrelated to Brazilian blowout .. as GH said in her post : it looks like female hair baldness (AA) but female hair baldness doesn't happen so quickly ! My daughter's hair was diagnosed as such and the dermatologist wouldn't listen when I told her that my daughter had gone bald in the space of about two months !! It simply doesn't happen like this .. I was right because it doesn't grow back either ! Now my main problem is that the hair growing back is light and fluffy and sits on top of all the other hair. I guess this indicates that the hair follicle is miniaturised which ofcourse is a sign of female hair baldness but also of formaldehyde penetrating the follicle! My question is .. Has anyone had these light fluffy hairs sitting on top (impossible to manage !) and they have returned to normal ???? If not, does anyone know if follicles can Un - miniaturise themselves ? Or any tips on how to manage these unruly strands ? I'm quite interested in what your dermatologist gave you Maria ?? Is it still working ? I saw that Aveda do a scalp cleansing treatment in a hairdresser local to me . I'm so nervous to try anything at all .. does anyone have any suggestions?? Thank you for all your posts everyone .. we have sunshine in London today - finally !! It's glorious weather which certainly helps me feel better but the guilt and pain I feel over this Brazilian is always there ..

May 19, 2017
Update
by: JP

My story sounds exactly like Lisa's. June 5th marks 3 years for me since my one and only BB. 2 weeks after - my hair starting shedding like crazy and hasn't stopped (I still can't believe it!). For those of you just starting this journey - know you won't go bald. As a matter of fact most people may never even notice that this is happening to you. My own husband can't see a difference, but I do. Like Lisa, my shedding has slowed - I'd say maybe half it was as it's worst, but still not normal, not close. I'm guessing a couple more years until that. But I do think my hair has stabilized - meaning it won't get any worse, only better. I'm still careful with my hair and don't go to the stylist very often. Although not completely recovered, I at least feel like I'm over the hump. These treatments should be outlawed.

May 16, 2017
Checking in
by: Lisa

Hi everyone. It's been a while since I posted so I wanted to check in. It's been almost 3 years of hairloss for me. For those who have seen my posts before, I have tried a lot of things to get it to stop: Expensive shampoos that promise hair growth, steroid injections (I agree gh - Ouch), PRP (double - ouch - it's super expensive and also hurts), vitamins, oils, creams, lasers, expensive dermatology visits, etc. I have literally spent over $5,000. 00 to just try to get my hair to stop falling out. I will admit that it's better now than it was in the beginning. I remember standing in the shower when this nightmare begin and handfuls of hair would come out each time I ran my hand through my hair. Now I am down to one handful (still a lot more than I shed prior to the Brazilian Blowout). I honestly don't think that any of the things I spent money on helped. I think that time helped some, but I still don't have near the amount of hair that I used to have. I am not bald, but my scalp definitely shows though now. I would give anything to have my thick frizzy hair back that I had before this awful treatment. The scalp pain had eased up a little and I think it's less itchy, but I have no noticeable regrowth. So the good news is, I don't think we will be bald (at one point I did). Keep posting girls. There were a lot of people who posted in 2010 and 2011 who are no longer posting. I wish I knew the outcome and if their hair ever went back to "normal". By the way, the texture of my hair is also crazy. It is really dry and unruly.

May 16, 2017
Checking in
by: gh

First, I have to clarify a statement I posted previously in regards to a shiny scalp. My original dermatologist told me that if I had scarring alopecia, my scalp would be shiny. However, I don’t believe that she meant a shiny scalp absolutely means you have scarring alopecia. It’s kinda like saying if you are nine months pregnant, you will have a big belly, but having a big belly doesn’t always mean you are nine months pregnant, as that can be caused by poor diet and little exercise. So if your scalp is shiny, it doesn’t necessarily mean you have scarring alopecia.

More importantly, I got some clarification on my own diagnosis. I found out the original report was for scarring alopecia, but the second report from UCSF diagnosed alopecia areata. Both are lymphocyte mediated, and the initial course of treatment for both can be steroid injections.

So I got my first round of injections yesterday. Ouch! The dermatologist only injected the parameter, which I did not agree with. She said the areas on top were more likely to be androgenetic hair loss, and I should keep using the Rogaine. Of course, we didn’t biopsy the center of my scalp, so how can we be sure. Even she admitted that my clinical presentation of alopecia areata (and/or scarring alopecia) was not typical. So now I feel like I might have to make my case for a wider area of injections.
Now I do agree with the dermatologist and pathologist that androgenetic hair loss may play a part, but it just doesn’t happen this quickly. I believe my hair loss is a synergy of autoimmunity and androgenetic activity, which turns out to be a double whammy.

So I recently had my estrogen level checked. I did this because I had stopped getting periods along with my hair loss. I also did this because what Parsley Girl said made a lot of sense to me. Pregnancy makes your estrogen go up, and your hair grows full and thick during pregnancy. Low estrogen, as in menopause, usually makes your hair start to thin. Of course, this usually occurs in your 50s or so.

So I talked to my PCP about this last week, and I asked to get my estrogen level checked. Of course, it was normal, but how normal is it really? The test has some ridiculous range of 10-400 (that’s a guestimate), and that all depends on where you are at in your cycle. Anyway, I was at 92, which is still within the normal range, but could it be higher? And if it were higher, would it help me with the androgenetic piece?

I don’t know for sure, and my doctor could not predict if an estrogen boost would help. Regardless, she said that I did not meet the requirements for an estrogen supplement, but she pointed out that Mirena provided no estrogen, while some birth control pills would give me a little bump. She prescribed a pill that is low on the androgen index and high in estrogen. She warned/educated me about possible side effects like tender boobs, and I decided to give it a three month trial. Just started it Sunday.

For the ladies like myself who have seen significant changes in their menstrual cycle since the BB, it may be worthwhile to have your estrogen level checked. Again, I really don’t know if the high estrogen birth control pill will work, but I’ll let you know.

In other news, I have read literature about a topical immunosuppressant called Tacrolimus ointment. I have the prescription strength, but I think it is also over the counter. I asked my dermatologist about this, and she said that it is only effective with scarring alopecia. She doesn’t think it will help with alopecia areata. Considering that I have two different opinions about my biopsy, I don’t see why it would hurt. I read online about people having various routines of alternating between Tacrolimus, topical steroids, and or Rogaine. It’s so freaking complicated, but if anyone finds the winning combination/routine please share.

(Tacrolimus ointment is used to treat the symptoms of eczema (atopic dermatitis; a skin disease that causes the skin to be dry and itchy and to sometimes develop red, scaly rashes) in patients who cannot use other medications for their condition or whose eczema has not responded to another medication.) Ask you dermatologist if you are still having scalp irritation.

Oh I almost forgot. I tried some natural remedies, but got a little scared. I wanted to try Calendula and Burdock teas, as I have read that they decrease inflammation. I couldn’t find the teas, so I got the little concentrated elixir bottle that is sold at my local health food store. It comes with a dropper, and on the first day, I added the full dose from the dropper from each bottle. I have to tell you, I felt a lot like I did when I took prednisone. I felt pretty great. It may have been more of a stimulant effect. Anyway, it didn’t last, because I felt like crap the next day.

With prednisone and other steroids, you start with a high does and taper off of it. The herbals seemed to have a similar effect as prednisone, but I didn’t taper, and I felt like crap the next day. Did I take too much, or would the tea have been better? I don’t know. If you are willing and want to experiment with Calendula, Burdock, or other natural supplements, I would recommend that you consult with someone who specializes in these types of herbal remedies. They do seem to have a positive effect, but you have to be cautious, especially if you are taking other prescription medication.

Maria, I was not familiar with the methionine, but you have definitely sparked my curiosity. Thanks for the info.

Andrea, I hope everything goes well with your biopsy. I can’t wait for the day that one of these big research institutions realizes and cares enough to devote more time to us. I see the commercials all the time about mesothelioma related to asbestos, which mostly effected white men. Hopefully, one day, they will be saying if you or someone you love has suffered hair loss or other illness after exposure to a BB keratin treatment, you may be entitled to compensation. Of course, no amount of money can fix the damage that has been done, but we need to keep raising awareness about this poison.

Happy belated birthday to Sam!!!

May 08, 2017
Happy birthday Sam
by: Andrea

🎈🎉Happy Birthday Sam!!!! I hope you have a blast on your Special day and all your wishes come true! you deserve it! I won't be there physically but I'll be there in spirit. ...... you are not the only one with the bad luck I can totally relate! it almost feels as if someone has cursed me. If is not one thing is the other but it's always something, I can't ever be in peace with myself. I was a little skeptical about getting a biopsy done but ever since I found out about g-hair's results I feel as so I have to. I guess I will just take the risk of something going wrong like it getting infected or my head getting deformed lol but I just can't afford to keep loosing more hair and there being a possibility it will never grow back. I have been waiting for more than a year for my hair to grow and nothing. I just need to find out once and for all what's going on. My appointment is next month at the university in San Francisco( thank-you g hair I'm taking your advice). My best wishes for everyone and may god bless every single one of you. I'll keep you guys updated.

May 08, 2017
Hanging in thet
by: Sam

Hi all, I've been busy with work I almost forgot what its like to have a full time job well g hair im sorry not responding sooner , yes and no to your question about a shiney scalp I would say its more on the pink side especially the sides and front hair line and white at the very top so I don't no what to say, now I never had a scalp biposy of fear of a huge cut on my scalp and how sensitive it is and with all my bad luck trust me when I say I would have a permitted sclap deformity caused by wrong use of equipment I just can't take a chance everything I do will come back to haunt me. And just wanted to add my voice did return but not the same and what I mean is its still very scratchy and comes and goes and no longer am I able to sing or hold a note this as caused me to relapse to a very dark depression and with all the side effects my poor body I feel like my body giving up on me now I said ill fight till the end but I really think it depends how much chemicals the hair stylist used and in my case I think my x hair stylist figured well he has so much hair im going to use the whole bottle of formaldehyde for get the .02 percent, and that's why im having it rougher than everyone think about it, at this moment im the only one so far whos voice has been effected and i have more symptoms to include but there no point to tell I did this to my self and now I have to pay the price I wanted frizzy free silky hair which I never was intended to have and believe me the price im paying I can say its definitely priceless. Take care everyone I have to take some time to plan my 35th birthday party some of my family and close friends convinced me to plan a new one as a way of coping with my deperssion they no how much I love to plan parties and since I lost the deposit of the original plans so begins a fresh start but I have till June 3 so lots to do make my outfit yup I do that lol center pieces and much more now I this dosent help or pertain to the hair loss subject but I just wanted to share with you all my big day of events and since everyones so far from me and can't make it because you no if I could I would fly you all to my party because what we all have been though and still going through a little fun and laughter of joy with friends can bring out the best of us because we are good people that did not deserve the way we lost our hair and for some there health so please everyone keep posting all the positive and negativity of your hair loss some of us need to see a post from time to time I no for me it gets me by even if its from oh I don't no Maria which im so happy to here your doing good and g hair I love to see and read your post I no life its hard and were just trying to survive and adjust with our new way of life because its our reality now hair loss pain itchy scalp and everything else that comes with a Brazilian blowout that for sure was a unexpected surprise god bless you all my friends take care ill leave with a prayer, my beloved father from the Heavenly Kingdom above I am your servant from below your kingdom to remind you I serve you and you alone and ask nothing from you in return I only call your name to remind you that im your servant awaiting your command. Your son Sam

May 06, 2017
update
by: Maria

Hi all,
Here is a short update from me.
6 weeks ago, as I posted here, I was told by trichologist, my scalp is full of sebum. She has given me ridiculosly expensive shampoo, conditioner and some liquid in ampules. I was very sceptical and came home feeling ripped off. But I must say, within first week, I noticed way less shedding. I didn't want to write on here straight away because I've been already better a year ago and it relapsed to worse later.
I also cut minoxidil use to once a day from originally twice a day. Other than that, I added to pile of vitamins I take every day also Methiatonin instead of biotin.
Well, now 6 weeks later, I can confirm, my loss went down to probably 1/4 of what it was. Mind you, I was loosing really a lot, about 400 per wash if I washed every 2 days, about 200 when washing every day. Believe me, I counted them! I wash only every 2 days now and I would say I lose 50-100 max. I can still see I lose more than normal but compare to nightmare before, this is great. Also because my hair and scalp is less greasy, my hair looks fuller and you cannot see bald patches. I don't care if it's frizzy, trust me, I am past that point after 2 years of this hell already. Overall, it's a big progress. My scalp no longer hurts, neither it is itchy and get this, I can wear pony tail without pain for the first time in 2 years.
So my logic says, definitely grease glands were afected by chemicals and they overproduced sebum which "choked" my hair. Maybe overuse of minoxidil wasn't good either but I use it for 20 years so I won't go off completely. It definitely works for me. I see hair growing all over my head now. On my forhead is almost fringe of 1 inch hair. But minoxidil always made my hair grow, unfortunately it was falling out at such a rapid rate, that what grew, fell out.Prior to ruining my hair, I was using it once a day only and went to twice a day when trying to stop the shedding.
Anyhow, that's my positive news. I see the light at the end of the tunel now.
We definitely don't have all the same thing/reaction. I don't have any symptoms like Sam or Andrea. The only thing is, I went also through autoimune reaction and it was connected to my thyroid. It seems to be improving for the past 6 month. I have endocrinologist check ups every 6 month. I don't know if it had anything to do with all this. I was very tired and slept any time, anywhere.
And one last thing, just because your scalp is shining, it doesn't mean you lost your hair permanently. I lost my hair from medication 7 years ago. My scalp was like mirror. It all grew back within a year. Just saying...
Good luck all.M

May 02, 2017
My treatment options
by: Gh

So here are my treatment options to discuss with my dermatologist:

"Treatment of the lymphocytic group of cicatricial alopecias (including lichen planopilaris, frontal fibrosing alopecia, central centrifugal cicatricial alopecia, pseudopelade (Brocq), chronic cutaneous lupus erythematosus, and keratosis follicularis spinulosa decalvans)
involves use of anti-inflammatory medications. The goal of treatment is to decrease or eliminate the lymphocytic cells that are attacking and destroying the hair follicle. Oral medications may include hydroxychloroquine, doxycycline, mycophenolate mofetil, pioglitazone, cyclosporine, or corticosteroids. Topical medications may include corticosteroids, topical tacrolimus, Derma-Smoothe/FS scalp oil; triamcinolone acetonide (a corticosteroid) may be injected into inflamed, symptomatic areas of the scalp."

I'll be seeing two dermatologists within the next week to get two treatment perspectives. We'll see how it goes.


Apr 30, 2017
To Sam
by: GH

Hi Sam. I haven't noticed any peach fuzz at the scalp. My hair strands have become thinner and frizzy. I can see more scalp between strands. The hair color remains the same.

It has now been nine months since my BB so my clinical presentation may be different from yours. Sorry I don't have a better answer.

The average person, doesn't always recognize my hair loss until I point it out or they look at the nape of my neck. Sure, the front of my hair receded rapidly in the months after the BB, but I style it in a way to hide the loss.

The nape of my neck looks like the barber sneezed while he was cutting my hair. Very thin baby hairs have grown into that area, but it still looks like a bald patch from a distance.

Do you have a shiny scalp? Has your dermatologist ever pointed out any scarring? Refresh my memory, did you ever have biopsy?

I don't wish autoimmune disease on anyone, but I do hope that people get treated appropriately and effectively for whatever is causing their hair loss.

For me, I already know I have autoimmune activity. Whether it is only scarring alopecia and interstitial cystitis or lupus or sjogrens, the treatment is the same. For oral medication, the first drug would be Plaquenil; second choice is Cyclosporine.

The timing of the medical intervention is very important. If anyone is concerned about having scarring alopecia, don't sit wait and see if it grows back. If ointment, creams, rogaine, and/or injections aren't working, or if you don't want to take the chance on wasting time, go to a reputable institution and get a biopsy of the affected area; give two specimens. They will look at it from several angles/layers. My specimen was sent to the University of California, San Francisco.

Apr 29, 2017
To g hair
by: Sam

Hey g hair I have a question do you have any like peach fuzz hair in your front hair line were you lost hair I started to notice on me lots of little peach fuzz like little preaks of hair coming in some are strong in color like real black and some are still light but signs of good color now I don't no if that's a good sign or im just hoping and i as well have scaring alopecia, now one more thing my sides are coming in good now I mean growing small and thinner but growing and I no its my stress levels if im calm it grows but when I get mad and yell it falls out so I just don't no im praying its not scarring alopecia but then again I hAve so many miniaturizing hairs only in my hair line but when the hair slowly dispearring so well I guess im asking what is your hair like in the hair line if you don't mind sharrring with me or us lol im just trying to not go in a panic mode thanks Sam

Apr 29, 2017
Update/response
by: GH

I know everyone's experience is unique, but based on my experience and the experience of several regular contributors to this website, I have to disagree with the last writer, Maubx.

Deb, my dermatologist suggested steroid injections, but we will discuss it more at my next appointment. I am not sure if that is the best option for me because I don't have lesions of baldness. While my hair is thinner is some areas, overall my thinning is more diffuse, and it sounds like it would be a lot of injections. So I want to explore oral medication like Plaquenil or Cyclobenzaprine.

Again, I was diagnosed with the early stages of lymphocyte mediated scarring alopecia. This should have been caught a long time ago by biopsy. It requires an intervention from a medical doctor to regulate an overreactive immune system. Without an intervention, I will likely lose all of my hair with a slim chance for regrowth.

Sandra, I don't really bring up formaldehyde anymore, because many doctors just don't have a clue and aren't going to take the time to educate themselves. For example, one provider told me that formaldehyde does not cause cancer. I guess he thinks he knows more than the FDA and CDC. Anyway, they get sidetracked with the formaldehyde argument, so for now I am just pushing for treatment.

I am literally racing against the clock to get treatment. All the research shows that an early intervention is the only way to save existing hair and protect follicles from debilitating scar tissue.

Ideally every single one of us should have had a biopsy of the affected area analyzed at an institution that specializes in hair loss. Maybe the results would have been different for each of us, but at least we would have had a fighting chance.

One of my dermatologists manages hair loss, and I went to her because of her credentials. Even though she could have kept my specimen in-house, thankfully, she thought it would be a good idea to send to the people who she believes to be the experts in the field. I don't know what my outcome or diagnosis would have been if it weren't for that doctor.

I'm telling you, it is so easy for someone with hair to say, "you'll be fine; it'll grow back; decrease your stress." The fact of the matter is that even with decreasing my stress, eating right, using Rogaine and taking vitamins, I would most likely still lose all of my hair due to scarring alopecia.

I remember my first dermatologist saying that if I had scarring, my scalp would be shiny. Well now I am starting to see that shininess through the thinning hairs at my hairline.

There has been a lot of time wasted. I want to get treatment and get my life back on track. I want to not think about my hair and try to make my life more meaningful. My son says that I should go back to school to become a nurse practitioner. I am thinking about it.

Oh. I almost forgot. Sam, I believe the EBV, like many other viruses can be dormant within you for a long time. When the circumstances are right, it will make you really sick. So you may have had it before, but you were healthy enough back then to keep it in-check.

It's kind of like shingles or herpes. Your altered immune system may have created the ideal circumstances for EBV to cause trouble. Also, it is important to know that EBV, like some other viruses such as HPV, have been linked to certain cancers. So it is important to share this medical history with any doctors you see in the future just so they know to look out for it.

Lastly, by salivary gland biopsy is back, and it made no sense to me or other physicians that I have spoken to. I am going to reach out to a few friends to see if I can get ahold of the pathologist for clarification.

In her comments she wrote that there were no "overt" signs of Sjogrens. Well, what the f*ck does that mean? Even my scalp biopsy said that the evidence was "subtle" due to me being in the early stages. To me non-overt is the same as subtle; meaning not blatantly/tremendously obvious. These words really matter, so I will try to get clarification on that.

Apr 29, 2017
THE SAME TREATMENT WITH GELATIN
by: Maubx

PEOPLE! I DID THE SAME PROTEIN HAIR TREATMENT AT HOME! WITH GELATIN! This can't be formaldehyde!!! This must be animal collagen/keratin! I added a spoon of warm gelatin to my mask and let it sit for about 20 minutes. Now it's been 7 moths after this and lot of hairloss (about 150 when washing) and hair thinning. This is strong allergen in big doses and doctors don't know or don't inform us about this...I tried borax because i think that I have sebborheic dermatitis caused by fungus! Mistake! This looks like fungus infection but it's not! There is another site about this problem called' Eczema-Like Psoriasiform Skin Reaction due to Brazilian Keratin Treatment' look:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4857850/

This is just CONTACT DERMATITIS and we can't do nothing but wait! And don't cry because we will get our hair like before but by time! I'am 16 years old and I'm from Poland. It happened to me when I started my new school, new people and it was kind of depressive thing at first but now I don't care about it! I will try another methods to relieve my chemical burned scalp but if they won't work I will try wigs :'') Yeah, a few years of life with wig. People always remember! You are not your hair!


Apr 28, 2017
To Andrea hi every one
by: Parsley girl

Andrea I have the same problem with blood circulation I mention that a long time ago and for that I use something call Circuvite is natural stuff and it moves your blood I was taking 3 pills a day and that works for me also I want to mention omega 3, CoQ10 and amino acids, I can't remember them all rite now but I will do more reaserch on what we can do to boost our body's back to health Andrea this doctor has a group call the depression group and is all natural stuff he also has a radio show that you can lisent to online on his web page people call him and tell them their simthoms and he tells them what to do and how they can help their body. I know we can do something to heal our body's since moust of the doctors out there don't have knowledge of the side effects of this BB they don't know exactly what to prescribe some steroids work for a little wile but we can't take them for ever well I will keep searching for more info about stuff that boost our immune system Sam, Andrea, Sandra and every one here I wish you the best and that we can get better take care be strong stay positive I love you all and Sam you made me cry with your words please stay strong every one and thanks for sharing a little bit of you in this blog we are not alone we can relate to one another God Bless you all.❤️

Apr 27, 2017
Thanks everyone
by: Sam

Sandra coincidence I think not, I meaning myself strongly believe my epstein barr virus diagnosis is from or one of many side effects from the chemicals from the Brazilian treatment now right after the trearmeant 3 months I got real sick fever and just everything you talked about that your daughter went through then I got better but did it ok it never went away I have episode of this like every once a month and it can last for weeks and weeks but it went away ok here is why im confuse when the doctor did my testing I wasn't feeling sick or any symptoms but I have a high white blood count as well to this day, and it makes no sense Im not near children don't have any I never go to the stores any more I send my helper once every two weeks and if I go any were its to work and back and if I back track the last time I kissed any one oh lets see 2008 I think I just got a new car and i was so happy lol no more details lol ok so im convince the Brazilian is making me very sick Sandra did your daughter hair or scalp itch her mine is unbareable I no were all connected some way or the other it just has to be im very convince now after reading your post and thank you so much Sandra for sharing I no this happen to your daughter and I no she's a strong one for not opening up to you its very hard to believe me as a victium and living this I don't like no one to see me so I understand your daughter and I hope she's doing better I have herd it takes 7 years to fully recover and I bet you if she's gotten this far her hair will return to its former glory hAng in there and what I read from your post your a great mom🌹. Andrea hey i really wish we meet on different circumstances I can instantly tell we would have hit off lol I no what your going through I really do im like the boy version of y'all ladies if that's ok to say lol and Andrea just rember keep busy like today I started a full time job well really yesterday and wow what was I thinking lol but Its fun and remember I can't talk my voice is still gone but im a caregiver well some what lol I stay with this nice lady who can longer walk but me and her are everywhere lol im telling you this because maybe you can find a health care agency and work with private not not home health but like a sitter that's what I do just keep busy and you can get out do like parttime I say this because you just work with one person and you don't have to work with a lot of people until your ready well Andrea you don't have to listen to crazy Sam lol im just wanting to help a friend out lol well take care, and I didn't forget you parsley girl im going to look it to all the things you suggested if its all natural count me in we have all suffered haven't we and I refuse to give up till it takes me down parsley girl thanks, g hair thank you too, deb, anonymous, If I Could Turn Back Time, everyone thank you so much for posting and responding you have no idea what it means for me and if I had the power I would return everyones hair back to them no one deserve to go through what we have especially being a man made chemical thats brought harm to our bodies and not a natural cause of illnesses. My prayer, god you alone have me I surrender to you love me guide me show me the path to your heart with the healing of your thoughts im already healed your son Sam .

Apr 27, 2017
Thank you
by: Sandra

Thank you GH for getting back to us. I was waiting anxiously for the results ! Does the doctor acknowledge that one exposure to formaldehyde can cause these symptoms?

Sam, my daughter also had the Epstein Barr virus (glandular fever) three months after the Brazilian . We could not work out where she had caught it , she was 16 years old at the time. She had a very bad case of it, the doctor said that her white blood count was through the roof. Maybe this was to do with the Brazilian .. At the time, I didn't connect he two but it was a really horrible time for me . She was lying there all day, unable to swallow, in huge amount of pain and every time she got up from her bed I was removing about 8 strands of hair from her pillow.

It's been almost three years now since the Brazilian and my daughter won't discuss any symptoms she has had, won't allow me to look at her scalp or her hair. All I can tell you is what I see from a distance . The first year, hair poured out of her head and she was bald on top. Excessive hair loss stopped after nine months and the top filled in but it filled in with fine fluffy hair (different to how it used to be) .. now after three years although hair isn't falling like before and although there are no bald patches it is overall thinner and nothing like it was three years ago .. nothing .. It looks like she has thin hair - she doesn't - it used to be so so thick .. I keep monitoring as much as I can .. Thank you everyone for keeping us informed as much as you can .. especially GH , your medical training has been invaluable xxxxx

Apr 27, 2017
G-hair - now what?
by: Deb

Thank you so much for getting back to us with results - but ow what does the dr say is treatment - is there treatment ? It seems then that the keratin treatment triggered is to have an autoimmune disease of some sort. I had a feeling this is what it was bc of all the other signs we were experiencing .

Apr 27, 2017
Just venting
by: Andrea

Hello to all I wish I could say things are going good for me but I guess things just keep getting worst. I am loosing all my hope. This BB is truelly a nightmare coming true. My hair still falling my skin is dry my muscles are weak I am always sleepy. My memory is horrible I forget everything so fast. I have trouble concentrating my periods only last 2 days. For some reason I feel like for awhile now I don't get enough circulation in my legs. I cant remember when was the last time I felt like myself. I am always depressed. My self esteem has been robbed and I'm pretty sure I'll never get it back now.G-hair I was really excited when the Dr. told you there was a possibility you would eventually get all your hair back. It made me feel like yes!! Not everything is lost there's still a chance but now finding out the new biopsy results just make everything so complicated. It just makes me think I'll never get all my hair back and that kills me inside. I'm sure ppl say oh come on it's just hair! But not for me. Sam I hope that you feel better soon. I blame everything we are going through to the stupid BB!!! our immune system is so weak now and I agree with parseley girl I am sure that with a weaken immune system it is easier to catch a virus. Stay positive you'll get your voice back in no time. Don't forget you are not alone. Parseley girl I am going to give the colosum a try! Goodnight everyone.

Apr 27, 2017
Hi Sam and every one
by: Parsley girl here

Here I go again like a broken record try colostrum it has Immunoglobulin is something that heals the body from the inside out it helps your body get ride of toxins and it heals immunologicaly your body I'm not a doctor but I know that stuff works look it up please this stuff is natural and it will help you guys feel better. Sam that kissing stuff is viral and little kids can get that wen our body is weak we can get any virus even just by breathing on the bus or public playces other people around us are sick and we don't know that and that is mainly how we are getting sick now a days I'm not going to stop catering for a person by what a doctor say or likeing you we are all here because we have something in commun the BB so I just want every one here to be healthy again and happy please take care do reaserch on the stuff I'm talking about no doctor is going to recommend that because they don't know if you want check out Dr Rico Perez he has stuff that woks I don't what to sound like if I'm saleing something but give it a try first do reaserch take care every one. And please don't mind my English is not that good.

Apr 26, 2017
Not sure about this one
by: Sam

Ok today topic now before I start please understand were here to help one another and what im about to post here is concerning my health and sharing information to see if we can get some were to help save our health and right now im the kind of person that dose not like to be judge and i don't lie to sonething series to health related concerns so I ask to keep a open mind of this ok and pleases don't stop likeing me because when I tell you what the doctor said they found I was super (shocked) because well here was the finding, I tested positive for epstein barr virus or the kissing virus there is another word for it but I can't find to spell it right but im like ohhhh how in the world does one get that he smiled and said well one way just like its says kissing I laughed and laughed and said stop it I doubt Mr snuggles my teddy bear has that laughing and i can't talk loll !!!!!! Then he goes to say well hugging or any contact like if someone dosent wash there hands sharing food im like ummm noooo no way man dude!!!! Oh also through sexual contact im still noooo no way now im not trying to say im the virgin Mary here doc but please im a good Christian boy and I no my values and what im worth so stop trying to get information that isn't there he laughs at well lets just say this was one visit that i will never forget , ok enough of that ok so I said wouldn't I be like feeling sick or anything yes I should but im not I just have symptoms can't talk oh and I no longer feel like I mean you can scratch me real hard and I feel nothing and my eyes no longer produce natural tears and I can't cry no more im all dried up and I now no what yall ladies mean about your reproductive system changing on you and things like that well ladies the same effect can happen to men im living proff and I think ill never be able to produce kids im a very strong believer that the Brazilian blowout chemicals destroyed my male hormones and killed them off one by one and that's why im dried up all inside no circulation and no oxygen and that's why we see our hair shrink and shrink and now I have vision problems what the hell I no what most people will think that im a hypercondriac one that makes up illness that arnt there but I have to leave it to you the reader that there is something going on with theses Brazilian blow out men and woman are sick and facing many health challenges and were do you go for help our FDA has fallied us and government what do we need to do, I no they see Brazilian blowouts are banned in different countries what they think because its the USA it will be ok well its not !!!!!! Oh I wish I new how to work YouTube and Facebook to make my world wide boardcast ill make the Brazilian blowout company remember my bald face to see there products burned and shipped to Bermuda so they can get lost so no one will ever suffer again. Well that's all I got for now all I no this is more deeper for me than just loosing all my hair its personal now, I was fine before I had the Brazilian blowout three days later my hair is super fried and two weeks its falling out shedding non stop fastfoward a year im sick with all theses autoimmune disease with still hair loss can't feel can't talk now my eyes are in danger and possible vision loss because of the chronic dry eyes, and everything happening to me all at once well may the 26 marks the hair loss anniversary and its here to haunt me!!!!! And remind me of my mistake, but enough is enough. Sam

Apr 26, 2017
MUST READ
by: GH

So I have my biopsy results in front of me, and I am going to share the results and my opinions. The pathologist came to two conclusions:
1. Early changes in lymphocyte mediated scarring alopecia
2. Androgenetic alopecia

First (1.), this is the autoimmune activity that I had suspected and feared from the beginning. The pathologist described it as "subtle," but there is definitely some autoimmune activity. There is no other reason that I know of that can explain why lymphocyte white blood cells would be hanging out around my hair follicles.

Additionally, the pathologist noted "some early perifollicular concentric fibrosis." So even though several doctors told me that my hair would probably grow back, I think if I allow this to continue, the scarring/fibrosis will prevent it from ever growing back. I think the docs who were telling me it will grow back were feeding me a bunch of lies. Not only did they misguide me, but they were delaying/withholding what could have been a significant medical intervention.

Sure at first glance my scalp looks healthy, but what will it look like in a year or three years? Will I still have a healthy scalp and visible follicles or will I have scar tissue?

Second (2.), androgenetic alopecia is starting to make sense to me now, because like many of you, I have had changes in my menstruation. Light/lack of menstrual periods may be related to my estrogen levels. I believe low estrogen would contribute to the androgenetic alopecia.

Lymphocyte mediated alopecia plus androgenetic alopecia due to low female hormones may, on the surface, just look like androgenetic alopecia. Interestingly, the pathologist documented that he could not totally rule out telogen effluvium.

Basically, if you immune system is involved in your hair loss, this needs to be adressed. Androgenetic alopecia -you might use Rogaine; Telogen effluvium -you might wait/see or use some other prescribed treatment; If lymphocyte mediated alopecia is a factor on top of either of the other two, then you will probably lose your hair regardless unless you address the immune system issue.

Also pregnancy would probably make your hair grow back if you don't have permanent scarring. Pregnancy makes your estrogen levels go through the roof. I remember when I was pregnant years ago. I had the best hair and skin ever. Then after I had my baby it seemed like I was losing hair. I guess for the same reason, it may be worth exploring estrogen replacement.

The main thing that I hope all of you get from this is that four different dermatologists and other doctors told me that my hair loss was not related to autoimmune disease; all of the blood work showed no autoimmune disease; then finally, the biopsy of the effected area showed that I have AUTOIMMUNE related hair loss.

Apr 23, 2017
To g hair & deb
by: Sam

G hair thank you and I new what you meant lol about the wine all though not a bad idea lol well I have not seen a ear nose doctor yet but I will now and my dentist well I haven't really thought of it until now, my voice is still gone I can whisper and sometimes my voice comes in its like my vocal cords are been effected by the poison in my body and let me tell you dry mouth wow!!!!! Im tired of drinking water well I drink so much and the more I drink the more dryer my mouth gets I wake up during the night. choking and can't breath because I can't swallow its that dry so im thinking my lost voice is connected to the dry mouth im not sure but its pretty dam scary if I say . thanks again for your advice but I think I need to go to another country like Finland were they don't turn you down for not having insurance and like here you have to come up with deposits in the thousands which I would gladly pay if they can cure me but its the same crap go see your family doctor and im like what did I pay a thousands dollar's for well 250.00 of that is just to warm your blanket in the dryer so what does that tell you. Deb its good to here your hair is doing good and the highlights I think im going to take a chance and try it what else do I have to lose just more hair , right well ill try to make this post short since I've been under the weather im just not myself any more well I have a lot to say but ill leave it for another day I just wanted to say thanks to you all who have respond to me and one more thing g hair ill fight this battle till my very last breath Sam .

Apr 22, 2017
Hi Deb
by: Anonymousparsley girl

The box on the outside is white with red and blue lines the vial inside is brown check on other websites because is not 75 dollars I din't pay that much for it I don't know wy they jack the price like that I live in jersey city and believe me is not that expensive Amazon has 12 vials for 53 dollars but that still to much the shampoo and conditioner are like 7 dollars and change check on beuty supply's and pharmacies don't buy it at that price that is robbery, that stuff works and is gentle on the scalp but look for it in different websites some people just want to Robb the last time I purchase it it was like 22 dollars and change for 12 vials in down town well wish every one the best of luck oh one thing I want to mention that there is something call Colostrum that helps your body with immunoglobulin look it up tha stuff works in your body like magick and I have proof of it with blood work done to me like after I gave birth a long time ago they were amaze of how my blood was after giving birth if you want to know were to find the one I use is at dr. Rico Perez .com I been using that since 2003 maybe that is wy I don't see non of those simthoms that you guys describe and I'm 38 years old inform yourself a guys not everything is quimical medicine try natural stuff I just wish every one hear to be healthy is bad that we are dealing with hair loss but all this other stuff I think is way too much do as much reaserch as you can on how to help your body heal from the inside and I'm sure you guys are going to get better oh the colostrum is like 17 or 18 dollars a bottle for 60 pills I drink 2 per day since I take prenatal vitamins too well take care every one...shrank

Apr 22, 2017
Oh wow!
by: Deb

Wow GH it seems crazy that a hair treatment can do this to us right!?! It's unbelievable but it truly has affected my body also - with the uti , dry skin, thinner nails, less hair on body, (I have eyebrows but I don't get them waxed anymore bc they are thinner as well as all over body hair is thinner too) also my brain feels foggy from time to time - like I can't remember things that clearly - it's such a pain! I also feel like I sweat much less than I used to . I have always had anxiety but don't take anything but I would sweat profusely in certain circumstances . Now I don't sweat that much. I even went into a sauna and it took sooo long before I broke a sweat which is not normal for me. I'm also finding it's hard for me to lose weight . I would go on a diet before and the weight would come off much faster - now it doesn't . I'm just staying at a certain weight and not moving . Still have a dry mouth from time to time also . Like my throats feels like it so dry to swallow. This whole thing is a scary but I also think maybe the treatment ignited an auto immune disease bc we are having the signs of one. Sam- my highlights actuallly look good . They have gotten lighter since I originally got it done and my hair seems a little on the reddish side but I'll take it - it's hair- it definately made me feel better with a Fresher look. I don't know if I'd recommend it. I'm not sure what your hair looks like but for me it gave it a kick- maybe get a few . I looked up the follicure and wow it's expensive ! $75? Am I choosing the right one parsley girl??

Apr 22, 2017
Sam & IICTBT
by: GH

First to Sam, I must apologize for my last post. My message did not come across clearly, because I was tired and dictating my message through my iPhone. I just glanced over my previous post, and I was mortified.

Obviously, I was not recommending that you have some wine to treat your inability to speak. I meant to say have someone assist you in contacting your doctor. Sorry for the miscommunication. I hope you feel better soon and get your voice back. We need your voice.

To IICTBT: No, I don't think my case is much different. I have the receding hair line; first dermatologist identified miniaturization when looking on the surface of my scalp with her special device. She also thought is classic female balding.

AA and many other autoimmune diseases are so tricky and deceitful, and I truly believe doctors tend to go with the easy/common diagnosis. Once they think they have the answer, they don't have any motivation to look any further.

I am unable to find the journal article, but I remember reading about how "diffuse" alopecia areata can easily be mistaken for androgenetic female balding. Dermatologist 3# is now acknowledging that there are exceptions to the rule. It is sad that more dermatologists aren't willing to explore the current literature and only want to acknowledge/diagnose classic textbook cases.

Are you still seeing the same dermatologist? When will you see her again?

For now I am waiting to see my new rheumatologist. Until then, my treatment plan is as follows.

Hair/scalp: wash every day with moisturizing shampoo; spray with leave-in conditioner; use rogaine at night

Eyes: steroid-free artificial tears 2-3 times per day; Ocusoft lid scrub nightly

Skin: Coconut oil & CeraVe SPF 50 sunscreen daily

Mouth: brushing 3 times per day; rinsing with Biotene mouthwash; drinking 3-4 liters of water daily

Overall aches/pain: Aleve 1-2 times per day

GI/tummy ache: Small meals; Tagament once daily; Tums 2-3 times per day; drinking lots of water and avoiding acid and caffeine

Supplements: Prenatal vitamin, Magnesium, Biotin, Fish Oil

It's a hectic regime, but it's what I have to do until I see my new rheumatologist. Geez, I sure hope I will be eliminating most of this stuff really soon.

Future plans: I plan to see a wholistic or functional medicine practitioner in the near future. I have heard that they are pretty good at coming up with lifestyle changes to manage these types of conditions.

I intend to increase my consumption of natural anti-inflammatories such as garlic, turmeric, etc. Tumeric seems to be the most natural and effect anti-inflammatories. There is a lot of research out there that supports its use in treating Lupus and Sjogrens. Don't just google it, go to Google-Scholar or search your school's journal database.

Last if there is anyone out there who is reading this and has Lupus, Sjogren's, or similar conditions and you are unable to work. You might want to consider applying for social security disability. It's not much, but it may help if you are unable to work due to severe physical or emotional reasons.

Apr 22, 2017
GH
by: IICTBT

Hi GH,
Sorry it took me a day to get back with you. I read your post yesterday, but did so quickly on a rushed lunch break. I have to say it made me feel good. I'm so glad that my experience was able to help you. I wish I would have discussed with the derm exactly where he would be taking my specimen from. It just didn't occur to me that he would take it from anywhere but where the loss/the problem was. It still upsets me.

I'm perplexed with the AA diagnosis. I get that it's not a typical case, but I didn't realize that AA could be associated with miniaturization? Receding hair line? Or maybe your case is a little different than mine? The cases I've seen with AA usually have patches of hair loss. My friend's son has AA and they use SQUARIC ACID on his bald spots and the hair comes back in very nicely. I have no doubt that the formaldehyde exposure can trigger autoimmune disease though and I certainly wish that was my diagnosis. I feel with that diagnosis there is HOPE. If your follicle is still alive, maybe the squaric acid will work for you too.
I feel my situation more resembles the scarring alopecia, autoimmune disease called frontal fibrosis. I've lost a lot of my frontal hair line and at the nape of my neck. I can still scratch in those areas and have several small hairs left on my finger after.
That or my reproductive system was destroyed and created a premature female pattern baldness.....I do wish we could exchange pics, email addresses, become Facebook friends, something to get to communicate more.

Apr 22, 2017
Sam
by: Gh

Sam,

Have you seen an ear, nose, & throat specialists and you dentist lately? Dentist or oral surgeon. I know Sjogrens can cause extreme dry-mouth, tooth decay, and other problems. There are tons of info online on how to mags this

I'm not sure why you can't talk, but I hope you get your voice back soon. Regardless, you should have some wine call your doctor to discuss Your symptoms and/or schedule an appointment.

Apr 22, 2017
Sam
by: GH

I know it must be difficult. For you have been fighting this battle longer than many of us. I hope you don't give up. There are new medications on the horizon. Also you just started some new medication and I am hoping you have positive results.

As for autoimmune diseases, they can be primary or secondary and often overlap. For example alopecia areata is often a secondary condition related to a primary condition like lupus or Sjogrens.

Sjogrens may be primary, or it can be secondary to something like lupus. No matter if lupus or Sjogrens are primary or secondary, the symptoms often overlap, and it may be hard to narrow it down to one specific autoimmune disease.

Regardless of the name, when multiple body systems/organs are involved, it is considered systemic. Systemic disease is no longer means that the reactivity of your immune system is no isolated to the hair/scalp. That is why the bigger/broader/ underlying autoimmune disease should be addressed immediately.

Most of the literature suggests an earlier intervention will yield better results. Still there are several new medications be researched. I have to believe that there is cure in the future.

Apr 21, 2017
Oh no!!!!
by: Sam

Oh no!!!!! Everyone now I know I have the worst case here. I haven't been able to speak since Sunday has any one experience this im so terrified ill never speak again im like come on now my tummy hair gone which I had the perfect amount of now it looks like I shave it, and now this my voice , stupid Brazilian blow out you ruined me me!!!!!!!! Why ?????? Im so miserable and i have to Waite 7 years to see my future I don't think so!!!! Im done with this crap like done I can never post something good sorry ladies im just really upset at my self I hate myself right so much Brazilian blowout what a joke! !!!and g hair thanks so much I no your comment was meant for some one else but im a little confuse on the autoimmune disease , I mean I was told already I have several autoimmune disease all at once and that's why my body is shutting down real fast and there is no cure I mean not one that can help me they say the doctors, theres no help and this about uti I think about the bladder , well how can you tell if you have that i mean because I go good and have not yet experience this uti I think its weird how this chemical plays to much and I do not have time to play. And watch as soon as I hit post with my luck im going to get my first uti ,,, geez why I asked lol well thanks again for all u do hello Andrea, and deb I think I keep asking you hows your highlighted hair coming along I ask because I want to bleach my very little I have some long pieces still on the top only im trying to see what I can do with it for next month im having a small gathering just me and my stuff animals jk lol well hope to here from you deb take care and if not no problem I no were all busy with coping and living life well bye everyone oh im still waiting on some more results.

Apr 21, 2017
IICTBT
by: GH

Hi,

I wanted to reach out you directly, because I know our symptoms were almost identical from day one. More so I wanted to thank you in helping me get answers.

Previously you posted that your biopsy specimen had been taken from an area of scalp that you believed was not a good site to take the biopsy. When my dermatologist took my specimen, I remembered what you had said.

My scalp looked healthy even though I was losing hair. My dermatologists looked for an area that was inflamed. Remembering what you wrote, I told my derm to take the specimen from two sites where I had been impacted the most with hair loss regardless of how healthy my scalp looked. The specimens were taken from my left temple and the nape of my neck. As I mentioned, the pathologist was able to conclude AA based on those specimens.

It just makes me wonder if the results would have been different if she had taken from an area where I was not losing hair. Would this have been a misleading test? I don't know, but I am certainly glad that others now see this is not regular female pattern balding.

As for you, I wouldn't expect you to be getting another biopsy, but I am glad to hear that you are continuing to pursue information, treatment, and options. Also, it is so remarkable to me that your story from day one is so similar to mine. From the initial reaction to all the other crazy symptoms that followed. This has gone far beyond our scalps/hair. I don't mean to push autoimmune disease, but I hope you are investigating these conditions as well.

Anyway, they say autoimmune disease is partly genetic, and that may be the case. Regardless of whether the potential for my immune system to go haywire was already there, BB was definitely the activator. BB was the igniter. All of the bad white blood cells may have been locked in a box, but BB unleashed them or turned them into crazy zombie cells. Now these zombie cells are destroying everything.

Apr 20, 2017
Juicy/good/sad Update
by: GH

Hey gang,

I have some news which may be good news depending on how you look at it.

Scalp biopsy came back. It was interpreted as Alopecia Areata, but the professionals stated that my balding/thinning pattern was not a textbook case. AA is not usually diffuse thinning, but I had previously read that AA can be deceiving and present itself as androgenetic thinning. I had made that same statement to my dermatologist who, at that time, seemed reluctant to do a biopsy. I am so glad I pushed for the biopsy. AA is an answer for me, but it is not the only answer. It is a piece of the puzzle. Of course, AA is an autoimmune disease, but it can also be a symptom of systemic autoimmune diseases like Lupus and Sjogren's.

I saw a urologist, and I know many people think of prostate cancer as a reason to see a urologist, but they actually diagnose and treat all kinds of urinary issues in men and women. Of course, I don't have a prostate, but I have had issues urinating. Anyway, after a very invasive and painful exam, he concluded that I probably Interstitial Cystitis (IC). IC is an autoimmune condition of the bladder, and like AA, it can appear alone or in conjunction with systemic autoimmune conditions.

With IC the moist/mucus layer of the bladder dries and/or disappears; and with that protective moisture layer missing, the walls of the bladder are exposed to all types of irritants that are found in the food and beverages that we consume everyday. The main point is if have dry scalp, dry skin, dry eyes, dry mouths, etc., you may also be experience a dry bladder. When I say dry bladder, I mean a bladder that no longer has it's protective moisture layer.

Your primary care doctor would probably assume IC is just a urinary tract infection. They will keep treating you for a UTI and educate you about hygiene and hydration. This is the exact reason why people go for years without really knowing the truth about their symptoms. It is the unfortunate truth.

The way I see it, if something started at my scalp and made its way to my bladder then it is definitely systemic, and everything in between may be affected.

I have also seen an ophthalmologist for my eyes. My eyes have been unusually dry. The doctor tried to tell me it was because of seasonal allergies, but I couldn't accept that. I have lived all over this country, and I have never had eye problems like this. I believe my eye problem is also autoimmune activity; also swollen glands, fatigue, mouth dryness, etc...

My original rheumatologist failed me. He only wanted to diagnose/treat based on blood tests. Well all of my blood tests have been normal. So he left me here to suffer with mysterious symptoms. He forced me to spend a whole lot of money and time cracking this case myself. He is a total asshole.

Still, I am getting answers, and I will soon be seeing a new rheumatologist. I am really hoping to get some systemic treatment, because it's not just about my hair. It's about my life.

Just so you all know. Your primary care doctor and dermatologist may be good people, but they may also be wrong. If you are having any other abnormal symptoms along with your hair loss, you should discuss it with a specialist for that particular body system. So far I have seen a pulmonologist, two allergists, rheumatologist, hematologist/oncologist, dentist, oral surgeon (salivary gland biopsy pending), gynecologist, four dermatologists, urologist, and I have appointments pending with other specialists.

It really pisses me off, because the healthcare system has failed us, and some of you have suffered through this way too long. Honestly, if I wasn't a nurse, I wouldn't know which specialist to run to. If I didn't have a PPO insurance plan, I probably wouldn't be able to see some of the specialists or it would take a lot longer. And even with all of my resources, it has still been a challenge. I would encourage everyone to fight for their health.

The other news is I saw my forth dermatologist, and she has also confirmed that my follicles are still there, and there is no scarring. With the right treatment, from the inside out, all of my hair may potentially grow back. For now, I'm minimizing my sun exposure, and following the low acid IC diet.

Wishing the best for us all!!!

Apr 20, 2017
Breakage and Thinning HELP
by: Lyndsay

Hi everyone, first of all I want to explain what type of hair I had before telling my story. I am a Caucasian female with a fine hair texture. I have always liked to wear my hair straight but I have been having a lot of issues with breaking and split ends because of the flat iron... READ MORE

Apr 19, 2017
Hello every one
by: Parsley girl

You can buy it on Amazon, eBay, pharmacies and beauty supply the sell the shampoo and conditioner but I never got them I just use the liquid little bottles if you got long hair and bald spots is going to be hard to se the progress wen I cut my hair off I saw all my bald spots sow like with white plain skin no hair growth nothing it was scary and I have black thick hair after like a month of using Folicure I started to see little black dots on my bald spots then I knew that stuff was working but I did wash my head every day and apply it every day after washing it make sure you put it on the scalp not the hair or you are not going to see results and since the bottles ere sow small well I feel like a commercial from tv talking about that but it work for me and maybe it can work for some of you because I read here a lot of you going to the doctors and moust of your blood work comes out normal and since is not a lot of info about the bb some of the doctors don't blame it on the BB well I'm not a doctor but I know my hair and I know this happend after the BB good luck every one take care

Apr 18, 2017
Parsley Girl
by: Anonymous

Hello Parsley girl I was wondering where did you purchase the follicure treatment?

Apr 18, 2017
Formaldehyde
by: If I could turn back time

I truly feel that all of our pain boils down to one thing- Formaldehyde. I feel that those of us that are having hair loss were the unfortunate victims of stylists that were uneducated in the use of these chemicals. They used too much chemical, too much heat, and/or left it on our scalps for too long. The chemical burned our scalps and probably affected us internally as well. I think it would be wise for all of us to look into the possible side defects of formaldehyde exposure so that we know what to look for- mouth, nose, throat cancer, hormonal changes, etc. I worry that the affects may be far worse than just hair loss. And that it self has changed our quality of life drastically. I'm still trying to put pieces together for a possible lawsuit. It just seems challenging when we all had different products applied. Do we sue the FDA, BB, GK,etc? It's difficult to sue the individual stylist because there is little money in it for the lawyer, but that is more than likely who we should be blaming. The idiot with the scissors in her/his hands.

Apr 18, 2017
HI Deb
by: Parsley girl

Thank you for your wishes, no my scalp don't itch but I do have dandruff I control it with organic apple cider vinegar lemon juice baking soda I try to use natural stuff, no I don't have thinning on to or any part of my head at the moment but if any changes happend I will let you guys know I always talk about Folicure because it work for me is not expensive it don't smell you put it on your scalp and live it there is a liquid it tingles a little wen on scalp but it goes away really fast it doesn't burn it only cost like 20 dollars for 12 or 16 little bottles I don't remember exactly how many they were but give it a try it work for me I use it for about 8 months or sow well I hope every one can get their hai back and scalp back to normal just hang in there this has to get better as time goes by take care every one...

Apr 17, 2017
Some things that help...
by: Deb

I still have hair loss but definatley not as much as when I first got my keratin -- Aug 2015 -- it will be 2 years this coming August . I would lose so much hair 3 months after the keratin until about a year and a half later. Now my hair is thin on top and use powder to cover spots on top. I have some short hairs that have grown in that are thin and stick out but I'm not sure if it's new hair or breakage. I must say that I have always blow dried my hair but in the beginning I would every 5 days. Now it's every other day and straighten it bc it's frizzy and that gives it some shine. I also must say that some weeks are better than others. Sometimes I can actually run my fingers through my hair and nothing comes out which is a HUGE success. I think the key that helped me the most - was washing it more often , not being afraid to brush it when I got out of shower - and most of all-- DONT SCRATCH! That was the worst part and still is - but the least u scratch the better and less irritated it will be. Some advice is when u feel that awful itch come just give your head a little tap in the area and maybe a light rub but do not full on scratch it or your scalp will want more and more scratching . It is so hard but it will work. The blow drying may be helping her Sandra because as the stylist is brushing and blowing her hair her follicles are being stimulated . Parsley girl - congratulations on being pregnant - I remember when you spoke about getting married - that is wonderful news!! Just wondering - does your hair feel itchy ? I remember how brave you were to shave your head - do you have thinning on the top still? Wishing you all the BEST- I'm addicted to coming on here and checking - but every little bit of info that we can give that can help is wonderful -- also let us know how the follicure works ! I'm dying to know

Apr 15, 2017
Hi all
by: Parsley girl

Andrea I know how you feel and many of us started loosing hair just like you at a very fast pace and clumps of hair try to do the things you love the moust and don't think about your hair too much talking to God praying help me a lot and doing my natural remedies and Folicure help me a lot but it took 3 years for me I wore my hat everyday my wig wen need it we have to improvise in life. Sandra I'm very happy for you and your douther. Please every one here don't get depresse or sad this will pas be strong your hair is going to come back keep trying on remedies to se what works better for you take care all.....

Apr 15, 2017
Thought I had made progress
by: Anonymous

Hello everyone,

Sandra, that is great news to hear about your daughter. This is only my second time posting on here. I had my BB in Jan 2016 and immediately noticed hair loss. Which at times seems to stop then picks up again. I received A cell PRP back in late July. I believed it helped to a certain degree. My hair grew thicker but only on hair follicles that were still thriving. Now the hair loss has once again picked up. I don't know if getting A cell PRP will help with the hair loss at this point. I'm scared and I don't know what to do. Thanks everyone for all your feedback and letting everyone on here know what has worked. I'm on over the counter anti inflammatories. Can anyone tell me what helped with their itchy scalp. Also, I just ordered Folicure Shampoo. I'll post my feedback on a few weeks. Peace to all.

Apr 15, 2017
Update
by: Sandra

Firstly, a big thank you to all you lovely people that keep coming back here to write their research,suggestions,comments,updates. You make me laugh and you make me cry! As you all know,I'm sure by now, this did not happen to me. But please do not underestimate the pain that I'm in over this. If you're not parents yourselves , you all have parents and you will have an understanding of the mother/child attachment and how horrendous it is to watch someone that you love,suffer. My daughter has not shown any outward signs of pain over this, which makes it worse as I'm guessing she has suffered alone. I thought I'd update you as the news is good, not perfect as I'd like it to be, but better than it was and if I can give you all some hope then I'm happy as can be! You've all given me so much in terms of support.

So.. my first bit of advice to you all, ( especially those that have recently lost hair after a Brazilian hair straightening ) is to keep taking photos to document your hair loss as it is so hard to remember how your hair once was.. This was hard for me as my daughter's pain translated to anger towards me and she would not let me near her with a camera. I had to sneakily take photos, not for any other reason but that I wanted to see how things were progressing and as she wouldn't let me look at her hair I had to attempt to document it somehow. I recently found an old mobile phone with photos that I had taken almost three years ago. I was shocked at how bald she was, it is no wonder that the dermatologist diagnosed female hair baldness. The hair has grown back so much more than I had realised and finally (after almost three long years!) new hair is visibly sprouting from the top of her head. Now I'm not getting to excited as it could be more of the thin fluffy hair that has grown from there in the past but there is definitely progress in the right direction. The dermatologist did say that her follicles were miniaturised (which makes hair fine and fluffy)and I'm not sure if follicles can un-miniaturise themselves- anybody know??

My second bit of advice is to get blow dries .. a skilled hairdresser can make hair look so much thicker and can also look closely at the scalp and see if there is any regrowth before you notice it. I keep treating her to blow dries and she keeps telling me that it's ok and she doesn't need me to treat her. I tell her it's not for her - it's for me !! And I feel so much better when the hairdresser tells me that she sees more regrowth. I can also see that my daughter feels so much happier when her hair looks more silky smooth and and thicker than it usually does, even if it is just for a short while.

So things seem to be moving in the right direction. There is more regrowth than I have seen since this happened and I am praying that it continues. I thought I'd just mention that soon after the hair straightening, she developed Raynauds syndrome and had hay fever for the first time. At the time , as neither are serious conditions , I didn't give it a second thought that they could be related to the large dose or formaldehyde that she received when having her hair straightened but now I am beginning to think ... her hair remained straight for two years before the curl returned , which tells you how much chemical this product had ...

All the best to everyone for a lovely weekend and recovery from this real soon ... xxxxxx

Apr 11, 2017
Parsley girl
by: Andrea

I apologize parsley girl my mind is not all there i didn't mean to confuse your name. I don't doubt that a child means a lot of responsibility but I have been so depressed due to this whole mess that sometimes I feel like I need someone to care for other than myself. My hairloss has really turned my life upside down and I do not know how to cope with everything. I am back to taking antidepressants and I would seriously do anything to bring my hair back I try not to stress but how can if my hair just pours like water. I am glad to hear that you are recovering from this. I look forward for this nightmare to end one day. I guess only time will tell. My best wishes for you and your family!

Apr 10, 2017
To Andrea
by: Parsley girl here

Hi Andrea I'm not Deb but I will tell you that I used to have 9 bald spots on my head and they were not small I cut my hair off several times military style and wash my hair every day for like 2 years I got married with a wig a year later I'm pregnant with my 3rd child I'm not experiencing shedding due to the hormone the body produces wen pregnant like I said on my post I don't know if I'm going to start shedding as soon as I give birth but I will let you guys know but rite know I like the way my hair feels and looks and please don't get pregnant unless you really want a baby is a life time commitment and unless you ready don't do it just for hair ,be patience take care and don't think to much don't stress take care bye...

Apr 09, 2017
Sam & Deb
by: Andrea

Sam I am seriously trying to get myself together but it is so hard I am dying inside 😢😢😢why us huh!! I don't get it I ask GOD everyday and he doesn't seem to hear me all I want is to be the girl I was before I got the BB. why did someone had to brainwash me into getting this stupid poison she said it was going to add protein to my hair bulshit. I feel like a total moron I hate myself for trusting people when all they wanted was to make profit. I really hope that everything goes well for you Sam you deserve it although I don't know you personally you have a big heart and I really want for this misery to end soon for all of us . I don't know who to express my feelings I just want to scream and yell and let the whole world hear my pain.This sucks.

Deb I have a few questions is this your first child? Are you still experiencing hairloss? And also do you see more hair growth? I don't have children but I sure am considering having one. As selfish and bad as it sounds I need some peace in my life but most of all I need to stop seeing my hair fall.I am so tired of seeing my hair go down the drain there's no stop to it and it just saddens me so much.

Apr 08, 2017
Hi every one
by: Parsley girl here.

I'm posting here I think since by the end of 2014 wen my hair started falling out, I have to say that my hair is doing good is thick and no bald spots what help me a lot was Folicure and I notice that also my hair got thicker since I got pregnant I don't know what's going to happend wen I give birth but for now my hair looks good a lot strong and now is shoulder length well just wanted to let you guys know that not everything is lost with time and getting rid of the contaminated hair cleaning your blood and liver with tea like horse tail, parsley, dandelion can help it takes time natural remedies don't work like magick but they work is been 3 yeas for me I think maybe wen I give birth my hair I going to get weak because my body won't be producing so much of that hormone I will keep updating I wish every one the best and please don't give up don't get desperate God bless take care...

Apr 08, 2017
To andrea
by: Sam

Hey Andrea its me sam, hey yes and yes that's how mine started but try to relax and don't stress there was a point that I was so mad and yelling non stop and breaking things in my home and I think I made it worst and I no its hard but please try to be calm, does your scalp itch you and are you taking any thing, and as soon as my doctor tells me the results ill post some more details about the current state of my health, tomorrow I start a new diet and supplements that he wants me I should have already started it but like it was near the weekend and all im like oh noooo Saturdays are my fun !!!!!! Netfix and a whole bag of Reese's Pieces butter cups night so today is my last day of eating crappy food lol but I no a lot of people posted that eating healthy did nothing for there hair but im being optimistic I need to right more of anything my doctor said this herb diet should at least help my scalp heal if anything and help reduce the itching and that's my goal right now well hang in there friend god bless Sam 😀 and hi to everyone 😉

Apr 08, 2017
Has anyone seen any regrowth
by: Andrea

Has anyone seen any regrowth on their sides by their ears??? Mine is getting so thin and I am freaking out I can't believe how noticeable it is now I have been using rogaine I wonder if is making it worst.

Apr 06, 2017
Sam you are not alone!
by: Andrea

Ooooh no what do you mean your body is shutting down? Don't forget you are not alone though! In the other hand I am happy you found a doctor who cares nowadays these doctors just overpass our symptoms. Unless people walk in our shoes they don't understand or seem to care, for them it is so hard to believe that a treatment that was done so long ago can still be damaging or body and our peace of mind. I have hope things will get better for us soon I just hope is sooner than later because there is so much I can take. I'll keep praying for us. Keep us updated with the results of your tests. Big hug to you.

Apr 06, 2017
More sharing
by: Sam

Hey everyone Sam again back so soon lol first of all I wanted to correct something I posted last, Jack Frost lol I promise I don't look like a snow man lol Jack Skeleton is what I meant lol I love that movie by the way. Ok down to business Andrea glad to here from you but sad because your sad too but remember your not alone in the mental Institution you here that boy yelling my hair my hair !!!!!! Oh Mylanta my hair some one help me!!!!!! Well that's me and they keep me lock up in Texas !!!!! So im here if you need a friend 😉 we all are and about that book count me in, and ill make it a number one seller!!!!! America, were coming!!!!!! So im soooo in 😀 now my 2nd part of business I don't no if I should share this but this is me the person I I want yall to no is a strong guy but ladies I just cant handle it , I was told today that basicly my body is shutting down now get this I've been in the doctors office from 9 to 7 in the evening he got most results in but still waiting on 3 the most important ones but he even stated shame on all the other doctors who missed out on trying to help me but I feel positive now that he really wants to help me and its a new start new doctor and new rules. Well ill leave it as until I get the other 3 results in and ill give a update soon now I wanted to mention im on day 5 of know washing my hair OMG!!!!!!!! Some one post me some rope !!!!!!! The itch oh lord help me this itch is so intense never in my life and i have had poison ivy before one time I tried to escape from my room and a fell attempt to jump from my room balcony to the garage roof pleases lol feel right in to the poison ivy lol but survied that and I remember saying nothing can be worst than this words I ate from my mouth 17 years later ( BRAZILIAN BLOW OUT) nothing even compares to this 1 year night mare, you here me inventors, creators, owners, ceo, managers, hair stylist that don't no what there doing im Sam here me!!!!!!! I hate your Brazilian blow outs !!!!!!!!! I hate them !!!!!!! Andrea did you hear me scream!!! lol well that's all I have ladies and I yell on your behalf yell with me i hate Brazilian blowouts,!!!!! scream ladies if you hair loss is from any chemical treatment scream let it out scream!!!!!! If your scalp itches 24/7 let it out scream!!!!!! Don't be afraid to yell well I better go. Take care all Sam 😴

Apr 05, 2017
Ghair and Sam
by: Andrea

G hair the shot that I was given was toradol but what I don't understand is why my body feels heavy weak and shaky still after 1 week I keep thinking maybe they gave me something other than what they're telling me. I just know the syringe was thick full of yellow liquid. I only weight 108 pounds so maybe whatever they gave me was way to much for my body to handle and that's why I'm still feeling like this?? What do you think my chest feels heavy too and I feel like I have some type of anxiety. I know I don't even make sense but is hard to explain. I am seriously not myself. I was barely getting out of my depression and now these symptoms just have me going crazy again. I think for sure I'll end up in a mental institution. I am so tired of going to clinics and hospitals. I might as well live there since I'm always there. Sam I haven't went to the gym anymore so much for those 3 weeks of feeling good I'm back to feeling like crap.I really don't have the energy anymore I also started concentrating on my hair again on how ugly and thin it looks not to mention my hairline how it moved back so much.My whole nightmare started the day I got the Brazilian blowout I blame everything I go through to that. I used to be so healthy before and now I am so paranoid and obsessed in finding out if there's something wrong with me. I literally hate my life! Why us!!!! By the way your stories make me laugh every time. I love your sense of humor!! And omg tell me why I was thinking of going to Mexico too! Let me know how that goes for you. I say we all write a book and put our stories together to show the world how much misery a chemical reaction can bring to someone's life.

Apr 04, 2017
G hair and friends
by: Sam

Thanks g hair for looking into the medicine I listed in my previous post, im still not convinced its sedum buildup I have on my scalp well maybe it plays a part I say this because no where can I find related sedum of hair loss all over the body example arm hair leg hair and eyebrows and i no this may come out weird and well just weird but I now seem to be losing my nose hair which we all need some nose hair its there for a reason now no formaldehyde touch any where expect my scalp so im very sure this Brazilian blowout caused the problem excessive sebdum ummm?? That's my concern I here people on here well of course not actually here them but read that there treating for sebdum buildup but are those people losing body hair as well and if so how are they treating it im just so confused and right now I just want my scalp to stop itching I understand that its going to fall out the hair im making peace with it but why the constant itch its driving me crazy to the point that as of Sunday im no longer washing my hair at all and just praying that the itch will stop on its own im just tired of seeing the little bite of hair I have left disappear so yup no more washing for me my goal is to make it till may 25 its my birthday and I want a little bite of hair for that day my hair would have been past my neck by now I better not start being sad so we won't talk about that loll ok well this mystery hair loss sure has got the best of all of us knowing what I no now I should of took my chances traveling the Bermuda Triangle Expedition at sea that i passed up instead I settled on going bald Lucy me !!!!!!! my luck the ship im on dispears at sea so either way I would have been screwed lol !!!!!! Sorry to use that word but no other way to speak the truth well thanks again g hair and yes say no to white grout another mistake I have to live with. Im hoping to post something good after my doctors appointment tomorrow right now im not feeling well my body temperature keeps changing and a bad headaches well ill post soon hope everyone's ok, for deb hows your hair doing with the color and highlights , Andrea hang in there I read your post that's just what im saying our luck right well don't stop the gym ok wish I lived near you I could use a gym and gain some much needed muscles I've lost so much weight that my body looks like jack frost bones I tell you lol there I go again always comparing my looks oh well its for hhumorim just trying to make the best of a bad situation, well take care everyone. Sam

Apr 04, 2017
Sam
by: G-Hair

So I have heard of Stelara (ustekinumba). I know it is an immunosuppressant, and I have seen commercials for it, but I have not done a lot or research on it. What I can tell you is a lot of the medications that have been used to treat rheumatoid arthritis and some of the more common autoimmune disorders are now being tested to treat various types of alopecia and Sjogrens.

Scientists are just discovering how these medication can be useful in several autoimmune disorders. For example, Tofacitinib and ruxolitinib are FDA approved for treating rheumatoid arthritis, but it also causes hair regrowth in people with various types of alopecia.

While Stelara seems to be specific for plaque psoriasis and psoriatic arthritis, that doesn't mean that it won't help some of your other symptoms if they are also related to autoimmunity.

As for the Diflucan, it definitely works in treating yeast. I have mostly seen it used in treating vaginal yeast infections, but understandably yeast can grow in other areas.

With us ladies, yeast grow out of control when our number of natural bacteria decreases. Lets say the ration of yeast to bacteria is normally 50:50, if 25 of the bacteria go away, the yeast will try to raise its numbers to 75 resulting in a yeast infection.

Another example, if I take Cipro, an antibiotic for a urinary tract infection, there is a chance that some of my normal vaginal bacteria will be killed by the antibiotic. At this point the opportunistic yeast will start to increase in numbers resulting in a yeast infection. Because of this, some doctors will prescribe Diflucan with an antibiotic just in case the yeast start to overgrow.

So of course we have natural/good bacteria in and on our bodies. We have a ton in our gut. If the normal balance of power gets screwed up, it sets us up for problems. So if you know yeast is trying to take advantage of a situation, I would definitely want to intervene and Diflucan is one way of doing it. Additionally, there are a lot of pro-biotic treatments/remedies to increase your healthy bacteria.

By the way, I like your posts. I am so grateful that you are willing to share so much. It helps me in trying to figure this out.

Funny though, the greatest thing that I learned from you is not to get white grout. I'm in the middle of remodeling a kitchen, and I am so afraid of choosing things that I think will look cool and not realizing how much work it will create for me in the future. I don't need any extra work. It's bad enough I will be picking a lot of fruit out my yard. I have one lemon on my lemon tree right now, and it's still green, but I know I'll be making lemonade one day.

Apr 03, 2017
To g hair
by: Sam

Hey g hair Sam here I wanted to tell you I think you are on to something I no sometimes what I posted dosent seem to help any one but im secretly been doing my research in hope to come back and post a cure I guess its no secert no more , but I wanted to tell you i so much appreciate you and what your doing I no its getting costly but just to think that your giving people hope, I look forward to seeing your post I no I act real some what childish with things like im now bettle juice and now my latest saying is im Benjamin buttons lol I've been young and now speeding my way right to the nursing home of course the opposite of Benjamin buttons he was old and turn young, all thanks to this Brazilian blow out that came straight from hell to ruin peoples life's!!!!! I hope the owner or the inventor would read this so I can tell him how much there hair treatment is crap!!!!!! A joke a point less night mare and i hope Freddy cougar haunts them in there dreams and Edwards scissor hands chops off there hair and see how they like it ok im done being mad, Sam breath deep breaths, ok 123, 123, ok im calm ok now to my point lol I always do this don't sorry ladies I can sure talk and talk in this case post and post lol it wouldn't be a Sam original with out a story lol ok g hair back to topic for real ok I have been doing my research and i came across sjogrens syndrome, Lyme disease and uric acid crystals because of that white sandy ground stuff I get under my finger nail and the constant itch im sure its due to extra sebum but what I don't understand is why all the other hair loss scalp well naturally its that but eyebrows and body hair and well I think u said something about dry mounth me for sure I can't even swallow and I don't sleep much in fear ill choke to death😢 so we all have the same symptoms it seems and were in different states I still would like to no why just some are effect and others get them theses Brazilian blowout like there ain't no tomorrow I talked to one lady she's been getting blowouts for 8 years and im like 8 years wow!!!! No wonder your hair looks the way it does like crap these Brazilian blow outs don't do crap but makes your natural beautiful hair like a scary scare crow a hay of mess oh I had stated oh look a hair just fell on the screen that's nice oh I had said my crown had grew back lie!!!!!! It fell out like 2 days ago I don't get it , well g hair I wished I lived near you so I can go to your doctors here in Houston what a joke they look at me why doesn't he just die already really the look on there face when I tell them formaldehyde is killing me I can't get no help but very soon my next step is Mexico a friend told me that she was very sick and no one would help her and she went to Mexico and came home one year later alive and doing well she will give me the i formation later . now I no your good at reaserh can you look this medicine up only if you want to no biggie if u can't its called ustekinumba 45 mg or 90 mg injections and what do you think of diflucan for treating yeast bacteria I think it might be good in case our good skin bacteria is being wiped out by the bad invaders that the Brazilian blowout with high levels of formaldehyde have enter our bodies well keep up the good work and really you kind of are my inspiration to do research and coming this Wednesday I see a new doctor and i hope I can share some good news with you and everyone hi to all and take care. Sam

Apr 03, 2017
UTI- Just a thought
by: G-Hair

If anyone is having recurrent UTIs, maybe you should investigate this further.

Sjogrens Syndrome (SS) can cause symptoms that mimic a urinary tract infection. Some women who have Sjogren's syndrome might develop symptoms of a condition called painful bladder syndrome, also known as interstitial cystitis (IC). This condition causes symptoms similar to those of a urinary tract infection — urinary frequency, urgency and pain — without evidence of infection.

So when you complain of these symptoms, the doctor is going to think UTI! Unfortunately, there is a good chance that a small amount of white blood cells or bacteria may be detected in the urine when tests are completed for a UTI. This finding in the urine, no matter how small, may convince the doctor that UTI is the right diagnosis. Your doctor is not going to look for IC, and they will happily write prescriptions for antibiotic.


Apr 03, 2017
Andrea
by: G-Hair

OMG! OMG! Andrea, I am so sorry to hear that you had such a horrible experience. That shouldn't have happened. Ideally, the person giving the injection should have verified the right patient, medication, dose, time, and route. Also, I have not received Kenalog injections, but it is my understanding that the doctor usually administers this, not a nurse, and definitely not a technician. I am aware of Kenolog injections being given to scalp lesions, but I am not familiar with it being given in the buttocks. It sounds like the doctor's office has some serious safety issues, and it is very unfortunate that their failures have caused you harm. Again, I am very sorry. I hope that you are feeling better soon. Do you know the name of the medication they injected?

Yes, I am anxiously awaiting my results. Going to the doctor has become my new part-time job, except I lose money every time. I'm averaging $160 per week on co-pays.

Today I saw the pulmonologist, dentist, and optometrist. Tomorrow I will see the urologist for my urinary symptoms.

The good news is the young dentist (DDS) also pointed out that my symptoms sounded like Sjogrens syndrome (SS). She says an early diagnosis/treatment can greatly improve the long-term prognosis. She says doctors overlook SS all the time, and someone may suffer for a decade without a diagnosis. She said her husband and all of their doctor friends were recently discussing how dentists are so much better at identifying this condition.

It's kind of funny that my husband asks me why do I want to know that I have a disease so bad. Well I don't want a disease, but I obviously have something abnormal going on. I want answers and treatment for my symptoms. I guess the alternative to having a true medical condition would be that I am just plain crazy. I can not accept the latter because I know my symptoms are real. I know all of our symptoms are very real.

So next week I will meet with the dentist and oral surgeon for the biopsy. I figure it can't be any worse than getting a shot for any other dental procedure. To me, it's a small sacrifice. The waiting for results is the hard part.

Andrea, I know it may be hard, but I hope you are still able to get out and go to the gym. You were an inspiration to me when you shared your new motivation and ways of dealing with this. I have been trying hard to get more done around they house even though most days I feel like a ton of bricks. I'm planting a kumquat tree, lemon tree, and peach tree this week. It's my healthy alternative to being depressed. Or maybe I'll end up eating a lot of fresh peach cobbler.

Apr 03, 2017
Bad luck
by: Andrea

Hello just wanted to stop by and say hi! G-hair I am anxious to know the results from your biopsy. Ill keep praying hoping we can finally get some answers. I really need some peace In my life this has ruined my life I am back to square one feeling like total shit. I try to be positive but is so hard. Last Monday I went to my doctors office and he recommends the kenolog injection well long story short I ended up having a bad reaction let me tell you BAD! I am still experiencing weakness in my arms and legs. Well I go back 2 days later just so the doctor can pull up my chart and realize I was given the wrong injection!!!!!! Yes I was injected with pain medication aparently the medical assistant not a nurse not the doctor the medical assistant got confuse I am in the process of filing for a lawsuit. This is causing me more pain on top of everything else. When all I wanted was to get my hair back. I don't know if it's just really bad luck but I'm just pretty much done with this life idk how to keep going my hair doesn't stop falling my skin is so dry I forget so much now my memory is not good. My muscles ache due to the injection and I'm so depressed. My body feels heavy and jittery. I went to the ER and they found nothing wrong so now I'll probably be crippled just for trusting these incompetent so call doctors by the way the shot was given to me in my buttocks area.

Apr 03, 2017
Sjogrens
by: G-Hair

I may have gotten the Williams sisters mixed up, but regardless. It is still worth looking into this condition.

I realize that hair loss is not listed as a primary symptoms of Sjogrens, but the fact is that hair loss can occur with pretty much any type of autoimmune disorder.

Please check out the link below. It is worth reading. More importantly, if you haven't been to the dentist in a while, you should go. A dry mouth can actually contribute to tooth decay and tooth loss. A good dentist should be concerned about why your mouth is so dry, and you should push them to check for autoimmune activity.

Sadly, a of people may go to various specialist for their hair, but they may not get a dental exam every six months. Who knew that a dentist may be the one to solve the mystery.

If you have dry mouth like me, go to the dentist. Explain your dry mouth symptoms. I don't know if it is worth bringing up the formaldehyde exposure. I feel like that can just throw people off track. They get off track when they try to argue that formaldehyde is not that terrible. When they don't know about formaldehyde, they spend more time trying to discredit my beliefs about what formaldehyde did to me. So I don't think it's worth mentioning.

"The following ten points help to explain why "Sjögren’s neglect" persists in medicine. By understanding what is behind the problem, you can better advocate for yourself as a patient.

Sjögren’s is a complicated disease. It takes a high index of suspicion to recognize that scattered and mostly invisible symptoms may all be related. Most Sjögren’s patients experience the triad of pain, fatigue and dryness. While only the dryness can be measured, doctors must take patient reports of pain and fatigue seriously in order to see the bigger picture.
Sicca (dryness) symptoms are often overlooked in the primary care setting. Sicca is often the best clue to diagnosis. Yet many patients do not mention dryness to their providers, thinking it unimportant or unrelated to their other symptoms. Physicians and patients alike may not recognize that burning, gritty eyes or difficulty swallowing food without liquids are dryness symptoms.
Sjögren’s patients usually look well, even when they are quite ill. There are no blood tests that correlate with the severity of the disease. This makes it easy for providers to write off patients as complaining or malingering.
Misdiagnosis is common. Symptoms often overlap with more familiar conditions such as depression, fibromyalgia, hypothyroidism and irritable bowel syndrome. Menopause often unmasks Sjögren’s symptoms that have been brewing for years. While these conditions may co-occur with Sjögren’s, PCPs often fail to consider the possibility of Sjögren’s as the major culprit.
Delayed diagnosis. The typical Sjögren’s patient has a delay of nearly three years until diagnosis. True delays are even longer: many patients describe decades of symptoms before things got bad enough to seek diagnosis. Clearly this needs to change. PCPs need to be taught how to recognize Sjögren’s and take the first steps to diagnosis.
Diagnosis can be difficult. Better tests are needed. There is no one test or group of tests that diagnoses Sjögren’s early and accurately. Many patients who do not have Sjögren’s antibodies ("seronegative") are told they do not have Sjögren’s. Yet 30% of Sjögren’s patients are in this seronegative group. These patients typically experience even greater delays in diagnosis, because the confirming minor salivary gland biopsy is not always done, and it may take years to turn positive. Normal blood tests do not rule out Sjögren’s!
Patients with serious organ system complications are often misclassified as other autoimmune diseases. This happens largely due to the ongoing misperception of Sjögren’s as a mild disease. These patients may never get properly diagnosed, perpetuating the "Sjögren’s is mild" mythology.
Research neglect. Clinical studies of Sjögren’s lag far behind other connective tissue diseases. While this is changing, this lack of research keeps Sjögren’s under the radar of awareness as an important health issue.
Until 2016, no standard of care existed for Sjögren’s management. Doctors tend to be highly motivated to practice medicine within the standard of practice in their community. The recently published clinical practice guidelines (CPGs) will be a good first step in providing consistent treatment standards for rheumatologists, ophthalmologists and dentists.
Rheumatologists are not always up to date on Sjögren’s management. There are still some rheumatologists- the very specialists who treat Sjögren’s- who do not consider Sjögren’s to be serious enough to warrant treatment. There are too many present day stories of patients with debilitating fatigue and pain who are refused treatment because the rheumatologist told them that "their Sjögren’s was not bad enough." Hopefully the CPGs will provide incentive for these rheumatologists to treat Sjögren’s patients sooner. Most Sjögren’s experts with extensive clinical experience believe that treatment slows progression and prevents serious complications."

http://info.sjogrens.org/conquering-sjogrens/topic/treatment

Apr 03, 2017
Debi
by: G-Hair

Hi Debi,

I had the BB in 08/2016. I have not lost has much hair as some, but I am desperate for answers/resolution/treatment.

I know the product has caused some type of autoimmune activity, but it has not been pinpointed. My hair biopsy is still pending, and my dermatologist is not sure if it will tell us much.

I continue to do research, because the doctors don't seem to care and/or know. Tomorrow, I am going to the dentist to ask for a salivary gland biopsy to check for Sjogren's Syndrome, which has also been linked to formaldehyde exposure.

In Sjogren's syndrome, the immune system attacks the cells that provide moisture. So you have less tears and irritated eyes; less saliva and dry mouth; it can even affect vaginal moisture and other organs. Dryness of other parts of the body is not uncommon with this condition.

All of my other autoimmune tests have been negative. Sjogren's may have symptoms like lupus, but it may not always show up on the typical blood tests for lupus such as ANA or RF. I should also mention that your eye doctor can do a timed tear test, and a blood test to check for Sjogrens, but I don't think blood tests are that helpful in some of these situation.

I've read that Venus and Serena Williams have been diagnosed with this condition. Actually if you google "Serena Williams" and "hair loss" you will find that the paparazzi snapped a picture where her hair was displaced, and you can see a distinct bald spot in the top of her head.

I wonder if the Williams Sisters each used hair products that triggered their conditions. I didn't feel like digging deeper. However, if you search the internet for Brazilian blowout and/or keratin treatment and Sjogrens, you will find forums like this where people are talking about BBs, hair loss, and being diagnosed with Sjogrens.

I read that it can take 5-6 years before someone with Sjogrens is diagnosed. Is that because many of them are going to Medical Doctors (MDs), when they should be seeing the dentist or ophthalmalogist? None of my doctors have recommended that I get my saliva tested even though I have complained about all of the symptoms of Sjogrens.

Anyway, it appears that the Williams have had it for some time, but I bet they didn't have to wait 2, 4, or 6 years. They have gotten medical treatment and made lifestyle changes to make a full recovery or at least cope and come back to win again.

Some of you may recall a tiny scandal where it was revealed that one of them was on prescription steroids. Of course, some thought this may have given them an advantage, but it is my understanding that professional athletes can take steroids such as prednisone if it required for a medical condition.

So I'll keep pushing to feel better and preserve the the hair that I have left. I'll let you know if I find out anything new.

Apr 02, 2017
Yes
by: Debi

Yes i have a dry mouth and also sometimes it's hard to swallow. I also feel like my face is sooo dry. It doesn't seem to be producing oil and I used to have kind of oily skin. My brain feels foggy from time to time but it could be that i have a lot on my mind . G hair when did you get your done ?

Apr 02, 2017
Dry mouth
by: G-hair

Has anyone experienced excessive dry mouth since their BB? This is something that I have recently noticed. Just curious to know if it might be one of later side effects is a bad BB.

Mar 29, 2017
Hanging in there
by: G-hair

I might have some answers soon. Fingers crossed. I had two scalp biopsies two weeks ago. The results are in, but I missed the doctor's call. Anyway she left a message stating that she decided to send my specimen to UCSF for more thorough analysis.

I thought that was good news considering that my dermatologist has the capacity to analyze it her own office. I admire someone who can say "I am not sure. Let me ask someone else." I've had to beg other docs for tests and referrals. I was happy to hear that Dr. Fu initiated this process.
So my results may take longer. Hopefully it will be with the wait.

I will also be following up ENT tomorrow. The ear/nose/throat specialist ordered an MRI which I completed today. I think he was prompted to order the test because I told him that the fullness in my head/neck decreased with the Prednisone. I hope he has answers for me tomorrow.

Like many of you, I have had visual changes which have continued to worsen. I recently noticed the whites of my seem to look a little jelled. So I will be seeing the ophthalmologist this Thursday.

So many crazy symptoms, I should be pulling my hair out, but I don't have any hair to spare for that purpose. I feel like the formaldehyde has conspired with my immune system to commit crimes against my body, and they are setting up my mental health to take the blame.

I read an article that stated that the average person with autoimmune disease may go untreated for years. On average they see 6-10 specialists before being diagnosed. Autoimmune disease or not, I just need a resolution.

Mar 28, 2017
Hey guys !
by: Deb

Ok so I ended up going darker bc my hair was very blonde and had not professionally dyed it since the day before my keratin treatment. ( which could have also contributed to my mess ) I also had her put in highlights - just a few - my hair was past my bra strap in the back - I had been trimming my hair myself the past year and half bc it was so easy to grab that stringy mess and trim it . But as it got thinner and thinner I had to trim more and more - but still it was up to my bra strap b4 I just went to salon. I was paranoid - I kept asking her crazy questions - like does my hair look weird? Have you heard of this before ? Begging her to be gentle .. my heart was beating through my chest - she told me to relax and she dyed it and washed it and blow dried it - she washed my hair a few times and brushed it like Normal - which I have never done since I started my hair loss. I saw a lot of hair coming out more than normal but as she blowdried it - it kind of looked fuller - she cut about 2 1/2 inches - she insisted but I couldn't let her cut more than that. So it looked good and I even liked the darker color when I left . I kept grabbing my hair and running fingers through that night and nothing came out - I didn't even feel itchy or pain - I was so happy -- until -- I looked in the mirror at night with an over the head light shining on my part -- the contrast. One of the darker hair and my white scalp was scary. But the rest of my hair looked full- it's just the top really . Once I saw it - I felt the itch- I was so tempted to scratch and tried to resist but did - ugh / if I don't scratch it eventually stops - I have to try not to give in. So I took a claw clip to my bangs and kinda pulled it. A k softly and let the rest lay down . It does feel a bit healthier - not as dry - I used a dot of biosilk when my hair was wet. It helps with the shine . I don't let anything touch my scalp tho. So bascially I have the hair loss on my scalp part is wide and also have the receding hairline . I went to a tanning salon to try to get some color bc with the darker hair it Made me look pale. I also got tips put on my nails to help me feel good. If I could just keep what I have right now I'd be so happy . I just wish I could grow more on scalp and a bit of my hairline back. I can conceal the hair loss in the bAck of my head by playing around with it. I'm having a hard time losing weight tho - id like to lose 10 lbs if I could . When I got a pedicure my toe nails were so thin and actually hurt - I think this has to do with the keratin . I'm gonna take extra vitamins and hopefully We can figure out by trial and error what helps . Being able to just talk to you guys helps so much. Sometimes I feel just crazy!!!

Mar 28, 2017
Hey eveyone
by: Sam

Hi to everyone, Andrea what I read you said you were Mia and to be honest I said to my self oh no!!! She did it she went to a mental institution Asylum lol then I had to google it and laugh my self to death missing in action lol I think I like the mental thing better lol!!!! Im glad to here your doing ok and i use to go to the gym and eat healthy before this Brazilian took my life away !!!!!!! Now its Netflix and a bag of Reese's Pieces butter cups supersize addition!!!!!!! Delicious!!!!! Im so depress now and since I have no hair and eyebrows and look ridiculous I eat like a pig chips pizza hamburgers and chickflia oh I love drive thur now no one can really see me I now shop at midnight like for groceries which is the best hardly any one shopping its a adjustment but I learning to avoid people my home is my shelter from this cruel world I never new how much a Brazilian blow out can and does ruin life's and after I read Maria post and its ok Maria I rather here the truth then false hopes and please don't stop posting it lets me no my reality I guess some get lucky and recover but im heading in my 2nd year and i have no hair just very little on top so what does that say and if I wasn't loosing body hair and eyebrows I might have some hope but nope !!!!! No hope I have nothing but shame on my self for doing this blow out and its my punishment from the man above for messing or trying to fix something that he did not meant for me to have I only had to be kind to others and respect my body which I've done so since I was a boy I really loved life and everyone and all ways wanted to make the people around me happy and one mistake that i made for one freaken Brazilian blowout cost me my life. Now what I can't take is the itching the itching constant itching nothing I do takes the itchy painful scalp away nothing I do im like ok hair fall all out already the little I have left but just stop itching me , I can't live like this all the time itchy in the morning and itchy at noon itchy at dinner time itchy on the go and especially itchy at night oh how I want to take 20 sleeping pills so I don't have to wake up to you guessed it itchy!!!!!!!! Scalp lol Im out of options and I hope this post can some how get out to the people of the united states since we as a country still allow this poison and I can't believe people are still getting theses Brazilian blowsouts, listen out there people you will go bald !!!!!!!!!! Bald I tell you !!!!!! Bald !!!!!!! But if that's the look your going for ok continue to get your Brazilian blowout little crystal from church and Shelley who no who you are oh I just get so mad at this, I have more to say but I better stop before they kick me out lol but one more thing like always I no who I look like now ok remember I said I had prince Eric hair right and i was cursed by the evil stylist name envy ok and my cursed or spell she turn me into ok ready for this Beetlejuice!!!!!!!! That's my hair lol real dried out and bald on top and sides that's me !!!!! Oh no !!!!! Im Beetlejuice 😢😢 ok please share this to any one you no who still are getting Brazilian blowouts and even share to your hairstylist that this is no joke this treatment is the devil himself in a bottle. Well again better go sorry for my long messages, again Andrea glad your ok and to anonymous thanks for trying to give me hope and Maria all the best to you and let us no how your new hair treatment is working out for you i have wonder myself if its a fungis or yeast infeaction but I still can't understand if the formaldehyde in the Brazilian blowout caused it did it have micro organisms in the bottle I just don't no oh well and if I for got any one who help me in any way thanks so much to you all oh what happen to you deb I hope your hair came out so good that it stop falling out many blessing to you let us no im just dyeing to here from you well take care every one your friend Sam.

Mar 28, 2017
Andrea
by: G-hair

I agree with IICTBT. I have heard/read too many mixed reviews about Spironolactone. It was never on my list of treatments to explore. I am still questioning my diagnosis and the best treatment. And while steroids seem to work for several types of hair loss, spironolactone seems to be limited.

If I were you, I would ask my doctor how many of his/her patients have had successful regrowth with/without the Spironolactone and what are the risk versus benefits. That might help you decide.

I hope this helps. I'm looking forward to hearing about your regrowth.



Mar 28, 2017
Spironolactone
by: If I could turn back time

Spironolactone did not work for me. I just stopped taking it and my fall has decreased to a normal amount. I don't know if it prolonged my hair fall or not, but it definitely didn't help. My eyebrows also started thinning on Spironolactone. Everyone is different, but that's how it affected me. I wouldn't recommend it

Mar 27, 2017
G hair
by: Andrea

Ghair, thankyou for replying back. I forgot to mention that along with the kenalog injection the Doctor prescribed me spironolactone. This is all new to me I did my research and many people get spironolactone prescribed to treat female pattern hairloss and get no results. The problem with that is that my hairloss is not due to female pattern. Therefore I feel like I should just stick to my vitamins and avoid the spironolactone pills. Do you think is worth giving it a try as well? I should've talked to the doctor more throughly but I didn't and that was my mistake. I am so afraid I don't want to make the situation worst for myself. I have been feeling positive for a couple of weeks but i feel like these past two days I started concentrating on my hair again and I'm back to zero just feeling really hopeless.

Mar 27, 2017
Andrea
by: G-hair

Hi Andrea,

I think Kenalog is a good option. Kenalog is the injectable form of Triamcinolone. There is a lot of research out there that supports the effectiveness of Kenalog injections, but I have not tried it. I have only had the Triamcinolone ointment, and it helped with the symptoms on the surface of my scalp.

It sounds promising. If I were you, I would still take my vitamins (biotin, iron, D, etc.), use the foam Rogaine, and eat well. I think all of these things will be more effective and useful with the Kenalog injections, as they are rarely helpful alone.

Also, you might want to talk to your doctor about taking an H1 or H2 anti-histamine if you don't take one already. Some dermatologist have concluded that this can be helpful, but I don't know for sure. I just hope you get the most bang for your buck. Besides if you already have seasonal allergies, you might already be taking something like Allegra, Claritin, or Zyrtec.

I have high hopes. Good luck to you. Keep us posted.

Mar 27, 2017
Kenalog shot??
by: Andrea

Hello everyone I had a doctors appointment today to get some blood results back and everything looked good except I am low on vitamin D. The doctor suggested to get on a 3 month hair plan to stop the hairloss the shot is called kenalog. Has anyone here heard of that or has had this shot??? I am so worried it might worsen my condition but I still have it a try.

Mar 24, 2017
2 years now
by: Maria

Hi all.
I haven't posted for probably a year. The reason is, there was nothing positive to say and to pour oil on fire telling you all I am losing hair even more, was not something I wanted to do.
So here it is in a nutshell: Over the last year the hair fall was going from less to more, than less again, last summer it picked up drastically and after Christmas it just became ridiculous. I am currently loosing 400-600 hairs on wash days which is every second day. My hair is getting thinner by a min.
This March marks 2 years since this has started. I've tried everything. Steroids, minoxidil, all kinds of shampoos, remedies, natural, regular... you name it. All became way worse when we moved houses last August so I concentrated on the fact that water here is slightly softer, therefore soap is harder to wash out... who knows. I had even water tested in the lab.
I've seen I think 4 dermatologists, 3 hairdressers, GP, endocrinologist and trichologist, All useless and I am going from product to product.
I do feel the problem is in the scalp, not in the body.
Yesterday I had an appointment with different trichologist and she said my hair follicles are full of sebum. She said she can see my scalp is greasy, yet dehydrated.
She thinks the relaxer I had put in my hair irritated deeper layer of the skin and made sebum gland over-produce.
She suggested thoroughly cleaning my scalp (with their expensive products of course). She said that currently nutrients from inside and outside cannot penetrate because of the sebum and therefore cannot get to the hair root. She says the hair is starved and basically strangled by the sebum.
So while I kept pouring all kind of moisturising oils and conditioners on my head because I felt my scalp tight and itching, it was actually making things worse.The itch is yeast bacteria building up which is why it eases each time you wash and creeps back day or so later.
So step one, de-grease the scalp for 3-6 month. They will keep checking under the microscope every 6 weeks. More hair may fall out as many are held in place just by sebum.
Step 2, after scalp is definitely clean, nourish follicles to stimulate them to start growing new hair.
I start today with this so will let you know if I will see any progress.
Hope this helps to some of you. Don't give up.
First trichologist I saw told me there was nothing wrong with my scalp but he was checking the same day when I washed my hair. My current trichologist requested me to not wash my hair for 24 prior to check up.
My hair is so thin on top while year ago it was better already. If I lose any more as they predict after sebum is gone, I am ready for wig.
But at least I feel like I am trying my best to get out of this vicious circle.
Good luck everyone.M

Mar 24, 2017
Ghair & Sam
by: Andrea

To G hair sorry for the late reply, to answer your question yes this whole nightmare for me was a cosmetic issue since I lost so much of my hair. I have eyebrow loss as well and like I mentioned before I get hot flashes. The pattern of my hair loss is the same as yours neck, sides and receded hairline. My periods are normal other than me losing my hair I guess you can say I'm normal? Not really though this issue still has me going crazy never in my life I thought I would be going through this me loosing my hair was always my nightmare.

To Sam it's been awhile but I'm back I've been MIA I knoooow! I hope your doing good there is not a day I don't pray for us well everyone here. It's weird because you are right although I never met you in person I really consider you a friend and care for you as well. I can't wait till the day we can both say we got all of our hair back! I know that day will come let's just hope is less than 5 years.😩 I want to update you on what's new in my life.I signed up for the gym a couple of weeks ago and I have been going ever since. I feel like that has helped me to be more positive. I even stoped taking my antidepressants. My hairloss persist but is not consuming my every thought as it has been for the last couple of months crazy huh I can't believe it myself! But it's true! I try to avoid people and mirrors and what not but just me going to the gym and back home has made a difference in me mentally. I also started eating better something I wasn't doing before.I wish I could say I am 100 percent back to myself but that is not the case in order for that to happen I would have to go back in time to bad that's not possible huh.
My best wishes for everyone here and let's keep praying God is great he will give us our hair back!

Mar 22, 2017
Deb
by: G-hair

Deb,

How did it go at the salon? How do you feel? How did your hair turn out? I hope all is well.


Mar 22, 2017
My fall has seemingly stopped. It's scary to even say out loud
by: If I could turn back time

As of right now, my hair fall has stopped- 5.5 years post first Keratin treatment, approx 4 years since the loss became noticeable and started ruling my life. The fall seemed to stop over night. My bald spot right in the middle of my forehead still remains, but the hundreds of hairs that were falling a day, have stopped. I don't know if it had anything to do with anything except for time. Infact, I do worry that maybe my attempts at correcting the problem could of just made things worse. I feel our scalps were shocked, inflamed, irritated. Putting additional chemicals on the scalp during that time is just a big no, no. PRP is prob just a joke no matter why your hair is falling out. Rogaine works for some fringe and prob works great for those that actually have female pattern baldness. I feel Spironolactone can make things worse if it isn't female pattern baldness. I feel that using shampoos to help improve the condition of the scalp are a good thing for me now, but may have been too overwhelming during the acute phase of hair fall? I'm not sure, but I have been using Biolage cooling mint scalp sync and Tea Tree special shampoo by Paul Mitchell. When my hair suddenly stopped falling, these were the events surrounding it: I stopped using spironolactone (when I started using it I didn't notice an increase or decrease in hair fall), I started using those shampoos, I tried using Synthroid, but felt like I had a heart attack and stopped using after a week (talk about a shock to my system and I don't recommend unless you are truly hypothyroid- I am just on the lower side of normal so my doc thought we should try it), I continue to use viviscal hair vitamin, vitamin D and B, and I continue to dab Rogaine to my bald spot (I know, I just can't give it up! I just use a dab. I seriously have had the same can for 5 months now). I'm not sure if this post is helpful or not, but I wanted to share so hopefully people don't make the same mistakes I made. What if the shampoos finally claimed my scalp? It was probably just a time factor, but then there's that! It seems to get better for most people around 4-5 years after. At least, there is some light.

Mar 22, 2017
In salon right now ..
by: Deb

Ok so I'm sitting here with dye on my head - waiting - it burns a bit but she says my hair doesn't look that bad but she never saw my hair before this . She's telling me not to worry she has seen so much worse . She is calming me . I said I haven't sat in a salon chair since this nightmare. I'm so scared sitting here - I saw so much hair come out as she brushed but I'm trying to hold it together . I was hoping maybe I could come up with some kind of way for us to put pics up - maybe a website I can create or something . I am obsessed I mean really obsessed with picture taking of my head . I pray this was the right thing to do - I just need to feel pretty and i always did - I just feel so gross with the hair and the texture and color and just everything. I hope this makes me somewhat feel better . Ok so I'm half way in if it does get better. I mean I thought it was getting better until I saw her brush and all this hair fell out . I was gently brushing :( I'll let you know what happens -- soooo. Nervous right now I'm dying !!! Oh and ... omg UTIs !!!!??? Yes I never ever had them before but now I do too!! Has to be a connection!

Mar 22, 2017
Please help
by: Sandra

Hi Anonymous (that just wrote the last post ) please don't go away ! I need an answer as I'm feeling desperate, so desperate at the state of my daughter's hair. It's been almost three years and I can't stop crying. The guilt I feel is so painful, the fear of what her future might be. She was only 16 years old and the youngest person on this forum that has been affected. Her new hair growing is fine and fluffy and just awful. When you say that your hair is no longer translucent, do you mean that each strand was fine and flyaway but is no longer? I'm praying that is what you mean. I need some hope - I'm suffering so much to see my daughter go through this.

MH (May I think?) that lives in London? Would you be interested in meeting with me ? I don't mind which part of London, which time of day.. just a coffee in a coffee shop? It would offer me some comfort to be able to see if your hair is like my daughter's or just to discuss a way forward with someone that understands .. please consider ...

Good luck to everyone , thank you so much to those of you that investigate and research and keep posting your findings and your experiences.. it keeps me going .. xxx

Mar 22, 2017
To sam
by: Anonymous

I thought I was the worst case, really I did. I wasted years not leaving my house and just depressed. My friends and family had enough listening to me. I know you don't think that your hair will last but it will. The translucent hair strands do change texture back overtime. Nobody can tell that I lived this nightmare by looking at my hair. I could have filled large backyard leaf bags with amount of hair that fell! I now lose maybe 3 strands of hair a day. I constantly run my hands through and can't believe there is no strands. My hair that didn't grow for years is now growing in length as well. I have my life back and you will too. hair powder for the first couple of years helped not seeing my shining scalp. I used it everyday. I am not bald, not even close and my hair feels and looks thicker and continues to get better. You have a wonderful attitude and I thoroughly enjoyed your post. Remember to come back and post when it's over! 😀

Mar 21, 2017
Venting and thank yous
by: Sam

The last posted stated a five year time frame, come again? What!!!!!!! Five years my hair won't even survive another 6 months of this crap I hate myself so much for doing this Brazilian blow out crap I hate it I hate it I hate it !!!!!!!! What am I going to do oh lord Christ my savior please help me all of us on here , right now im more sad than ever my hair line in the front right in the center were it was the thickset just fall out and now I have a huge I mean huge bald spot and you can see right through to the scalp I give up on it trying to pretend im ok with it I can't even hide it any more this year in may makes a year for me and im just calling it hell!!!!!! Might as well be hell with the constant burning I experience I mean this hairstylist burned the crap out of my scalp and i already no it will never grow back my clown hair has turn to a rooster looking fried up Krispy Kreme donut kind of look just imagine small hair on top and back with bald sides im crying 😢 you no Donald trump has better hair than me 😭😭😭😭 what I would give to have his hair now I would just dye it black with highlights lol ok got off point sorry ladies but I do that a lol ok I wanted to thank g hair and im definitely going to check stomach related issues with hair loss thanks for the information im sure this blowout caused my tummy troubles because I was a healthy guy before the treatment, and thank you deb for letting me no about when you did your hair treatment and can you pleases give us a update on your color and highlights I want to highlight my roaster hair lol or what's left of it because well since its gone might as well before I start wearing my man wig's and i wanted to share something with all of you and this is me ok I can't live with out my hair and wigs really are not cool there hot itchy and its just not the same for me I don't no what the future holds for me but I no I won't make it another year I no its just hair but I miss my hair so much its like I lost my best friend you no and I can't bring my hair back and I can't expect the fact that I paid !!!!!!! I paid !!!!!!!! $400.00 to be bald!!!!!! To be bald!!!!!!! 400.00 I can't expect it, it makes me so sad to think it . did I really do this to my self is this really happening is this a dream please let this be a night mare and when we wake up our hair will be back I can't go on my tears won't let me finish lol ok again im sorry to everyone im trying so hard to be in some kind of spirit and humor and no offense to Donald trump he has more hair than me now so I guess the jokes on me .bye everyone Sam . Andrea come back and post some thing anything just to let me no your ok. I no we personally don't no each other but I care for you and everyone on here and I pray that one day this night mare will have a fairy tale ending.

Mar 21, 2017
Time
by: Anonymous

It's been 5 years for me and 1 year free of symptoms. Hair is still frizzy and dry especially on top. Sides are thinner. My hair stopped falling out completely. I don't have any hair symptoms but body symptoms may be questionable. A lot of uti's since the BB that I never had before. I was reading the posts and one year into the BB nightmare I was on antibiotics for an unrelated issue and the hair loss stopped for that entire week. I went to the dermatologist and told her and she thought I was crazy. Once the antibiotics stopped the hair fall continued until last year. Time is the only thing that healed me. A long long 4 years.

Mar 21, 2017
Dying hair :/
by: Deb

Sam I had the Keratin in Aug 2015 - it's just so crazy how it somehow messes you up internally . Like if it was a topical problem we could just put something on it . That's what upsets me so much. Like I wish there was a pill to take or something . There must be something that can be linked to the skin hair and nails part besides vitamins that say they work but don't . Definately tho something needs to be done internally . Everyday my hair itches - not like the beginning I must say - I try sooo hard not to scratch bc it def makes it worse. I'll like tap the spot that itches instead of using my nails. Also I find the least amount I fuss with my hair the least it is irritated. I must also say it comes in waves. I don't know what starts it but I can have some good days where I feel my hair is thicker and then days when my hair seems to be falling a lot. There seems to be no rhyme or reason. Well I'm biting the bullet and going tomorrow to get my hair dyed and highlighted. It's just all diffeeent colors and I can't take the look . It's still long I can't bear to cut it . I may give it a trim myself afterwards very little in bottom. It doesn't seem to matter to me if hair is short or long bc the top of my hair is shedding as much as my longer hair. I don't think the length matters or if there are chemicals still left on hair bc it's an internal thing that is too late to stop. I just hope I don't lose too much tomororw - I'm scared tho

Mar 18, 2017
To Deb
by: G-hair

Deb,

My BB disaster occurred in August 2016. I have had crazy symptoms since the event. Every doctor can dismiss or explain away the individual symptoms, but none of them look at the bigger picture and acknowledge the fact that all of my symptoms started immediately after the BB.

My hair loss has not spread, but my mom's hair loss has spread to her arms and legs. Of course, my mom has gone over a decade since her reaction, but yes it does spread.

Just like cancer can spread to other parts of your body, so can a group of rogue white blood cells who are attacking/inhibiting the hair follicles. That is why it shows up in fingernails.

My hair was washed before the most toxic part of the BB was applied, so I know it was absorbed into my scalp. Triamcinolone ointment resolved the issue on the outside, but did not reach my follicle. Interestingly, the pharmacist who filled my script for Triamcinolone warned me not to apply it to a wet scalp. Because of his advice, I never really felt like the Triamcinolone ointment was going to get to the root of the problem.

To Sam:
Various types of Inflammatory Bowel Disease have been linked to hair loss. It is still unclear, but both autoimmune and immune-mediated phenomena are involved in a similar way in alopecia areata as is in Crohn's disease (CD) and ulcerative colitis (UC), the two main forms of inflammatory bowel disease (IBD).

Some of the medications that are used to treat IBD have also been shown to help people with Alopecia Areata and other types of hair loss. It would be awesome if by curing your GI issues, your hair started to grow back. Check out the article below. It's one of many discussion about the connections and treatments.

http://dansharpibd.org/telogen-effluvium/

I believe Andrea is the young lady who mentioned not leaving her house. I hope she is doing okay. I hope we all are doing better soon.

Mar 18, 2017
To deb
by: Sam

Hi deb I was wondering when and how long has it been since your Brazilian blowout, and if you don't mind me asking how for back is your receding hairline and does it continue to this day I wanted to mention for me when I cut my hair real short I can say the crown grew back full its just my receding hair line and the top the sides as long as I don't scratch seems to be coming in it grows then falls out then grows its a cycle that i just don't understand well you might have mention before when you did yours I just can't remember but your side effects are exactly me the same everything but of course me being a guy I don't get that time of the month but I do get bad stomach cramps that I never had before this hair treatment and now I have a lot of tummy troubles, does your hair still fall out sorry if u already answer all these question im just trying to get a time frame on how much longer I have with my hair before I get the male pattern u shape on my head well thanks for any I information bless all and I wanted to say hi to Andrea I haven't herd from you lately hope your doing ok I no its easier said than done but it has to get better right ok thanks again bye Sam .

Mar 18, 2017
G-hair
by: Deb

G-hair - when did you have the keratin done ? I definately believe that in our cases we must have gotten a bad batch of the keratin and this is why we are experiencing our side effects. It's not just hair loss on my head - it's kinda all over my body - my arms and legs have less hair - as well as eyebrows - but I do still have hair - my hair is light on arms and legs but I had a lot of it- now it's a lot less. My eyebrows have itches as well as around my receding hair line area . Also back of head and occasionally top. Not as bad as it used to be but still there. My nails are very thin! My skin is dry and I used to have oily skin. So the bad kerati must have sent out a signal to whatever cells control hair skin and nails. I was terribly depressed in the beginning and started gaining weight - packed on 15 pounds . I'm starting to eat really good and moisterising a lot and started taking collegen pills for hair nails and skin threee days ago . One thing is I got my period back to prob what it was before the keratin. If I ever get sick I'm asking for predisone again bc it at least keeps the inflammation at bay. Enjoy it while you can take it . I'm so annoyed bc I really want to dye my hair and put highlights in it. I don't know if I should I'm so nervous . I also need a trim but so scared bc I don't think my hair is growing and not ready to go short.

Mar 17, 2017
My thoughts
by: G-Hair

If someone has an arthritic condition they may be recommended to take over-the-counter supplements, vitamins, or joint creams. When those don't work they may be prescribed some of the same medications that we know to be effective in treating various types of alopecia.

Of course arthritis impairs function, and one can argue that hair is just cosmetic, but is this the reality?

To the young lady who mentioned that she rarely leaves her house now, and to all of those who are depressed, is the hair loss just a cosmetic issue or has your hair loss impaired your function?

There is a possibility that steroid therapy can make me gain weight, send me into diabetes and high cholesterol, but the way I see it, all of that can happen just by me being sad, bald, isolated, depressed,sitting in the house, and eating all the time.

Hell, some of the depression medications can contribute to diabetes, high cholesterol, and weight gain. I want to pick my poison and keep my hair.

Mar 17, 2017
Deb
by: G-hair

Steroids like Prednisone, Prednisolone, Betamethasone, Triamcinolone, etc. are all designed to decrease inflammatory responses from disease. These steroids work well in allergic and autoimmune reactions.

As you know, many people on this site have been prescribed topical steroid creams or localized injections. Doctors must think that steroids may help the hair regrow, but more recent evidence show that topical treatments and local injections are not effective for everyone.

One would think that a doctor would go to the next level of intervention such as systemic treatment with oral steroids to treat from the inside out, but many are reluctant. This may be largely due to the potential side effects that come with using steroids.

I get the whole side effect thing, but every medication has side effects. Naturally, if you start to experience side effects you should probably stop taking the medication, but they should at least be willing to give it a shot.

There are potential side effects to using the topical steroids and injections, but these are not discussed as much in my opinion. They have been prescribing the steroids, all this time. I am just asking if I can get via different route.

Seriously, we hear medication commercials all day with an enormous list of side effects or reasons to stop taking the medication and contact your doctor. Steroids are no different. Yet so many doctors are reluctant to treat our hair loss systemically with an oral steroid medications.

It pisses me off, because I really feel like it is helping me feel normal right now. It's sad, but I guess this is probably similar to people on painkillers or alcohol long-term. At a certain point you feel like you need a drug to make you feel normal.

As a nurse, I have encountered patients who go into an abnormal heart rhythms like atrial fibrillation. They're heartbeat is out of whack and chaotic. For this condition, we shock them through a procedure called cardio-version. We put paddles/electrodes on them and shock them just as we would if they had gone into complete cardiac arrest. It is an extreme intervention, but it works.

I feel like my body is out of whack, and it needs a good shock. I wonder if systemic steroids, earlier on would have had a lasting effect of my body.

And I know a lot of people might say "why do I want to put more chemicals in my body?" Again, I just go back to my mom. She is very sick now after many missed opportunities for an early intervention.

If long term use of steroids gave me acne, weakened, my bones, etc. I can stop taking them, and recover from that. My mom is not recovering from her progressive autoimmune disease. Furthermore, I can regulate my diet and activity to prevent or counteract side effects. My mom doesn't have many options at this point. So I would rather take my chances with pursuing a safe/effective medication regimen, if I don't see results in my immediate future.

No matter what your diagnosis, at some point your doctor thought steroids would help. So they prescribed a cream (which has been proven not to penetrate well) or they tried scalp injections (that may only work regionally). Why not try the next level? Even monthly intramuscular injections of Triamcinolone have been successful.

Applying Triamcinolone ointment of my scalp cured my itching and irritation, but I don't believe it does a good job of getting below the skin barrier. If I responded to it externally, I think I may just as well respond to it if treated internally. Again, I can't say with a 100% certainty what my diagnosis is and nor can my doctors, but I do know what has helped.

"Systemic corticosteroids have been used daily, weekly, and monthly pulses with good improvement in patchy AA and less favorable outcome in ophiasis, AT, and AU. [80],[81] Oral dexamethasone 0.5 mg/kg/day, intramuscular triamcinolone acetonide 40 mg/month have been tried successfully. [82] Steroids can be continued for 1-6 months, but prolonged periods are avoided, especially in children, because of side effects. [5] Pulse therapies are tried to avoid the side effects. Intravenous methylprednisolone and dexamethasone in pulse form have shown successful results. [80],[83] Oral pulse therapies are more successful and acceptable with lesser side effects. Kar et al. reported 60% success with 200 mg of prednisolone once-weekly for 3 months with a observational period for another 6 months. [81] Some other studies showed cosmetic regrowth in 58-82% of patients with 300 mg oral prednisolone once-monthly for 3-6 months. [84] Pasricha has reported remarkable hair growth in one patient, refractory to other therapies with oral mini pulse, betamethasone 5 mg given as a single oral dose after breakfast on two consecutive days every week for 6 months. [85] In another study by Khaitan et al., 75% of extensive AA patients showed acceptable hair growth with betamethasone oral mini pulse. [86] Sharma et al. have used oral mini-pulse with dexamethasone with complete hair growth in 26.6% of patients and a good response in 36.6% of patients. [87] Systemic steroids in general have been found useful in recent onset disease rather than chronic AA, ophiasis, and AU. [37] Contraindications and side effects should be discussed with the patients, and the clinician should be observant to identify those at the appropriate time."

http://www.ijdvl.com/article.asp?issn=0378-6323;year=2013;volume=79;issue=5;spage=563;epage=575;aulast=Seetharam


Mar 16, 2017
Predisone
by: Deb

When it was about 5 months after I had the keratin and I was at my worst - worst hairfall - worst itching etc I got sick and they gave me prednisone - hat was the BEST week I have ever had - I had no itching and no hairfall and I felt so good - what is it in the predisone I wonder - I haven't had it since and it's been 19 months since I have had the keratin.

Mar 16, 2017
Started Prednisone & got my period
by: G-hair

Under the recommendation of the ENT specialist, I started a 10 day course of oral prednisone last night for head and nasal congestion. This morning I got my period for the first time since my BB disaster.

Is it a coincidence? I don't know.

The bleeding looks typical of what I experienced prior to the BB, so I am not too concerned about any gynecological abnormality. I suppose, if I were gushing blood, I would be alarmed, but I'm actually happy to see it.

My main concern is that the Prednisone may be helping my body get back to it's normal state prior to the BB. If this is the case, how long will it last after the ten day course? How will the doctors explain this away? Will they be more likely to treat me with the pulse steroid therapy? And will pulse steroid therapy have a better effect of getting my body, immune system, and hair back on the right track?

Also, I saw another dermatologist yesterday. She was happy to tell me that she does not think my hair loss is female pattern balding, even though my original dermatologist gave me the FPB diagnosis twice.

The new derm stated that she thought my hair was still in shock from the BB. She was reluctant to do a biopsy, but I insisted. She doubts that it will tell us anything new, but she said she would do it to give me peace of mind. I'll go back in two weeks to have the stitches taken out. No sure when the results will be in, but I'll let you know.

Even if it is not Alopecia Areata, I feel little less pressure under my scalp, and my period is back. Maybe it's all a placebo effect. I don't know, but I'm feeling good today. So now what?

Mar 12, 2017
To anonymous
by: G-hair

In response to the previous writer. A lot of the evidence suggests an early intervention will yield a better outcome, but I don't think we can draw a line in the sand and say that treatment won't work after 12 months. The treatment outcomes may vary from person to person. I think each of our cases are similar yet unique so it's hard to predict if treatment 24 months after exposure will or won't make a difference for any individual. What I do know is topical ointment/creams, lesion/regional injections, or the wait-and-see game have not worked for so many of us. If you have exhausted all of these options, I think this is worth trying.

I'm sure there are cases where people recover without taking steroids, but I am pursuing this course or treatment because of my mom. She went through a similar reaction over a decade ago. She was fed some of the same stuff that doctors have told me, but as time went on, the head/scalp symptoms/reaction spread. It became systemic, affecting her entire body. The fact that a local attack (or whatever you want to call it) on your scalp can spread to other parts of your body is not acknowledged by many doctors. I've seen it happen, and it has destroyed my mother. So I will try the steroids.

I think this is like many other autoimmune diseases. For example my friend has Crohn's disease. She has been treated with steroids and other medications. She is now in remission and she eats a bland diet to prevent triggering the disease again. Of course Crohn's disease affects your ability to eat, receive nourishment, digest your food. So there is a greater desire to fix that problem and get it in remission. I don't think doctors have that sense of urgency when it comes to hair. If they would consider the possibility of autoimmune hair loss becoming systemic, I think they would be more aggressive.

Mar 11, 2017
Question to G hair
by: Anonymous

For those that had the BB longer than a year do you think it's worth to give the Oral pulsed therapy a try? would it be to late?

Mar 11, 2017
BB within last year
by: G-Hair

To the person who recently stated that they had their BB in the last year and their hair is falling out, you need to see the article below.

The research article below suggests that early intervention with oral pulsed steroids therapy, is the best chance at recovery/remission.

Pulsed steroid therapy involves taking a high dose of steroid pills twice per week. This method is shown to regrow hair and not cause the side effects of the traditional steroid regimen.

Don't let a doctor tell you that it might grow back; you haven't lost enough hair; you don't have this type of alopecia. The fact is a lot of people on this website have been fed those falsehoods only to find themselves bald or nearly bald.

Don't settle for Rogaine, or an ointment/cream alone. Don't settle for injections. Your best bet is to treat this from the inside out, systemically. Maybe the the topical stuff can be used with the oral medication, but I wouldn't take a chance on any topical or lesion specific treatments alone.

Again, many of us have already tried and proved that the standard or typical treatments are not successful. Knowing what so many of us have gone through, I should have demanded the most aggressive treatment on day one. I could have been in remission right now and not have lost as much hair that I have.

It's a shame that so many doctors will write us off, refuse to do any research, or explore other methods.


https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3870216/

Mar 09, 2017
Dying hair
by: Ddb

Anyone dye hair ? If so how?

Mar 09, 2017
Alopecia Areata Ophiasis
by: GHair

Like many of you. I have been told that my hair loss is due to _______ (fill in the blank). Based on my own research, I think my experience is identical to Alopecia Areata Ophiasis (AAO).

AAO causes hair loss around the perimeter of your scalp. A biopsy is not required for diagnosis, and it may not be obvious on a biopsy.

What I do know is my hair loss pattern is identical to AAO. It's thinning at the temples, sides, and for sure the nape of my neck is creeping up.

No doctor has come up with a better diagnosis, and I know it is not androgenic alopecia. This is not normal female pattern baldness.

The prognosis for AAO is poor. It is reportedly difficult to treat and areas like the nape of the neck do not respond right away. Even worse, treatment is usually initiated pretty late in the game.

It ain't looking good, but there is treatment. Several treatments have caused hair to regrow. Unfortunately, when these treatments are stopped, the hair loss may start all over again.

I'm going to talk to two more doctors next week, to see if we can come with a treatment plan.

I'd like to at least give the medications a shot and see if it will regrow. We shall see.

The new clinical trials for Janus Kinase Inhibitors are still in progress, and seem to be promising in treating AA overall, but the JK inhibitors are really expensive. So that won't be my first treatment option.

I know some doctors are already prescribing JK Inhibitors for off-label uses. The medication is available in pill form, but can be mixed into a cream by a compounding pharmacy.

I am not going that far. I will try cheaper treatments.
I am going to ask about the tacrolimus ointment and oral mini pulse steroid therapy. If anyone has tried any one of these methods, please let me know.

Mar 09, 2017
Tacrolimus
by: G-Hair

I know some have been prescribed Clobetasol, but has anyone been prescribed Tacrolimus (Protopic) ointment? Has anyone tried a combination treatment of Clobetasol & Tacrolimus? If the two medications were used in conjunction, what were your results?


Mar 06, 2017
Bee Honey
by: MG

Most stores sell raw honey organic honey. I got my last one from whole foods. I even saw some today at Trader Joes and cheaper. Start with a little at a time and see how you tolerate it. I would do a teaspoon per 8 oz of filtered water and let it sit for 30 minutes. I use a seringe to get the mixture to my scalp and massage gently. Let your ends absorb whatever drips down. Do a patch test first to make sure you are not allergic to honey.

Mar 06, 2017
MG
by: Deb

Hi MG ! I would like to try the bee honey and hoping I get same effect - what brand do you use? Where did you buy it? I see some on Amazon and may order asap :)

Mar 05, 2017
Bee Honey
by: MG

The only thing that seems to be working for me is bee honey. I am 4.5 years into this mess and tried everything available and nothing improved. Rogaine gave me eye pain, PRP made me lose more hair, essential oils gave me more itching, coconut or olive oil caused more inflammation. Now, I religiously soak my scalp before I wash my hair with a mixture or 1 cup of filtered water and 1 tbs of raw organic unprocessed bee honey. Saturate the scalp and hair and let it rest for a hour or while I work out. For now I dont use more honey than that because I feel like anything left for too long or too much of something upsets my scalp. Also, I now wash every other day to keep my scalp clean. Bee Honey has been studied as a relief for seborrheic dermatitis. Since my BB I had a layer of dry sebum that I didnt seem to be able to remove. My scalp is not perfect but it is clean and I dont shed like I used to. Also, my hair is shiny and less freezy. I have been doing this for about 4 months and my hair loss has been cut to less than half. I even think that my hair is getting thicker and see more regrowth. My part is improving and getting narrower.




Mar 05, 2017
AA advice, thanks
by: Sam

G-hair hi , I did mention my finger nails are changing but my doctor or doctors didn't seem to care or didn't really seem to be concerned about anything I tell them, I do believe I have a autoimmune disease now brought from the Brazilian blowout, now I tested positive for lupus but all the doctors I've seen tell me my numbers or the ratio number are not high enough for concern im like hello I've tested positive for lupus and the last time I checked testing positive for anything isn't good why no doctor will help me I have no clue one doctor even told me what was I doing at her office with no insurance that she's very expensive and how did I paid her consultation fee, I reply cash and don't you ever question my way of living you don't no my financial situation and when it comes to saving my hair ill spend every last cent I have sell everything I own to my underwear this is true I told her that and her face was like well im not cheap that's all im saying and i said back neither am i !!!!! Doctors in Houston seem to be stuck on money rather than helping a dyeing boy who has been exposed to formaldehyde by a evil hair stylist and im paying the price heavily, ok kind of got off the point ok so now that I read what u said about alopecia or AA. In April I see a internist medicine doctor he's specializing in Chinese medicine and all natural herbs and im going to beg him to treat me for AA. And im hoping that he will its worth a try ain't getting any ware with the regular doctors so if he can't save me I give up and im just going to go look for my uran voss for my ashes because that's exactly were im heading if I don't get help this is so sad this is happening to us just wanted to say thanks for the advice g-hair. Ok real quick any one reading this if u can any suggestion for the itching I can't take it no more nothing helps nothing I've tired almost everything and yesterday was a really bad night I scratch my scalp so much to the point it was bleeding and then I washed it and all the little hair that was growing on the sides fell right out again what is happening to me us !!!!!! I really want to die this scalp pain hurts me so much and its only been like 8 months in and by just reading some comments in and reading things like 3 years in and still itching still hair loss 4 years 6 years no change ill say this I won't let this haunt me past 1 year I don't have the guts and courage that most of you have to take it and not give up hope my life is over as I no it but years of my scalp itching oh no!!!!!! No way to live at all well take care everyone and wanted to say hi to Andrea my friend from California hope your doing better than me I read your last post I really need to make my YouTube but what I think is stopping me is that im embarrassed by my hair and eyebrows and I have to be sure that's what I want to do but im the same way you are I just stay home like Friday I did what any 34 year guy would do on a Friday night I cleaned my white title grout and it took me into Saturday night as well finally finished but ladies let me tell you never never do a white floor with white grout I learned my lesson lol well I can just keep going so much to say little space ok everyone take care im done I promise. Sam from Houston bye 😊

Mar 03, 2017
Don't give up!
by: G-hair

Please consider medication for alopecia areata (AA) even if your doctor says AA is not the cause. It worth a try. I'm going to ask my doctor for Sulfasalazine or any other medication that would normally treat AA.

Aa is considered to be an autoimmune disease. Considering that my hair loss is not natural and the formaldehyde is known to make cells wacky, it is totally plausible That autoimmunity is a factor. And because the traditional treatments for androgenic alopecia have not worked, I plan on trying the autoimmune disease treatments.

I need to intervene wherever you can. Seriously, my mom went through this process after dying her hair. Her early symptoms were identical to ours, and it only got worse.

She started out with "androgenetic" thinning. Later it was call discoid lupus cause the main problem was her hair and scalp. Then it progressed to systematic lupus, meaning there were more attacks on her skin all over her body. Now it's mixed connected tissue disease, meaning attacks in her skin an other connective tissues.

It may not stop at your hair. It can definitely get worse. I wish my mom would have gotten help sooner. She hopes that I get this under control because she doesn't want me to suffer like she has.

So your doctor may not call it AA, but you can always ask them to treat it like AA and see if it helps.

Lastly, I'm gonna talk to Dr. Donovan.

http://donovanmedical.com

Has anyone else talked to him? It would be nice if he could treat/study us all. He has done a significant amount of research and published several articles on various types of hair loss. His telephone consultation is $650 😳!



Mar 02, 2017
Finger nails
by: G-hair

I recall someone mentioning that their fingernails were changing. Pitting in the fingernails is a classic sign of Alopecia Areata, but no one seems to be getting diagnosed with Alopecia Areata.

Alopecia Areata can mimic all of the other types of alopecia. It seems that a pathologist would need to know to look for that specific condition for it to be identified.

Also toxic agents like Formaldehyde are believed to be a trigger for Alopecia Areata. Supposedly formaldehyde can mess up T-lymphocytes and make them behave badly.

For those who have not been diagnosed with Alopecia Areata, why not try these types of treatments. If the side effects are minimal, I think it's worth a shot.


Mar 02, 2017
Sam!
by: Andrea

Sam I love reading your stories they just make me laugh I used to be such a happy girl. Always full of energy oh was I so happy. You seem like such a cool outgoing person I bet we would've got along well.I remember I couldn't wait for the weekends to get here to go out now I just stay home and hide in my shell. This sucks and just like you I ask myself why me??? What wrong did I do to deserve this GOD!!!!! Im 25 and I turn 26 this year my problem always was looking much younger than what I really am. No matter where I went I always had to show ID and I would hate it. I always asked god to please let me look older and there you go I think he must of misunderstood me though,I didn't want to have grandma hair or have grandma skin I just wanted to look my age that's all. I read an old comment from one of the girls here that her hair stopped falling during her pregnancy. I don't have kids and didn't plan to either but lately I have been thinking 🤔 What if I have a kid to stop my hairloss. My friend thinks I'm crazy But at this point I would do anything to have some peace of Mind but like you said "with my luck" I'll probably still end up bald with a child I can't take care of because the mother is so depressed and she can't even take care of herself. Definately not a happy scenario. For the rest of you I apologize if you read this. I know is TMI. It just makes me feel good that someone understands me.

Mar 02, 2017
To andrea and all
by: Sam

Hey Andrea wow we are exactly the same its not even funny me being a guy and you a girl, I get headache so much now as well and have no energy at all depression I think so its more of a can't expect that this is happening to me you no oh and my skin so so dry and i mean dry I used to have natural oily skin pretty decent skin now im so dry as old dirt I tell you we have been aged and I mean aged bad because if we have been aged by 30 years can you imagine when we actually turn 70 we will be like 110 by that time our bones will be dried out. I also had only one Brazilian blowout and with color but what I did was when I started to see new root coming in i cut off all the Brazilian blowout and let me tell you if didn't do a darn thing but make me look ridiculous and since then on my hair has not been the same I mean its growing but like weird I've cut it about 2 times and even shaved the sideas and had the top short very very scary on me I never had that look before but now just in 2 months I would say it is growing but not the top part all I see is scalp and the front hair line gone diffently male pattern baldness now yup Brazilian blowout makes you have baldness patterns for sure and what's funny is my dad turn 78 and he has beautiful salt and pepper thick hair he has so much more than me now my family on both ends doesn't have A history of male pattern baldness both my grandparent on both sides pass away with with a full set of hair so I honestly believe the Brazilian blowout did this to me to all of us but why ??? Only us a few select group nation wide why us I guess well never no but all I no is if this scalp doesn't stop itching me soon and i mean real soon im going to pull out my scalp and jump in to the ocean and take my chances with the sharks but then they might not eat me because I have formaldehyde in my blood and with my luck ill be rescued and be sitting right next to you in the mental ward thinking im the real prince of England lol oh well we can let out a little humor and one more thing I forgot to mention I cut my hand like a while back and I don't heal like I use to the cut is still there like my skin cells have been killed by the formaldehyde im very scared to see what the future holds for me with my new mutation body. Well just wanted to add all this in take care Andrea and all who reads this I like to share my thoughts and feelings with you all. Night night Sam .

Mar 01, 2017
Side Effects
by: Andrea

I also get hot flashes never thought it was linked to the Brazilian blowout but now that I think about it makes sense. My skin is also dry like I mean dry!!!! No matter how much moisturizer I use it doesn't help😫 I'm still experiencing so much hair loss like 200 hairs a day or more it's ridiculous! My eyebrows don't grow and They seem to shed as well.My glands are also swollen. My scalp is still in pain and tender to touch. I never had allergies and now I feel like my allergies are off the wall it's crazy. I also experience some kind of allergy with certain foods. I get headaches more often. And I'm not sure if it's the depression that kicks in but I honestly feel like I have no energy I find myself feeling sluggish most of the time. This ugly experience just seems like a nightmare. I only had one BB but I had my hair colored the same day. And two weeks after I had my hair colored black. Yeah I know maybe I brought this upon myself all those chemicals in a short amount of time. Did everyone here had their hair colored prior to the Brazilian blowout??

To my friend Sam I wish I could say things are better but I'm still hanging in there just watching how all my hair goes down the drain😢. I want to think it is temporary and that keeps me going but sometimes I tell myself who am I kidding!!! My life was just taken before my eyes. I just bought all sorts of vitamins and I am hoping to stick to them and maybe it will make a difference I just hope we find a cure soon or Im going to end up in a mental hospital.

Mar 01, 2017
Sharing my side effects
by: Sam

Hey ladies I can only imagine what y'all are going through and me being a male I can't really say I understand it all since men don't have a regular monthly thing and all but let me tell you this ( Hot Flashes) OMG never in my 34 years of existence on this planet have I experienced hot flashes im calling it hot flashes because I don't no what else to call it I mean my body gets hot and hotter to the point I have to take a hour shower to cool down and this happens at any given time mostly at night I wake up like I've been at the beach I don't no whats going on what did this Brazilian blowout do to me to us!!!!!! And me being a male our patterns are so much the same now my main problem is the front hair line its so jack up that's there's no point in saving it its growing weird and it just keeps getting shorter and shorter than it just disappears and i really don't want to wear wigs I just want to feel like me again I no we all do I just wanted to share with y'all ladies my side effects, body temp messed up oh and my finger nails are getting a weird look like a white ringlet but I don't no doctors don't care so why should i, ok loss of hair line and crown right side temple some on the left, eyebrows loss the right side almost gone , my arm hair on both side gone along with my knuckle hairs all gone missing patch hair on both legs, scalp itching and burning all the time scalp is very red and tender and I have trouble breathing and swallowing at night and all the doctors tell me im a very healthy man (right) keep telling your self that when im dead I told a close friend of mine the only friend I trust with what im going through to throw my ashes on them and tell them im cured sorry to post that its just that im so mad why is this happening to us and only us I no lots of people who get this crap done to there hair and there ok why us what do we all hAve in common before we did theses blowouts that we didn't no did we have ibs, ummm gluten problems week immune system what!!!!!! Im so frustrated!!!!!!!! We need help and no one cares any more about Brazilian Blowout hair loss its like a cause that just faded so unfair my man hood was taken from me what man dosent want his arm hair and eyebrows and hair right I said it once and ill say it again I look like a albino clown first of its kind and I paid for this 400.00 to have my prince Eric DNA alter to a mutant clown not cool not cool , well ok im done venting I wanted to say hi to Andrea and hope your hanging in there the best that one can with this unfortunate situation and to all a huge big teddy bear huge god bless us all thanks again for reading my long post just a sharing post that this chemical is very very bad.and its unwanted side effects and to think this may be permitted I can't even begin to imagine. Sam from Texas

Mar 01, 2017
IICTBT
by: g-hair

I had all of the symptoms you listed in your last post.

My glands neck glands are swollen right now. I will see the immunologist/allergist tomorrow. I am hoping she will make an attempt to better assess my immune system and regulate the WBCs.

Cytotoxic t-lymphocytes are a common culprit for the swollen glands. They can also play a role in Alopecia Areata. Actually, there are tons of articles that discuss the connection between hair loss, t-lymphocytes, and swollen glands.

I will also see a new dermatologist tomorrow. Hopefully, this one will be more helpful.

I just can't give up. My mom had a reaction to hair dye years ago. It progressed from alopecia, discoid lupus, systemic lupus, and now mixed connective tissue disease. I know how this can turn out in the long run if the process is not stopped. So I can't throw in the towel yet. I may not get all my hair back, but I want to slow/reverse the process that I believe will eventually lead to more significant autoimmune disorders.

Mar 01, 2017
???
by: If I could turn back time

Did anyone else experience visual changes, brain fog, night sweats, or swollen lymphnodes after any of their treatments like I did? I'm sure it wasn't just a coincidence.

Mar 01, 2017
G Hair
by: If I could turn back time

G Hair,
I had a scalp biopsy, but it was taken from an area of my scalp that I wasn't losing hair from. I can tell you that it wasn't a pleasant procedure and when I sat up to look in the mirror, I was devastated to see the biopsy location. I asked him right then, frustrated, "why did you take it from there!!??? I'm not losing hair there!!" He explained that area was red too, so he felt it was a good spot. I think he was afraid to take it from my right temple area since it may be more noticeable, but if I'm allowing someone to take a chunk out of my scalp I want it to be taken from the problem area! I was so upset! I had stitches in for a week and knew it was pointless. Of course, the test came back normal. I also learned after, that there should be two biopsies taken. A vertical and a horizontal section and that it should be sent to a lab that is experienced with examining these types of biopsies; I'm sure my sample was not. Nor did we list anything specific to look for.
I had steroid injections to my right temple area, where my loss was noticeable first, but I couldn't tell you what type of steroid. I have never tried squaric acid as I knew my loss wasn't alopecia areata.
I really feel our problem is that we were exposed to high levels of formaldehyde. Our FDA failed to protect us and our stylists. Unfortunately for us, this product was left on our, allowing continued exposure for a greater length of time.

Mar 01, 2017
Answers to Debs questions
by: If I could turn back time

Deb,
I am 39 now, but this all started at age 34-35....I got my first keratin relaxing treatment right when I turned 34, along with highlights using bleach. I had been highlighting my hair every 2-4 months since I was 19 years old without any problems.

I didn't realize what was happening at first. I started off with increased hair fall. I just noticed that my brush was full of hair after every washing, but I didn't think much of it. I also had scalp build up and a scaly patch that my hair dresser pointed out, but I thought it was maybe sun damage? I just had no idea how dangerous and damaging these treatments were. I never suspected anything was wrong! I also noticed my hair texture was different- more frizzy, gummy, and I started having to use my straightener more to make it look smooth again. My stylist explained that, "I just didn't remember how it was before and that the treatment must be wearing off"! I actually believed her!

I believe it was Jan or Feb of 2012 for my first treatment and April of 2013 was my last treatment. I had six total. I was getting them with every salon visit, which was every 3 months or so. Remember, I was (as I'm sure you were too) told these Keratin treatments were making my hair "stronger". That my hair would be healthier and that because I wouldn't have to dry my hair as much, that there would be less damage.

About a month after my last treatment was when I really starting noticing a problem. I had areas of tingling/burning/itching/white/red spots to my upper forehead and scalp, I developed tiny red bumps along my hair line, and I started noticing the hair loss. First right temple, then left, thinning sides of hair, then centrally. My hair started falling out dramatically with 2-3 hairs falling from one follicle at a time, hair falling out in different stages of growth, etc.
My hair is now see through, receded hair line in front, frizzy, miniaturized, slow growing, and only grows just past my chin. It seems to continue to lose its length. I have worn my hair to my breasts all of my life and find it devastating that my youth has been stolen from me. I feel very matronly at 39 years old. I don't feel that it has affected my hair anywhere else. I too have had all of my hormones checked after my periods changed and all labs appear normal. Btw, my periods changed after the very first treatment. It was not a gradual change. It was one month normal, the next period after my first treatment was completely different, scant, and has NEVER returned to my normal.

Mar 01, 2017
Misdiagnosis
by: G-hair

I talked to a dermapathologist at the hospital where I work, and he explained to me why our diagnosis may vary and be completely wrong based on biopsy results.

Basically there are different types of biopsies just like blood tests. If your doctor orders a biopsy it may help for the dermatologist to be specific in listing what they are looking for. For example if you are looking for mast cells, t-lymphocytes,or any white blood cell different stains may be necessary. If these stains are not used, you may not know what is attacking or displacing your hair follicle.

He recommended several stains to check for this or that. I didn't take notes, but I will discuss with my new dermatologist. He also mentioned looking at several layers to determine the depth of the damage or changes to the skin. This would also help with diagnosing.

I am considering a biopsy, and i would want it to be as thorough as possible. I still believe that if the simplest biopsy is done, and it doesn't give a definitive answer, then a dermatologist will go with the easy/convenient diagnosis.

I need a real answer. If mast cells, t-lymphocytes, or other cells have turned against me, I need to know. That's the only real way to attack back and check your immune system.

For those of you who have gotten biopsies, do you know exactly what was checked? Does the pathologist save specimens just in case you want additional tests?? Our dermapathologist says usually the biopsy is two tissue samples and can be divided and tested about ten times.

If you're t-lymphocytes at your scalp are the problem then it would be classified as alopecia areata which is considered an autoimmune disorder. In my opinion this would actually be a good thing because there are ways to reverse it, but you may never know unless you get the right biopsy.


Feb 28, 2017
Deb
by: G-hair

I'll add to your questions. Many others have talked about using steroids (topical, local, and systemic.) I was wondering if anyone has used the following medications.

1.Diphenylcyclopropenone
2. Squaric acid dibutyl ester

I know we have all gotten various diagnosis and various treatments. Some form of steroids has been used to treat many of us. The steroids are also used to treat Alopecia Areata. Just like the steroids, the two medications above are also used to Alopecia Areata and have had more positive than negative results in regrowing hair.

So I was curious to know if anyone has tried the medications above. I questions whether any doctor really knows what the hell is going on with our hair, and if these medications have worked for Alopecia Areata, it might not hurt to try them with whatever type of alopecia.

I am not recommending the medication. I am just wondering if anyone can give me feedback to say they gave it a shot, and it didn't work.

Below I have attached a link for all of the current treatments for Alopecia Areata.

http://www.alopeciaareatainfo.com/alopecia-areata-systemic-corticosteroids.shtml

Feb 28, 2017
Yes it did! / questions????
by: Deb

Yes it did effect my period . I was getting it light for about 2 yrs before this treatment but now I can wait months with nothing at all then spotting sometimes- but - I had all tests done and my hormone levels were fine as well as thyroid. She said I am producing normal hormones and not going through pre menopause yet.. btw - I have a few questions
1. How old are you?
2. Did you get color before the treatment ?
3. Was this your first treatment?
4. When did you start losing your hair?
5. Is your scalp itchy and burning / did you ever have this?
6. What is your hair loss pattern?
7. How much hair would you say you lose per day?
8. Has it effected anything else ? Periods? Eyebrows? Other body hair? Etc.
9. Have you had tests done? If so what kind?
10. When was your last or only treatment done?
11. What is your current hair routine?
13. What was the length when you had it done - and what is it now?
14. What is condition of you hair now ?
15. Add more questions here...

Feb 27, 2017
Yes!
by: If I could turn back time

My periods changed from 5-6 days of "my normal" moderate flow to 2-3 days of scant, dark, brown spotting. Probably TMI for our male victims, but yes, it affected my hormones.

Feb 27, 2017
Periods
by: Anonymous

Did anyone else stop getting their period after the bb. I have an iud and I used to get light periods. But since the bb I haven't had nothing. No spotting either. Not really complaining just wondering.

Feb 26, 2017
Histamine
by: Anonymous

I see a lot of you discussing histamine being an issue in the hair. I know black seed oil is an antihistamine, and I'm definitely going to try it now that I see everyone saying histamine could be the cause.

Feb 23, 2017
FC
by: G hair

Please demand the testing that I mentioned ASAP.
1.Tryptase/ mast cells
2. Histamine
3.Complete blood count

You primary care doctor can order these tests. They may be reluctant, but you must persist.

Feb 23, 2017
Lisa
by: G-hair

So as you know, I had to force the immunologist to order tests for mast cell disorders. In the end, she said she would order them to make me feel better, but she didn't think I had a "rare mast cell disorder."

Well knowing that she was going to order a histamine test, I did not take Allegra which is an antihistamine. When I saw the doc, I was 24 hour off of Allegra.

During her exam, she noticed that my neck glands were swollen. She looked in my mouth and throat, and she said she saw some post nasal drip, but I do not have a cold. She must have forgotten I had been crying in her office.

Anyway, I got the first test back. My CBC was perfectly normal. Now that may sound great, but to me it is a sign, and I will be seeing my primary doc tomorrow.

You see cervical/neck glands usually swell when you have an infection, but I don't have an infection. My basic white blood cell count was normal.

It is important to know know that glands will also swell in the following cases:
1. Cancer! (I hope not)
2. Autoimmune disease (say it ain't so)
3. Histamine***** Histamine levels are often high in people who have proliferation of mast cells because the mast cells go through degranulation, which makes them dump tons of histamine. I'm at home rolling the dice like "C'mon histamine!"

So much medical literature explains how formaldehyde may trigger a mast cell overreaction/proliferation; the many mast cells will break down dump histamine. And of course, in cutaneous mast cell disorder, you'll have a lot mast cells, bullying the little hair follicle for space. If the mast cells continue to win, the hair follicles continue to lose.

Check out the picture is section three of this article below. It gives a good visual of how our immune system can evict hair follicles when the immune system is drunk and crazy on formaldehyde.

http://www.dannyroddy.com/weblog/thebaldnessfieldparttwomastcells

So this evening I started my 24-urine collection to get an accurate measure of my histamine levels. I will turn in the jug of urine tomorrow, and it will take about 3-5 business days to get results.

My tryptase test is in process. I hope to get it by tomorrow.


Mast cell disorders may be rare, but what if it is actually common in some populations who are exposed to formaldehyde. We'll never know unless we get tested.

Remember, the allergist/immunologist tried to tap me on my leg and say "don't worry."

BS LADY! Order the tests!

Two specialists would have let me walk away with no answers if I didn't persist. It just pisses me off. I could have settled for what my dermatologist told me, but we need to find out.

These products are still new, and decades ago asbestos were new. Now we know that asbestos are horrible/hazardous/deadly. A whole lot of people had to get sick, suffer, and die before anything was done about asbestos.

I could probably settle for going bald if I knew that baldness would be the end of my worries, but what if it is not just female pattern baldness. My mom didn't have female pattern baldness. She had an allergic reaction that turned her immune system against her and 15 years later it is still reeking havoc one her body.


Feb 23, 2017
Cezanne hair smoothing treatment
by: FC

I had a Cezanne hair smoothing treatment done in December 2016 in B.C. Canada. I didn't notice any smell when having it done. I waited about a day before washing it. I smelled a horrible toxic smell in the shower and I noticed my hair was really stiff after shampooing it. After conditioning it was fine but that toxic smell was still there. I noticed redness & burning on my scalp like I was having an allergic reaction. I went to the doctor and she confirmed my scalp was red. She told me to take allergy pills and call poison control. I called them with the ingredients and poison control told me not to worry. The salon owner said she contacted her supplier but they said no one had ever complained. (Yeah right.) Each time I wash my hair or if I sleep too long in the same position at night, it seemed the heat of my head causes the chemical to smell. The smell has lessened over time but when I touch my head, I can still feel burning and warmth. I have had severe headaches, and the first night I had troubles breathing. I was wheezing, asthma like symptoms. My eyes watered as well and were red. I noticed one tiny bald spot on my head, I don't know if there are others, and I noticed a thickening of my skin on certain spots on my head. I have not noticed hair loss, but I'm not sure my hair is still growing. I have not done a root touch up since this happened but I'm scared to put any chemicals ever again on my head. I haven't asked for my money back from the salon, but I'm angry that the salon plays dumb about this. They NEVER warned me that all of this could be the side effects of this treatment which is essentially disguised as a lesser form of a Brazilian hair blow out. If anyone wants to do a collective law suit, let me know.

Feb 23, 2017
To Deb - Split ends
by: Lisa

I don't really have split ends either since all the hair loss started after the BB. My hair is just completely different. It's really dry and course and it doesn't really seem to get longer. Maybe I just don't notice them as much because I have so much less hair.

Feb 22, 2017
....
by: Andrea

G hair i wish there was doctors who would actually put some time and effort to figure out the cause by doing the proper research. But unfortunately that's not the case instead they want to send us home with "oh you'll be okay I'm sure it temporarily just give it some time and stop stressing". You are right about everything we need to find a solution we can't just stay with our arms crossed and take it. We need help and we need it now! I live in California and the closest Mayo Clinic is in Arizona which is not to far from here. I am going to try and make an appointment maybe they have more research. I wish we were able to share pictures here that way I could show you guys the before and after pictures it has only been a year and the change is noticeable I can't imagine what it will be like in two. I should start digging my grave. (To Sam) I was prescribed hydrocortisone 2.5 but for some reason it makes my eyebrows more flaky I only used it 3 times though so maybe if I use it more often i will see a difference lol. I am that kind of person that if I don't see any results by the second try then I assume it doesn't work. Just like all the shampoos prescribed to me. I know shouldn't be like that I guess you can say it's just a bad habit? And as far as your YouTube goes I think you should do it!!! I am sure there is more people out there with the same problems but are afraid of speaking out I actually think that's a great idea and I support you! Maybe we can all get together and talk about our encounter with the witchcraft. Who knows maybe it'll go viral and more people will actually pay attention to us. Just like you, I tried searching up hair loss due to Brazilian blowout and there's nothing out there and let me tell you I searched it a million different ways and found nothing I think there might of been one but it was not very useful to catch some attention. Sam I want you to know you have a friend here in California as well. It's hard to stay positive sometimes, some days are worst than others but we will get through this. GOD will eventually hear our prayers and say it's enough suffering and we will wake up one day and all of our pain will be gone and our hair will start growing back and no more hair loss. I really hope that's soon though it's been way too long. It sucks being young and not being able to enjoy life to the fullest because your self esteem is so low and your so afraid to even look at yourself in the mirror and every move you make you have to be careful because your hair is just pouring down like water. I will not stop praying though hope you guys all have a goodnight.

Feb 22, 2017
Nothing new
by: Deb

Nothing new here but wanted to let you know I've been reading these new updates - how terrible about your mom ! I hope this isn't us! And all these diagnoses are scaring me . My hair is obviously dead and not growing but I have a few questions - do you have split ends? It's so weird bc I used to before this if my hair was damaged but don't seem to have any. My hair has lots of fly sways at all different lengths and my hair on the right side is fading away slowly but surely. My part is getting wider and wider and I've tried so many conditioners to try to get my hair to soften but it's so wirey and thin. I go into phases were I worry every second about my hair and then I can go a day maybe with not thinking about it. Sleep is the worst bc at night it still itches - less - but def still itches and I'm afraid to lay on it in certain ways bc I think I'm gonna pull more hair out :( it's sooo consuming it's ridiculous! Just depressing . But I'm so glad we are all searching and looking into things and trying things and letting each other know what doesn't work - too bad we haven't found anything that DOES work. I just think it's too late for the hairs that came out already but how do we save what's left! That's what we need to do . Oh well I'm going to bed - as much as this is killing me inside I'm so glad to have this support system and hear from you guys from time to time. My keratin treatment was done 8/15 - my life never the same ...

Feb 22, 2017
Posts from 2010
by: Lisa

Hi Guys... I'm particularly obsessive about my hair loss tonight (I've been losing for over 2.5 years with no regrowth) and I just went back and read posts from 2010 on this site.... what happened to those girls? Did they just give up and go bald.... or hopefully it eventually stopped and their hair grew back, As many of us that have gone through this you'd think there'd be more good news posted here. It seems like some people only lose for 6 months and things are back to normal in a year. (there's a Huffington post article about a girl who got a free keratin treatment)... some of us aren't that lucky I guess. :(

Feb 22, 2017
Hi G-Hair
by: Lisa

I've been on the edge of my seat all day waiting to see your post... I was so hopeful that the Doctor might be able to help us deal with the hair loss from the Brazilian Blowout. I'm so sorry that it didn't go well. I've literally spent thousands of dollars going to see different doctors (endocrinologists, dermatologists, primary care, Ob gyn, etc) I also spent money on tons of treatments (lasers, PRP -$1,700, steroids, etc, etc,) I haven't found any answers. Your explanation below was the closest thing that I've seen that makes sense!! We will all keep trying.... I promise to all of you that when/ if I ever find anything that works you will be the first to know. I really hope Dr. Goh is right -that our hair will eventually stop falling out and grow back...but living like this now has been so hard. I don't want to leave the house, I don't want my picture taken, I am very nervous to stand under overhead lighting because that's when my scalp shows the most. I hate the way my hair looks... it's taken such a toll on me. I wish there had been a warning of this. I too was told this was very healthy for my hair. The salon encouraged me to do the treatment every three months. They told me the more I did it the healthier my hair would be..... all lies!!! There have been a few people on this site that have said that there hair did eventually stop falling out and they were able to stop using the powders to hide the hair loss.. I hope that this is the case for all of us.

Feb 22, 2017
Just a post 😉
by: Sam

Hey every one, Sam here I first wanted to say hi to Andrea and say thank you for believing me when I stated we got witchcrafted on!!!! All jokes aside. Andrea I wanted to share with you what im using to help with my eyebrows now it doesn't stop the loss but the cream that im using does help me with that dry flaking crap that just keeps on coming strong, its a prescription from a dermatologist and its called (hydrocortisone valerate cream ups, 0.2 % ) im not sure if you can get it over the counter but just want to help if I can, I feel you so much because im going super crazy with out my hair I loved it so much I think to much and some times I wonder why the witch did this to me because I blame her as much as the poision, she new what she was doing u don't touch the scalp!!!!!!!!!! That witch!!!!!!! And I remember telling her it burns and she kept saying its all part of the process yup process to becoming bald. So now many lonely nights at home no one is allowed to come over I block all my friends my Saturdays are Netflix and a whole bag of Reese's Pieces butter cups which now I want!!!!!! Lol I also don't work but like 3 hours in the day thanks to a special lady friend who help me get a small part-time job helping her so I don't have to get up and face people its just me and her and I like that. Im a hermit now because I had a Brazilian blowout that ruin my life I got a call today for a fitting that i made for my 35 birthday party in may like a reminder and I just couldn't coupe I started to break things and throw things screaming letting out my fustration on my home and then im like doing this ain't bringing my hair back so no birthday party before I posted I cancel everything the hall the DJ which he would not give me my deposit back he was mad !!!!! Oh well and above no fitting 😞😞 I really was looking forward to wearing that suit ok again my point to this I was letting my hair grow out for my 35 birthday party it took me a whole year to get it to my neck and buy now it would have been perfect more tears😪 I guess I could have a homie the clown birthday party. Oh wouldn't that be fun (not really ) !!!! Ok guys I no my post don't really have meaning and a purpose but it really helps me so much yall just don't no and so I apologize with my heart and to all that have done so much research and sharing there findings and information thank you so much I wish I could do more to find a cure for us all I've tried all that I can with my limitations, doctors, dermatologist, rheumatologist, allergist I've been there I even went to Dallas were they have the best in Texas and i don't have insurance all out of pocket I don't think its a question of having money or no insurance its a question of dealing with and coping and sharing helping each other get though this night mare were just victims of a bad situation or witchcraft in my opinion lol just a joke ok jeez I really leave long post and im really going to try to work on getting that YouTube up because I have a lot to say to the inventors of this Brazilian blowout joke and what it did to me and I don't no if I can legally say who ruined my hair and her salon need to ask the lawyers about that but I'm sure I can I mean you can go on Yelp and talk mess about the salon so why can't you on YouTube well ladies and gentlemen again thanks for reading my long post again and Andrea all the best you we have so much in common but just remember you have a friend in Houston Texas now who completely understands you oh I forgot to mention to g-hair I hope your findings will lead to a miracle and hope and pray for your family as well you have been though so much keep the faith up I think your positive ways will help.prayers to all. Sam, from Texas

Feb 22, 2017
Sorry G Hair
by: If I could Turn Back Time

I understand your frustration. Most every doc I have seen is just uneducated when it comes to these chemicals and their long term effects. Pretty much every doc I have seen has given me a different answer. Unless they knew you well before or come home you to see your sink, shower, floor, underwear, drawers, etc., littered with hair, they just don't get it. Even Dr.Goh can't give me answers to, "will this ever stop?" Or "will this get better?"....she just says time will tell, but I think you'll be ok.....I guess it's easy for someone to say that because, yes, we will all LIVE without our hair, but not as god intended us to live. This was not our natural course of aging. These people/products robbed us of many, many years full of youth, beauty, happiness, and hair. AND we paid for it!! It breaks my heart that we weren't protected from something so simple. This could have been avoided. Never in my wildest dreams could a hair treatment cause me so much grief; one my stylist encouraged and said was safe and would make my hair stronger. 💔

Feb 22, 2017
Venting
by: G-Hair

It just blows my mind that a medical professional would say:

I don't know what a Brazilian Blowout is.
I don't know about the side effects.
I don't know about the lawsuits against the FDA.
I don't know about the sick consumers and stylists.
I don't know what research is out there.
I don't know anything, BUT I think you'll be fine.

Really???

That's not good enough! That is absolutely unacceptable.

Okay. I'm gonna calm down now. I need a nap.

Feb 22, 2017
Update
by: G-Hair

When my doctor started with, "what is a Brazilian blowout," I knew this was not going to go well. The immunologist agreed to order the tests for tryptase, histamine, and a CBC. One of the tests is a 24-hour urine collection so I’ll do that on over the weekend. Except for the CBC, I don’t expect to have results immediately.

You would hope that when you tell your doctor about all of your symptoms and your exposure to a toxic hair product, the doctor would say, "I’m not familiar with these products and their side effects. I will need to do some additional research." Unfortunately, this doctor did not say that.

Instead, she told me that sometimes we have reactions to chemicals, but she didn’t think it was a mast cell disorder. ‘She didn’t think?’ The fact is she doesn’t KNOW, and she seemed reluctant to investigate any further. She would have sent me home without any testing at all if I hadn’t persisted. She told me she was just doing the tests to make me feel better. Are you f***ing kidding me? How about doing the tests because you want to make sure you are diagnosing me correctly.

You see this is the problem. Some medical professionals are so quick to shut us down; expect us to suck it up; or say stupid things like, "I’m sure it will grow back."

As she is saying this, I’m thinking to myself: No B****! It’s not growing back, there are several other women and men who had identical experiences and it is not growing back. That is exactly why I am paying the $40 co-pay to see you.

I told the doctor that Canada is doing and other countries, some of which have banned BBs, are doing research on the chemicals, its side effects, and mast cell involvement. Her response: SHE TOTALLY DONALD TRUMPED ME! She just nodded, changed the topic, and moved on with her pep talk. I didn't pay $40 for a pep talk.

Okay, I should mention that I went to Sutter Health and just like my polish dermatologist, the immunologist was an Asian woman with super straight hair. They are so far removed from the hair products that are used by curly, wavy, and women of color. And this crap continues to affect us. Women of color, women without financial support to chase a cure, women without the time to put their life on hold until they get answers.
We have to make them care.

Sutter Health is not a teaching institution. They aren’t doing research. Neither doctor that I saw planned to go home and put in time to do research on behalf of one patient who used the wrong hair care product. No! They give you the convenient diagnosis, and none of us should settle for that.

These mast cell conditions and other conditions that cause hair loss can be atypical and very tricky to diagnose. Furthermore, BBs are fairly new to me. I didn’t hear about them twenty years ago, so it needs to be researched. People need to dig deeper. Crack open a new medical textbook; read some of the recent medical journal articles.

If I was wealthy, I would be flying to the nearest Mayo Clinic. I’d be able to take off from work, and I’d be posted up in a hotel for days, seeing multiple providers at the Mayo Clinic until I got answers. Unfortunately, I can’t do that.

So I have asked my PCP to refer me to a university medical center near me, and I would advise all to seek care a teaching facility if possible. Don’t settle for BS answers. If a doctor admits that they don’t know something, yet they want to slap you with a convenient diagnosis without doing any research on what they don’t know, then see someone else. Also your PCP can order the tests to check for elevated histamine and tryptase.

If one person finds a right answer, it could help so many of us.

I hope you all in SoCal will have better luck.

Feb 22, 2017
Full disclosure
by: G-Hair

I have a list of questions for the doctor, and I will post them with whatever answers she gives me tomorrow.

Full disclosure: I am very determined to solve the hair loss problem for a specific reason, my mom.

About 15 years ago, my mom did not feel like going to walgreens, so she went to the local beauty supply store in our neighborhood to buy hair dye to touch up her gray. This changed our lives like you would not believe.

My mom had an allergic reaction that made her head swell to the point that my grandmother did not recognize her. She was treated in the emergency room for the swelling.

In the weeks that followed she noticed that her menstrual periods had abruptly stopped, hair started thinning, and her scalp became irritated and scabby for months.

Over several months, my mom's hair started to thinned, and her hairline moved. I watched as her temples became more prominent. She also started to get scabby lesions on her scalp, which her primary care thought was dermatitis. Mom may have thought it was a phase, until she saw a very distinct bald spot. At that point she got a biopsy.

From biopsy she was diagnosed with Discoid Lupus. She was told that her immune system had attacked her hair follicles. Initially, she had been treated with the same types of treatments I see people using on this website.

My mom had medical insurance and she had a primary care doctor in our neighborhood which was primarily people of color. Access to specialty care was limited or not offered. She never pursued going to the university hospital, Mayo Clinic, or any other place like that. Besides her insurance might not have covered it. She just listened to her doctor and slowly deteriorated.

I always wonder what we could have done differently. If she had been more educated, had more resources, had more time/money to pursue a cure would things have been differently? I don't know, and I wasn't a nurse back then.

Despite the treatments, my mom continued to lose her hair. Then she lost her teeth. After rounds of steroids, her bones were weak. A few years after hair dye reaction, she stepped off of her patio and broke both of her ankles and part of one foot.

She had to go to a nursing home for rehab. It was awful for her, but she got some good physical therapy and made full recovery. She walks without assistance now.

Still other things started happening. We were starting to see white spots on her body. She was diagnosed with vitiligo. The doctors we now calling her condition Systemic Lupus.

She was sensitive to the temperature. Eventually, she developed joint pain, then Raynaud's Disease, and recently Paget's Disease. She has developed several other chronic conditions that may or may not be related to the autoimmune disease. Most recently she was diagnosed with Mixed Connective Tissue Disease.

I look at my mom, and I see how one reaction to a hair product has changed her life and will eventually take her life. It kills me to see that I can't help her. It kills me to see her depressed. She is in the process of retiring early on disability.

I read somewhere that there is a 50/50 of passing this sensitivity or potential for a reaction to your children. I have one son, and he has been warned. I have one little sister, who is now in nursing school, and I lecture her about trying new stuff on her hair.

Were we all just predisposed to having this type of reaction when we encountered certain chemicals in life? Is it written in our DNA? Are our siblings or children at risk? Can we stop the madness. I hope to get answers tomorrow.


Feb 21, 2017
G-hair & if I can turn back in time ThankYou.
by: Andrea

Thank you G-hair victim for sharing all your research with the rest of us I really hope your appointment goes well and we can finally get some answers. I live in California so I will try to book an appointment with Dr. Goh. I am hoping to get a scalp biopsy soon because I started noticing that my roots are really light and thin I'm sure is miniaturized hair.

Feb 21, 2017
Thank you G-hair
by: Sandra

I'm not sure I completely understood everything that you wrote G-hair as I have no medical training at all! However, I am so grateful to you for trying to make sense of this for us. I will spend the rest of my life worrying about what this horrible formaldehyde hair straightening treatment did to my teenage daughter, I will never forgive myself and I'm not sure I will ever recover. I'm so grateful to you for helping us to make sense of this and for investigating as much as you have done. Any information that you have is gratefully received. Everyone in my thoughts.. xx

Feb 21, 2017
I'm sorry Andrea and thank you G hair victim
by: If I could turn back time

Thank you G for all of your research and great info. Let us know what your doc says! Andrea if you live near LA, Dr. Carolyn Goh will validate you. She sees several patients with our same complaints. That said, all she had to offer me was rogaine use, laser comb, viviscal hair vitamin....I tried spironolactone for a while, but it didn't seem to be helping so I stopped. I never faithfully used the laser comb, so that got returned. I currently just use viviscal hair vitamin and a small amount of rogaine to my hair line. I did get some fine baby hairs with that, but that's it. That said, I'll take anything I can get. Love and hugs to you all

Feb 21, 2017
Immonologist
by: G-Hair

Hello All,

I am going to see the immunologist tomorrow, and I am doing a little more research to make sure I ask the right questions. In doing my research, I found a significant amount of information on the ability of formaldehyde to activate mast cells and uncontrolled mast cell proliferation; negative affects of an overreaction of mast cells; the contribution of mast cells to alopecia; and more importantly how this condition is often misdiagnosed by physicians, especially dermatologists.

"Everyone has mast cells and these cells play an important role in our immune systems.. However people with mastocytosis, experience health problems due to an undesirable amount behavior of mast cells called 'degranulation.' Due to a known or unknown trigger, a profusion of mast cells simultaneously burst open in a effort to protect the body, dumping histamine and other chemicals in massive amounts. Mastocytosis patients' symptoms arise from this degranulation which leaks fluid into the connect tissue spaces between cells, even when there is no legitimate external trauma or irritant/parasite in the body. In this regard, Mastocytosis resembles allergic reactions, but the triggers of degranulation are many and often ambiguous. Culprits of degranulation can include food substances, exercise, heat, cold, friction, dyes, medication, molds, odors, chemical substance (including formaldehyde), and other normally benign environmental prompts. It is interesting tnot that the vast majority of Mastocytosis patients do not show reactions to many routine allergy tests, until and unless the are also tested for an exaggerated response of histamine. Yet, like severe allergy sufferers, Mastocytosis patients often have high blood tryptase levels, as if they are suffering from chronic allergies."

Reference: Sever,A; Sibbald,G; D'Arville,C: Thousand Faces of Mastocytosis: Mistaken Medical Diagnoses, Patient Suffering & Gender Implications University of Toronto Press: 7. 2009.

CUTANEOUS (skin) MASTOCYTOSIS is a (supposedly rare) condition that shows accumulation of mast cells in tissues. Atypical clinical features may mimic other skin conditions and can be difficult to diagnose. It requires extensive testing that is not typically ordered by a dermatologist. That is why it is important that we see an immunologist.

The article below may difficult for some to read just because it is filled with a lot of scientific/medical terminology. I am a nurse, and I struggled to digest it, but maybe it is something you want to read or discuss with your doctor.

The title is: Abnormal Interactions between Perifollicular Mast Cells and CD8+ T-Cells May Contribute to the Pathogenesis of Alopecia Areata.

Of course peri= around and follicular= hair follicle. Just imagine for a second that your reaction to formaldehyde triggered your mast cell (MS) to over react. As part of their overreaction, the tissues around the hair follicle gets flooded with MS and the chemical that are released from the MS. And if the mast cells are growing in numbers at the scalp, your scalp is going to feel tight. Furthermore, this build up of mast cells and their chemicals, are going to put pressure on those follicles; it squeezes them and makes it harder for them to grow a hair. Now there are medications called "Mast cell stabilizers," but if it is not even considered as a diagnosis, the medication will never be the go-to treatment, and the mast cells continue to overact and strangle the hair follicles until they are all gone.

It's a theory, and it may sound crazy. The immunologist may even tell me that I am nuts, but I going to explore every option. I will report back when I have an update.

http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0094260

Feb 21, 2017
When will this misery end =,(
by: Andrea

Let me start off by saying that although it is my first time posting I do come to this site everyday hoping someone found a cure, but just like you Sam I have become hopeless. There is not a day I don't cry wishing I could go back in time when my hair was thick and long and my scalp was healthy and not itchy and tender to touch. It has been a year since I got mine done and it still consumes me. I quit my job due to the severe depression I was experiencing. I ask myself each day why me? My eyebrows have started to get to get flaky and I don't see any regrowth I used to get them don't every 2 weeks now it's every two months I wonder if it has anything to do with it, I wouldn't doubt it though I got the stupid Brazilian blowout about a year ago. Oh how much I hate myself for doing it. I should've done my research but instead I was an ignorant girl. I am still loosing about 200+ hairs everyday. My temples are thin and also my sides are beyond thin. I saw 3 dermatologist and every single visit was pointless. I was diagnosed with sebhorric dermatitis. I mentioned to them that I had got the keratin treatment about a year ago and they said there was no possible way that was the reason of my Hairloss. It makes me so mad that I know that's whats causing it but I can't do nothing about it. Oh I also got blood drawn, and everything came back fine. Honestly I was hoping I had something in which I can take medication and it would bring all my hair back. There is not a day I don't pray hoping we can all get our hair back and be happy. Sometimes we take the little things for granted not knowing that one day it can be all gone. I wish I would've cherished my hair more. I am only 25 and I feel so unhappy. My mother would always say I have a full life ahead of me but I think my life has seriously stopped. It is so sad I have come to the conclusion I rather just die than to keep living a miserable life without my precious hair. I am always stuck at home I don't socialize with people because I am so afraid of them judging me .I can't do nothing with my hair anymore because it is so thin. (To Sam)I can't help but cry even more when I read your story I feel like I can relate so much. You are right it was witchcraft and I hope the witches that did this to us will eventually pay and feel our pain. May God give us strength to keep living and one day find a cure.

Feb 20, 2017
No hope 😢
by: Sam

Hey everyone its Sam with just a update, first off to my previous post after the fact I did not realize the scams that people were posting on here and im so glad I did not give in to that website that cures lupas and so on what a joke right . Ok now to me i did tested positive for lupas and remember this was done in Dallas and followed up with my doctor here in Houston ok now I was kind of happy because I said ok if I have lupas well if I can treat it maybe my hair will stop falling out so I did get excited and then my doctor comes in and tells me you don't have lupas even if your positive for lupas what!!!!!!! What do u mean she said my ratio count was nothing to be alarming and it has nothing to do why my hair continues to fall out and im like im done with this Brazilian blowout mess!!!! Formaldehyde crap!!!!!! Im so tired and its just driving me to see my grave very very early I mean there's nothing we can do nothing!!!!! I already lost my right side of hair and i mean all of it and I cut the top off and guys and ladies no joke its growing like clown hair!!! I mean a scary clown!!!!! Its for sure male pattern baldness now very clear to me and I don't no how to fix clown hair im really about to join the circus I already have the hair just need to color it in clown colors im so embarrassed I can't even comb the top or run a brush like I used to all I do is cry and cry and I brought a wig but it needs to be taped to my scalp and I can't even use it because my scalp is still so inflamed what am I supposed to do you no and being made fun of by my surroundings because people are so mean they don't no what's its like having your scalp burn off by high heat temperatures and formaldehyde poisoning you no its just so sad that im not me any more I was planning on moving and stuff to try to start over but im still very much in pain with my scalp how can I work and move with this torture scalp this never ending night mare and to my conclusion we did not get a Brazilian blow we got witchcraft like in that move the craft were they make that pretty blonde girl hair fall out yup that's my opion only because some of the post on here are like 3.5 years in and 4 years in and still loosing hair im like seriously wow!!!!!!! No hope sorry I was hoping to leave something with goodness. Has anyone offen realized for example YouTube there are really no post about Brazilian blowout hair loss just a few that i saw but not much like were posting on here im actually thinking im going to make a YouTube blog about what's happening to me and my life events and talk a lot of mess to the inventors of all Brazilian blowout because its witch craft!!! And it needs to be stop like now!!!!! Well again so sorry to posted long but it helps me to let it out and my feelings and all this about witch craft its just me with all what's wrong out there one just nevers knows whos out to harm us well god bless to all I no nobody ever response but I really care for all of you and pray that our hair will grow back full and soft not like clown hair lol well thanks to who ever reads this Sam from Houston.

Feb 19, 2017
Dermatitis
by: MG

I am very healthy and nothing weird happened to me as a cause of the BB other than my scalp problems, hair loss and losing my mind. I try to keep my mind away from my hairloss even though it is hard because my hair is everywhere. There are some very nice wigs called Follea in Beverly Hills that will be my next step. Check out the womens hairloss project website and check out the author's wigs. She looks really good.

Feb 19, 2017
Rogaine
by: MH

Hi all

Update from me: I'm 3.5 years into this hell. Just writing that seems crazy. And it haunts me every day. I have very little hair left and no regrowth. I'm really interested in he steroid shots as I've read on here that they've had a miracle effect, but I just couldn't get them in the UK.

Who else has tried rogaine? I'm considering it...even though my dermatitis is still terrible.

Sorry to have better news!

May

Feb 19, 2017
MG- we all have the same story
by: If I Could Turn Back Time

We have the same, exact story.....there has to be some type of recourse!!

Feb 18, 2017
MG
by: G-hair

Sorry to hear that. I was just wondering when or how often you have gotten blood work done. So much literature talks about autoimmune disease developing later. However the timeframe seems to vary and be unclear. I was curious to know if you have had autoimmune testing recently. If not, would you be willing to have the testing done again? Have you developed any other odd symptoms? I'm just trying to understand this disease process, and I know you have been dealing with this a lot longer than some of us. Thanks.

As I mentioned before, my autoimmune tests were negative, but I will have additional testing when I see the immunologist. I'm keeping my fingers crossed. I just want to be sure that I am being treated correctly.

For now I take the vitamins, rogaine, Allegra, and a better diet. I also take Wellbutrin, because this is not easy. I have cut my hair short. I eat better and wash my hair every other day.

I don't have any redness, itching, or irritation. My hair is not falling out. I'm just hoping it will thicken up and grow like it used to. The most affected parts are thin, frizzy, and delicate. The worst part for me is the front, spanning between the temples and the neck area. It's so heartbreaking. I'm scared I'm gonna end up with that horseshoe/clown pattern. Ugh. This sucks, but I haven't given up.


Feb 18, 2017
Seborrheic Dermatitis
by: MG

I had my BB 4 years and 6 months. The stylist applied it to the scalp just like she would have done a hair color application. I first paid attention about two weeks after the treatment when I realized that my scalp was peeling off in big chunks (1 cm pieces). Right after my scalp peeling off, I started feeling a tingling sensation that moved around my head and then this turned into a itch and burn. I got tested for everything including allergy patch test which all came back negative. My scalp has been itchy and tight all along. I tried many medicated shampoos including cortizone ones that did work in terms of soothing my scalp but not with the loss. I have loss all over my head but mostly concentrated on my temples and my hairlines has receded as well. I did not get bald spots. My scalp became so sensitive to everything that I couldnt even wear loose pony tails because the pull would hurt my scalp.

Feb 18, 2017
Can anyone help ?
by: Sandra

The link below is an interesting newspaper article about BB..

http://www.dailymail.co.uk/health/article-2379071/Safer-stick-straighteners-Levels-cancer-causing-formaldehyde-Brazilian-blowdry-dangerously-high.html


The newspaper article above mentions research about the use of formaldehyde in Brazilian Blowout. Can anyone access the research about BB that was done at The university of California as documented in the Journal of occupational and environmental hygiene ? I feel that if anyone can find the article in this journal it would give us some answers .,

I am feeling so sick at the thought of auto immune illness in addition to hair loss. I haven't slept for days ..

Feb 18, 2017
to MG
by: If I Could Turn Back Time

MG- how long did it take for you to start noticing your hair fall after hair straightening treatment and how many years did it take to get where you are now with the loss.

Feb 18, 2017
Seborrheic Dermatitis
by: MG

The doctor did not diagnose seborrheic dermatitis but the biopsy that I got. Seborrheic Dermatitis is not curable but it can be controlled. Seborrheic dermatitis and follicle damage has been my experience. I hope I am the exception rather than the norm. I really wonder what my life would've been with my full head of hair. I had thick, black, and a lot of hair. Now it is wispy and colorless and I have about 40% left.

Feb 18, 2017
Seborrheic Dermatitis?
by: Anonymous

The fact is a lot of people in here been treated with a whole arsenal of medication that would have resolved or relieved Seborrheic Dermatitis but they are still losing their hair years after their bb. Seborrheic Dermatitis Is a convenient diagnosis. Your doctor can look up the fake data that the bb perps put out and say "ah ha it must be Seborrheic Dermatitis Bc the maker says so" but I wouldn't trust them either. If You use all these shampoos and creams for dermatitis and a year later the hair is still falling out, then maybe that ain't the answer.

Feb 18, 2017
Follow up
by: G-hair

Every bb is not the same and I wouldn't trust the companies to disclose all of the chemicals and potential side effects. Some of of them failed to list formaldehyde as an ingredient and they certainly don't mention the possibility of going bald. I'm just saying I wouldn't put my trust in these bb companies. They are not honest people.

If you accept your diagnosis and you're recovering or dealing with it, then I am happy for you. I am happy for anyone who regrows their hair or embraces baldness.

I've seen about a dozen different diagnoses on here. I don't know what is right or wrong or if we can say it's a one-size-fits-all situation. I just want to explore my options and have some hope.

Again, everyone can do their own research and talk to their doctor. Majority of my info is from medical journals. The case study that I posted on 2/8/17, while severe/extreme, it is legit.

The medication, Tofacitinib, listed in a previous post is legit. It is currently approved by the FDA for rheumatoid arthritis, another autoimmune disease and is currently being tested at several universities and medical institutions for treating alopecia. The company Aclaris that bought the rights to the medication will also be conducting additional studies in the third quarter 2017, though they have not confirmed which cities. They will also run clinical trials to treat other types of alopecia. Maybe it will help someone. I hope so.

Side note: Aclaris Pharmaceuticals is currently listed on NASDAQ. In the past 12 months its value has nearly doubled. Some people are really betting on this medication. I don't mess with the stock market. I just found that info when I was researching the manufacturer.

Feb 18, 2017
Seborrheic Dermatitis
by: MG

What we are experiencing is seborrheic dermatitis. If you look at that Brazilian blowout MSDS it states that it causes seborrheic dermatitis when in contact with the skin. Basically our scalps are chronically inflamed which is the tightness that we experience. For those who have sebum buildup, this is seborrheic dermatitis. I think that' the first step is to control the dermatitis and get rid of the sebum build up. Unfortunately doctors prescribe really strong medicines with chemicals that tend to irritate our scalps. This provides some relief but the problem is not taken care of. I also believe that since formaldehyde kill cells it must've damaged our follicles. The extent varies depending on your exposure level. That's why our hair quality is not the same, our hair shaft is thin and our hair doesn't grow as fast and we can't keep the hair cycle going for a full cycle which is 7 years. Hopefully, we have enough healthy follicles left to help us mask our hairloss.

For those we auto immune problems, know that formaldehyde binds to your DNA. Do some research and you'll find that it could be something your body is trying to fight. I am not an expert but after going through this for over four years in reading all the comments you start putting 2+2 together.

Feb 18, 2017
To: Lisa & All
by: G-Hair

Don't let your primary care doctor or dermatologist be the last answer. I would suggest seeing an Allergist/Immunologist. Get a different perspective; explore other options.

Not only should you get tested for autoimmune disorders, but you should also get a CBC or compete blood count to check your white blood cells, and get tested for elevated levels of HISTAMINE in your blood. Elevated histamine would be a sign of a reactive process.

When I explained to my dermatologist what happened after the BB, she thought I'd had an allergic reaction to formaldehyde, and I think she was right about that. She also assumed that I was having early adrogenetic hair loss. I think she was wrong about that part. And even though she tried to treat me with steroid ointment, I don't think it was the best approach. She had admitted that she wasn't that familiar with BB reactions. Of course, she checked my thyroid but found nothing. After that, it was like "oh well" just use Rogaine.

The fact is Autoimmune disease is a last stage adaptation to an over active immune response (allergic reaction). When the immune system is over stimulated in the initial stages it manifests with allergies. If the root source of these allergies are not found and corrected, then the allergies will eventually become chronic immune over stimulation and can transform into autoimmune disease.

In putting autoimmune disease and allergies in perspective of normal immune function, it is necessary to understand that allergies are an initial phase of immune over stimulation that are triggered from outside of the body whereas autoimmune reactions are a late phase of chronic immune over stimulation that occurs within the body causing damage to tissues, glands, organs, and of course hair follicles.

If you can, imagine your lymphocytes showing up at your scalp when they recognize this invasion of formaldehyde. Lymphocytes should do their job and then go away, but for some reason, they stay there. They cause problems for the follicles, they take up space; leaving little room for the hair to grow. I don't know about you all, but my scalp feels tight. My scalp looks healthy but my head feels stuffy and tight.

I truly believe that I had an allergic reaction to formaldehyde, and despite mine and my dermatologist's best efforts, we have not stopped the reaction.

I have been tested for autoimmune disease, and it was negative. Keep in mind that my BB was in 08/2016. So I may still be having an allergic reaction. I am hoping to stop this reactive process, and I want to see a doctor with the knowledge and specialty to do so. I have an appointment with the allergist/immunologist. I'll let you guys know what happens.

Also, knowing that it might be an ongoing allergic reaction, I have started taking Allegra. I have also looked to eat more foods that naturally contain ANTI-HISTAMINES. Of course, allergy medications (anti-histamines) are supposed to regulate allergies, but it may not have a significant impact at this point. If figured it wouldn't hurt and might help.

I think that many of us may be in different stages of allergic reaction or autoimmune disease which is causing our hair loss. I may be totally wrong about all this, but if one person can report back that information was useful then I am happy. I have cried when I have read some of the stories on this website. It makes me sad and angry that we are suffering, but if one of us gets cured, I would be happy.

Thank you for reading my post and good luck all.

Feb 18, 2017
Thank you G -Hair
by: Lisa

Thank you so much! I am going to get a test this week. You have done an incredible amount of research and this is the only thing I have seen that actually explains why this is happening. Thanks again and take care. Please keep posting this very helpful info for those of us who have been affected by the Brazilian Blowout.

Feb 17, 2017
Article link - Autoimmune disorder treatment
by: G-Hair

The research article for alopecia is below. It's worth reading and watching the video.

http://newsroom.cumc.columbia.edu/blog/2016/09/22/drug-restores-hair-growth-in-patients-with-alopecia-areata/


Feb 17, 2017
Please read
by: G-Hair

Is your diagnosis correct????

There are several types of alopecia, and I think doctors tend to go with the easiest answer or diagnosis. My doctor has told me that my hair loss may just be female pattern baldness. I think that was her default diagnosis, but I am starting to question that. I question it, because a lot of my research suggests that ALOPECIA ARAETA can mimic female pattern baldness and other types of alopecia.

Occasionally, people in this forum have mentioned autoimmune disease and its connection to formaldehyde exposure. Well there definitely appears to be a connection, and ALOPECIA ARAETA is an autoimmune disorder, and it can be triggered by environmental/chemical agents.

My doctor had not tested me for autoimmune disorders. She just left me to use steroid ointment then Rogaine, and I was not satisfied with this. Again, I think it is all too convenient to go with the easy diagnosis versus digging a little deeper. Because even though alopecia areata can present in a large circular bald patches, it can also be diffuse and mimic Telogen Effluvium and Androgenic Alopecia (or female pattern balding.)

It makes me wonder if some are being diagnosed incorrectly.

If you haven't gotten tested for autoimmune disease, I suggest you get tested ASAP. It's just a matter of having your blood drawn. If you have already received a diagnosis of autoimmune disease related to your hair loss, I suggest you contact the research team below. It's for clinical trial at Columbia University. If anyone else finds research studies, please share. I hope this info helps someone.

For more information about how to enroll in clinical trials at CUMC, please contact 212-305-6953, write to alopeciastudy@cumc.columbia.edu, or register at: https://cumc.co1.qualtrics.com/SE/?SID=SV_25gtIP9tyFMhjr7.


Feb 16, 2017
Questions to anonymous
by: Kaylee

Hello, to the person below I am so happy your hair is growing back. I was thinking of getting steroid shots but I've been a little skeptical since many people here said they have experienced more hair loss or it simply doesn't make a difference. I've been experiencing hairloss for about a year now and I am still looking for a solution. If you don't mind me asking how long did you experience hairloss for? Was it due to the Brazilian blowout? If so how long was that? Sorry for the bombarding questions just want to know if our stories are similar. Thankyou

Feb 15, 2017
Regrowth
by: Anonymous

i noticed a quarter size right in the crown of my head. i waited for about 4 months to see if it would grow back. Needless to say, it didnt grow back...it just got bigger (about 6 fingers wide) finally i went to the doctor, got some blood work done (to check my thyroid etc...) it came back negative so the dr sent me to a dermatologist. I started getting steroid shots in the affected area along with the shots, my dermatologist also had me using rogaine, biotin and Allegra (he says he advises all his alopecia patients to use this, and that it shows results) withing a month my hair started growing back. i was scheduled to go once a month for 6 months to get the shots. Since i had good regrowth the derm stopped me at 4 months. He said he didnt want to do the shots anymore since my hair was growing back quicker than normal and he said too many injections could start to make my scalp lumpy or appeared caved in from too much steroid. Im hoping since i reacted so well to the shots that my hair will keep growing back and not fal out again!!! btw my hair is right below my dimples in my lower back (VERY LONG) i was DEVASTATED to say the least when this happened. Ive been thinking of cutting it to below my shoulders to keep the weight off my scalp.

Feb 15, 2017
Additional info
by: G-hair victim

Topical Tofacitinib is being used in the clinical trials. I am not sure of the cost and availability of the topical solution.

The Yale study is ongoing until December 2017, but they are not taking new participants at this time. Still, there may be other studies out there.

https://clinicaltrials.gov/ct2/show/NCT02812342

Feb 15, 2017
tofacitinib?
by: G-Hair Victim

Has anyone tried tofacitinib. Tofacitinib is used to treat rheumatoid arthritis, but studies have shown it to cause regrowth of hair for some types of alopecia.

Right now, it is not approved by the FDA to treat alopecia, but the research is out there. It might be worth looking into being part of a clinical trial. Currently the cost of the medication is about $2,492 or more for 60 (5 mg) tablets. So finding a clinical trial that might provide the medication for free would be nice.

Check out the article below and do your own research. I'm not into the kitchen concoctions and homemade remedies, but I wish everyone the best in however they decide to deal with the devastating hair loss. I hope the information below helps.

http://yalemedicine.org/news/article.aspx?id=13660

Feb 14, 2017
Hair loss
by: Anonymous

I'm 23 year old female. I've been losing hair for 6 year. It seems like I have female pattern baldness. I've just started to use Derma Roller on my scalp and then I put a mixture I made out of Sweet Onion Juice mixed with Lavender oil, Jamaican Black Castor oil, Emu Oil, rice water, Vitamin E oil, Harmony essential oil by Edens Garden, coffee and white ice pure honey. Is it ok to mix all of these together? How many days per week can I use it? Has anyone tried mixing couple of ingredients and does it work?

Feb 08, 2017
Interesting article
by: G-Hair Victim

I am in the process of getting referral to a rheumatologist. I wanted to share the following excerpt from a case study.

"2. Case Presentation
In September 2010, a 47-year-old female underwent a "Brazilian Blowout" treatment to straighten her hair. This procedure used a solution applied directly to hair and was followed by blow drying, and then heating the hair with a 450-degree flat iron. The patient was told that the solution contained no formaldehyde or harsh chemicals. The product’s label indicated that it was "Formaldehyde-Free". This patient had a history of an adverse reaction, consisting of skin redness and swelling, from sutures containing formaldehyde. The hair treatment lasted approximately three hours. She experienced a strong odor followed by a burning sensation in her eyes, nose and throat for a short time when the heated iron was applied. The usual procedure was to wash the chemical out of the hair prior to departure; however, the treatment lasted until closing time so she was told to leave the solution on her hair until her next scheduled appointment. Over the next few days, she developed diarrhea, vomiting, total body flushing and low-grade fever. On day eight post-exposure, she felt a burning sensation on her scalp, and subsequently washed her hair that day. While in the shower, at a water temperature of approximately 40˚C, she developed difficulty breathing and felt, "fumes coming off me like someone was using lots of spray bottles." Shortly thereafter, she experienced the onset of recurrent epistaxis, which continued for months. At that point, she sought medical assistance. The emergency room physician told her that she had sores and bald spots consistent with chemical burns on her scalp and lesions in her mouth.
Over the next three months she lost 25 pounds due to gastrointestinal symptoms. She was unable to eat, did not have bowel movements for 2 to 3 weeks at a time, and had intermittent bloating and abdominal pain, which required hospitalization. She was diagnosed with pancreatitis, but the etiology was not determined. Her skin turned bright red all over her body when she took a shower. She developed tachycardia and total body tingling that would come on 10 to 15 times a day, frequently lasting from 10 to 15 minutes and sometimes up to 60 minutes. Her menses stopped one-month post-exposure. Formaldehyde air measurements near the patient’s hair were performed 76 days post-exposure by a Certified Industrial Hygienist (CIH). The formaldehyde air concentration near her head was 150 ppb when the hygienist applied the hot iron to her hair. For comparison, this is above California’s allowable formaldehyde level from off-gassing of wood products [26]. This level is also above California’s acute reference exposure level for FHO of 44 parts per billion (ppb), for a period of one hour [27]. The patient had all of her hair removed following the exposure test results. The bottle of hair solution used on the patient was tested and found to have 8.6% FHO equivalents by weight, in direct opposition to the label, which stated "Formaldehyde-Free." This is equivalent to almost 13.8% methylene glycol, greatly exceeding the <5% methylene glycol level stated on the material safety data sheet produced by the manufacturer [28].
Her health continued to deteriorate. A series of doctors evaluated and treated her over the subsequent months. A diagnosis of an autoimmune disease, not otherwise classified, was made based on multiple organ impairment including peripheral neuropathy, anemia, joint and muscle pain, fever, flushing, weakness, amenorrhea, fatigue and weakness. Several physicians observed Raynaud’s phenomenon with minimal cold exposure lasting only a few seconds. A positive Anti-Nuclear Antibodies (ANA) of 1:160 (centromere pattern), positive anti-neuronal antibodies, reduced complement C3—37 mg/dl (normal 79 - 152) and reduced complement C4 10 mg/dl (normal 16 - 47) confirmed the presence of an autoimmune disease. A negative ANA had been performed in 2007. Treatment with plasmaphoresis began in 2011, which improved her symptoms and she continues to receive this therapy three times per week. She has been unable to tolerate other immune suppressant therapy.
Prior to the exposure to the Brazilian Blowout treatment, the patient had a thorough medical evaluation to evaluate her health and suitability for in vitro fertilization. She was found to be healthy and able to tolerate pregnancy. Her only medical problems were musculoskeletal and neurological residuals from an injury sustained in 2003.
As a result of her serious health problems, the patient initiated a lawsuit against the manufacturer of her hair treatment compound."

Open Journal of Rheumatology and Autoimmune Diseases
Vol.3 No.1(2013), Article ID:27832,6 pages DOI:10.4236/ojra.2013.31001


Feb 06, 2017
Lisa & C
by: G-hair Victim

Under the advice of my dermatologist, I have started using Rogaine. I was quite resistant to it, but she said it was better to start now to prevent additional loss. I am hoping it will thicken up my hair, and I will be able to report some positive results by April. We shall see.

Unlike many of the people on this website, I never saw significant shedding. After the reaction and shedding of skin, I noticed that my hair seemed to be thinning and not growing. My parts got wider. The hair on the top of my head looked flat and thin.

Initially, when I saw the dermatologist, she said she could see baby hairs. Eventually, I started to see more scalp, and more of my thick hairs seems to transition to baby hairs.

My hair was no longer in thick multi-strand coils. Instead it has become soft and frizzy. The soft/frizzy hair is worse at the top/front of my head.

I have been using Rogaine for a few weeks, and the areas that were less affected to begin with seem to be responding well. It may take a few months before/if I see anything on top.

My dermatologist admitted that she didn't know a lot about the risk/controversy surrounding keratin treatments.

C, I watched the lecture that your dermatologist gave on youtube. It was nice to hear her perspective. I recommend the video.

Feb 06, 2017
Just checking in
by: Lisa

Hi everyone. I hope you are all doing well. I'm just checking in to see how the girls who started using rogaine are doing. I had to stop using it because my head did not react well too it. I had a lot of redness and more itching. My hair fall is still about 150 on non wash days and 200 on wash days. It's so thin now I'm just giving up. I also bought a hair piece for women (called secret volume) that looks ridiculous on me so I'm not going to wear it. Im just accepting that this is my new hair. It's so thin and dry. If only I had been thankful for what it was and not done that poison keratin treatment. I would be in a much better place.

Jan 31, 2017
Lawsuit
by: g-hair victim

Several states are suing the FDA over BB.

http://www.safetyandhealthmagazine.com/articles/15140-advocacy-groups-sue-fda-over-salon-worker-exposure-to-formaldehyde

Jan 29, 2017
To: linda davis from Houston TX
by: Sam

Hello Linda Davis I'm Sam also from Houston TX near the Galleria area, and i don't know if you will ever read this message and of course for all to see and read but I would like to ask you a question. You said that you were cured from lupus which I'm glad to hear that, were you experiencing hair loss of any weather it was shedding or falling out in clumps or of any realeted factor to having lupus and if so did your hair grow back with the herbal medicine that was given to you. And this is kind of a two part question so sorry, but again prior to having lupus did you get a Brazilian blowout or any kind of hair trearmeant that made you see a doctor to find out what was causing your hair loss if that was the your case, you see for me that has been my case I got one Brazilian blowout and in 3 days after my hair started to fall out shedding bad and 7 months later still no change now here is were it gets weird for me now I've been to so many doctors here and there but finally said I need more help so I flew to Dallas to see a doctor and ive been there for a month and guess what he found yup lupus what I'm like all the testing I've done and money spent to come to Dallas to tell me I have lupus wow!!!!! I just cried and cried ok but the funny part I just had blood work like weeks before I had my Brazilian blowout and i was a healthy boy no lupus no of nothing all healthy and that's why my doctors here in Houston did not check that ok my point is I believe that the Brazilian blowout used on me and its chemicals like formaldehyde played a role on me having lupus which makers a lot of sense because one of the effects of formaldehyde is autoimmune disease and its so sad because there no warning label to the public its so sad but now I have lupus hair and I'm hoping that i can get in control of this disease before its to late im sorry this is so long I can really get in to this, im trying to understand and study the pattern that theses Brazilian blowouts have done to us and I blame myself so much and should have none better the name says exactly what it says it will do Brazilian blowout (out) the keyword. Well I hope to here from you Linda real soon about if you had any hair loss and to any body on here, I will give updates later on my new journey and findings to lupus hair.and all I have stated is my personal opion regarding my health and well being thanks all and god bless Sam from Houston tx.

Jan 18, 2017
No growth
by: Deb

I also have no growth or very limited. My roots would grow in every 4 weeks I'd have to color. Now it seems like the front does not grow at all. I never see roots. My hairline has absolutely receded as well as the back of my head. I don't think it was the actual product that was put on our head but how it was done. We are victims of their "mistake" . The stylist must have left the solution on too long or missed a step somewhere in the process and left something on our heads when we didn't wash for those days after. It somehow seeped into our follicles and destroyed them miniaturizing them. This is why we have some sort of CCCA . I have done so much research on this as I know everyone here has and this is my conclusion. The only good thing that I have read with this sort of alopecia is that it will "burn out" at some point and this is what I am waiting for . It seems like some have a better recovery than others with getting it to stop shedding as much. It's weird bc some days my hair is thicker than other days and I can have a good day and forget about it for a few hours.. although it does consume me most of the day. Although it seems thicker some days I still have the scalp showing which I fear when their is overhead lighting . It's embarrassing. The more I keep busy the more I obsess over it . I must say I have definelty less shedding now , not like before where I would lose handfuls and handfuls and less also dripping onto my arms and find less on clothes. It was soooo bad where several times I would clog my sink and my husband would go crazy that he had to fix it! I have never told him about it but I've told me daughter and she thinks I'm crazy . She says it's thin but not as bad as I'm making it seem. So it could also be more personal to us bc we knew and felt how much hair we used to have. I'll never forget the horror in the begginnjng . It was like a movie of psycho when I washed in shower over and over. You would think by my face in the mirror after someone was going to kill me - just hoping to make u smile but relate at same time lol.. right now I'm using well shampoos and conditioner - for in ultra those big bottles - hair still a bit itchy but def less - I Blowdry and straighten - yes straighten every 3 - 4 days. This makes my hair shine as best as it can - would look like a nest if I left it. I finish in shower with ice cold water which feels sooo good. When I finish blow drying and straightening I blow it with cold water at end too - still use scalp powder. Sorry so long but I keep reading your posts and always want to respond but don't get the chance. Any ideas that you have on trying to deal with this would help so much. If there is no cure maybe we can give each other advise on what looks good. Wishing everyone good luck !! Xoxo

Jan 16, 2017
Why us?
by: C

I've read certain hair types are more prone to having a "bad reaction" to relaxers.....I am assuming like my hair type- I HAD a lot of hair, but it was fine. Or Maybe those that were going to eventually thin? Like in their 60s? That said, I too feel that it is prob also due to the length of time it was left on our heads...the first two times I had it done, I was told to leave it on for 3-4 days!!!! Then all of a sudden I was told to wash my hair like normal. I still find it had to believe that all my loss is from those treatments and keep looking for an answer I can fix....

Jan 16, 2017
Still shedding bad
by: Anonymous

My hair doesn't seem to grow much anymore. In addition to all the shedding, it just stays the same length. I used to have to color my roots every 7 weeks. Now, I do it every 3-4 months. It's been 2 and a half years since I had the Brazillian Blowout. I can't believe that I still get handfuls of hair when I wash or brush it. It just gets thinner and thinner. Soon I won't be able to hide it anymore. I just ordered "Secret Volume". It's a hairpiece that is supposed to blend in with your natural hair. I just need to cover up my hairline. I can see so much scalp and I'm tired of using the powders. My boyfriend told me it looked like I had paint on my head the other day. I just can't figure out why this only affects some people who've had the treatment and not everyone. Do you guys think that the stylist got it on our heads or left it on too long?

Jan 16, 2017
Can this really still be from a treatment done 4.5 years ago???
by: C

My hair just gets shorter and shorter...finer and finer until it's worthless. my right more so than my left, but it the pattern continues, my left side and the back will eventually catch up... Has everyone noticed a decrease in length as well as fullness? It's growth capability is stunted?

Jan 10, 2017
Re: C
by: G-hair victim

I initially noticed my hair loss at the left temple. It has spread throughout. It appears to be the thickest in the back, but that might just be my perception.

I agree the products and salon should be disclosing that the BB may cause permanent hair loss just as tobacco companies and alcohol must disclose the potential consequences.

As for the prescription ointment that I mentioned previously, it does make my hair greasy, but without it I'd scratch my scalp or go crazy.

The greasiness doesn't bother me at this point. I'm no looking for my hair to have a lot of body. I'm just trying to keep my scalp covered.

I wear wide headbands now. My hair is always pulled back with a headband like something out of "Hair spray". In this style it looks like my hair is only thinning a bit at the hairline.

Jan 08, 2017
Two years
by: Anonymous

I had my keratin treatment done 2 years ago exactly. I had a lot of shedding and loss like the rest of you, but now my shedding is completely normal. It is back to pre-keratin levels, which I am very happy about. My only concern is my actual hair. Has anyone noticed any regrowth after their shedding stopped? A lot of you seemed to be complaining of bad shedding, so once that stopped did the hair grow back or is it gone forever?

Jan 08, 2017
Re: C
by: G-hair victim

I initially noticed my hair loss at the left temple. It has spread throughout. It appears to be the thickest in the back, but that might just be my perception.

I agree the products and salon should be disclosing that the BB may cause permanent hair loss just as tobacco companies and alcohol must disclose the potential consequences.

As for the prescription ointment that I mentioned previously, it does make my hair greasy, but without it I'd scratch my scalp or go crazy.

The greasiness doesn't bother me at this point. I'm no looking for my hair to have a lot of body. I'm just trying to keep my scalp covered.

I wear wide headbands now. My hair is always pulled back with a headband like something out of "Hair spray." In this style it looks like my hair is only thinning a bit at the hairline.

Jan 08, 2017
Trying to match patterns of loss
by: C aka If I could turn back time

Ok, just to start. I had no idea I would be posting so much on this site when I chose my name. It's too much work, so from now on it'll be C.
Did everyone's hair loss start at their temples? Did we all lose our baby hair framing our fac and sides and neck? Or did some of us get bald spots or patches of loss? Do all of us have miniaturization?

Jan 08, 2017
Biopsy
by: MG

I got a biopsy done and the MD took it from an area where I had most of the loss. The results came back as redness, inflammation consistent with dermatitis and androgenic alopecia as 30% of my follicles had signs of minituralization. I had the biopsy about 12 months after my BB so by then I had lost about 40% of my hair. Doctors go by was is clinical concensus and to them it is hard to conceive that women would put poison on their hair. Formaldehyde kills cells so it all depends on how much and how long we had the product in contact with our scalp. My loss started on right temple, then left one, then hairline with thinning patches all over. My part is where I have most of the hair left and helps me camouflage the loss. Bee honey mask makes my hair really dingy, shiny and take away the frizz. It also clears my scalp from the seborrehic build up. My scalp is so clean.

Jan 08, 2017
My experience
by: If I could Turn Back Time

I went to 5 diff dermatologists and 4 primary care docs...I've had every lab test done known to man...Most of them just thought it was effluvium or stress or "you just have thin hair".....Most didn't even know what a BB was. It's amazing to me the lack of knowledge. For me, the loss started at my right temple and then progressed from there. Some tried different things, stetiod injections to the area, topical steroids, antifungals, immunosuppressive drugs, different shampoos, oral antibiotics, vitamins, etc. I had a scalp biopsy that came back normal, but he took it from an area that he said was red, but the loss, was not occurring there at that time. I was really upset with him as the experience wasn't pleasant and you do lose some hair from that area and need stitches. Nothing worked! My loss continued to my right side, then my left temple, left side and nape of neck, then in front, and now my back....Has anyone else seen there loss in this manner? It seemed to go in stages and. It necessarily all over at once? Maybe some areas were thicker than others and that's where I noticed the loss more initially? Anywsys, the only doc I trust and said it was the chemical hair straighteners is Dr.Goh in Santa Monica, CA. She says she sees it a lot!! Her speciality is hair loss and she herself is bald. I think only time will tell what will become of us....like I have already mentioned. I use rogain for women and oral spironolactone...I think it has helped a bit...that and time...Dr.Goh never wanted to do a scalp biopsy. I guess she is confident in what she feels it is.

Jan 08, 2017
IICTBT
by: Anonymous

I went to 5 diff dermatologists and 4 primary care docs...I've had every lab test done known to man...Most of them just thought it was effluvium or stress or "you just have thin hair".....Most didn't even know what a BB was. It's amazing to me the lack of knowledge. For me, the loss started at my right temple and then progressed from there. Some tried different things, stetiod injections to the area, topical steroids, antifungals, immunosuppressive drugs, different shampoos, oral antibiotics, vitamins, etc. I had a scalp biopsy that came back normal, but he took it from an area that he said was red, but the loss, was not occurring there at that time. I was really upset with him as the experience wasn't pleasant and you do lose some hair from that area and need stitches. Nothing worked! My loss continued to my right side, then my left temple, left side and nape of neck, then in front, and now my back....Has anyone else seen there loss in this manner? It seemed to go in stages and. It necessarily all over at once? Maybe some areas were thicker than others and that's where I noticed the loss more initially? Anywsys, the only doc I trust and said it was the chemical hair straighteners is Dr.Goh in Santa Monica, CA. She says she sees it a lot!! Her speciality is hair loss and she herself is bald. I think only time will tell what will become of us....

Jan 08, 2017
Re: Last writer
by: Anonymous

Do you ever think about getting a second opinion? It just seems to me that there are very few experts in scarring alopecia related to BB. So many people have complained about hair loss from BB only to hear their doctor say that keratin is good for their hair.

Maybe I'm wrong, but I feel like most dermatologists would rather be catching and curing skin cancer than doing extensive research on hair loss related to BB. They see us as people who chose to have an elective hair treatment that may have caused severe/permanent damage to our scalp and hair. I just feel like there is less compassion and concern.

Furthermore, when you've had super thick hair all your life, lose a quarter of it, and you go to a dermatologist for treatment, some dermatologists don't see the problem. They see you still have plenty of hair so they don't treat it aggressively in the beginning. Again I don't think they care that much.

Jan 08, 2017
Anyone had a scalp biopsy?
by: Anonymous

Has anyone with this condition that started with the Brazilian blowout had a scalp biopsy? Just curious to know if it's useful to have and if they will be able to definitively tell if our hair is permanently gone. That's the only way to know for sure if we actually have a form of alopecia (and potentially the best way to slow it down). As I mentioned below, my doctors told me I didn't need one because I was diagnosed with telogen effluvium. They told me it was due to the chemical treatment and would eventually grow back. Over two years later I have very little regrowth and I'm still losing 150 to 200 hairs a day. My hair is extremely thin. I can see so much of my scalp. I used to have very thick hair. In fact stylist used to complain and always charged me extra because it took so long to dry. That's definitely not a problem anymore :(

Jan 08, 2017
Cicatricial alopecia (Scarring alopecia)
by: Anonymous

I believe the diagnosis is the same. Cicatricial alopecia, also called scarring alopecia, refers to a group of rare disorders that destroy hair follicles. The follicles are replaced with scar tissue, causing permanent hair loss.

Jan 07, 2017
Diagnosis
by: Anonymous

I know most of us have seen several doctors about our hair loss. Has anyone been diagnosed with scarring alopecia? My two dermatologist and primary care doctor did not do a biopsy because they said that I was just having a reaction to the straightening treatment. 2 years later I'm still losing hair :(.

Jan 07, 2017
Why is this so hard to believe?
by: Anonymous

I used to get my haircut every six weeks. Now I try to stretch it out as long as possible because I can't handle people pulling my hair and the amount of my hair that I see in their brushes when they are done. Today I went for a haircut (it's been about 3 months since my last one because my hair doesn't seem to grow like it used to) and I had a new stylist (the normal gal I see called in sick and since I'm leaving for a work trip I didn't want to push the appointment out). I asked her to please be gentle during the wash and explained I was having a problem with hair loss. She asked me what it was from and I told her I had a bad experience with a Brazilian Blowout. She immediately told me that that absolutely could not be what caused it because she has personally done over 50 of them and has never had an issue and she herself has one. She told me it's completely safe and all natural :(. It just frustrated me so much because I know exactly why my hair is falling out everyday.. It all started right after that horrible Brazilian blowout. Why don't people believe it? Why does it only happen to some of us and not others? What is it going to take for the FDA to pull this horrible product off the market?

Jan 05, 2017
G Hair Victim
by: If I could Turn Back Time

Our stories are all so similar....I tell myself the same. I should be thankful for so much. I have healthy children, a supportive boyfriend, Good career. I too am an RN. It's just difficult when something robs you of so much without any warning. Where was the disclaimer: This may make your hair a little less frizzy, but you will have a lot less of it. Oh, and when the treatment wears off in 3 months, your hair will be more unruly than ever before. Where was that disclaimer? I hope the ointment you are using works for you! Does it make your hair greasy at all?

Jan 05, 2017
Steroids over Rogaine
by: G-Hair Victim

I am slowly and reluctantly accepting that I may lose more hair, but I still stand by the Triamcinolone steroidal ointment. I apply this to my scalp twice per day or as needed for itching/irritation and here is why.

As a registered nurse, when I look at things like chronic obstructive pulmonary disease or COPD, I see the same type of reactive process. In COPD a person’s airway has suffered extensive damage and seems to always be reacting to this damage. The airway is irritated/inflamed and the swelling makes for a smaller passageway. White blood cells, which are usually helpful, make it worse by flooding the area and causing more congestion. The airway becomes tighter, and people are unable to breathe properly and get enough oxygen through.

To relax that irritation/inflammation/swelling in the airway, we give our patients steroids in the form of inhalers and pills. This gives them relief, but they are never truly cured. Still, they are able to breathe better, and air passes more easily.
Similar to a COPD airway, I feel like my hair follicles are constantly irritated, inflamed, and swelling to the point that a strand of hair has limited space to grow through, if it can grow at all. And I am hopeful that the steroid ointment that I am applying to my scalp will help in the same way that steroids help COPD patients.

Since the BB in August 2016 I have lost overall volume, and the individual strands have been thinner. Additionally, my scalp had been dry, itchy and irritated. So I decided to go back to my roots, and use the Triamcinolone Ointment just as my mom used to apply Blue Magic hair grease to my scalp as a child. I apply the ointment twice per day or as needed.

Now that I am consistently applying the ointment, I don’t itch, and I don’t have to scratch. I am hoping that the steroid ointment will calm the follicle and reduce the inflammation just enough to let hairs to continue to pass through.
It may be a longshot, but it definitely wasn’t doing me any good to be scratching all the time. I am cutting my hair today to make it easier to maintain and treat with the steroids.

I also considered Rogaine. I used it for five days. I realized that it did nothing for the irritation. The manufacturer states "DO NOT USE IF YOUR SCALP IS RED, INFLAMED, INFECTED, IRRITATED, OR PAINFUL." Check out some of the inactive ingredients: butane, butylated hydroxytoluene, cetyl alcohol, citric acid, glycerin, isobutane, lactic acid, polysorbate 60, propane, purified water, SD alcohol 40-B, stearyl alcohol. Maybe it works for some, but I’m going to pass on that. My scalp is too fragile play around with this stuff.

Rogaine may work for some, but I needed something that would lock in moisture while calming the irritation/inflammation, and the prescription steroid ointment is the only thing that I have found so far. I don’t think it is going to regrow my hair, but I am hoping that it will prevent anymore follicles from getting irritated, tightening up, or closing down completely.

Still, occasionally I break down and cry and ask why me. I was looking for frizz control not a BB. The product I bought was marketed as a smoothing treatment, but it was pure poison.
This may seem awful, but sometimes I have to tell myself "at least you can still walk; at least you don’t have AIDS; at least you are not starving; at least you can afford a wig when the time comes." I hate that I think that way, but sometimes those thoughts are the only thing that can comfort me.

Jan 05, 2017
Wigs and Hairloss
by: MG

There is tons of information in this website about hairloss and wigs. The site owner wears the most beautiful natural hair wigs and looks amazing. The featured article right now is on de-stigmatizing hair loss and wigs.

https://www.womenshairlossproject.com/

Jan 04, 2017
Devastated
by: If I could turn back time

I wish I could be more positive, but I'm completely distraught. The rogaine I have been using has helped create some "fringe" around my hairline, but my hair fall is continuing...I was so hopeful. That said, I will not stop using it until I throw in the towel and buy a wig. I cannot believe the last post....you completely took the words right out of my mouth. Just today I was thinking of just shaving my head. No more hair to fall, tickling my chest and arms. No more hair left to litter my sink and floor. No more hourly reminder of my hair loss. I've heard wigs are easier to use with short hair as well. I'm not sure what I am waiting for? My hair is completely awful. It's see through, the texture is "gummy" and it's all different lengths. I'm in my 30s and look like I'm in my 50s....
Is it the stigma associated with wigs? Maybe I'd be floored at how happy I am with one? Maybe I could find some peace? Maybe I get the most amazingly beautiful full scalp tatoo ever?
Not that I know how to do it, but I wish one of us could start a Facebook group that we could join, make private, share photos, etc.
I recontacted the lawyer I reached out to once before. He doesn't know if he can help, but he is looking into a class action lawsuit. He is supposed to get back with me if he feels there is something to pursue. I want the girl that did this to my hair to have her license stripped. Unfortunately, I'm sure that will never happen.
I needed to vent today. Thanks for listening

Jan 04, 2017
3 years plus
by: MH

Well, I just can't believe this is still a daily thing and sadly it probably will fall out. It's in terrible condition, top to bottom. Sandra, like your daughter my hair it totally unmanageable it is pure frizz and embarrassingly wispy. I keep thinking how much worse can it get?? But clearly it will all fall out.... I have tiny bits of regrowth that are withered and damaged. Everyday I think shaving of shaving my hair off. Still seems crazy to me that the majority of my family and friends notice little difference!!

Jan 03, 2017
Explanation
by: Anonymous

That explains why a lot of us have experienced the complete lack of production of oil at the scalp. I had hoped this condition would eventually go away. 😢 Never in a million years did I think I'd ever have to wear a wig. Everyone in my family on both sides have extremely thick hair well into their old age. The Brazilian blowout ruined that for me.

Jan 03, 2017
Cicatricial alopecia
by: Anonymous

I can appreciate the anecdotal stories of hope and regrowing hair. Sadly the fact is that many of the people who suffered chemical burns from a BB will never regrow their hair. The chemical burn can destroy some/most/all of the hair follicles resulting in a condition called cicatricial alopecia.

https://www.niams.nih.gov/health_info/Cicatricial_Alopecia/

Their is little research being done on this type of hair loss. The lack of research is largely due to the higher ratio of male physicians who may expect women to just join the balding club.

The other factor is the population that is affected by BB products. Minority women, black, brown, and other are a large percentage of consumers using BB products and are more likely to suffer harm. They are less likely to have access to the medical specialists, treatments, attorneys, etc. so they suffer and nothing happens.

While commenting on here may be helpful, activism is very necessary. Contact the agencies below. See what research studies are out there. Tell your story, because I doubt they are monitoring this website to guide their research.

Cicatricial Alopecia Research Foundation
Website: http://www.carfintl.org

North American Hair Research Society
Website: http://www.nahrs.org

Jan 02, 2017
Sulfur
by: If I could turn back time

I used a sulfur emollient on my scalp prescribed by my derm....it was $50 for a very small bottle and was more of a lotion than a shampoo...it was very strange. I can't say it helped me, but it's used to decrease inflammation/dermatitis

Jan 02, 2017
question
by: Anonymous

have any of you ever tried sulfur?

Dec 29, 2016
Update
by: Sandra

My daughter came home from university for the holidays and I was so happy to see her but tinged with sadness at the awful state of her hair. Yet again, she refuses to speak to me about it which is so painful for me as I see it getting thinner. The hairline in particular is showing more scalp but in general it's just thinner hair. The back doesn't seem as affected. Those of you that have been reading this forum for many months will see that this started with a formaldehyde laden Brazilian hair straightening two and a half years ago. Her hair stayed straight for a year afterwards and it is very curly hair! It began with a bald patch at the top of her head which was diagnosed as female hair baldness and which has now grown back. Female hair baldness does not grow back by the way! Hair loss was rapid over the following year (I will never forget the pain of hairs on her pillow every morning). Once the bald patch at the top began filling in, everyone was getting so angry with me, telling me that I was making a fuss and that her hair was fine now. I tried to explain to them that it wasn't over and that I had researched and that the pattern might be that as the hairs fell, new hairs would not replace the existing hair. Nobody would listen to me! Sadly, I was right. And there is regrowth but it's bizarre in the sense that when I look at my own hair, I have lots of new hairs all over my head at different lengths, when I look at my daughter's hair I see little areas of regrowth that are all the same length. Almost as if they have been cut at the same time and are growing back the same length. That's all I have to report at the moment. She says that her hair is unmanageable (I can see why as some bits have grown back lighter and more fluffy) and has asked me to pay for some hair straightening again ( she wants to try 'Yuko' the Japanese hair straightening which is permanent). I have said that I don't think it's a good idea but I understand how difficult it is for her to manage her hair. Thank you for all your posts on here, I read them every day and it offers me support.

Dec 28, 2016
???
by: If I could turn back time

Has anyone else experienced hair not only getting finer and falling, but also getting shorter and shorter until it disappears? I have sections of hair that only grow to my chin...and my hair falls out in various lengths....one inch, 4 inches, 8 inches long, etc...sometimes I have hair more than one hair attached to a single root bulb...the follicle has released more than one hair.....I'm just trying to get detailed to see if our loss follows the same pattern....thanks all 😘

Dec 28, 2016
@Lisa and Lois
by: If I could turn back time

Thanks Lisa. It's nice to have a place to share and get advice. I won't get rid of the "girls" just yet 😉 I wonder how many groups there are out there like this one? I contacted a lawyer a few months ago, but I never heard back, so I figured he must not feel there is a case??? I've thought about inquiring again, but I'm not sure I want that stress in my life... I do feel that we have all been very wronged. These products/improperly trained stylists stole many years of happiness and hair from our lives. And thousands of dollars from our wallets in search for a cure.
Lois- are you still on here? I saw an old post and you were using rogaine and spironolactone. I am hoping for an update.

Dec 28, 2016
Thank you all!!
by: Lisa

It's been a little over 2 years for me. Most of you are familiar with my story (because it's the same as yours). My hair used to be thick and healthy. I had the BB done to reduce the amount of frizz I had in the summer. The hair loss started soon after. I have about 30-40% of the hair I used to have. It is very thin on the top, in the front and on the sides. I have lost so much hair and I literally feel sick to my stomach every time I have to wash because of the amount I know I'm going to lose. Even when I brush my hair (without washing) a ton of hair comes out. It's unnatural. I tried rogaine about 6 months after the loss started. My head was still very inflamed and I had a lot of scalp pain. The rogaine did not help at the time, I think it's because my head was just too irritated and the rogaine just caused more irritation. Now that more time has passed and I have less scalp pain and itching, I think you guys have given me the courage to try it again. I'll report back and let you know how it turns out. "If I could turn back time" thank you so much for your posts... if I may say, I think that your hair loss is only from the keratin treatment. I also have implants, but I had them long before the keratin with no issues or hair loss. I am 40 (I estimate that's roughly the same age as you) I really hope this gets better for all of us. I am so sad that the FDA allows this product to remain on the market after all of the destruction it has caused. I hope that 2017 is a great year for all of us and that this is the year we are able to find something that helps :) Happy New Year Everyone!

Dec 27, 2016
Anonymous
by: If I could turn back time

It's too early to tell about my hair....it's only been two months....I have "fringe" along my hair line...baby hairs...I lost those and those are coming back....those are important to me too....I use Viviscal extra strength hair vitamin

Dec 27, 2016
@if i could turn back time
by: Anonymous

so when you say the rogaine worked for you, did the new hair grow out normal or is it thinner than the rest. Also are you taking any other supplements? My dermatologist told me to try taking biotin and using rogaine at the same time to jump start the hair growth and i'm not quite sure if that is a good idea or not.

Dec 27, 2016
Deb
by: If I could turn back time

I started seeing results in 6-8 weeks.... I wash my hair every other day, even though my doc says to wash everyday. I wash every other day for the health of my hair, not my scalp, as I do dry my hair after every washing. I highlight my hair, but very lightly now. It's not as blonde as I would like. My new hair is light brown, my natural color...I didn't really notice more fall as my fall was already excessive...I told my myself I would push through it even if I did. I don't have hair growing on my face or anywhere abnormal from the rogaine. I haven't noticed other body hair becoming thinner, as I feel that has already happened to me....I really think my loss is a combo of blow outs and breast implants possibly causing hormonal changes?? I don't know...unless formaldehyde exposure can cause permanent hormonal changes? Anyways, I hope that helps....BTW, I tried a minoxidil product called 82M and had massive shedding about 1.5 years into this journey. I don't know if my scalp was too irritated to handle it at the time or if it was because it was too strong, or just the preparation didn't agree with me, but that's part of the reason I resisted trying rogaine for so long. I use the rogaine foam 5% for women once a day, at night. They have videos on line that tell/show you how to apply it, but I just apply to the front of my scalp where most of my loss is. I part in the middle and directly apply a thin line of product halfway down my part. I massage it in with my fingers, and then create new parts moving down the side of my head on both sides and do the same. Then I wash my hands real good. Hope this helps 😘

Dec 27, 2016
Rogaine question
by: Deb

I am so tempted now to use rogaine - just some questions - did you hair shed more when you started using it? Do you have to wash your hair every single day? Do you ever blow dry or dye your hair? When did you start to see improvements so I know how long to wait ? What color are your new hairs growing? Do you notice anywhere else on your body that your hair may be thinning? Ok enough questions for now lol . Thank you so much for your input!

Dec 26, 2016
Rogaine
by: If I could turn back time

I got my first blow out 5 years ago and until I started using rogaine a couple of month ago, my loss continued....my sides are see through and my part widened in front...no fringe to frame my face. It was never going to stop...it was getting worse daily. Rogaine worked for me. I have some fringe and my fall has stopped. I know not everyone will respond the same, but I'm pleasantly surprised. I just wish I would have tried sooner.

Dec 26, 2016
2 1/2 years and counting
by: Anonymous

Got my one and only BB over 2 1/2 years ago and hair still falls out all the time. It almost seems unbelievable. I try to wash my hair everyday only because if I skip a day the hair loss in shower is double the next day. I would estimate that I lose about 150/day - same as when this all started!! How could that be? How am I not bald? This whole ordeal has been completely exhausting - I have tried everything: prescription steroids, scalpicin, selsun blue, several organic shampoos (these seem to make things worse for me), coconut oil, tea tree oil, garlic shampoo, washing hair once/week, etc etc. Nothing changes. My hair used to be insanely thick - now it is much finer, about 1/2 as think and front/temples very thin ( I won't wear ponytails anymore). I've given up trying anything new - maybe within next couple YEARS it will return to normal?? Maybe not.... No one on this site seems to say when things go back to NORMAL. If you've never had a BB - don't!! We're not crazy.

Dec 21, 2016
Deb
by: If I could turn back time

Btw, I haven't been able to wear my hair long anymore because it is too thin and looks terrible. It still looks terrible and stringy, but I choose to wear it down, shoulder length, parted in the middle. sometimes I Bobby pin one or both sides back. 😘

Dec 21, 2016
Deb
by: If I could turn back time

We have the same story Deb....I'd give the rogaine a try. It has decreased my fall and I have some fringe in front which makes me so much happier. Good luck and keep us updated

Dec 21, 2016
Raw Honey Helping
by: MG

I am a veteran here and my story is just like everyone's. After four years, I feel the health of my scalp is improving and the hairloss is still abnormal (on the high side) but not massive. Overall lost about 60% of my hair with my sides super thin and the texture is not the same. I think my hair must have aged by 20 years. I part in the middle where my part is the thicker and this camouflages my thin sides. I think long straight hair is the easiest to manage and looks better on me given my new hair amount. I put my hair in low-loose pony tails to hide the sides. It is really really important not to expose your scalp to the sun. Even though the soreness is gone, if I expose my scalp to the sun the pain comes back for a day or so. I have had seborrheic dermatitis (with inflammation and tightness) since my BB and read that bee honey helps eliminate it or control and this reduces the hair loss from seborrheic dermatitis. when I wash my hair, I dilute a teaspoon of honey with a glass of filtered water and just saturate my scalp with it for about an hour. Then wash with a shampoo without fragance and condition keeping conditioner away from the scalp. Fragance irritates the scalp. Blow dry with medium temperature. My scalp is less inflamed and smooth, my hair (even at the scalp) softer and shinnier, I have less goey buildup from dermatitis and I believe I am losing less hair. Honey helps with skin healing too. If you decide to try this, use little honey at first because too much on anything is not good on our temperamental scalp (this is why I decide for one teaspoon per 8 ounces of water) My honey comes from a bee keeper and has the honey comb.

Dec 21, 2016
Hey deb
by: Sam

Hi deb don't no if you will read this but I wanted to share my answer to your question, everything you have describe I have down to my health it seems that I'm getting sick and now its harder for my body to fight especially my stomach I get very weird tummy pains it can sometime bring me down that i can't move i have never in my life of existence experienced such agony before I had the Brazilian blowout I was a pretty healthy guy you no and i did go bald on my left like a circle huge chunk of hair just vanished but my doctor thinks my stress levels are not helping my situation because I can't believe this is happening to me and me as well my eyebrows are very very thin I lost one side and my body hair just disappearing when I read your post I just wanted to tell you your not alone and I'm going to pray for us both eveynight that we get our hair back. Even though I gave up and cut all my hair off and in January im having my custom wig made to my standards with real human hair and it should be ready because its going to look like my hair at least that's the plan because ill send it back if it looks to fake , now about Rogaine my doctor said it might not help me right now because my scalp its still has a lot of inflammation and redness and dryness and non stop itchiness and i may not even be able to wear my guys wigs but well I just wanted to tell you that a guy from Houston Texas understand you. God bless you and take care Sam .and I wish I new how to stop this horrible nightmare for everyone and we all just wake up with our original hair back again players to all.

Dec 20, 2016
Turn back time ...
by: Deb

Wow we seem to have the same exact description. All my hair strands are very thin all over - I do t have any bald patches per se - however if I part my hair from anywhere on my head the part is wide. Hairs easily come out without any pressure of pulling. A few strands at a time can be pulled when I just run my hands through my hair. Also I have recession on hairline as well as the back of my hair seems to be recessing. My head is itchy from time to time and feels very sensitive when I wear it up - like it's pulling my hair out! The top seems to be my worst area - seems the thinnest and see through - I guess it's bc of the way the hair falls. My hair is also very dry . Strange through I don't see many split ends - possibly bc each hair seems to be so thin it looks as if it's split in hair. I just can't beleive how thin the strands are. When wet it freaks me out on top bc of the scalp I see. I wear hair powder but as it gets more and more thin on top as it's falling I feel like this won't work anymore and it will look like I painted my scalp. How do u wear your hair mostly ? I need some style tips- I noticed if I put my sunglasses on my head it hurts as well as if I put a little clip in bangs to the side. I'm wondering if I should just bite the bullet and try the rogaine

Dec 20, 2016
Deb
by: If I could turn back time

It has been working for me. My hair had thinned enough for me that I had nothing to lose, but more hair. I bit the bullet and used the Rogaine. I'm not saying it's the healthiest choice, but for me, any amount of new hair makes me very happy. Mental health is valuable too. Can you describe your loss for me? Mine has been an overall thinning, but more so in front/sides with ministration and hairline recession. I don't have bald patches. Hope this helps 😊

Dec 20, 2016
Rogaine
by: Deb

I bought it but never used it bc I heard horror stories of losing. More hair and I'm so afraid to lose anymore . If it does help I would love to know bc a few little extra hairs that I see growing would make me feel so happy right now

Dec 18, 2016
Anyone else have luck with Rogaine?
by: If I could turn back time

I hear all of your stories and they sound just like mine....but I find it hard to believe that something I did 5 years ago is still causing my hair to fall out. My part was widening in front, my sides see through, I've lost 50% of my hair....I saw multiple doctors as my hair was rapidly thinning and it was decided that my hair loss was from the chemical straighteners. That said, my doc put me spironolactone 200mg/day just in case my age was a contributing factor. I was 35 years old when this all started. I also caved and started using rogaine for women once nightly. I refused to use it for the first 4+ years of loss, because I knew my loss wasn't natural. That has turned out to be a mistake for me as my hair fall has decreased and I have a lot of new hair coming in. It has only been 2 months, but I'm happy with the progress. Has anyone else had results on here from Rogaine? I just for sure wish I knew the cause....stress? Breast implants? Hair straighteners?

Dec 18, 2016
Keratin disaster after 2years
by: Tsoline

Plz if u can send me your emails to see the pictures of your hair to see if we are the same

Dec 18, 2016
Health issues
by: Deb

Just wondering if anyone has had any health issues since losing their hair from keratin . Anything unusual bc of course this makes me worried . I had the best health and now I feel like if I get any kind of sickness it takes me longer to fight. Don't know if it's a coincidence . How are you guys doing otherwise ? I like to check in every now and then . I'm really seeing a lot more scalp. Using the hair powder but don't know how much Ionger I can mask this. Been still washing twice a week - days before I wash I put in a low bun. Hurts a bit but looks ok . Any suggestions on other hairstyles to mask the hair loss - I must have alopecia - probably scarring alopecia bc hair is just not growing back - I'm scared I will go bald and have to get a wig . I really hope not . It's only been a year but since I see nothing works to restore my hair I basically have not done anything. Unless I see something works that makes some sense to me I'll try it. I'm just seeing now that my eyebrows are getting thinner as well as body hair - somehow this messed up my whole system

Dec 12, 2016
finally getting some closure
by: Anonymous

after a keratin treatment my fine hair started falling out at a rapid rate, so much so I ended up buying a wig. I have recently found Rene Furterer Forticea shapoo and RH vials and must say the shedding has stopped on its tracks. worth a try, all natural ingredients and only 1 vial a week so quite affordable. My shedding has almost stopped altogether and my hair feels so much better.

Dec 12, 2016
J. Lo
by: Anonymous

Check out J. Lo's pictures. It looks all too familiar. She gets the super straight hair which becomes fragile and starts to thin. So she cuts it and tries to give it a little curl and volume, but the paparazzi caught her in the last photo with her thin flat hair. J. Lo should be on here telling her story. She should be telling her story to all of the young ladies who look up to her.

http://www.belgraviacentre.com/blog/hair-loss-and-damage-from-keratin-treatments/

Dec 12, 2016
please comment on amazon
by: Inoar G-hair victim

It is disappointing that people like Jenifer Lopez and Jenifer Aniston have experienced breakage and hair loss and don't make a better effort to warn their fans. Of course they have the money to get by with extensions and other expensive services. It makes me angry that more people aren't acknowledging the dangers.

I looked on amazon, and I saw Inoar G-Hair is for sale from random distributers. Of course the fake reviews are up to no-good. All of their comments talk about the great results of using the product, but they have never used it. It is such a scam.

If anyone on this website lost their hair to Inoar G-hair or any other formaldehyde based hair product, please tell your story on amazon. You can simply cut/paste your comments from this website.

If a comment on the product will make a person think twice before buying it, it's a great thing. I just don't want another teen, 20, 30, or 40-something year old, who should be enjoying life, sink into a deep depression due to hair loss. I'm willing to bet that someone may have taken their own life over this Brazilian Blowout crap. Please warn others. Post a comment on amazon

https://www.amazon.com/Inoar-Original-Brazilian-Smoothing-Treatment/dp/B01KVOFRMK/ref=cm_cr_arp_d_pl_foot_top?ie=UTF8

and/or

https://www.amazon.com/Inoar-Original-Brazilian-Smoothing-Treatment/dp/B01KURT4ZO/ref=cm_cr_arp_d_product_sims?ie=UTF8

Tell your story at the link above. So what if you didn't use the product. The fake reviewers didn't use the product either.

Note how the product description leaves out "Brazilian Blowout." I had to use a magnifying glass on the one that I bought just to see that it had formaldehyde in it. Of course by that time it was too late.

Dec 09, 2016
So sad :(
by: Sam

Its been a while since I update, what were pretty much going through that's why we post here to vent to see if theres any one out who has found a cure but this is me saying there is no cure I got suckered into paying 400.00 dollars to make me bald and now I must suffer my consequences. No lawyer can help me get my hair back I can't do anything to the untrained hair stylist who clogged my scalp with that Brazilian blowout product can't blame no one but myself and i hate hate hate myself right now the young man that was me died in may 2016 and I'm givING in to the new man that I am a bald man that has aged 30 years in 6 months I was 34 yr six months ago now im 64yr I say this because its how I feel my whole body has change I no longer produce natural oils I have to many skin problems brought on from the Brazilian Blowout and i guess ill be the first to report that I'm complete bald from my left side all the hair has vanished along with my front hair line this happen to me so suddenly im in a state of shock right now and giving it all to stay calm, some one posted about eyebrows thinning yes my right one is completely gone and the left with a few hairs and the hair on my knuckles disappeared and arm hair gone just gone and all my blood work is fine and doctors really don't no what in the hell is happing to me. I've aged !!!!!!!! That's what has happened to me my body hormones have been changed altered from the formaldehyde or another chemical that's in the Brazilian blowout why is no one listening to me doctors I mean it just keeps getting worse for me and this is just the beginning im only 6 months in can you imagine in 4yr ill probably be dead of old age at 38 that's how old ill be in 4yr but ill look 68 remember this Brazilian blowout has ruined my entire life ill be leaving very soon in 7 months or so as soon as I sell the family home that i lived in since the day I was born but I need the funds so my dad can stay in a good nursing home and to start my new life were no one new that i once had a full thick set of hair that's my so sad news. Sorry I no who ever reads this ain't helping much but I have to vent and let out how I feel to anyone to let all no that Brazilian blowout are no joke it's a very very serious harmful chemical that ruines lives. Or just takes a few years of your life. Good luck to everyone for I have lost the battle for saving my once upon a time very thick handsome long hair . I just have to say I went from looking like prince Eric from the little mermaid kind of hair to looking like a rooster half buffoon dried up mullet on one side just plain ridiculous fried Krispy Kreme donut kind of hair so sad . well thought I would make someone laugh you see when I vent on here I sometimes stop crying and feel ok thanks guys even if I don't no anyone on here reading this and I promise my intentions are not to get any one down but this is just my reality and what I'm going through take care all bye. Sam from Houston TX

Dec 08, 2016
rick
by: Anonymous

Hi to everyone - I feel all your pain. I've read over and over again of people spending thousands of dollars on different "solutions" to no avail and I refuse to spend a dollar on all these snake oil remedies that are sold to people so desperate for anything that might help with their hair loss. One thing I have just started trying though, is using my electric back massager on my head for ten minutes when I wake up and ten minutes before I go to sleep. It doesn't cost anything and at the very least it really feels good. I would think that anything that could stimulate the scalp and get the blood flowing up there would help. At the very least, it couldn't hurt and it is very relaxing. I know this isn't a solution - I just started doing it a couple of days ago, but I really feel it might stimulate the damaged/dead hair follicles and speed up the recovery. Just a thought.

Dec 08, 2016
Darsonval
by: Inna

Led device Darsonval according to the scalp and not on hair. I don't know whether it is possible, if you have severe irritation on the skin. But if you just drop out, then Yes. He awakens the dormant hair follicles and stimulates blood circulation, hair follicles are strengthened. "Keratin" is the same as formic acid, is drugs based on it with which are struggling with the growth of unwanted hair. It kills the molecules and therefore the hair does not grow. You need to improve blood circulation in the scalp.

Dec 08, 2016
MY recipe!!
by: Inna

My dear american freinds, i am from Russia and I have Brazilian Blowaut 1 year ago.

https://ru.aliexpress.com/item/Hot-Sale-High-Frequency-Darsonval-Spot-Acne-Remover-Face-Hair-Body-Skin-Care-Spa-Beauty-Device/32612109173.html?spm=2114.10010208.1000016.1.uU6vZl&isOrigTitle=true

this devaice help me. TRY IT !!!!

I already wrote here but no one replied to my comment!! Really helped me from falling out after keratin salt scrub (a tablespoon of salt, any balm, RUB 1-2 minutes into the scalp, rinse). And this electric massager. In our country know all about it, you probably not. Write down what you hear my review. 10 days for 10 minutes each day head-comb led hair. loss gradually reduced. To conduct courses. And worth a penny.

Dec 08, 2016
Anyone else have breast implants??
by: If I could turn back time

Lisa- you stole the words right out of my mouth....sometimes I wonder if it was the chemical hair straighteners or possibly my breast implants disrupting my hormonal pathway. When you describe exactly what I'm going through, it makes me feel that it is definitely the blow outs...It's hard to believe that something I did 4 years ago is still affecting me. I shed like crazy and continue to see more scalp. I was a pretty woman and now I feel it looks as though I have aged 20 years.

Dec 08, 2016
I like that idea Lisa
by: Deb

Sounds good to make a timeline and what can help
"Deal with this .. wish we could somehow share pictures too to see how it progresses. My whole thing that I fear most is I pray I don't go bald. I deal with this day by day . Some days it consumes me and then some days I try to focus on other things. I feel as I do research more it makes me itch and find hairs that I wouldn't if I just focused on something else. If I could stop it right now I could live with it -but what freaks me out is that it can get worse and worse . But I need to know - so please share all stories so we can be prepared for the worst .

Dec 07, 2016
Still Shedding too
by: Lisa

Hi Everyone, Still the same for me too. My Brazilian Blowout was in October 2014. I started shedding like crazy after that. Tons of hair would come out when I washed and every time I touched my hair. I am still shedding about 100/ day on non wash days and 200 on wash days. I wash twice a week. My hair is so thin and dry. My scalp doesn't produce oil like it used to and any little bit of regrowth I have is course and thin (like my hair has aged). I hate the way I look and try to avoid getting my picture taken at all cost (mostly because you can see my scalp shining though with the flash bouncing off my head). It is most thin at the front and on the top of my head (where I part my hair) I think. That's where I can see the most scalp. I use hair powder to try and hide it. I am thankful for the hair I still have, but I don't know how I haven't gone completely balled yet with all that I lose everyday. I still have hope that it will stop one day. I've tried everything under the sun (PRP, steroids, lasers vitamins, creams, hair growth shampoos,etc) with no success. I still take hair essentials vitamins even though it hasn't helped slow the shedding. It just makes me feel better that I'm doing something to try to help it. I will say though that the scalp pain and itching that I had at the beginning is not as bad. The itching flares up occasionally and when I wear my hair in a pony tail it hurts the top of my head. I'm sorry for going on and on. Somehow it makes me feel better to know there are others who I can vent to and who know what I'm going through. I keep hoping that a "cure" will be shared here. We should start a database/ diary for everyone so we can try to keep track of things that help.

Dec 07, 2016
Immediate follow up
by: Inoar G-Hair Victim

I just posted as anonymous, but I am now officially Inoar G-Hair Victim. I just wanted to follow up to my previous post about Triamcinolone Acetonide Ointment.

In addition to applying the ointment, I also sleep with a satin cap or satin scarf on my head. This prevents the ointment from transferring to my pillow, and it prevents my delicate hairs from getting tangled and yanked out by the fabric of pillow cases.

Like many others, my hair seems to grow out damaged or it just seems more fragile. I try to protect my hair and scalp from things that may be harmful. I also alternate washing my hair with shampoo/conditioner and just conditioner (co-wash).

I buy those single used deep conditioner packets, and I sit with the conditioner on my hair/scalp under a plastic cap for 30-60 minutes. It helps my hair look a bit healthier. I also avoid using heat.

I don't know if all the stuff that I am doing is going to bring my thickness back, but somehow it makes me feel good. When my scalp is not itching and irritated, I feel like it is happy or at least satisfied and calm. When my scalp is calm, I am less stressed.

Dec 06, 2016
MH - you sound like me
by: Deb

Sounds like we have the same symptoms ugh - I was hoping there was some hope - I got mine August last year and the falling out started after Thanksgiving last year - so it's been a full year of me losing hair. I also have no nape hair. I just haven't bared to chop any of my existing hair off - so it's really long down my back - but sooooo thin . I blow dry and straighten my hair once or twice a week. I noticed either way my hair would fall out anyway if I left it or styled it. I'm just really careful. I brush as gently as possible. My regrowth has some grayish hair too but it's not the same as I had before - it's a muted matte colored gray. Some of the hairs are not gray at all at my root which makes me think some hair may not even be growing. Another weird thing is my eyebrows seem itchy too -and I'm not sure but it looks like they are thinning . I used to dye my hair like every six weeks before this happened but now it did it like 4 times in the past year. I try to hold out as much as possible but it's so embarasssing. Does anyone wear their hair up? I try to leave it down as much as possible but it gets ratty looking so I put it in a low pony tail. Oh well just touching base . Haven't heard much lately from you guys - although I look every single day on here.

Dec 06, 2016
Treatment for itch/dryness
by: Anonymous

My doctor claims that she can see baby hairs around my hairline, but I don't see them. I see more scalp than I have ever seen in life.

On a better note, she prescribed Triamcinolone Acetonide Ointment 1%, and it resolves the itch. It's greasy, which as an african american, I don't mind to much. The main thing is that it works. My doctor also said that a cream was available, but she preferred the ointment for my scalp.

I am not promoting this drug. I am sure there are other medications out there, but this one worked for me. Before I started using it, I was scratching sores into my scalp. I scratched so much my shampoo would burn just as it would when you apply rubbing alcohol to a cut.

Now I wash my hair and after it is dry, I part it into sections, and apply the ointment. It has really calmed the inflammation.

I'm hoping that less scratching and scarring will allow my hair to grow. I sure the irritation wasn't doing me any good.

More importantly, the more I touched my scalp to scratch, the more I felt the thinness of my hair and the more I worried about it. Less itching and irritation has amounted to less stress. I certainly don't think all of the stress was helping my cause of getting hair to grow.

I hope this helps.

Dec 06, 2016
Still losing too
by: MH

Hi all

Sandra- Yes, my minimal growth is brittle; looks like someone has run it along scissors to make it look like its coiled, is super light.

My hair is STILL continuing to fall. I can't believe I'm on year 3. My biggest problem is hiding my dandruff through my thinning hair. My hair is 100% fluff now and looks frizzy, light and like an old lady. You can tell people are too polite to comment on it.

I lose 100 still every wash day. And use powder every day to cover my scalp.

My scalp has been really inflamed and itchy lately...the inflammation is still an issue. Re-growth is minimal and I'm so embarrassed by how thin it is.
I'm seriously considering a hair piece.

I rally think I will lose every hair i had keratin, but the regrowth is horribly slow.

Dec 06, 2016
Checking in ..
by: Deb

How is everyone ? I'm the same :( still losing . Still itchy . Still seeing more and more scalp . Wash twice a week with garnier fructis - I use scalp powder.

Nov 06, 2016
Hi every one
by: Parsley girl here

Hi Sandra, I'm going on my 3rd year, the hairs that grew from the bald spots is thinner or skinnyer than the rest of the hair like I said here in the past I cut my hair off multiple times with the number 2 machine the one the barber use and wash my hair every day and got moust of that quimicals off my head I wore hats wigs until my hair grew no more bald spots that is the good news, now the bad yes I still shed a lot I guess the longer the hair the more it comes out I'm guessing the hair follicle is weakens by the keratine and it can not hold the longer hair, another thing that I want to mention is that I buy that stuff on Amazon and did it at home to my self the kt. I understand the frustration sometimes we think we are doing something good that is going to save us time money or whatever and then we realize that we were wrong, I learn my lessen now I use home reamedies like Rosemary ,cinnamon ,parsley tea tree oil coconut oil etc. the natural stuff works but really slow not fast or like magic wen this first happend I bout viviscal I drink one pill and it gave me a headache and a bunch of pimples the sow I stop drinking it I try again with the same effect so I dint use it one thing that help me faster with the growth of the bald spots was Folicure do reaserch on it is not expensive is a liquid that you put on your head after you wash it and live it and that's it don't smell I did felt a lilt tingle on my scalp wen I put it on but it we away as soon as it dry well that is what work or me I wish every one here to find a solution for this big problem because is not just the hair that affects is mentally, physically is stressful painful and depressing but please don't give up cheer up we will find a solution God bless every one take care.....

Nov 06, 2016
Answer
by: Tsoline

The new hair that is growing from the bald patch is falling also i mean the baby hair i think i will buy a wig so soon😭😭😭

Nov 05, 2016
A question
by: Sandra

I have a question too .. Please answer if you can ! When you talk about the condition of hair not being the same as it was before the treatment , what do you mean exactly ? Did the treatment dry out your hair so that the regrowth is in good condition but the hair that is growing out , that was initially straightened, is in poor condition or do you mean that the new hair that grows in poor condition? In that case, what do you mean by that ? Finer hairs, more dry??

I have noticed, on my daughter's hair that the new hair that grows from the initial bald patch on top of her head is fluffier and lighter and sits on top of the existing hair..

Is there anyone here that is 5 years or more post Brazilian so they can tell us what happens when the new hair is on the second hair cycle ? Does it return even finer or not at all?

Thank you for your support and for continuing to post..

Nov 04, 2016
Approximately 2 years of brazillian blow out
by: Tsoline

I have a question for you have somebody become bald from keratin???????

Nov 04, 2016
Thank you!
by: Anonymous

Thank you for your post. It really gives us all hope. I have been counting down the days till I get to 4 years since the last poster and just hoping I have some hair left by then :). I hope that your hair begins to thicken back up now that the fall out has gone back to normal. Please let us know if it does so we have something else to look forward too :). To the previous poster, yes, I've tried Apple cider vinegar, jojoba oil, peppermint oil,castor oil..... and a million different other things that have all promised to stop hair loss. I even tried PRP that cost me $1700 and absolutely no results. Unfortunately none of them have worked for me. I think that (as was mentioned in the most recent post) time is the only thing that will heal this. That's very inspiring that you put your energy into taking care of yourself and going to the gym. I am going to follow your example. Thank you again!!

Nov 04, 2016
4 years also!
by: Anonymous

I remember day one sitting in the supermarket parking lot in my car crying over my hair pouring out of my head and then just heading home. I was beside myself. I sat non stop on the computer trying to figure out what was happening. I saw multiple doctors, yelled at dermatologists and spent thousands of dollars hoping the next product was the miracle stopper. This consumed my life and I missed out on a lot that I wish I could go back and re live. Fast forward to 4 YEARS later. My hair has finally stopped falling. Just like the previous poster. My hair is a lot thinner and damaged but the fall out is now normal. I feel the ONLY thing the scalp needs is to heal. Nothing else helped but time. One thing that did help me get through this was that I signed up for a gym 4 years ago right after this happened. I decided if I did not have a choice over what was happening to my hair, I did have a choice with my body. I am in the best shape of my life, dropped 20 lbs and now I feel great. I wish everyone the best... try to stay busy and even though its going to be hard do not let this stop you living life.

Nov 04, 2016
possible natural cures
by: Anonymous

Hello everyone,
I hear apple cider vinegar and cayenne pepper have some type of strong properties that cause hair growth. Anyone tried this yet? Also jojoba oil seems to be another possible remedy that works well.

Nov 01, 2016
Biotin
by: Lilly

I have been using minoxidil 5% (generic rogaine) liquid. I purchase it on Amazon and it is a lot less money.
My doctor also recommended Biotin supplements. Nothing is a quick fix but with the two it seems to slowly be getting better.
Good luck

Oct 30, 2016
Gone natural and doing better
by: Stephanie

My ordeal started earlier this year after 3 successful keratin treatments and super straight hair, it started falling out, A LOT. I was freaked and started going through the usual - meds, shampoo, stress, trying anti inflammatory diet. Though it was my thyroid med so changed it to natural thyroid and no change. Then it was time to get another straightening treatment and my stylist had a hard time believing it was the keratin product. So we opted to do it AGAIN! Mistake. More problems with hair loss. I swore off commercial hair dyes (I'm 47 and have a lot of gray) for the rest of my life too but it wasn't getting better.
So now for my experience trying natural products. I have been using Cassia Obovata available from Henna stores online. I use Mehandi.com but there are other reputable sources for pure plant based hair dyes and treatments. After using Cassia, my hair loss slowed for a couple of weeks quite dramatically. So I did it again, and have completed at least 4 treatments using cassia (over the last 3 months) and most recently a smidge of henna. My hair loss is 1/20th what it used to be and my scalp is growing little sprigs. Cassia does not dye hair per se. It has anti inflammatory properties and makes it shiny and strong. This is what helped me and I swore I would share if I ever found something that worked for me. All my best. -Stephanie

Oct 29, 2016
Thank you for the feedback
by: If I Could Turn Back Time

Thank you Lisa and Rick!!! Fingers crossed.

Oct 28, 2016
Try the Rogaine dropper!
by: rick

Just read your comment. I had my one and only Brazilian blowout back in JUNE and lost quite a bit of hair on top and in the front. I bought CVS generic version of Rogaine - the bottle - not the foam as I have had issues with the foam as well. The drops seem to be working. My front hairline is growing back in. Tiny small hair - also growing back in on top. Still early - I don't know if it's thin and frizzy yet but at least it's filling in the scalp! I'll take whatever I can get. Hope it works for you as well. Good luck!

Oct 28, 2016
I check everyday too
by: Lisa

I check the site everyday too... just looking for hope. My nightmare started just over 2 years ago. Hand fulls of hair coming out in the shower one morning and I still lose piles of hair everyday (with very little regrowth). In the beginning It was very bad - about 400 hairs a day. Now I think I am around 200- 250 on wash days and 100- 200 on non was days ( it fluctuates a little still not much regrowth) I have tried rogaine (and just about everything else under the sun) and I had some issues with it. I used it for a little over 3 months. I did not see any new hair growth, but I did have an inflamed scalp. It was extremely itchy and my scalp was red. I stopped using it because it was a hassle and I wasn't seeing any improvement. I was using the foam version (5% over the counter) and it left my hair feeling greasy and made my hair look even thinner (because it stuck to my head). I considered giving it another shot because my hair has gotten so thin and I am desperate. I have a job interview Monday and I'm so concerned about how I look. I don't have the confidence I used to have. The brazilian blowout has taken so much from me. The people who sell it are criminals. I know they know this is a possible side effect but they don't mention it and instead tell people it will make their hair healthy.

Oct 27, 2016
Has anyone tried Rogaine with any success?
by: If I could turn back time

It is getting so bad that I am desperate and want to hit it from all angles. I bought Rogaine today. Has anyone out there had any success with it? I feel that I really don't have anything to lose at this point, but not sure if it will help? Has anyone tried Rogaine here with negative results? More hair falling out? Feedback appreciated. Thank you! Hugs to all

Oct 27, 2016
You are right
by: Deb

You are right Sandra it is so painful . Everyday we have to relive the horror - every day - I haven't slept in a year since this has happened to me . I still have burning and pain in the back of my head - itchiness is still there - hairs still fall - it just gets worse and worse . I keep having tests done in the hopes that I have something wrong with me and a pill will help. But I know deep inside it won't bc it didn't start from within - it started from the treatment not being properly applied. I have done so much research and have come to the conclusion that something was left on my hair and for days I did not wash as i had been instructed not to. It seeped into my follicles and completely damaged them. Because hair is in different phases it is falling out at different stages and that is why we have not gone bald. The problem is that it is damaged and the hair is not growing back. Where will I end up? I don't know . Will I be bald? Will it ever stop falling ? My thick hair is now so thin . I'm embarrassed and so afraid of what the future holds.. I have 4 children and I feel like I can't even be a proper parent bc I'm so consumed with trying to find a cure. I just don't know what to do anymore . It still feels like crawling and itchy so I'm constantly reminded of what I did to my hair. I wish i didn't feel anything bc maybe I can forget about it for a bit. It's so depressing . I'm sorry your daughter has not wanted to share this with you. But I'm sure she feels like we all feel - maybe she just wants to forget what has happened and not think about it and harp over it bc it makes her feel bad - but I know you can't help but obsess over it bc you see how it is progressing and feel guilty. Please don't feel bad or guilty Sandra because you have done nothing wrong . None of us has . Unfortunately we were the victims of improper treatment that has left us like this. I also look at this site several times a day and look for the little NEW icon on the side praying someone has that fix for us. I just hope someday we do and I probably won't stop looking here bc I don't wanna miss it . From the bottom of my heart I wish you all a day where your hair will grow back to the way it once was . I will continue to pray and look and I promise if I find it I will let you know . God bless you all

Oct 27, 2016
Now I know ..
by: Sandra

Now I know why people stop posting on here .. After a while it just becomes too painful and you have nothing left to say.. I still check in every single day .. I wish I didn't but I live in hope of a positive message so I keep looking . I keep looking for the one day that someone says , " Guess what? I've just tried this... And my hair is growing again ... "

My pain is further exacerbated by the fact that this happened to my teenage daughter and she refuses to discuss it with me . I would have liked a dermatologist to monitor the loss, take photos, check the changes that are taking place. She went at the beginning and now she refuses. I have just bought her the 'Just Natural' spray for hair loss. She refuses to use it. She won't let me have a close look at her hair. I can't believe it doesn't bother her, it must do. It's just her way of dealing with what is happening ..

I have to rely on what I can see in order to know what is going on. Her hair is getting worse at the sides. She really shouldn't wear a ponytail as the hair line is moving backwards and the sides are getting balder. She continues as if there is nothing wrong.. When her hair is wet I see scalp shining through although she hides it when her hair is dry by using a coloured dry shampoo which gives it body. I am not allowed in her bedroom when she is blow drying her hair. I have to sit back and watch this happen with such pain in my heart ..

Unless I see any changes I don't think I will post for a while as I don't feel that I have anything positive to contribute or any questions that I would like answering. I do really hope that things are getting better for many of you and I will continue to read the posts. In particular , I always think it is interesting to read what dermatologists have to say as they are seeing hair issues on a daily basis. Wishing you all speedy recovery from this ...


Oct 27, 2016
Doctor update
by: Sam

Hi, again all another sleepless night for me, OK now I'm convinced this Brazilian blowout will be the falling of my kingdom, I'm really thinking I have had it, so I been noticing my eyebrows were getting thinner like when u see me on the sides of my profile, there gone !!!!!!!! So I went and had every test you can think of including thyroid hormone, everything good there so I called my hair loss doctor and I demanded to see him today, and of course they said no openings, what !!!!! Did you not here me I have a eyebrows loss emergency so OK I'll just go somewhere else I doubt since I pay cash they will refuse me, so put on hold oh and guess what they could see me wow !!!! What I have to go through because of this stupid Brazilian blowout , so had a very interesting talk he said that a damage scalp from example a chemical burn that cause T.E can also cause damage to the eyebrows and eyelids as its all connected, what !!!!!! But he also said only in chronic T.E , I was like OK your fired, I mean I was more sad than ever now there's a chance my thick eyebrows will never grow back, I don't no what to do from this point but just to see if anyone that reads this , had this happen to you as well eyebrow loss I mean , my doctor said be patient don't stress you need to Waite and see, Waite and see and in the mean time what am I suppose to do I have a job interview on Monday only the man above knows how much I need the money , people there are going to think I'm albino, I already have pale skin please no offense I meant it's just me and how I am I'm trying to stay positive here and makes jokes about my new makeover that cost me 400.00 I had to add that in lol , to help me over come this and with prayer, but really I'm tired of crying, I could have already filled the Nile in Egypt by 5 times , and to all who reads this thank you, like I've said before its just me and my dad but I can't talk to him he just wants to hear old reruns of small wounder, :( you no the one with that kid who is a robot oh he just loves that one and I really don't think he understands what's happening to me because he s blind my poor daddy he just hears me cry and I hate that I add that stress to him he tells me he loves me and it's going to get better this blowout was supposed to help me to spend less time on my hair so I can have more time with my dad in the mornings oh it's a process, now look , we're both paying the price well going to say have a nice morning, because it's 1:38am , Sam from Houston TX. Many blessings :) again I always say no more long message, Sam stop it, but if you think about it we all have out different versions of what the Brazilian blowout has done to our family's, spouse, and loves ones and us the ones who are suffering and I don't mind sharing my Brazilian blow hair loss story with any one because this is so real and still happening, Brazilian blowout no matter what brand there is it's all poison and a money hungry industry that we bought in to. we were never attended to have smooth straight perfect hair I've learned my lesson, and one I will remember for the rest of days on this planet!!!! Thanks again and please share if your having eyebrow loss as well which looks like I might be the only one but worth to ask. Oh shout out to Rick buddy I feel you on that front hair line Hang in there. Sam

Oct 25, 2016
Update
by: C.

It's been three months since the keratin chemical burn which started my hair loss, and I've finally seen a dermatologist. Of course she never got to see the inflamed scalp and peeling skin, but she did a thorough exam at this appointment. She didn't see any permanent damage to my scalp that would prevent hair growth, and she pointed out that there were a lot of baby hairs sprouting. She says permanent damage would have left my scalp smooth and shiny.

I told her about what I'd read in this website, and I asked if the toxic chemicals could damage roots/follicles. She suspected it would have to penetrate pretty deep.

I think washing the hair and blow drying before applying the keratin probably makes it easier to penetrate into the tissues. This moisture and heat tends to open my pores. I've gotten chemical relaxers for years, and washing your hair prior to this treatment just makes your scalp more vulnerable.

When I applied the kit in late July, I remember being hot, sweating, and feeling like I couldn't breathe due to the fumes. For that reason, I never got to the flat iron phase. Not being able to breathe may have saved some of my hair.

My doctor also mentioned that some people can be allergic to formaldehyde. She wasn't sure if that was the case for me.

I asked her what I could do now. She prescribed a steroid ointment similar to hydrocortisone. She said the multi-B vitamins for hair and nails might help and won't hurt. They are water soluble so if you get too much it will come out in you urine. She also said a good diet high in protein and green veggies may help. I guess only time will tell.

I would advise you all to check out this website. http://www.womensvoices.org/ Go to the tab for salons. They are gathering information from consumers and stylists who have used these products to encourage the FDA to take action.

Oct 24, 2016
Update
by: Anonymous

It has been 4 years and 2 months with little improvement. I was an emotional wreck for a long time. The worst is the beginning when you think you can do something about the hair loss but you cant figure out what it is that you need to do. Once you realize that there is nothing you can do and only time can tell, is when you start accepting the situation and life goes back to almost normal. At the beginning I was losing about 400 hairs everyvtime I washed every 3 days; I would say now it is about 200. Also, my scalp pain stopped about 4 months ago. I am still very sensitive to hair products so I try to stay on the natural side as much as I can even though they do little to control my seborrheic dermatitis (another side effect from the brazilian blowout). I noticed that my condition improves if I wash more often. My hair is really thin, maybe down to 60% of what I used to have (lucky to have started with tons of hair). My hair line has receded and my sides are super thin specially the right side which looks almost bald. To preserve my happiness, I brush and wash my hair in the darkness and clean the hairs from the floor with a towel so I dont see the hair lost. My hair is still everywhere around the house which I vacuum without looking at the floor. I color every 4 months with foil; I notice that I lose a lot of hair but seeing my gray hair just makes me scared of my reflection in the mirror. I cant wear high pony tails because it exposes my receded hair line and the thin spots on my temples. I am just in denial because I am tired of the suffering. I really dont have hope at this point. I keep my hair in clips so the hair doesnt fall all over the place.

I had some improvement for about a month when I was using a shampoo from a hotel in mexico made from mayan bee honey which is a potent antifungal which made my seborrheic dermatitis go away and made my scalp feel normal. I believe that it cut my hair hair loss by a half. I cant get the shampoo here because the hotel is not allowed to ship liquids. I will have to wait for another trip to the Mayan Riviera to get it and give it a try. If I dont update if because I dont see progress and it is pointless because I dont want to contribute to you guys losing hope.

Oct 24, 2016
try not and worry
by: rick

I know that's easier said than done, but it is what is, and all the worrying and stress in the world isn't going to bring it back. Just reading everyone's stories that they posted has given me a lot of comfort. I had my blowout in June and the hair loss has abated - I hope for good. I'm lucky in that I had really thick hair to begin with so what hair I've lost - which is considerable - isn't as noticeable as lot of you who have posted on this site. And like Sam my front hair line is the most noticeable for some reason. I haven't done much to remedy this as most every "solution" I've read on these boards doesn't seem to work and I'm not going to throw good money after bad. I do however use Rogaine since I'm a guy. It's supposed to be just for the back of the head but I'm using it up front where I lost my hair as well, it couldn't hurt. Also a friend of mine who had breast cancer and lost her hair due to chemo gave me her shampoo and conditioner to use. She said her hair grew back thicker and more luxurious than ever before. I'm hoping it will help me as well. It makes sense. And lastly, I quit dying my hair. I figure my poor scalp needs a break from all chemicals so as much as I DON'T want gray hair I will now be going gray. So far it's looking pretty good actually. Then again, I'm a guy and I know gray hair on men looks good for some reason. Women aren't as lucky. So I don't know what to tell you women out there who are dying your hair. But bottom line...I'd rather have gray hair than none at all. That's all I have to offer. To everyone on this board, "I feel your pain". I wouldn't wish this on my worst enemy...well maybe I would! LOL. I can't believe there hasn't been a class action lawsuit. It seems like a slam dunk. If anyone knows of one or how to jump on board let me know. Good luck to everyone and remember all the worrying in the world isn't going to bring your hair back. TRY to get on with you life, disguise it as best you can and move on. Easier said than done but what other choice do we have?

Oct 22, 2016
Just an update
by: If I Could Turn Back Time

Well, I don't have anything too exciting to report. My derm that specializes in hair loss, reconfirmed again that my hair loss is from the chemical hair straighteners. I always beg for a different answer, something I can change, but it just isn't so. She seems to think there is hope for the loss to stop and to have patience. I asked her if she has other patients like me and she says yes. I then ask for a timeline, but she can't provide one. I asked her to pretend that this was the first time seeing me and what would she recommend, she said Viviscal to help improve the hair that I have, the Hair Max laser comb to possibly stimulate new growth, Ketoconazole shampoo to help with the condition of my scalp, and spironolactone 200mg daily, just in case my age isn't helping the situation. I asked her about aloe and she said she didn't feel it would help. I asked her about Rogaine, but she doesn't feel it is female pattern loss, so she didn't feel that is appropriate. She also suggested washing my hair daily to help with my scalp condition and to not bleach my hair any longer. I will decrease the highlights, but not completely stop. It will be wig time before I do that.
As far as a lawsuit, I would love to hold those accountable that have affected my life in such a negative way, but as I mentioned before, it has been 3.5 years since my last treatment. Unless the stylist is willing to cough up some type of proof (not sure she would even still have that), I don't keep my receipts that long. How could I prove it? Everyone else though, that has had a more recent experience, definitely hold onto that receipt and look into a class action law suit or create one of your own!!!!

Oct 22, 2016
Name your product
by: California

I don't need to tell my story because it is nearly identical to so many who have posted, but I will tell you that I used "Inoar Ghair Smoothing Treatment." I bought it from Amazon. I suffered from the chemical burns, and I was ready to move on with my life, but then my hair started falling out and seems to have stopped growing. It has been a nightmare. I cry every time I talk about and as I am typing this message. So many of us have gone through this, and no one else should have to suffer. Furthermore, there should be some accountability. I've recommended that Amazon remove the product that I used, but it is constantly for sale under random companies. There seems to be no stopping the dealers and no way to get the word out to every consumer unless we start suing. Class action lawsuits, media coverage, and writing to the Food and Drug Administration (FDA) is the only thing that will protect others from suffering this devastating loss of hair. Just as these formaldehyde hair products have been banned in many European countries, they should be banned here.

So please, name you product so that we can organize and challenge each company. If you still have your receipt, store it in a safe place. See a dermatologist, take pictures, journal/log your losses. Search the Internet for current class action lawsuits and post them so others can join and tell their story.

A recent judgement awarded $10,000,000 to plaintiffs in a class action suit over a Suave keratin product. Those individuals who had receipts and proof of physical harm were given $25,000. If I had learned about the lawsuit 4 months ago, I would have never tried the product. Several other suits are pending, as some stylists have developed cancers that are believed to be related to formaldehyde products. The money is not enough when I see the bald patch on my head. It will never be enough if my hair doesn't return to the way it used to be. I was content to accept itching/irritation, as long as I had my hair. I can not accept losing my hair.

I will be sharing this page with my dermatologist and my attorney. If you have used Inoar, I would like to know. Thanks.

Oct 22, 2016
Front hair line gone
by: Sam

Hey, everyone Sam here and was just wondering if any body else here is losing their front hair line I mean mine is completely gone I'm so scared and now I can't even hide it I don't wear bangs I'm a guy and right now I look completely ridiculous what the hell is happening to my hair.

I hate hate the Brazilian blowout and what it represents and what it has done to a lot of us, it takes away who were as individuals I will not leave my house I'm so ugly with out my hair, I'm not going to lie. I don't lose the hair only in front and the top every where else is OK and it's even growing and kind of thick too. Its just that damn front hair line. I can live with everything else for now but my front hair line it really looks like I now have male pattern baldness, and if I do, I'm moving out of this country forever and disappear from public life.

I'm like how embarrassing , just because of one Brazilian blowout that I paid 400.00 I'm being punished it's so not fair I'm tired of putting oil in my head tired of not sleeping tired of all the stress. I'm just tired of being tired of all this nonsense. I want the Brazilian blowout and all the makers and all the stylist who do not know what there doing to be punished. I want to do a Brazilian blowout on the girl who did mine and see if she likes it all that burning pain that I went through, I'm just so mad I hate myself so much for doing this to my hair , and I'm sorry I just can't let it go I'm ruined like for ever and my hair growing back dry and dull no more pretty and silky and shiny, I know I leave long messages again sorry. I just want to let my angry out and to let all who reads this that I'm not going to give up and I'm going to keep fighting for my hair if it's the last thing I do on this world next. I really don't want to move I did use to have a happy life , and with out my handsome hair it's like I died and was sent to hell, because this nightmare has just begun only 5 months in , boy oh boy am I tired and running out of funds so I'll have to get a job soon , and risk everyone laughing at me because I'm bald at the front of my hair line, I wish I could send a pic because it's completely gone no hair just a huge forehead now this Brazilian blowout is a dangerous product.

I don't know how its rated the safes natural product out , because the united sates is the only one that hasn't banned it Canada did I think England to but not sure , but then again why would we banned were a nation obsessed with beauty and perfect hair and if paying 400.00 is the normal for perfect hair then why banned it and so what if it makes your hair fall out you could always buy a wig.

Well I'll leave with saying I'm not at all a horrible person I'm just a very sad sad guy who wants his hair back and I no we all do I pray for all of us to win our hair battle and I promise one day we will have our victory some wars takes years and that's how I look at this each hair that falls out is one of my many fighting men that have fallen to the evil queen named formaldehyde and I'm going to keep on fighting her til I claim all my lost fighting men and reclaim my crown back and all if it's original glory. My handsome hair will come back to me, to all of us many blessings again and please share if your front hairline is gone to or did it ever grow back . Sam from Houston TX, I would like to send a personal hi to parsley girl. :) god bless Everyone :) here and not just on here to all who may have a sick family member who's going through some thing or just having it rough. Just prayers to all :)

Oct 18, 2016
Devastating Hair Loss with Keratin Hair Treatment
by: If I Could Turn Back Time

I sure hope and pray that I am almost through and that the 4 year mark is that magical number. My concern though is that we damaged our scalp and hair follicles. I'm not sure if the hair cycle matters in that case?? My appointment with my dermatologist is this coming Friday, so I will give feedback after. My scalp has seemed to stop producing oils too and seems super thin. So my thoughts are to do whatever it takes to nourish our scalp and increase circulation to it......
Thanks again to all who have shared. The support and info is so nice to have. You all feel like friends.
It appears we have all tried the same/similar things without much success. I really want to try ingesting (Aloe2Go) and applying topical pure aloe, viviscal vitamins, pumpkin oil vitamins, and the hair comb. Big, big hugs to all.

Oct 18, 2016
Hi Sam and every one
by: Parley girl here

Yes I'm here since 2014 and believe me it gets better hang in there with natural treatments my hair still falls but not as much as before I use to have 9 bald spots and believe me that was not pretty I did shave my head off for several weeks and wash my hair every day to remove as much as thou se quimicals as possible from my scalp I apply apple cider vinegar and then wash my hair I have no bald spots my hair is past my ears is growing and healthyer don't give up guys and girls wi will overcome this take care 😘👍

Oct 17, 2016
28 months
by: Anonymous

I had my one and only Brazilian Blowout in June 2014. I still lose more hair than normal (probably 100/day) - although it has improved since the beginning. My scalp was very sensitive and tender at first - but has gotten better over past year. My hair is thinner - but nothing anyone else has noticed. My front hairline and part are what I notice most. I still hate going for haircuts and barely do - I hate the thought of anyone else manipulating my hair. Since it has been so long now - I am definately not as worried as I once was. I sort of feel like, for now anyway, the loss and thinning has plateaued. I do see new hairs growing - but because it continues to fall so much it doesn't thicken up, but will hopefully will stay about the same. The people who continue to sell this should be in jail - really!! I've had bad haircuts and even perms in my lifetime - but they always grew out. I still can't believe that I have been dealing with the after effects of this poison for over 2 years.

Oct 16, 2016
Updates
by: Anonymous

Yes, I'd too like updates - specifically from "If I Could turn Back Time". Did your doctor give you any new information?

Oct 15, 2016
Updates anyone ?
by: Deb

Can someone give some updates ? I'm just looking for statuses and how you are doing ?

Oct 12, 2016
Scalp Pain
by: Lisa

Yes. I experience scalp tenderness when I touch my hair and I have also had the burning sensation you mentioned. I get the scalp tenderness mostly on top of my head toward the front. That is also where I have experienced the most noticeable hair loss (although it is definitely a lot thinner all over).. My head also itches. I had some flakes when I first did the Brazilian blowout 2 years ago. I don't have any flakes anymore, but I still get the itching. I can't pull my hair into a ponytail anymore or back into a clip or bobby pin because of the pain. It just hangs there around my face looking paper thin and fried (for some reason, my head does not produce much oil anymore after the trauma of the BB). I have heard from a few people that the hair loss stops after 4 years.. people say that their hair never goes back to the full thickness they had, but it does thicken up a little and becomes bearable. I have two more years to go if that is true :(. Maybe it has something with the hair growth cycle. The average hair growth cycle is 4 years. So maybe the cycle resets after then...who knows. I can't figure this out. All I know is that I wish I had never done the Brazilian Blowout because this nightmare started about a week after I had it done. It sounds like you are almost there, so just hang in there a little longer. Please post though and let us know when that has happened so that we get some good news. It's strange.. some people it only affects for 6 months or so, but then there are some of us that the nightmare just seems to go on and on. I hate combing my hair in the mornings and I dread the days I have to wash because of the amount of hair that comes out (and I still after all this time get hairs with the white bulb at the end. ). I have tried everything (including lasers, PRP, Steroid injections, rogaine, vitamins, oils, pills, etc) and spent thousands of dollars to try to get this to stop. Nothing has worked for me. Maybe I am just an extreme case. I am extremely healthy though, I exercise and I'm the healthiest eater I know. I also don't stress about much (except this!). I've had blood work done and everything is fine... I too wish I could turn back time. I would have never gotten the keratin treatment. For the short time of frizz free hair, I have paid so much :(

Oct 12, 2016
Others with my symptoms??
by: If I Could Turn Back Time

Does anyone else experience scalp tenderness or a mild burning sensation? If I manipulate my hair at all, in example, pulling my bangs back and clipping them with a bobby pin, it feels like I pulled my hair back into a tight "Olympic gymnast style" bun. When I take out the bobby pin and let my bangs fall back into place, my scalp is crazy tender. Then the other day, I was working out and pulled my hair back into a ponytail and my scalp was tender to touch with a constant burning sensation for 24 hours. It's crazy to me that something I did over 3.5 years ago is still affecting me today. I'm thinking I might try pure aloe vera gel on my scalp. It is soothing and supposed to draw out toxins? It sounds good; I'm just not sure if that will equate to more loss? Also considering trying Hair Max Laser Comb...Anyone else try with any benefit?

Oct 06, 2016
Getting Worse...
by: Debi

Ok so got the Keratin treatment last August 2015, Its now October 2016 and Id say I have lost about 60 - 70 % of my hair. The nape hair is completely gone and just riding up to the top my head. My nape still burns and from time to time and the top of my head. I tried tea tree oil and that just made it worse. I had the worst shed with this. I am still keeping it as long as I can but now since the nape hair loss has gotten worse the middle of the back of my hair is so terribly thin and I think Im going to have to cut it even shorter. I have already cut it 3 inches but my hair was as long as my bra strap when I got it done. The worst part is this - MY HAIR IS NOT GROWING! Im talking that my roots are the same - before the Keratin I would get my roots colored every 4-6 weeks. There are some gray strands throughout which I am dying to dye but Im so afraid of putting any chemical on it. I can't understand why my hair growth has completely come to a halt and its literally day by day spitting hairs out. I have to wash my hair tomorrow and I am so so scared. I keep reading and I see there is just nothing that seems to work. Im glad everyone is sharing so much so we know we can avoid this and that. It helps so much. Please Please keep sharing your stories - good or bad. Its just so nice to have other people that are going through this - just for support. Im willing to try anything at all to get my hair back so anything you can recommend that has helped even a little bit please share. Parsley girl - I know you shaved your head and I'd really like to know how you are doing - how are your spots? I feel helpless at times and this just consumes me everyday - have not slept all night in a year - bc I fear that my hair is being pulled at night as I sleep- I can't even turn without thinking that there is pressure on my hair and its falling from the root. My hair is so so thin - the strands are so light - I just wish there was some way to thicken them up - maybe they wouldn't slide out of my head if I could get it thicker. I just don't know what to do- vitamins , oils, massages, tried all kinds of shampoos- just nothing is helping! I just need to know does anyone else have no growth like me ? - over a year still itchy? My nape is shiny and smooth and this such a bad sign - Im afraid it permanent - I have a constant lump in my throat and my stomach is just so sick about this. I'm afraid of being bald - or having to get a wig ..I'm sorry Im ranting but I just feel so helpless and sad. Thanks for reading

Oct 05, 2016
To "if I could turn back time"
by: Anonymous

Thank you for sharing your story. It is very similar to a lot of our stories on this site. I've been to numerous doctors and dermatologist as well. I also tried PRP (very expensive with no results- except more hair loss). My hair is so thin compared to what it used to be. It's been a little over 2 years since I have the Brazilian blowout and I keep searching for something that will stop the hair loss and regrow my hair. Please keep posting to let us know how you are doing and if you find something that works. I will do the same. Right now I'm trying some new Aryuvedic oils that I bought. I'll let you guys know how it works. Take care everyone. I'm so sorry this happened to all of us. I wish that the hairstylist had been honest that hair loss was a potential side effect of the keratin treatment. I never would have done it. I too was told that it would make my hair healthier. :(

Oct 05, 2016
Devastating Hair Loss with Keratin Hair Treatment
by: If I Could Turn Back Time

I can still remember the day when the hair stylist I saw for over 10 years talked me into doing my first Keratin hair treatment. I remember specifically asking her, "Is it safe?" and her reaction being, "It will make your hair stronger! It's not damaging". I had heard rumors about Formaldehyde and asked to make sure what she was using didn't contain any. She then proceeded to tell me that the company changed their formula to be Formaldehyde free, so not to worry. The first time was a none issue. I loved the results as my hair was smooth and my dry time was cut in half. The second time is when I feel my scalp was destroyed. The chemical smell was really intense when I got the treatment done. It was burning my eyes, nose, and throat, making it hard to breath. I actually had to get up from the chair to take a break for a while. I was then asked to not wash my hair for 4 days. I would wake up with my eyes and nose burning for the first two days. My hair stylist suffered respiratory symptoms and told me she was sick for a week after that treatment. She mentioned that she spoke with her rep and was given a replacement solution and was told to throw the one she used on me away. She was happy to get a replacement bottle and asked me to try it again for free. She explained that this new bottle didn't produce that harsh, irritating chemical reaction.
Over a 2 year period, I got 6 treatments. None were anything like that second treatment experience in which I feel I was the unlucky, unknowing recipient of a larger than normal formaldehyde dosing. Bottom of the bottle???
Looking back, it was only few weeks after that horrible experience that I developed enlarged, extremely tender lymph nodes and severe night sweats that lasted for several months. I had a mammogram, breast US, and a lymph node biopsy to rule out cancer. At the time, I didn't realize the cause; I had no idea that the Keratin hair treatment contained Formaldehyde or that it could cause life long damage. The doctors couldn't explain why that was happening to me.
I was in a new relationship and we traveled to the Caribbean and to the river a lot, so I wanted my hair to be low maintenance and frizz free. I had no idea the price I would pay. I started noticing that I had a lot of hair in my brush and that my scalp had a thick build up of dead skin, but honestly it didn't bother me too much. It never crossed my mind that I was losing my hair permanently. At first I didn't even notice that my hair was thinning; I just thought it was "flatter" than usual do to the treatment. It was only when I started developing a receding hair line that I began to panic. My hair loss started at my right temple. My hair on that side is now see through. Then it continued to my left temple and now directly in front. My hair has miniaturized and falls out at many different lengths. I was only 35 years old when this started. My scalp was red, tingled, and sore in the areas of loss. After 3.5 years since my last treatment, I continue to have scalp pain and loss. I had multiple, multiple lab tests and a scalp biopsy done over the last 3 years, all coming back normal. I tried a rogaine type solution only to have a massive shedding; I feel that my scalp was overwhelmed and the last thing it needed was another chemical on it. I tried PRP only to again have more loss. I tried steroid injections to the sites of loss and topical steroids, Nizoral shampoo, hair vitamins, doxycycline, etc. I had one doctor prescribe Keflex, an antibiotic used to treat skin infections, for 4 weeks. Honestly that stopped the pain and shedding, but I couldn't stay on that forever. When the antibiotic stopped, the scalp tenderness and shedding returned. I now see a dermatologist that specializes in hair loss. The first appointment we had, she explained that it is the Keratin treatments causing my loss and that I am not her first patient with the same complaints. She doesn't have an answer for recovery. I am not sure anyone does. She did however continue me on the less potent antibiotic Doxycycline for a while and slowly weaned me off. She prescribed me Spironolactone, which blocks testosterone, in case my age isn't helping the situation. However, my loss continues. I see her again next week and will ask if she has any new insight on how to help heal my scalp or if I am destined to become bald as my hair follicles have been mummified....I wanted to write in because I was so thankful to all of those who have shared their story. Our stories are all so similar. It was hard for me to accept for a while and I continued to search for something to fix- my diet, removing my breast implants, removing my cabinets or flooring that may contain formaldehyde, trying bioidentical hormones, etc. I now feel at peace knowing that I have the right answer. I can now focus on acceptance and trying to heal. Thank you

Sep 29, 2016
When will this end :(
by: Sam

Hello everyone, I'm Sam from Houston Texas, and I no exactly what everyone is going through or has been there and can't tell you I'm so happy to here of some success stories which gives me hope, and I will fight my hair loss until I win, I had to quit my job because for me and I no you as well,this hit me so hard that I went crazy and I mean crazy to the point that I wanted to hurt myself I no it's just hair like everyone was telling me, but everyone's hair wasn't falling out from the root mine is until you go though some thing like this, because this isn't our natural state like when we're in our elderly years and we go bald this is a man made Chemical product that causes hair loss, and shame on the makers for making this product, Brazilian blowout, oh just texting that name or saying it makes me so sick to my stomach, OK I'm calm lol I've herd alot of sayings that it doesn't cause hair loss, umm wrong it sure does play a role or a part in it because of its dangerous Chemical's and it's just like in medicine all effects are going to be different depending on each individual's immune system, maybe some of us suffer like stomach issues or had some off out patient surgery or had a removable organ like a gallbladder so we're all different, and that is why for me I hold my stylist responsible for my hair loss she neglected to tell me all risk and side-effect of this horrible formaldehyde and how very harmful it really is, but then she came back and told me that I'm sick and need blood work and it's my fault for not doing my own research, what my own research yes , maybe your right but you are a stylist you went to training for this you have a certified license stating that you will not put a client in or harm them in any way, you lied lady oh y'all should have seen me there I let her have it, because you see she did not rinse my hair out because she was money hungry and rushing to get her next client. And I sure did tell her she was money hungry, OK so the out come $400.00 to make me bald and I am a guy and I had the most handsome hair in town it was down to my shoulders black very thick I loved my hair just hated to flat iron it every 3 to 4 days and I really thought the bb would be my Savior to help with time in the morning because of work and I'm also caring for my blind father and doing so much I was always late to work, boy oh boy was I wrong :( now I'm jobless hairless about to be carless and maybe homeless to, because you no your savings only gets you so far, that's a whole different story, but yet that girl who ruined my life she's in her brand new Cadillac xts that I probably helped pay her a car note with that $400.00. Sorry for that it just makes me really upset that I'm in misery I don't even leave my house because I was forced to cut my handsome hair all off and I mean short it's like one inch from the scalp I no so sad, and thinning I mean real bad my hairline is gone I hAve a huge bald spot on the crown and my side get thinner everyday, so so sad I'm like what is happening to me no body recognizes me if they do see me I run I don't have a family and it's just me and my blind daddy so everything that has happened to me I still need to look after my dad, so the stress has been on, I try so hard to relax, now to the point sorry ladies and guys if I talk to much it just helps me I don't have no one to help me, OK at first I was losing like 100s to 200s of hair a day and this had been since this June so like only 3 months, OK and right now I'm just losing like around 20 to 50 hairs this is what I'm doing but keep in mind this is my hair routine and it may not help you, I can't take no responsibility for any one unlike my hair stylist, OK at first I washed my hair hair every day because the hair going to fall out no matter, I rinse it with warm water than I apply coconut oil for 3 hours just in case I have dermatitis and this helps for dandruff your supposed to do this for 30days but I get tired and skip a wash here and there, then when I'm ready to wash my hair I rinse the coconut oil off it's better to do this in the shower, then I apply baking soda to help get the coconut oil off I do the baking soda twice OK then after I do this I use caviar exfoliating scalp facial I get it at ulta, leave it in for about five minutes now it has a brush but my hair is no were strong enough for a brush so I use my fingers and get it close to the scalp, at first you will notice lots of hair coming out but it will get better in time OK then I use tea tree shampoo to get Everything out followed by a good coconut conditioner to help bring moist back in the hair air dry, and comb very softly, oh I forgot to mention I been doing this with my hair very short it seems to help if you can cut all that Brazilian blowout off I did now I see some growth but no new hairs :( but my shedding has really really went down and the hairs that fall out I can tell still have the Brazilian on it because of its texture and it's so stiff my poor hair, my hair died may 26 2016 may you rest in peace my hair and please forgive me for doing a Brazilian blowout on you this is your way of saying by America that we sometime let Society think that we're not good enough that's what leads many people to plastic surgery and permanent face damages or like a Brazilian blowout that may lead to permanent baldness. I should have expected the fact that I was once a very handsome young man with lots and lots of thick long hair that I took for granted with sayings like if only my hair was thin and straight, oh how I have eaten my own words I guess at the end of it all I'm left with thin balding hair. If only I could go back time. Wel thanks so much for reading this if you made it all the way god bless Sam.

Sep 28, 2016
The sad story of my beautiful lion hair
by: La Moni

Even as a little girl or teenager everybody have always complemented me on my thick curly voluminous hair. I was never patient enough to grow them pass BSL. In my late teens I never wanted accept my super thick curly hair that were perfect shade of ice chocolate brown (which now I would kill to have back). I used to iron my hair until it would scream and die my whole hair light to make it go blonder on a monthly basis. I would abuse my hair and despite being dry and lifeless I never had issues with them falling or braking.

In uni, I found myself with little time to do all the straightening and I didn't have money to keep up with the blond hair so I decided to go dark and let them breathe. I just one day, stooped putting heat, I would do deep conditioning and loads of leave in, washing every other day and letting my hair live it's life. I never felt so free in my life. My hair did not look great straight away, but everyday the curl patter was getting more bouncy and my hair super shiny and unbelievably thick. After 3 months I got a blow dry for Christmas and notices that my hair went from shoulder length to mid back, also they were so shiny, smooth, heavy and healthy. At this point I decided to put some layers in and the dumb hairdresser cut my hair into two layers, shorter one all around my head reaching mid ear and the longer one reaching my chin. I walked home and cried for hours, that all these months of my hard work were wasted. I was so envious of long hair that I got braided in extensions (I got thee done in Japan) and these helped me so much to grow my hair out. Also I was eating super healthy home cooked Japanese food, I completely stopped putting color into my hair and I would only style them 2-3 times a month. When they reached shoulder length I removed the extensions and had the best most bouncy curls back in my life. I was so happy, I did out few highlights though the hair but as they were in perfect condition. From that time I would never cut my hair more than armpit length and I would either go dark brown all over or have highlights put in every 6 months.
Until I moved to hot and humid Dubai where my curly hair would get super dry from the beach and frizz up form the humidity. With my hair at mid back length way pass the bra strap, big and wavy I decided to put some highlights in and got talked into a keratin treatment (ALL AT THE SAME TIME!!!). What the hairdresser did was he stripped my hair of the color and fried them with keratin and iron. When i got home I could not look at myself in the mirror, my hair had no volume and it looks like half of my hair was gone. My strands were glued together, horrible sticking to my scalp. I did this treatment in May 2014 and I never ever regretted anything this much in my life. For the last two years I have been using tape in extensions as all my hair has broken off to ear length. In December 2015 I made a big chop and decided to cut all the hair with keratin (which basically looked like relaxed hair compared to my curly root). My hair has been shedding like crazy and also it keeps braking off. Two weeks ago I have removed my tape in expansions as I am not able to properly condition and moisturize my hair with the tapes in. I have two layers in my hair, the top one is about 1cm above my shoulders and the longer one is to APL. My ends are very dry and brittle. If I wouldn't have done the treatment my hair would be now at my tail bone tick and gorgeous. I have sewer withdrawals from taking my extensions out, feeling like i have barely any hair left. Two weeks ago I have started taking hair burst pills, drinking pure collagen; doing scalp oil massages, deep conditioning treatments and complete heat restriction. My hair from the root is very soft, curly and shiny, so I am hoping that with this regiment of TLC and hair supplements I will be able to get my hair back.
The most sad part of this story is that I had to completely ruined my hair and loose them to start appreciating what God has blessed me with. I do have significant amount of grey hair (especially at my front hairline and sides) so I do color my roots, but at the same visit I do deep masque steam treatment. In December I will put highlights in my hair to make the gray blend better and I will continue the care routine and no heat until my hair are back to their best state.

I wish you all great hair growth, health and happiness and I hope you all love the hair your have as we do not know what we have until we lose it.

Sep 26, 2016
For Tsoline
by: Sandra

Oh Tsoline,I am so sorry that you are suffering with this. I don't know if it's the keratin that causes this. I know for a fact (backed by research) that formaldehyde in keratin products causes this so maybe you should have told the dermatologists about the formaldehyde rather than the keratin. They can research it for themselves and see that it is true. I do think that maybe you should get fully investigated for other things that case hair loss like low ferritin or thyroid issues. I'm sure your doctors have told you this. I'm not saying to you that it wasn't the hair product but for those of us that have been affected by the hair product it is very obvious that it is the Brazilian as it happens almost immediately. Please be reassured that hair that falls out for whatever reason does often grow back.. I have done so much research on this .. Please let us know how you get on and wishing you the best of luck ..

Sep 26, 2016
I will go crazy😭😭😭
by: Tsoline

Hi sandra thank u for your support but my hair is almost gone i have now only 10% of my hair its all patchy bald spots and the new baby hair is falling also I don't know what to do coz i went to dermatologists and asked them about keratin but their answer was the keratin doesn't affect the hair follicle but I'm sure that it killed my hair because after doing this treatment my hair began to fall now if i touch it it falls plzzzz help me

Sep 21, 2016
Offering support
by: Sandra

Hello

I'm responding to you straight away as I have an 18 year old daughter that has had hair loss due to Brazilian over the last two years so I really empathise and I wanted to offer you some support. So here is my advice to you:

I'm hoping that you have loving,supportive family or close trustworthy friend around you and the first thing you could do is to share your concerns with them. It's much better for you to share this with a kind person that can give you a hug and tell you it's going to be ok , than to suffer alone. I would suggest a family member that you trust.

I don't know which country you are in and if you have access to health care but I do think it's worth seeing a dermatologist that specialises in hair. Even if they can't offer solutions they will at least be able to explain to you what is happening (which areas are thinning and if there is regrowth ) and monitor your hair loss.

Keep chemical free (not everyone agrees on here) but my
opinion is that by using chemical free shampoos and conditioner at least you aren't adding to the problem.

Eat healthily - not always easy for you busy teenagers!

Read all the recovery stories on here and there are many. Tell yourself that you are going to be one of them.. The fact that you seem to have shorter hairs seems to be a good sign as it means that the hairs are regrowing or that it is simply breakage not loss from the follicle. Breakage is a pain but at least it grows back ..

If you want to ask questions on this forum I will try to answer you. As my own daughter refuses to discuss what has happened, in a way, the fact that I can help someone else is of comfort to me. If you could use a name (don't use your real one if you don't want to) or an initial it's always useful as sometimes I can't tell if it's someone new or the same Anonymous person posting on here..

I hope others will be able to offer you some positive stories of recovery , like Brittany's positive news in the post just before yours.

Sep 20, 2016
Sad.. & worried
by: Anonymous

I've Always had very thick voluminous hair.. It got frizzy easily and never looked like I had tried to do it. I researched online and they said he BB was safe and was the best solution to get frizz free healthy hair. I am 18.. & I got this done two months ago & now when I pass my fingers gently through my hair, a ton of hairs fall out, in the shower it is the worst, I understand falls out but I feel like it's way to much then it use to be.. I can't touch my hair with easily getting tons of strands out.. I do think my hair is a little thinner but not noticeable because of how much I originally had.. I have a ton of baby hairs and I think it's because of the breakage.. I really hope my hair stops falling so much.. I don't want to lose most of my hair.. Any recommendations on oils or remedies? It hasn't been super long since this started like 3 weeks .. I just don't want it to be permanent

Sep 17, 2016
Positive Update
by: Brittany

Hello All,

Just wanted to update you with my hair loss (had the BK treatment 1.5 year ago). I believe it is safe to say that the extreme hair loss has subsided! Woohoo! I am finding short hair in some of the thin area which is indicating to me that my hair is growing back.

Overall my hair is thinner than what I started with ,however, it is not noticeably thinner.

Some things that worked for me:

1) Protective Styling: I have African American 4c textured hair. I learned how to do my own box braids and did braided hair styles for ~6 months. I highly recommend getting braids or twists because your scalp is more exposed and it is easier to treat with oils, conditioners, Mindoxil, etc. Additionally, when you have braids you do not see your hair fall out. This is therapeutic because when you have braids extensions you can have long thick looking hair that is easy to manage...you completely forget that you had hair loss in the first place.

2) Hair Products:

(a) Rosemary Oil, Peppermint oil , caster oil, wild growth oil, MegaTek , and water....Mix solution in applicator bottle and apply once a week (or every other week)...there are a bunch of youtube videos on MegaTek for natural hair if you are curious

(b) For shampooing...Apple Cider vinegar, rosemary oil, water.....lather like you would regular shampoo and rinse with water afterwards

3) EXERCISE!!!!! I believe this helped me the most. I was so stressed when I was loosing my hair. Exercise helped me gain my confidence and happiness back.

4) NO STRESS!! Figure out what make you happy and do it. You may not be able to immediately change your hair falling out but what you can change is your attitude and how you view life. When I realized this my hair was the last thing on my mind. I was too focused on living a positive life instead.

5) Take a regular multivitamin. Don't waste your funds and time on all of these "Miracle Supplements". If necessary just take more Biotin (my derm. recommended 1000+ mg)

I wish you all the best of luck in your hair journey! Stay positive my friends.

Sep 15, 2016
Keratin disaster
by: Tsoline

Hello i did keratin before 2 years and i lost approximately 70% of my hair but its like bald spots like alopecia areata are you all the same like me bald spots????? So much stressed no one have pictures i want to become sure if its from keratin

Sep 02, 2016
thank you
by: Maria

Thank you for posting your recovery story.A real hope at last!
I have also update regarding my shedding picking up again.After being also itchy all over and my little boy having even scabs lookalike things on his scalp,I looked into water quality and most sites point out hard water causes that.With my scalp not 100% either,I am positive this is what is causing my shedding now,not a relapse of my hair condition.I will wash with bottled water for a while and update you.Cause if this is the reason,than my recovery was real until now and that is a good news.Even tho I have to sort shower filter or something like that now and hope for shedding to stop.iodineStay well!

Sep 02, 2016
Thank you
by: Sandra

Hi Anonymous
Thank you....from the bottom of my heart dear stranger I thank you . I will read your post, daily if I have to ! Firstly, to remind me that there is hope and secondly to remind me of the kindness of strangers. Not everyone takes the time to post a comment years later and I appreciate that you did ... X

Sep 01, 2016
Over 4 and a half year update
by: Anonymous

I always said I would come back to this site when I recovered. I never thought I would. But, I am so happy to report that I think I did! It has been over 4.5 years since my last keratin treatment. I lost about 60% of my hair, lost hundreds a day, terrible thinning and wide part. Anxiety, stress, sleepless nights, googling nonstop, reading this site over and over, dermatologists, hair specialist in NYC, topical steroids- you name it, I did it. Everyone said it would stop shedding and they all said it would grow back. I can honestly say I started to see a difference at the 4 year mark. Now, my hair is fuller. Is it the same thickness as it was before? No, but my hair was so thick before, it is almost a blessing that it is a little thinner now. I am telling you all from the bottom of my heart, this was the worst experience of my life, but it DOES and WILL get better. I would have never thought I would be saying this and I dreamt of the day I would. Please have faith, stop stressing, and live your life because you don't realize all the time you are wasting over this. I wasted 4 years of my life consuming my thoughts over my hair. It isn't worth it. IT WILL COME BACK. If mine did, yours will too. It will take long, very long, but just go on and before you know it, you will have your hair back.

I hope I gave you all hope. Trust me, you will be okay.

Sep 01, 2016
Thank you MH
by: Lisa

Hi MH, I read your story and it's almost exactly like mine. As I was reading it, I thought, "I could have written this." Thank you for sharing. Hang in there. I still have hope that there will be a turning point for us and our hair will grow back.

Aug 31, 2016
For MH
by: Sandra

Hi MH
As you're the only other Londoner on this forum (we can't be the only two surely !!?) I wanted to ask you if you know anything about the product that was used on you .. Was it from a reputable wholesaler? Did you tell the hairdresser what had happened ? What did they say? im just wondering if by some possibility we could have had the same product used. I think most hairdressers in Uk are using a safe product and only a few rogue hairdressers are still using the old fashioned high formaldehyde one which is illegal btw. I've always been intrigued to know ever since you started posting here..

Thank you for your comments and to everyone else too. Sending prayers and good wishes for a full recovery from this. Please keep posting if things start to get better! It gives me such joy and such hope to read ! Xx

Aug 30, 2016
Thanks everybody
by: Rick

Thanks for all the feedback. Thanks Lisa for the info on dying my hair. I would rather have grey roots and grey hair than none at all. I will skip with dying it for the time being. I'm a guy with relatively short hair so it wont look awful growing in for too long. I don't want to lose anymore hair so will go with better safe than sorry and forgo coloring my hair. If anyone else has comments as to color or not, I'd appreciate hearing. So far I don't have it as bad as the other horror stories I've read on this board. My sympathy to you all. I have had no burning or itching of the scalp - just my hair thinning. It seems to have stopped shedding for the moment so hoping the worst is over. Good luck to everybody here. Don't know why we were the ones to get this when thousands of people get it down with no side effects. Guess we jus got "lucky". Wish I had of known what can happen. Still don't know why this doesn't come with a warning.

Aug 30, 2016
Hi all!
by: Maria

It's heartbreaking every time a new story is posted here.But the truth is,we are not all the same and exchange stories of hopes and tips seem the only way one can survive this.
My product was formaldehyd free but as most post suggest,formaldehyd is produced by the chemical reaction once on so.... Please realize that once you cut your hair short,it's harder to mask the bald patches.I've been there,twice! But I cut it anyhow cause my hair looked fried and I couldn't look at it any longer. Another note,not all my regrowth is a same length.Some is already down to my shoulders,some chunks are just 4-5inches, some ere even very short like 1 inch.I think all those different lengths makes it look frizzy while in reality it's actually not.
Do not use colour on your hair unless you have to.Mine shedding picked up after applying henna only.You're not helping your hair with adding more chemicals.On the other hand,I understand when you are showing grey,you want to look as normal as possible...
Most people have enough biotin from food they eat.Your body won't absorb more than it needs so it's a waste of money but it won't hurt on the other hand.
Omega 3 &6 are useful to take and some ginko bilboa for circulation.
Rogaine=minoxidil works but it's not for everyone.Some people have bad side effects.Also if you stop applying it,you'll shed like old Christmas tree.I use minoxidil for past 20 years and luckily have no side effects besides more hair growing on my legs,arms,etc.Nothig what razor and epilator cream wouldn't fix.When my hair start to fall out again while in Singapore,someone here mentioned it could be from water wich I thought was unlikely.Now as posted here,my sheading picked up again 3 weeks ago when we moved and guess what? Ve have very hard water here.We are all itching,even my 4 year old start to have dry scalp issues.
And what else? You can try Aminexil it seemed to help a little.There are also products which claim to have aminexil and minoxidil combination but I found out that this wasn't registeted medication here,therefore cosmetic category.So I stick to minoxidil morning and night and after a full cure,only twice a week aminexil at lunch time.I don't want to make whole new molecule by mixing it! I am also trying black cumin oil.Little spoon to eat every morning with orange juice and massaged in my hair like twice a week for the night.Alternative sites suggest rubbing first lemon in,wash gently,then black cumin oil.Too exhausted to follow all that.
Will see if anything helps.I am definitely growing hair.It was a year in March for me but I am also losing a lot again now.Scalp pains are gone since spring so yey to that.I went first to very large bald patches and have been on slow recovery since so not gradually losing more and more.
Please don't post negative things like study shows it will never grow back.It's depressing to see and might be the reason people stop posting and reading stuff here.
I read once that Retex (what I've done) damage is always permanent.I had nearly nervous breakdown after that.Took time to realize that this will not be me because despite ups and downs,depression,feeling ugly,facing people not recognize me, I will fight this and try all alternatives I possibly can.Cause hope is all we have.Good luck to you all!

Aug 30, 2016
2 years, 24 months....too long!
by: MH

Hi all,

Deb, Sandra (there is nothing to forgive, it must be horrible to watch), Parsley Girl and everyone else - hello!

Well, it's now been 2 years since I had my BB. I can barely believe I am writing this - 2 years. 2 whole years and this misery still consumes my everyday life; admittedly not as much as it once did. It's become a fact of life and I'm grateful I still have some hair, although I have come close to shaving it off in frustration several times.

I don't want to scare those of you have just joined and realised the horror of the BB, but I hope this account can at least give you an honest depiction of my ongoing journey. I remember reading this thread and others saying I'm 2/3 years in and thinking "that's awful, but this will only effect me for 6 months surely?!?" Well, I'm sorry to say, they were spot on.

I had 1 BB - I immediately had hair fall but it was the damage to my scalp that scared me. What felt half my scalp flaked off and I huge disgusting scalp flakes. At the time my hair was still thick and could cover it. Today, I still have severe dandruff but my hair is so thin it is very hard to disguise. I also had burning and terrible pain for a year. The only thing that helped, which I got after reading a recommendation on here, is a steroid ointment called 'Clobetasol' - I still use occasionally and it's the only thing that my Derm thought may help. I have minimal pain today but still have burning on wash day.

I have lost 70% of my hair. It's is dry, extremely frizzy and brittle. To be blunt, it looks bloody awful. I have not blow-dried or straightened my hair in 2 years. Luckily, I did not lose my curls, so together the frizz and curls have made the loss of volume less noticeable. Albeit it looks terrible, it looks like a birds nest. I have a had a few moments from people about doing more to control my hair (I'm in a very corporate environment) but it's what I have to do. I have cut my hair shorter and shorter, what has surprised me is the sheer level of knots that form - my hair is matted - and then the knots fall out in clumps. It's horrible. I have my mum cut my hair - I can't bear to let a hairdresser touch it. Today we went shoulder length - I am overweight and have a very round face so was reluctant to do this, but it was needed. I use powder and have a receeding hairline.

Although this is a daily struggle and my Mum, friends, colleagues are sick to death of hearing about this, none of them say it is obvious that I al losing hair. Thinner - yes, but not that a stranger would notice. Regrowth is frustrating - it is minimal and does not replace the loss. It is wirey and thin, and clearly damaged, it usually falls out after a couple of months. I have no hair on the nape of my neck and my top hairline is the worst. I lose minimum 100 hairs everytime I wash - if not 200. However, I wash once a week and I know this is bad for my scalp as 1. my hair looks disgusting 2. dandruff builds up 3. my hair is matted by this stage but I find washing it more than one very traumatising. That said, I believe washing does not exacerbate hair fall - you just notice it more. It will fall out either way.

I'm sorry I don't have better news, it is hard and the longer it continues the more disheartening and bewildering it becomes. I am using Aphosyl Shampoo at the moment and that has really helped my dandruff and is far less drying that Nizoral.

Love to all - hopefully this post wasn't too long and boring!

MH x


Aug 30, 2016
Hair smell
by: Anonymous

So I'm wondering if anyone has any tips ? I can only wash once a week bc of the horror of hundreds of hairs falling but what do I do about the smell !

Aug 29, 2016
Hi lisa
by: Anonymous

I'm on the west coast . After reading this board I tossed my keratin care shampoo and conditioner and bought some Argan oil shampoo and conditioner. I also bought the deep conditioner. I have had an amazing result since stopping the keratin care products. In just 2 weeks I'm hardly seeing any hair in the sink or tub. I really think the sulfate free products with the shampoo they want you to buy with your blow out contribute to the hair loss. Now, back on track. Probably be a long time until I see regrow the if any this time.

Aug 29, 2016
Should I stop coloring my hair?
by: Anonymous

I forgot to ask...should I lay off the coloring of my hair? I'm a guy and get the roots touched up professionally every 6 weeks. I figure I should lay off the dye for the time being - even though I don't want my gray roots showing. I don't want to look like Donald Trump! Any suggestions?

Aug 29, 2016
Still in shock
by: Anonymous

Thank you Deb and Sandra for your help. I figure I'm pretty much screwed - I can't go back in time though I wish I could. I'm hoping since I only had the one treatment it will be less than some of the posts I've read here. I'm not seeing it in the sink or my pillow so I'm hoping the initial shock to my scalp has subsided and most of the damage is done. I'm using Rogaine type of product - don't know if it will work but I figure it can't hurt. I'm distressed to hear it killed my follicles and wont grow back for 3-5 years but I guess it's good to know. Still hoping that maybe my scalp is just in shock and like a plant that goes in shock and drops it's leaves, it's leaves and my hair will come back. I don't know. I just want the hair loss to stop. I'm a guy and can keep my hair short and disguise the hair loss somewhat. Right now I'd settle for fuzz as long as it covers my scalp and blends in with the hair that I still have. I can't believe this treatment doesn't come with a warning. Also I bought Biotin. Does anyone know if that helps? Thanks again for all your responses.

Aug 28, 2016
Hi
by: Sandra

I'm so sorry to know that you're all going through this too. Two years here ..No words of wisdom or answers here but I just wanted to say that I'm reading all the posts. When the initial bald patch at the top of my daughter's head began to fill in and the hair appeared to stop falling after nine months (from what I could see - certainly no hairs on the pillow in the morning) I thought that she had perhaps had a lucky escape. However, I knew that the research done in USA stated that if the formaldehyde had entered the follicles then new hair would not be growing back. So I knew that I had to wait for a hair cycle (3 - 5 years) to really know that that things would be ok. It always amazes me when people say after two years that their hair is thinner but going to be ok. The reality is that you don't know if your hair is going to grow back until each hair has been through its life cycle. It's the formaldehyde that does this, according to research and I would be very surprised if there was anyone on here that has used a formaldehyde free product. I guess there might be some people with an allergic reaction to keratin but hair that goes through its life cycle and isn't replaced - I feel sure that is the pattern of formaldehyde. It appears to mimic female hair baldness as it's often worse on the top. Maybe the gas seeps in at the top. I wish I knew and I'm amazed that the dermatologists are not interested in accessing this research. The regrowth that my daughter has had is very frizzy and fly away indicating that the follicles are indeed miniaturised. This is typical of female hair baldness but her regrowth is all exactly the same length. This shows it all fell out and then re grew again at exactly the same time. Female hair baldness does not do that.! I'm so angry not just at the hairdressers that use this but at the medical profession that aren't addressing it ..

Aug 28, 2016
Hasn't stopped yet for me
by: Deb

I'm sorry Rick to hear you are going through this. I am on 1 year right now and have lost about 60 % of my hair . Unfortunatly in my case it has not grown back yet, but I keep researching and won't stop until I find a way. Lisa, I was in in Disney with family and now I'm home but it seems we are experiencing the same thing - in regards to the amount falling out per day. What color is everyone's hair? I'm just wondering bc mine is blonde and I had gray roots that would come in but now they are very sparse . I guess my hair isn't growing ? Or he healthy hair that was growing has fallen out? I have no idea what to think . It's on my mind about 50 - 75% a day. My sinks get clogged , hairs all over I have to vacuum a lot. I'm just so embarrassed. I see people walking around that have strips of hair on their head and wonder if that will be me some day in the near future. I put the powder in but what kind do you recommend. Does anyone dye their hair? Does massaging help? I'm going to have to do the inevitable and have to cut it short soon . It's just very strangley but I do out it in a pony tail which I'm sure isn't helping but it looks tame this way and i can hide some of the spots of baldness. This is just super depressing. My son is going to kindergarten and I look like I'm so old. I'm guess now that the girl didn't wash something off she was supposed to and it killed my follicles. I just wish I could stimulate any that are trying to hang on bc why doesnt it all fall out at once? Well still feeling helpless and now I know why people stop messaging on here - no bc they got better but bc they don't want to keep typing about it - they just want to forget it or only look on for some hope of a cure .

Aug 26, 2016
Will this hair loss stop????
by: Rick

I had my one and only Brazilian Blowout done 8 weeks ago before I went home to Florida. I have ALWAYS had thick frizzy hair. Thank God I had a full head of thick hair. That said, I started noticing about 4 weeks ago that my once thick hair on the top of my head was now thinning out. I especially noticed it when wet until it got to the point that I realized something was causing me to lose my hair on top. I finally put two and two together and googled Brazilian Blowout and hair loss and was horrified to read the results. Now I know what is causing my hair to thin out. Will it stop thinning? I too notice it when I am under lights. I am scared shitless. Will it grow back? Is it going to continue to fall out? I don't notice a lot of hair in the sink, just that each week it seems to look more and more thin on top. I can't believe I finally figured out what's happening but on the same hand am terrified.

Aug 22, 2016
Hi Deb
by: Lisa

Hi Deb,
Where in Florida are you? I live in Florida. This is my second year of severe hair loss after the BKT. Every morning I cry as I count the hairs coming out of my head. I lose 100-150 on no shampoo days and well over 250 on days I have to wash (I only wash once a week) I've been told that it will eventually stop and that it will fill in again, but right now I'm terrified to stand under any overhead lighting because my scalp is so visible. I try to hide it with powder as well, but it just doesn't look right. If you'd like to meet for coffee while you are here and it's not too far away, we can swap stories about things we've tried to get this to stop. I had the scalp pain and itching for the first year really bad. Now I get itching (usually when I haven't washed for a few days) but it's not as bad as it was. The hairloss is still killing me though :(. I would do anything to have never done this terrible chemical treatment. Take care and hang in there.

Aug 20, 2016
Ugh keratin!!!
by: Deb

How terrible "Sandra"!! Your poor daughter !! I am so sorry this has happened to her ! I pray that she gets better !! I have a 20 yr old daughter and would feel terrible if that was done to her instead of me. But ... She is the only one that I confide in about this. She is the only one who I can turn to and I think she is sick of me asking her daily how is my hair.... Everyday... I know she notices but she tells me I'm fine -- I've lost like 60% at this point - hair has not stopped coming out-- I'm on vacation in Florida right now and I'm so scared of washing my hair in the water here . I live in NY. I see on the hotel floor I've lost about 50-100 hairs without washing in 3 days. It's 1 year from today that I had the keratin done . I'm so embarrassed with how I look. I use powder on my scalp and I'm so scared of the overhead lighting bc my scalp looks painted ! It's a mess - I don't know what to do - I try to put on nice makeup and dress nice but since I tried to go on so many vitamins I've gained 15 lbs or more . And the vitamins don't help but thought I'd try . My scalp is burning - nighttime is the worse - how horrible this is - I just pray I'm not bald in two years bc as this shedding is occurring -- I will be :(

Aug 17, 2016
Shedding
by: Anonymous

I've had several Brazilian blow outs over the past 5 yrs. I had one over a year ago and noticed a lot of shedding and bald spots. I attributed it to the hair extensions I had. So I did rogaine 5% and high amounts of vitamins. My hair was looking good but in May I noticed it was frizzing a lot , I'm in the south so went again with the blowout. Since that time I've had more loss and shedding than ever before. I mean it's awful. So here I am again with the rogaine and super vitamins for hair. Very upset that hairdresser would agree to this knowing about my hair loss. I also switched off the keratin shampoo and condition and using a new one that is for damaged hair and has sulfates in it. We'll see. Last time it took me 6 months to notice a difference.

Aug 12, 2016
Update
by: Sandra

Hello to everyone
I always said I wouldn't be one of those people that stopped posting when things got better and I would stay to support others. I'm sorry I haven't updated in a while as I know what support it gives to read others comments. I still check in every day to see what updates there have been in hope that someone will say there has been a wonderful cure. The most distressing posts are ones like yours Maria, where there has been recovery and then things get worse again.
I have a confession to make: this didn't actually happen to me and you may be surprised to know that I wish a million times over that it had.. It happened to my daughter who was 16 at the time. I treated her to this hair straightening as she was going on her first holiday with friends to somewhere very humid and I have felt sick for the last two years as I watched this happen to her. The reason I pretended it was me and actually have used a false name is because when its first happened I was so worried that she would google and find out I was on this forum and get upset with me. We had the most perfect 'mother daughter' relationship and for the first time ever she saw me collapse over this. I felt such guilt and pain and this has continued. She is now 18 and our relationship is back to what it once was except for any discussion over hair. Other than the initial two trips to a dermatologist and trichologist she refuses to discuss it with me and refuses to see anyone. Believe me,I'd fly her to USA if I felt that there was someone there that could help. She says that she forgives me but I will never recover from allowing her to have this done without properly researching. Consequently, I can only tell you what I see. In the initial stages when her hair was falling out rapidly I knew because of hairs on her pillow in the morning and because I would follow her into the bathroom after she had washed her hair. She would put her hair into the plug hole so that I could not see how much she was losing and I would pull out maybe 2-300 hairs at a time with tweezers. I am so lucky to have a truly wonderful relationship with her yet I cannot discuss the one thing that I would like to talk with her as she will not talk to me about it . So I can only tell you what I see and that's only from a distance as she will not let me look at her hair closely (I've begged her) her hair is thinner,when it's wet I see scalp at the top, there has been regrowth but very little (my hairdresser trims her hair occasionally and confirms this to me). The new hair kind of sits on top fluffier than the rest of her hair and never kind of blends in with the rest even when she uses hair straighteners. Does anyone else have this?? Thank you for your support everyone. I truly would have found this so much harder without you all as I feel so alone.

Aug 12, 2016
update
by: Maria

Hi to all. Just a short update as I obviously "toot my horn" too soon :( I start to notice my hair on floors and sink for the past few days.I went to the bathroom in furniture shop on Tuesday,no overhead light and could see my scalp everywhere on the top.I felt sheer panic,sick to my stomach scared.I start to look around more carefully when we got home and there was hair everywhere :( I am shedding again...or I fooled myself into thinking I was getting better before... I don't know.This is obviously far from over.My scalp is little itchy,my hair has gone very frizzy.
I am due to finish whole aminexil cure so now I am panicking if to order another one and use as a prevention 2-3x a week.I am still on minoxidil and I am also putting in some scalp simulator from Alterna (but that is cosmetics,not medicine). Last night I read about black cumin oil and how it's very healing for many conditions,so I ordered that.I feel like all I do is massage something in my scalp whole day long :(
I don't understand why shedding picked up again.We moved and it's lot of stress.Also water here is much harder.Could that be it? I was being so grateful for every new hair and now to see them all over the floor :(((( I don't deserve this,none of us does.I hope things go better soon for all of you.With all we do to get better,something has to work.Take care of yourselves.M

Aug 06, 2016
checking in
by: Missy

H, Parsley Girl, Maria, Sandra and all the peeps. Glad to see good news for some of you. Great to hear. I completely identified with Alana's symptoms of the itching. So true. Get to day 3 of no shampoo, and it does itch and feels like something is crawling around. Never had that before. Ever. I'm still doing the Just Naturals dandruff shampoo and avoiding all coconut oil and protein based oils like shea, etc after having spent a fortune with them. For me, I think it's too much protein. I use more moisturizing products instead and castor oil and avocado oil and a tiny bit of rosemary oil mixed with jojoba. But not much. I was slathering too much on and the trichologist said it was likely blocking up follicles. I still have the thin, doll hair that comes out easily just touching it and definitely worse when wet. Every expert told me brush with wet brush when dry before shampoo. Never wet. I have gone back to coloring my hair on the scalp with organic color i think it's Goldwell Nectaya. I'm supposed to go next month to the hair doctor to have the allergy tests to see what ingredients mimic keratin to avoid them. I realized one of the conditioners I had used from the VItamin Shoppe that's called Biotene I think had keratin in it. No mas. I will consider the PRP. I hope Lisa & others get some good results. i know it is supposed to be sometimes it works and others not. The Acell I think makes it work, but again, I won't use that and can't use monoxidil, and on and on. So just doing what I'm doing. I should moisturize with hot oil before a shampoo. I have to take time to do that & I should massage the scalp. My hair in front is absolutely thinning, which I think is the alopecia worsened by the keratin. At this point, it is what it is. Just pray for stability or improvement is all. I'm grateful right now & pray time will improve it as all keratin comes out March was only a year. I cut off lots of hair trying to grow it longer again. wishing all good thoughts to all of you.

Aug 06, 2016
It will be ok
by: Princess v

Hi guys first i want to say thank you for helping me thru this hard time . It has been a year but my hair is back to it curl and thicknesses. I cut my hair all real short and then wore half wigs for about 4 months and yes im latin but i whore a wig and in florida in this heat. I only co washed my hair and deep con. Now my hair is is back to it curl and thicknesses i couldnt be happier. Now my hair is not falling out not going bald . It is back to what it was. And i dont but heat in it. But oil you scalp with coconut oil

I hope this helps you all as it helped me. Trust me i eas losing my hair and mind .

Aug 05, 2016
It's been six months since the last time I posted
by: Hi Parsley girl here

I want to say hello to Sandra,Missy, Maria,HM and every one here well my hair is doing much better were my bold spots were is full of hair you can't see any baldness my hair falls out not as much as before I did se some hairs growing thinner then the hair around weren't bald spots were they don't have the same texture as my hair was before de kt but is way better than having those bold spots like I said before go quimicals free as much as you can parsley cinnamon coconut oil drink horse tail tea and dandelion tea so you can clean your blood stream in your body and drink lots of water thank you all for the moral support and I wish everyone here the best of luck God bless each of you.....

Aug 05, 2016
keratin disaster
by: Anonymous

hello everyone,
I did the keratin treatment in December of 2014. Similar to all of you, I began experiencing hair loss 3 or 4 months after I did it. My hair fell out at alarming rates and thinned considerably. Eventually the shedding stopped but my hair did not return to its original thickness. Luckily I have very thick very curly hair so me losing 30 or 40 percent of it was not a huge tragedy but I was still very depressed by it. I have taken biotin, iron, and b complex supplements and used castor and pimento oil on my hair. I just want it to be thicker but I can see my hair growing back slowly so I'm confident that eventually it will all come back to normal. I saw a post down below about the inversion method so I am doing that. The biotin and castor oil helped my hair and I would recommend those for everyone trying to help this. I would also reccomend avocado treatments because those make your hair thicker and healthier. I hope all of you who were fooled into thinking this was safe eventually find peace again and are able to have the hair that you are trying to get.

Aug 05, 2016
keratin
by: Anonymous

hi everyone,
I'm new here and so glad I found this thread. I had the keratin treatment done December of 2014 and ever since I've noticed my hair has gotten noticeably thinner. The first 6 to 12 months it felt like more hair was falling off my head than was sticking to it and it felt awful. I have very thick curly hair so for me to lose the 30 or 40 percent that I lost wasn't the end of the world but it still hurts to see my hair being thin when it used to be thick and beautiful. There is nothing more I wish for than to be able to go back and tell my younger self not to do it. So far I have used biotin, castor oil, iron supplements, b complex supplements and pimento oil to attempt to get it back to normal. My hair has stopped shedding which I am very happy about but it still isn't as thick as it used to be so I am currently trying to do everything I can to make it all be back to normal. I read a post down below about someone doing the inversion method so I am on my 3rd day of doing that and hoping for good results. I am praying for all you ladies that have been affected by this and I think it just takes time and slowly but surely you will be back to normal.

Aug 01, 2016
To Alana
by: Anonymous

Hi Alana,
Thank you for sharing your story. It is very similar to many of us on the site. I check the page almost everyday to see if someone has found something that works. My hair used to be very thick like yours. I had a total of 3 keratin treatments over 2 years. My last keratin treatment was in May 2014. I have lost so much of my hair and the shedding has not stopped. My hair is extremely thin now. Please let us know what you find out at your visits. Many of us have tried everything under the sun. I think it's some kind of chronic inflammation that's occurring that is causing our immune cells to attack the hair follicles because they have taken in too much keratin or formaldehyde. If only someone could find a way to reverse this. Take care.

Jul 27, 2016
Finally seeing a Trichologist
by: Alana

Greetings friends,

So glad I found this thread. I have a similar story to you all, but it seems I am many more years removed from my last keratin treatment. I started having stylists do the keratin treatments on me in 2009 (Aug) and my last treatment was Nov 2012. Yes, I am devastated to admit that I used keratin for 3 years, about 2-3 times pr year. It wasn't until the end of my 2nd year that I saw a bald spot. When I asked my mum and my sister about it, it was so small that they told me I was making a big deal out of nothing. When I asked my stylist at my next Keratin appointment about it she said that sometimes our hair/scalp goes through phases and I shouldn't be to concerned. Boy, were they ever wrong. My hair LOOKED amazing, beautiful, shiny, healthy and LONG...(according to my cousin people had major hair envy) but little did I know that this terrible chemical was completely destroying my scalp. In the 3rd year I realized that my hair was falling out and when it finally began to fall out it was coming out the way I've heard cancer patients talk about hair loss. I was terrified of washing my hair - I would get an entire handful of hair with each and every wash. Like from a horror movie, large strips of my scalp started coming off - think terrible sunburn kind of peeling. Also the pain and itching...words can't describe how sometimes my scalp itched so badly that I was tempted to scratch it until I drew blood. But I knew that I couldn't, so would just lay in bed for hrs crying because of the intense, almost unbearable itching.
I stopped Keratin and started seeing dermatologists and dermatologists who supposedly specialize in hair loss.
One of the dermatologists that I saw told me he daily saw clients losing hair because of Keratin and that I was lucky that I was taking massive amounts of hair vitamins throughout the ordeal as I probably would have ended up completely bald. Because my hair by their standards was relatively thick still, they basically all told me that I was overreacting. The thing I said to them all "don't you get it, I KNOW my hair and I've lost half of it, are you going to wait until I'm truly half bald before you start taking me & what is happening to me seriously?"
Three years removed from my last Keratin treatment I have finally decided to really fight for myself to find out the truth. To truly find out what has happened and is continuing to happen to me.
Good News: My hair loss has stopped considerably - I am no longer afraid of washing my hair. The Keratin is completely grown out/gone, my hair no longer has that weird DEAD, burnt smell and my hair continues to grow. Today my hair actually LOOKS completely healthy. It is below my shoulders. I don't have the intense scalp pain often anymore.
Bad News: The intense itching still brings me to tears. It is very difficult to go more than 4 days without washing my hair because it feels like something is crawling below my scalp and the intense itching feels like it can drive me insane. Before Keratin that NEVER happened. I never even had dandruff or any other scalp issues.
Bad news: Those two tiny bald spots have turned into a general, overall hair thinning/balding areas on the crown and back of my head. What I notice - a spot on my scalp will itch intensely, turn a slight pink/red color and then the hair in that area will fall out. I dread localized itching because I know that could very well signal MORE hair falling out. Hair stylists are finally starting to comment on what has happened with my hair because it is so noticeable from the time you start manipulating my hair. Also, when my hair is blow dried straight (naturally it is super kinky/curly - like a slinky) you can see the bald area on the crown/back of my head.
Stylists used to comment on how thick my hair was - at least 2hrs oftentimes more for me under the hood dryer - and now the first words out of their mouth "OMG - what happened?"
Tomorrow I see the trichologist and then three weeks from now I'm seeing my primary care doctor to get a script for a scalp biopsy. I'm finally ready to do this and not give up/stop until ALL of my hair has grown back.
I'll let you guys know of the results. Thanks for letting me vent and I wish you all the best of luck on your journey.

Jul 21, 2016
One more thing
by: Lisa

I forgot to mention that I had cut all of my hair off when the hair loss was at it's worst (I thought it might help slow it down because I would have less to detangle) it is growing back extremely dry and brittle. I used to have to wash my hair everyday, but now it doesn't seem to produce oil so 2 X a week is more than enough. one thing that has helped me is not combing it when it's wet. After I wash, I add a leave in conditioner and wait till it's completely dry. Brushing when wet gives me the most hairloss. Anyone else experience this? I would love to share before and after pictures, at this point I'm so mad at myself for just not loving the hair I had. I got the keratin treatment to reduce frizziness in the summer and cut down on styling time. All the time and money I have spent trying to reverse the effects has really taught me a lesson :(

Jul 21, 2016
PRP Update
by: Lisa

Hi Everyone, As a reminder, I had a Brazilian keratin treatment in May 2014 so it's been just over 2 years of hair loss for me. I used to have very thick hair that was past my bra strap. Now my hair is paper thin (I estimate that I lost at least 70 % of it) the top of my head and hairline are the worst. I can see my scalp very easily and I am still losing 200 + on wash days and about 70 on non wash days (I wash my hair 2X a week). I did not want to leave the house for a long time, but I finally just gave up. A wonderful girl I met who is dealing with this nightmare too told me about some hair powder which I use daily to make my scalp less noticeable. I have tried everything!! All kinds of vitamins, oils, shampoos, steroid injections, scalp treatments, rogaine and non of them worked. I decided to try PRP. I did a lot of reading about it and some people had great success. I paid the $1400 in March 2016 for PRP and microneedling and I have to say that so far I'm very disappointed. My hair loss seemed to pick up after the treatment (I don't know if it was from the needles or just moving my hair around so much to do the treatment). I think that hair loss has gone back to what it was prior to PRP (which is still very heavy) but I am not seeing any new growth at all. It was a very expensive treatment for no results. I honestly think that the Brazilian keratin treatment has killed my hair follicles and once the hair falls out it's just not coming back. I am trying to stay positive and keep reminding myself that no one has reported complete baldness, but I have started looking at wigs just in case. I'm so sorry this is happening to all of us. I am very disappointed in the FDA for leaving this product on the market. It is horrible. It has destroyed my self confidence and it was advertised as being healthy for hair. I will update if the PRP kicks in. The lady who administered it did tell me it would take 4 months to notice any new growth.

Jul 21, 2016
update
by: Maria

Hi everyone,
This update is long overdue and I am sorry but I had decided to try to push all this out of my head for a while in order to stop loosing hair also to stress.
Things are improving.About a week ago was the first time in 15 month that I stood under overhead light and my scalp wasn't shining through. In fact there is a lot of new hair sticking right up on the top of my head. God, how I love them and cherish them. 2 years ago I would be trying to flat them somehow, now I am just happy they are there.
But to make this story shorter, here is what works for me now: 5% minoxidil every evening, 2% minoxidil every morning. I ditched all the natural shampoos and oils as it was really only clogging my scalp and it was itchy, I had dandruff, scalp pains kept coming and going...
I went back to what I used prior to my hair disaster and that is Alterna Caviar-Rx. It's without sulfates, parabens,etc. but there is a mild agent to give hair a thorough clean and god knows my hair and scalp needed this. I am now scalp pain free for a few month already. I cut my hair last Sept to about 4 cm, so very short. Now it's semi long, almost can make a ponytail and a lot of my new hair is about 6 cm long now. So a real mess on the top but I am loving it. For the first time I am starting to allow myself to think I may make full recovery from this nightmare.
I am still losing more then I should I think which is why I added to my routine Aminexil. I put that in in the afternoon. So far for 4 weeks now and I think it helped a little.
I keep my natural color, I don't straighten but I blow dry with Bio ionic hair dryer as it supposed to be gentle to the hair and drying faster.
I am going to stick with this routine as I think most change made coming back to shampoo which cleans thoroughly. I wash my hair every day, I always did. Maximum every second day.
I really hope you ladies will see some progress soon as well. It's heartbreaking. I hope this will give you some hope too. I don't get haircuts. Last one was about 5 month ago just a very little trim. It depressed me how my stylist commented on my thin hair and it was also very unpleasant to get my head massaged (I used to love it). I told them to be very gentle, etc. but the wash and also blow dry actually irritated my scalp for couple of days. And they use same products as I do so it was just pulling and pushing and all that.
I stopped using vitamins regularly as they didn't do much and oils made just all my pillows greasy but 0 help for re-growth. Really just minoxidil and good wash! Hang in there, it has to get better!

Jul 20, 2016
To Lisa
by: Anonymous

Hi Lisa,
How is PRP working for you?

Jul 20, 2016
Hair regrowth
by: Anonymous

Hi Deb,
I had a Brazilian blowout in late January and lost about 60% of my hair. I was very depressed and at times I couldn't get out of bed. Despite this, I was very aggressive in conducting research on hair loss and I have found some success. I saw a friend on Saturday who couldn't believe how much more hair I had and how fast it grew in the course of about 6 weeks. This is what I have been doing: I use Rogaine 5% twice daily. I take the following vitamins. Viviscal, hair omega DHT, saw palmetto, biotin, niacin and pumpkin seed oil. I mix vitamin e oil, castor oil, cocunut oil and tea tree oil massage in my scalp while doing the inversion method. I do this to get blood circulation to the scalp. I believe this is the reason my hair is growing at a rapid rate. I also use a DHT blocking shampoo. I also have an appointment next week for A Stem cell and PRP.
I don't know exactly what stopped my hair fallout but I believe it's a mixture of everything I have been doing. Miss Deb, please let me know if you have any questions or how I can be of support to you. I know how depressing this could be.

Jul 18, 2016
Shedding
by: Deb

Well I'm still shedding . Keratin done last August and noticed severe shedding November. It is now July and next month will be 1 year since I got the treatment. I only wash my hair once or twice a week , I wish I could wash it every other day like I used to but that is impossible bc of the severe hair loss that occurs every time I wash it. My part is unbelievably noticeable now and I am using a filling powder. Very embarrassing. When I move my hair around it just shows scalp on sides. My hair is not growing that much . But I do see grays a bit. It's still long only bc it helps cover the scalp when I play around with it. I'm afraid to cut it short bc my hair on top that is shorter than the back hairs is falling out at the same rate so why bother cutting it if it's coming out anyway. I do blow dry my hair since I only wash twice a week just to get it into a style and I even straighten it once a week as well. My hair is still dry and itchy from time to time as well. Obviously this is permanent. I look on here everyday looking for some hope. But there is nothing. It's so terrible that the hairs that are falling out are not being replaced. If there was I could deal with it knowing it would grow back. But that is the most depressing part . Each hair that falls out never comes back and leaves my scalp showing. I guess I will just keep looking on here to see if someone someday has some sort of advice that can help me and others. Thank you to those who have shared this experience and continue to try and find a cure. If anyone can update id really like to hear from you .. Sandra , parsley girl, missy Maria .. Etc .. I just like to see how things are going . Also I'd like to know if you get a haircut how does that go since I have to delicately brush my hair and I would fear someone else brushing it but I really need a trim. Haven't gotten one since last November.

Jun 21, 2016
responding to horses mane
by: Anonymous

My hair is exactly the same as you describe. It's been 2 years since the keratin treatment nightmare and hairloss began. I've lost about 70% of my volume so now I have a thin mess with no oil and shine. I wash my hair once or twice a week and on wash days it feels super thin. I have it at my shoulders because I was trying to grow it to it's original length for my wedding. Before the keratin treatment it was below my bra strap. I cut it all off when the hair loss began. And now it's growing dry and unhealthy. I wish I had some words of wisdom. I tried PRP a few weeks ago but unfortunately, I am not seeing any improvement in oil production and the hair loss doesn't seem to be slowing too much. No new growth yet either :(

Jun 20, 2016
horses mane
by: Anonymous

My hair is so dry and lost all of its natural shine. My scalp is not producing any oils. I can seriously not wash for a week and it looks like I just blowed it out. its a dry horses main mess. Its so dry its see through from all the hair loss and looks like a match hit it.
Anyone else still have their shine after the keratin is completely gone? I have cut so much off over the years and now its growing in like this. the texture is so disgusting. My hair is a little past my shoulders and I thought of continuing cutting it but I'd rather have long frizz mess than a short mess that I cant throw up in a ponytail and hide.
Any suggestions... Did anyone's hair grow back with shine? Did you cut it short? Keep it long? Is it super super crazy dry? any advice ?
Thank you!

Jun 09, 2016
Update
by: Lois

I've posted on this forum a few times in the past and would like to give an update on my situation.
It's been a year since my keratin treatment and I'm 26 years old. Soon after I had contact dermatitis and my scalp has not been the same since. I've had burning, itching and sore spots on my scalp and lost at least half of my hair. It feels strange every time I look in the mirror.
I have been diagnosed with androgenic alopicia which I'm really not sure I believe is true, as every health provisional has dismissed the keratin treatment (which was exactly when this nightmare started). I am using Nak shampoo and conditioner and I no longer have pain in my scalp (such a relief).
I am taking mimoxidil and spirolactone and I have a lot of new hair growth. In fact, the dermatologist has said my part is back to normal and now it will take two years before the bulk of my hair fills out.
I am feeling much better although still become very scared every time I wish my hair.
I wish everyone the best with what you're all going through. It's an awful situation to be in and I'm so sorry this is happening to everyone.

Jun 02, 2016
Fingers Crossed 4 U, Lisa
by: Missy

Thanks for replying. I love your love of animals! I won't use it for fear of an inflammatory reaction from the protein. I sure hope it works, and I am strongly considering you try it myself. I think it was one of those things where it works for some and not for others. It's just a chance you have to take. A speedy chance, but a chance. I hear you. All the worst thinning on me is right on top and in the front. Not great anywhere else. It was hard to really get a complete response from the doctor, but I think it kind of falls in line with what others have said. There are certainly hereditary issues that I have, but the allergic reaction to the Keratin I think creates problems with the follicles over time. Basically she was saying it's an allergy that you can develop overtime to the Keratin and similar products. If we could all rewind time.

Jun 02, 2016
Answer to Missy
by: Lisa

Hi Missy,

I did not try ACell, just the PRP and Microneedling. I chose not to the Acell for ethical reasons (I'm vegan). I will let you guys know how it turns out in a few months. They said it will take a while to notice any results. Have a great day everyone.
Lisa

Jun 01, 2016
Botched keratin
by: Anonymous

Hello everyone ! I too am a victim of a "botched" keratin treatment . I had mine done about 3 months ago. The first day my hair was beautiful with body and a wonderful shine . It was no less than 48 hours that I knew something was wrong . I would run my fingers through my hair and about 10 strands of hair would be in my hand . The hair was coming directly from the root of my hair, it seemed to have some follicle involvement as well. It picked up to the point in which I was losing about Palm sized clumps of hair each and every time I combed my hair . I phoned my stylist and said I am afraid of what is happening and her response was , "me too". Livid I realized that I was on my own. She gave me oils to use and all kinds of other "herbal" remedies to try. But the hair loss continued and I now have viable bald spots. It is depressing and I've been wearing wigs , but I used to have healthy and shiny hair . It has grown some in the areas that had no hair , but it's still noticeable .

May 31, 2016
Lisa
by: Missy

So great to hear from someone who did it. Did they use the Acell as well or did you do the just the plasma? They say it can totally work so I hope yours does. Please keep us posted, but I'd really like to know if they also used the Acell matristem, which is porcine protein as well as your blood. Thanks

May 31, 2016
PRP
by: Lisa

After two years of excessive hair loss from the Brazilian Keratin treatment I decided to try PRP. I have tried everything else under the sun (many recommendations from this site). I spent $1700 on PRP with Microneedling. I'm not going to lie, It hurt!! I was told that the hairloss should improve immediately. It hasn't yet, but I'm hopeful that it will (it's only been a week). They said it takes 4 months to start seeing any improvement/ hair growth. I will report back then and let you all know if it is helping. I couldn't take the hair loss and seeing my scalp anymore so I was willing to try it. I really hope it works.

May 23, 2016
Everyone- helpful info
by: Missy

It's so nice that we all have friends here despite not actually knowing each other in person. I wanted to report my latest for the benefit of others. I saw the main doctor in the department who is quite nationally renowned in her field down in south Florida. She specializes in hair. If you all recall, I had a total hysterectomy so I wasn't sure how much is hormones or chemicals. However, she said, as seems logical, the scalp tightening, flaking, sensitivity, continued sensitivity- all chemicals. She said you can develop an allergy to the Keratin and then you have all the symptoms we do. In addition, I have androgenic alopecia. Interestingly, it says on my info sheet of recommendations that for that condtiion, eat red meat 3x a week, try to make it organic, grass fed so it's healthier. I'm not much of a red meat eater. I think that's the female pattern hair loss that I inherited. In hindsight, my hair did thin some over the years on top, but i noticed it more so after the keratin. But basically, she's saying most of what's going on is the chemicals. Unfortunately, the hair that is growing in is miniaturized, which is why it feels like doll hair. Also, if I understood, she's saying that's from chemicals as well. She says you must do an allergy test to see what particular ingredients in shampoo, conditioner etc that MIMIC keratin and can keep you shedding. I haven't done that because it's a hassle to come back 3 days in a week but I'm going to. She says you must so you don't keep potentially using products that aggravate the condition we have, which is from the chemicals. She said only those hormone-type things can help grow hair, I guess like Propecia, which I won't use. Also, the only thing that does is monoxidil. She is one of those docs, however, who poo-poos that you can have side effects from the monoxidil. I know I had a racing heart any time I tried using that stuff to the point like I was jumping out of my skin. She says no, but I have high blood pressure and take meds for it, and I know it absolutely affected me. That makes me so mad how drs never want to say meds can affect you. She says it's not systemic, but I tried it months apart and got the same effects each time. Anyway, so I can't do and I can't take hormones because family history of breast cancer. So she said only thing left is the PRP, which may or may not work. Again, I researched it previously and found that in order for it to really work, they add that porcine protein with the blood, but it can have an inflammatory effect in the body. No way I'd do that either. I might try just my own blood plasma, although it's very expensive. At least that's natural. I still like my Just Naturals products, but I will have to see if that has any ingredients that could cause the shedding. She did say the shedding is bad because I'm not replacing it with regular hair so it'll keep thinning over time :( Oh, Lord. If we could turn back time. My mom didn't have thinner hair for like 15 years post-hysterectomy. This is from those damn chemicals. She also said she doubted my continued shedding has to do with the hair color. She says she finds it's mostly due to the mimic ingredients that exacerbate the allergy. There you have it. Good luck, girls. My hair texture has completely changed. Like hay. I think she said that's the chemicals. Unreal. did it to myself. But, it is what it is. I'll let you know how the allergy test goes when I do it in a while when she's back in town. Good luck and good thoughts for all.

May 17, 2016
PRP Hair Treatment
by: Lisa

It's been almost 2 years for me since I had the Brazilian Keratin treatment. I've lost about 75% of my hair. The shedding has slowed down, but like many others, I am not seeing new growth. I can see so much of my scalp on the top of my head especially in the front. When I look in the mirror with overhead lights my scalp shines through. It's so embarrassing. I used to have extremely thick hair before the keratin treatment. I wish I had never done it. I am considering PRP to try to stimulate some new hair growth. Has anyone else tried it? If so did it work and were there any negative side effects?

May 07, 2016
3 years post horror show
by: Owl

Three years ago this week I had my straightening treatment done.

I had no bald spots but an overall thinning. I lost about 60% of my hair and had a burning and itching scalp.

It has been a very long road but my hair did grow back. It is not it's original thickness. I'd say I have about 75-80% of what I once had. You can no longer see my scalp and it's a major improvement. I finally feel mostly normal.

Just recently the burning and itching has decreased to almost none. It does itch on occasion though.

I have finally colored it but did not color close to my scalp.

I did nothing special except kept it trimmed and used a gentle sulfate free shampoo. The only shampoo I could tolerate was Soignee shampoo. I can now use store bought sulfate free shampoo with no problems. Deep conditioning, coconut oil, tea tree oil, argan oil....they all still fire up my scalp so I don't condition my hair at all. It seems fine.

My hair works best now as a bob cut about an inch below my chin. This is the length my hair looks it's fullest.

I do blow dry my hair but no other styling.

It was a very long three years and my hair will never be the same but it's much much better and livable. It no longer consumes my every thought.

There are some really neat hair toppers if you YouTube some. If I knew about them three years ago, I would have bought one for myself.

My daughter who has naturally thin hair pain $320.00 for one and it looks like her own hair. Hers it made of real human hair and really looks good.

I am considering a hair topper for myself just to add more fullness.

Best of luck to you all through this terrible nightmare.

May 07, 2016
How u doing Guys?
by: AK22

14 months for me since the nightmare starts; the hairs falling right now is the normal amount; i'm starting to see new hairs growing like 1 cms long in my left temple; i hope these hairs are growing all over my head; my part is wide and my front have less hair than the rest of my head; i have new hairs growing; ill update soon!! Hope recover for all of you!

May 03, 2016
Hi Deb
by: Sandra

Hi Deb
It will be two years for me at the end of June. As I said earlier, my excessive hair loss ( pillow covered in hairs every morning,handfuls coming out in the shower .. just agony) was over after about nine months so hoping that this might be the same for you. My bald patch at the top of my head towards the back has filled in with new hairs (not like before but acceptable) but my hair is so much thinner. My scalp is now visible at the top of my head when my hair is wet, particularly at the front. I just generally have less hair all over but particularly on top. It's not because of excessive hair loss, it's because new hairs aren't coming in as the hairs fall out. There is no doubt in my mind that the formaldehyde caused this. There is research to back this up. You might want to mention the research to the dermatologists or doctors if you see any. Do you know how much formaldehyde was in your product ? I don't think there's an answer but there is some comfort in knowing that I'm not the only one .. Not that I would wish this torture on anyone !!! Thinking of you and I'll always try to respond to messages.. I wish I knew why this happens to some of us and not to others .. Why were we the unlucky ones? And why haven't hairdressers stopped using the product when we told them what had happened to us?

May 01, 2016
Checking In..How are you?
by: Deb

Just touching base with everyone to see how you are doing. I'm not doing good. I've lost alot more hair. I'm continuing to shed at a horrible rate and top of hair has scalp showing through and I'm having a difficult time hiding it because of all over hair loss. Very depressing. I will be going on 9 months after keratin and really feel helpless. I am still feeling itchy and tight dry scalp. I don't know what to do anymore. Nothing works for me right now because my scalp gets so irritated. Ugh this is just awful...

Mar 27, 2016
thyroid tests
by: Missy

Another thing. Lots on how folks can be told their thyroid is normal, but it isn't. I'd tell anyone here to see an endocrinologist and get every test with a t in front of it. There are all ranges of "normal" and if you have other symptoms along with hair loss that suggest thyroid issues, it might be despite being told your tsh was normal. And, of course, if you have hair loss in your lineage, that could be part of the equation as well. Good luck to all.

Mar 27, 2016
Coconut Oil and Seniority girl and the usual peeps
by: Missy

So I just read a blog post about coconut oil not being so great for everyone's hair. Really made me take notice. Basically, she said it's not the panacea for everyone's hair as touted. What really made me take notice was her saying there are those who suffer HAIR LOSS from it! And that hair becomes more dry and brittle! Holy shizzballs! That really made me take notice. She basically said how those with dry, brittle hair (me!) may not benefit from it, well may clog up hair follicles and not a good idea to place on scalp (just as my trichologist said), and maybe those with oily hair can benefit from it without overdoing it. Wow. I've been slathering myself in it for months and months and only stopped when I switched to the Just Natural products. And as I said, I backed off of putting a ton of any product on my scalp and mostly just put conditioner on my mid-ends rather than near scalp. The blogger likes castor oil. Today, I used some castor oil, 2 drops of rosemary, 1 drop of lavender, jojoba oil in my hair and scalp to sit for a bit before I shampoo. Of course, just touching my hair, tons of fine, thinner hair comes out. I always had thick strands. Oh well, thank you Seniority girl for some good news. And, after all for all of us, it is what it is. I try not to think about it. SG, you are lucky you can tolerate hair color on the scalp. I can't let anything near my scalp. I do foils which cost a fortune. I still like the Just Natural products, and now wonder if just staying clear of the coconut oil is improving my hair's moisture and condition!

Mar 27, 2016
Thank you from London - UK
by: Sandra

Seniority girl where have you been ?! We have needed you on here !! and thank you for your lovely message .. I often think to myself that if my hair ever regrows as it once was I will try and keep posting on here to support others. Thank you to everyone that posted on here after my message. I have at times felt so alone and then I post a message on here and get responses immediately from Missy,MH,Deb and Anonymous so thank you to all of you. It always makes me feel quite emotional to think that strangers (that I wouldn't even recognise if I passed them in the street ) from different parts of the world take time to support someone going through the same pain. As you all know, unless you are going through something yourself, it's not always easy to empathise and on here we all understand the frustration of coming across professionals that can't help us , of friends that are supportive but you know that you just can't keep going on about it or they will stop seeing you! , of the joy of thinking it's over and then seeing it get thinner and thinner,the anger of this awful formaldehyde laden product being available in hairdressers.. I could go on and on but i really just wanted to express my gratitude to all of you .. X

Mar 26, 2016
Seniority girl
by: Anonymous

It's been almost 4 years and I have to say things will get better. I disagree with Some of the posts. My hair is filling in, not much but it is. I used to use powder to cover the wide parts years ago but haven't in along time. I also had the throbbing scalp pain for the first year as well. I only wash once a week and my hair very rarely gets greasy because it's so dry. I only put conditioner on the ends. I color my hair every 5 weeks because of the gray hair and have since day one. I take probiotics and that's it. I lose about 60-80 hairs on my one wash day and lose about 5 + on non wash days that I notice. It does get better and it will. I use to check this site every day and now very rarely. It's scary when you are losing 300 plus but it will diminish over time. I too thought I was the exception and it would last forever. Hang in there and enjoy life. It will get better. Not one person has ever said they went bald.

Mar 25, 2016
All have same pattern..
by: Deb

It's so strange to me how we all have the same pattern of hair loss. How the hairline recesses. And the part widens and all over thinning. It just amazes me. I just wish I knew exactly what this was. I must say my hair is less irritated than it was. Hair still falls out a lot when I was and brush. A comment that sounds so sad but true is the the hair is "dripping". It's so true. I'll lean over my white sink to brush my teeth and see hairs. I'll take off a black shirt and see hairs. My hair is blonde and I don't see it on my pillow in the morning but I'm sue it's there bc when I run to mirror every single morning it looks thinner to me. I'm really just using regular shampoo and conditioner bc even tho everyone here has gone natural we still have the same outcome no matter what we seem to use. This is so sad to me that there is no cure. I just can't believe it . Has anyone tried apple cider vinegar or castor oil ? I saw some tutorials on you tube and thought something has to help. I can deal with a little thin hair but that darn part in the middle that is getting worse is just awful. I would love to just shampoo my hair like I used to by massaging it in. Now I can't barely touch it for fear that handfuls will go down that drain. My hair doesn't even seem to be growing bc I used to have lots of gray that would come in about 4 weeks and now there is little gray and my hair is just brassy and dull. I'm just hoping that if we try new thing a maybe there is something that can work to help us get hair back. Maybe I'll try the castor oil and see for just my hairline ? I feel like I should try it and give it a month and see. I have a wedding next weekend , I'll try after . I need to color my hair and have it styles nicely for this wedding but how can I do this? Any suggestions would help. I'm so glad we have support like this bc nothing else is out there and I feel so alone at times bc I don't want to tell anyone what is happening although I'm sure they see it. I just don't want to draw attention to it :(

Mar 25, 2016
Deb, Sandra UK etc
by: Missy

Sandra, exactly right. In hindsight, I realize that my hair was thinning over a long period of time of doing the keratin, for years and I never made the connection because I didn't have clumps of hair and tons of shedding like now. But when I think of when I would wash my hair right after I did the treatment, it felt markedly thinner, but I attributed to the fact that my hair was straight versus curly. That's why they say hindsight is 2020. If only we can turn back time, none of us would do this again. Here I am back with kinky hair, and now I can't even blow it dry! So I have less hair, absolutely thinning in front and I think of someone on this board had said how frustrated she was going to see doctors when they would tell her how much hair she had. Same with me. And then she said how three or four years later, she had thin hair. I know that will be me. It's only a year and I can already see scalp in the light in the front. But, all we can do is just do the best we can now and forget about it because nothing else is going to change it. If I was willing to do those plasma and pig protein injections, and if I could do Rogaine, I know I would grow hair. But I can't so it is what it is. On the just natural products, I still really like him. I got the pre-shampoo Shea butter which I put in my hair with a plastic cap Prior to shampoo. First I brush my hair out, since the doctor told me not to brush wet hair, Put on some of that product, and leave it on for however long and then shampoo. I got the dandruff shampoo. I do find it to be a little drying but I think it does help & doesn't have a strong scent or ingredients that bother my scalp so I just follow up with a good conditioner. I also started using the elucence conditioner again. I don't love all the ingredients, but, for the once in a while I blow dry, I think it makes my hair feel softer. It has parabens in it which I despise. I also got the just natural dry scalp Shea butter and put a little of that on my scalp maybe once a week. I'm concerned about clogging up my follicles so I don't condition my scalp as often as I used to. In hindsight, I think even with the coconut oil, I had more shedding using it on scalp every day. I also went back to taking fish oil and biotin, both of which I think are very important to Hair health. Again, I know that I am not doing what I should and not using any chemicals, but I refuse to walk around w gray hair. Whatever hair there is. I still have a lot of hair that comes out, and shedding throughout the day and night and between shampoo. Just like you all. Maybe the shedding is a little better now that I have conditioned my hair more and now that I don't brush it when it's wet. Good luck to everyone. I'm glad you guys keep posting so we all can see what is working or not for everyone.

Mar 24, 2016
Update at 18 months
by: MH

Today, is the 18 month mark for me and I'm sad to say nothing has changed. Possibly I have less pain but that's it.

I wash once a week because I can't handle showering and seeing all the hair fall. I never blow dry or stay my hair. My hair gets thinner everyday and I have large parts of my scalp that are noticeable and which I use powder to cover up. I am petrified of overhead uv lighting. I have permanent very bad dandruff. I have no regrow th, at all. I have lost 70 percent of my hair and even my friends describe my hair as thin now. I have a very long parting basically down the back of my entire head. My friends and family are sick to death discussing it. I'm now 25 and can't believe I think about this tortue everyday and have to look at others hair and regret a stupid decision, which to this day, no professional derm, doctor or hairdresser believes is the culprit. I'm sorry not to have much hope but my hairloss has slowed down but I think it is purely because rinhave so little hair, I read the comments going I won't be losing hair in 18 months, I'm sure I'll recover in 3 months. But no, I have severe hair loss and what makes it worse is the receding hairline with has moved back about an inch and which is hue mortifying at my age as you can't do anything to hide it.

Sandra - thinking of you. I was hopeful that your hair would grow back but appears, like me, that our hair may be like this forever.....

Mar 24, 2016
Sandra
by: Anonymous

I feel exactly the same way. Three years later I still lose a couple of hundred from washing and styling plus constantly drip hair throughout the day. My hair is way thinner and hairline recessed. I see people with normal hair and I wish I could be like that. I miss washing my hair and not losing so much hair. The amount I lose In one wash wash is as much hair as it used to collect it my brush over a a couple of weeks prior to the Brazilian blowout. Formaldehyde kills cells and our follicles are hair producing cells there is no other answer.

Mar 24, 2016
Update from London - UK
by: Sandra

I've been adding comments to this forum for almost two years now and I'm reticent to give any advice as I'm not sure that anything really makes a difference. There certainly isn't any one treatment I've seen mentioned that has worked for everyone. My hair fell out rapidly over a period of nine months then it stopped and hair loss returned to normal amounts. You would think that would be the end of the story but no it wasn't. My hair just looks thinner and thinner as the months pass. I can see scalp when my hair is wet and I brush it back, I can see scalp at the sides when my hair is in a ponytail. The original bald patch I had on top of my head has filled in , not like before , but it has. My conclusion is that as each hair completes its growth cycle and falls out, it simply isn't replaced by a new hair as it should be. It isn't telogen effluvium as there isn't any excessive hair loss, it's just that new hairs aren't coming in. The formaldehyde killed off the new hair in my opinion. I feel sick and I just can't bear his torture. That's the only word I can think of to describe it. I've had no pain, just a little itching at the beginning and a little dandruff but it cleared up quickly. I wonder how many people out there had a Brazilian and saw their hair getting thinner and thinner over the years that followed but didn't make a connection... If you see your hair has become thinner why would you connect it to a hair treatment a year or two earlier .. What possessed me to have this hair straightening ? How could I possibly think that it was ok to cover my face with a towel to avoid inhaling the toxic fumes? What was I thinking ?! I'm so so angry ...

Mar 19, 2016
Keratin Treatment hair loss- what to do next?
by: Tay

I got the keratin treatment in a salon I visited frequently since 2011. I trusted the girl that gave me the treatment. About a month after I got the keratin treatment I noticed more hair was coming out than usual. I started to worry and contacted her. She told me it was normal and temporary. However, I don't think this is normal considering my hair was thicker and stronger a month prior. I am now 2 months in (almost 3 now) and this shedding is starting to worry me. I've done some research, but I haven't really gotten a solid answer as to what I should do next. I'm thinking of getting braids to give my hair a test or going back and have her wash this out, and go to the doctor. If any one has any good advice, PLEASE let me know!

Mar 07, 2016
Rogaine?
by: Deb

I don't know if I should now try Rogaine . It had been 7 months since the keratin treatment I had. Shedding still , top more than anything is so thin and hairline getting wider :( I'm going to try the Just Natural brand now Missy but I'm thinking I may need to do Rogaine bc I see no regrowth at all. My hair strands are sooooo thin. It looks like the whole protective layer is just gone and strands are barely there . I can't just let my hair air dry bc it looks like birds nest so I need to style it by blowing it gently straight or just blow drying top and leaving rest curly. I'm just wondering what styles I can do with this. Any suggestions? I do put my hair in a pony tail on days when it was out of control but it really hurts when I do this. I literally think about this all day long and stare at everyone's hair that I see. I'm so jealous of thick hair and horrified when I see Balding woman bc I'm scared that will be me. I just wish there was some miracle we could use to just get it back to where it was or at least fill in these bare spots. I have four kids and come in contact with so many people everyday and I just want to hide. I feel like everyone is staring at me. There is no improvement and it's getting worse bc all that falls out never grows back. Just depressing ...

Mar 07, 2016
Maria, Deb, Iris and all
by: Missy

Maria, I feel so bad for what happened to you. I think maybe it was stress, etc, but my first thought was the water when you were out of town. Absolutely, assuming you got your hair wet, went swimming, etc out of town. But me, too. I was so much better then started shedding badly again. But I did start coloring it again during that time- NOT at the root, with foils only, but still. chemicals. The drs told me that the TE can be chronic. Think it might be for some of us unfortunately that's worse then better and back. :( Iris, OMG. Awful. I use all of those but sparingly like 1x a week. I was hoping Dr. Oz would show our problem but it didn't. Also, I'm really liking that Just Natural product line. I use their oil for damaged hair, use the pre-shampoo conditioner and leave in for a while with a plastic cap and then shampoo with their dandruff shampoo that's all natural. I alternate with the Shea Moisture shampoo for babies or the Biotene shampoo and conditioner. Scalp is still very sensitive. I also use a little bit of the dry scalp conditioner from Just Naturals and massage a little in a little before I shampoo. I'm going to let them know they make a great product. Very happy. I recommend their stuff to you ladies. My hair is like a bale of hay either way, but I think a little better. Also, my holistic trichologist said that I was using too much oil on scalp and not to. I think she was right. I use it very sparingly and only maybe 1 or 2x a week. I was coconut oil massaging scalp like every day. She said that was bad. I'm praying my shedding is a little better. I think because of all the shea butter in those Just Naturals products. And I avoid the scalp and put it on middle to ends.

Mar 07, 2016
Follow up
by: Anonymous

Hi everyone.
My name is Jamie and i was in this site years ago. I had the Keratin for the second time June it was either two or three years ago. Nothing has changed except the loss is slower now. I have hair on my head not like I used to but everything has changed. My sister had the same problem and she had the cortisone shots in her scalp and she hasn't had a problem since. Me - I have a spot on the back of my head doesn't seem to be getting better and shedding throughout the whole head. Cortisone shots have no worked on me- I tried 6. No more can be done. It's a horrible thing but everyone is different. U just gotta rip leith it take vitamins and see what works for u.

Mar 07, 2016
Hair breakage from Pravana Keratin treatment
by: Toneen

I got the Pravana Keratin treatment 2 months ago and exactly 3 days later my hair begin shedding at first I thought it would stop, it has not stopped and now My hair is even breaking off. I can't even wear a simple ponytail it don't look right Becouse my hair started breaking off at the roots so it's just frizz up there around the crown area... This is my worst night mare can someone please where to go from here on what to do on stopping the shedding and work on the breakage, what product do I need to get for this.. Still in shocked I payed 200.00 just for my hair to fall out.... Once again thank you so much for any advice given

Feb 29, 2016
To Missy
by: Iris

Thanks Missy for your response. This board was the closest I could find to anyone experiencing the same exact symptoms that I was having. You are correct, I was using Rosemary, as well as Clary Sage, Lavender, and Cedarwood. The website selling the oils gave a blend, and it seemed that you were supposed to use the blend with each shampoo. So I was really using 4x's the amount that I should have. : ( I think the oils may be a good thing, but they should be highly diluted and done in moderation. After research, I found that they are very toxic so I wanted to warn people to be careful in using them to treat hair loss (or any ailment), like I did. Again I wish you all well and hope and pray for everyone's recovery here!

Feb 26, 2016
Boo dr oz!
by: Deb

Ok so the show had nothing about our hair loss .. Grrrr! Still shedding here a lot :( on month 7. I'm praying this will eventually stop . There is no regrowth. Hair thinning especially at hairline. So sad. I tried carols daughter elixir thinking the oils will help my scalp but it really made my hair so soft and hair was shedding the worst ever. I just don't know what to do. Has anyone had any regrowth without using rogaine? I don't know if I should go this route now

Feb 26, 2016
Dr Oz Show
by: Deb

I think the Dr Oz show is on today , I'm nervous to watch !!

Feb 24, 2016
Thanks for post, Iris
by: Missy

Wow! What a story. I feel so bad for you. You did all the right things, including the scalp biopsy. What oils? I presume Rosemary is one of them, which I've been using. It's easy to go overboard with that. Read 3 drops per cup of jojoba so that's not strong. I can't believe oils caused neuropathy. Jeez. I do know natural stuff can aggravate my scalp easily as well. I can't use the Shea Moisture products. By the way, although I've just started, I found this site with natural products called Just natural I think. Ordered a bunch of products and so, I like them. As I think about it, the more I'm convinced that it really is a combination of factors. Absolutely, the yearly keratin damaged my hair, and possibly my follicle, and then I think when I had a hysterectomy and had no estrogen, in addition to having had IV antibiotics when I was sick, I think synergistically just created a confluence of disaster for my hair. The thing with me that I realize is that even the hair that is growing in is nothing like the hair I used to have. It's so dry, brittle, and basically like hay, even blowing it does nothing. I don't blow dry so I leave it, but my point is it's completely different. I do think this is a symptom of sudden estrogen loss in combination with the damage from the Keratin. It's pretty disastrous. In any case, I really like these products that I just got. There is a pre-shampoo moisturizer that I think is really going to be good for me. Lovely, natural ingredients, not much scent, and moisturizing. I put that on first and then used A dandruff shampoo because I can't stand using that Nizerol all with all of those horrible sulfates and terrible chemicals. We'll see how that works for me. And I really do avoid using the rosemary oil first, because I had previously explained The trichologist just warned me that I can block the follicles and create more problems by using too much oil even if you have dry scalp, and also because of the sensitivity of my scalp. But undoubtedly, the common thread we all share is that sensitive scalp after the keratin. I never had that before. I'm also pretty sure that I don't think that is a common symptom of loss of estrogen. That is because of the chemicals. Good luck to all. I'll give an update on those new products, but so far, I really like them. I highly recommend them so far.

Feb 24, 2016
Takes Time to Heal
by: Iris

Hi Maria,
I have been following this board for awhile now. I never received keratin treatment, but used essential oils for 5 months for postpartum hair loss that ended up causing the same exact symptoms that many here are experiencing-diffuse hair loss, dry flaking skin, and scalp pain. I was told that the oils were safe by representatives and was quite mislead by the website that explained how much to use for hair loss. It took some time and many doctor visits to find out the culprit. It has been a year since this symptoms started and since I stopped using the oils. The hair loss has slowed down to almost normal over the past 6-8 weeks, but still have the dry skin and scalp pain. The scalp pain (sharp, tingling) was felt all over my scalp and now it is mostly my crown where I have the most hair loss. I have had a little hair re-growth, but it is fine, sickly looking. I have had two scalp biopsies that came back TE, but now they think it progressed to female pattern baldness. I will return to the derm in a few weeks to get more info. I feel so incredibly bad for everyone here struggling, I know what a nightmare and how consuming this is! Hair loss may seem trivial, but to those who have struggled with it, know what toll it takes on your mental health! It is a big deal to us ladies. Anyways, I just wanted to share my story even though it is a bit different. I have seen tons of doctors-derm and neurologists, have had rounds of blood tests, an MRI and they only thing confirmed so far was the TE. However, the neurologist does believe that the chemicals/oils caused nerve damage, which is what causes the pain. I am not saying this to scare people, but just to take that in consideration. Nerves do heal, but it can take a few years. I have seen improvement over the past year, but it has been slow. Please stay strong, know that it will take time to heal, and take care of yourself while you are healing and don't lose hope. Also I am using biosil, collagen powder, B12, iron, magnesium, zinc, and OXG niacin and caffeine shampoo and root simulator. Am also taking 150 mg of spirolactone in case it is female pattern. It did cause increased shedding for the first two months, but helped the shedding slow down so it was worth it. The caffeine really helped it slow down for me, as well. Sorry this is so long!

Feb 22, 2016
Scalp pain is back
by: Maria

Hi, my scalp pain is back again and with it itchy,dry feeling on the top of my head all over.I could cry.Shedding has picked up as well.
I didn't change anything,same shampoo,same conditioner. The only thing,I was in Asia for a week so humid and warm weather.Also lots of stress from work...I don't know.It started 3-4days ago.It's painful to the touch. Will this nightmare ever end? Btw I also could see my head by the over head lighting and I could see my scalp so much.It's so thin on the top. In two weeks it will be a year since this nightmare.It occupies my mind 24/7.
I bought today hemp oil mixed with jojoba and olive oil.Tried to massage it in but it's sore to the touch.I just want to go back on steroids to stop the pain :(
I just wish to turn back time.
I want to know why this scalp pain keeps coming and going. What is with my scalp? What is the real damage here? So many questions and dermatologist is just clueless.

Feb 08, 2016
Glad to hear
by: Missy

Glad to hear some positive updates. Maria, I'll check out that shampoo. And yes, i actually read a couple weeks ago about using rosemary oil on the scalp mixed with jojoba oil. I did it once, but will try more often, although the holistic lady said watch not clogging scalp with oil.
Good luck

Feb 08, 2016
Update
by: Brittany

Hey ladies! Thought I'd share some good news. I think my shedding has finally significantly decreased. I had my hair in braids for about 3 months and noticed a lot of growth while I had them in. The initial shedding once I took them out was expected since my hair has been in braids for 3 months. However, when I washed my hair again the shedding was very minimal (still have a tad bit shedding in the front of my hair).

For me the braids helped with treating my hair. The braids made it easier for me to get access to my scalp. What worked for me was to wash with shampoo once a month and Braggs apple cider vinegar (with rosemary and sage oil) every week. Also, I did black/green tea rinses every other week. The game changer for me was using a rosemary and sage oil on my scalp every other day during the morning time. The oil mix really helped to stimulate my scalp.

I also took multi hair vitamins, omega 300, vitamin d, iron, and collagen supplements.

As for regrowth, I am noticing small hairs on my scalp. Not much....but it's a start!

I think the most important thing you can do to minimize the shedding is to find a low maintenance hair style and stop stressing. When I had my hair out I was constantly pulling and messing with it and seeing it fall out was just really discouraging. For a while I wrapped my hair in scarfs (found a lot of neat tutorials on YouTube) and in November I decided to put my hair in braids. I think the braids helped me restore my confidence because I couldn't see any shedding/thinning while I had them in.

No need to do a drastic haircut. The half-life of formaldehyde is very short so I am confident is out of my hair (I'm a chemistry major/nerd). I will, however, at the end of the year get a big hair cut to get rid of the damaged hair and to even it out.

Feb 07, 2016
Update
by: Maria

Hi everyone.Since everyone seems to be updating nowdays,so will I.My hair is still growing but shedding has picked up as well.It's not enormous but it's definitely more than what it was few weeks ago.Quality of my hair is very baby soft.Remember I cut all the burned hair off so this is only new hair and therefore very healthy.But they are very fine,thin.No bald spots any more but still thin patches.Density on affected areas is poor.Judging by my hair line where new growth can be seen,I am hoping I am growing new hair.Time will tell.Shape is horrible as I am trying to let it grow long and right now it's in that awkward way,sticking out everywhere.
But the main thing what I want to share is that scalp pain comes and goes.Sometimes it lasts for 2-3 days,sometimes 2 weeks.I switch shampoo,conditioner,oil... It seems to be always improving with change for a while and than it happens again.For now I use Alpecin or Khadi (sensitive scalp).Urkram no parfume conditioner.I am considering hemp oil.Has anyone tried that? I keep reading about its healing powers and whatever it is with our scalps,evidently needs different approach than steroids cause those work but it will come back.At least for me it did.Pain is not all over my scalp but patches or spots.You cannot see any irritation on the scalp.It hurts more like a bruise.Sometimes it's on the left,other time on the right,several small spots or one large...every time different.There is no pattern in it.So I am guessing it keeps flairing up...whatever it is. Now that I shed more,I try to wash every second day but my hair is disgusting that second day.I just cannot bare to see my hair in the shower going down the drain just like most of you. Please keep posting.It helps to see what everyone is trying.I can say Khadi shampoo seems very mild and good.I keep coming back to it.I'll give you an update on hemp oil once tried out.Oh and I am still on minoxidil twice a day which I think is the only reason my hair grows.It might be all in my head but too scared to even lower the dosage or skip one aplication.Stay positive and speedy recovery to you all.M

Feb 07, 2016
Clarinda, Dani, Deb, Ce,
by: Missy

To the Dr. Oz staff, please, please get the expert to advise why the scalp is affected despite having good beauticians who do not get it on the scalp. As so many have said, and referring back, my story is similar, I had burning scalp and my whole scalp basically shed in big pieces, like it was snowing on my pillowcase. I went to an experienced, good operator, but I feel it was the first use of the particular product of Brazilian Blowout for me that proved disastrous. It could be just having that formaldehyde near the scalp is enough to do the damage, but I had about 7 or 8 prior Keratins in my life using different products and never had that. And like the others, it definitely kicked off a permanent issue with scalp sensitivity. Anything with fragrance, even natural products, kicks off a reaction and even just trying the natural alternative to Rogaine, I forget the name now, kicked off burning on the scalp. I think, as others have said, it permanently damages the follicle, which is why some of us have telogen effluvium chronically now. I believe some need to get bloodwork to ensure that other issues are ruled out, I did, and it's the product, not thyroid, etc. So few drs are experts in hair, and even those who are, can't really give an answer. But I believe it kicks off a damaged scalp, which in turn causes hair loss permanently. I've experienced the same as Deb and others- the hair that does grow back is thinner and weird- like when someone undergoes chemo or whatever and their hair changes. I believe this is due to follicular damage. I have thinner, finer strands coming in. My old hair had much thicker strands so, on top of losing hair, if you are lucky enough to get some new hair, it's finer and prone to damage/break. Also, I hope this show addresses what the other show didn't clearly- how can we ensure that the lights in the combs for regrowth, etc, don't do something to brain waves, or won't be found to cause cancer 20 years from now given how few folks actually use these things? Thank you.

Feb 06, 2016
After keratin treatment
by: Ce

I received a keratin treatment on 2/5/2016 & ended up at the DR 2016. I had been growing back out my hair for over two years and now I have to start over. I had an allergic reaction and lost a lot of hair. Its not coming out in my hands or nothing. I noticed the hair loss when I was preparing for bed, I instantly had a mini heart attack. After speaking to a friend she stated that it will come back, and in a few days I should she some hair covering it. It calmed me down. At 9:30 on 2/6, I woke up to throbbing pain in my head. The spots are red with a damp feeling where there is no hair. I instantly went panic mood. I called my mom she referred me to her stylist, who stated that I have had an reaction to the Keratin Treatment. At the same time I was talking to my stylist whom is well educated and is an instructor, she stated I need to come in to the salon. At 11:15, I went got my hair washed to get the treatment off my scalp. That was the best step but the burning didn't stop it decreased. She felt like I had an allergic reaction and stated also go to the dr bc there was nothing else she could do and the sooner I got to the dr the more likely I can save my hair, meaning I can grow it back. Dr appt, at 3:30 Dr stated that I had a contact dermatitis and my blood pressure was 154/97 but if I hadn't went to the salon today I might got burns if the solution was still on my scalp. He asked about anything I experienced, I said about three hours after I got my hair treated I experienced a bad headache that I assumed was a migraine because I get them frequently and he stated that was my body showing the reaction because my migraine meds made it worse and I couldn't shake it and I take very strong meds for my headaches. I asked him would my hair come back, he stated in most cases yes, but only time will tell. He said that because I am being super proactive and responded fast that the likelihood is high. He gave me a Steroid shot and three prescriptions. I picked them up at 5:30 and ate a light snack because I haven't ate all day. As of 9:45 my head is still burning, no hair has came out but it has decreased in pain. I am added fish oil and vitamin e to my daily routine to increase blood to the area. After the 10 days of meds I am going to pick up some hair stimulating oil from Ulta beauty or Sally's beauty supply.I will be putting an update up in the next two weeks. I won't whomever reads this and is experiencing anything similar go to an urgent care or minute clinic, or etc and got your scalp looked it. Do not allow you head to continue to burn and hair to fall out. I am one of the few Black Americans that has enough hair I can hide the lost but do not wait it's not worth it. And also, WASH YOU SCALP, yes you paid alot of money but what did you gain when it's on the floor. I hope I helped someone tonight.

Feb 05, 2016
Status
by: Deb

So my head was extremely itchy as everyone else here , still losing lots of hair from scalp and so I went to dermatologist. She, like most dermatologists, completely didn't wanna hear about the problem being from the Keratin treatment. She was talking about blood tests and telling me how in the winter hair sheds and feels thinner, blah blah blah...I said it must be from this because I never had the problem before and she looked at my scalp and said it was just a mess. Now mind you I was washing once a week so this must have contributed to it. But I couldn't bear the sight of the hair I'd lose in the shower. She told me I must wash my hair more often because that is not good for the scalp. She said it was seborrheic dermatitis and gave me RX for diprosone lotion and clodan shampoo which I am going to get filled and I'll see what happens. Hopefully this will calm the itch but I saw one of the side effects can be hair loss ;/ Im nervous to use this but I'll try anything since I'm still losing so much hair. The front being the worst right now. I desperately need a dye job too. My grays are gross but I wanted to try this special shampoo first. Has everyone had problems with their scalp being itchy accompanied with the hair loss? And when you are no longer itching does the shedding lessen? I really hope Dr. Oz can help bc I think these treatments need to tested to see what is the wrong ingredient that is triggering this is some of its users. Could it be the ingredients alone or an allergic reaction to this treatment? Could it have been wrongly applicated to our scalps? Could the not washing for 3 days trapped the solution into our follicles to kill them ? It definitely stripped my hair strands making the actual hair strands thin as well as the shedding. Also my hair had been highlighted and it has an all over orange tint now. My hair was thick and frizzy and now its limp, thin and frizzy. But a different type of frizz. Its also very light. I'll update after I use the products. Keeping fingers crossed.

Feb 05, 2016
Thank you Sandra
by: Parsley girl

For your wishes everything went well on the wedding my wig stood in place, well I'm planing on letting my hair grow now is 2 inches long because I was cutting it every 2 weeks is been like 2 months since I last cut it is growing wierd half stair half curly let's hope I can mange my crazy hair I still shed no a lot at least my bald spots grow the hair I notice that after cutting it sow many times the hair is thicker than wen it first started growing so now looks even with all the hair around were my bald spots use to be well that's my update oh I'm no using vitamins just lime or lemon juice castor oil and olive mixing it up putting it on my hair with a plastic bag or cap whatever I find firs the liver for 30 minutes or overnight and then washing it off for growth and dandruff well take care every one God bless us all,. Amen.....

Feb 05, 2016
Keeping Fingers Crossed for others
by: Missy

Maria, so glad to hear you have improvement! I'm pretty discouraged because my shedding is REALLY up there the last couple months. As bad as ever. Convinced if I sat there with the brush and kept brushing, every hair would come out. Went to the holistic hair lady and got a big haircut. But, as I pointed out, the hair that's coming in seems pretty darn dry and lifeless as well. My bangs have been cut so I think all the Keratin is gone, but they're still a hot mess. I, too, remain very sensitive to certain products, even good stuff like Shea Moisture. My scalp goes crazy from most of their stuff. I have to use the Nizoral, which is drying and has horrible ingredients I hate using, and then the rest holistic products. BTW, my lady said brush the hair when dry, it's worse to brush it wet, more vulnerable. Regardless, I still have clumps from everywhere. It's unsustainable. But I continue to foil color, the organic one, but still. I can't deal with gray and I'm considering going darker. Holistic lady said sticking closer to natural hair color is lower volume of color and less damage. My hair has completely changed. I'm very happy to see that Dr. Oz is going to be doing a show on this. Saw the one where he had the folks doing the plasma injections, but again, that has the porcine protein base in order to work with your own blood to spur growth, and I'm leery of getting an inflammatory reaction. I won't do it. Also, sadly, though even the specialists don't have a straight answer, I'm told the TE can be chronic. :( I was greatly improved to almost no loss and then it's really up again. I had little loss when I wasn't coloring and used the steroid, but I will not walk around nearly 70% gray. Looking into darkening up my base to get closer to my dark natural color (with lots of gray). It is what is it is. But my brush is loaded with hair every day. loaded. I have to wash at least every couple days to keep the scalp clear, as holistic lady said it's bad to clog up the follicles with oil, etc. So that's a tip to you all as well. Good luck to all for a much better 2016!

Feb 05, 2016
Carlinda
by: MG

I am a veteran on this hairloss and I haven't posted in a while as I have been really busy but seeing that finally someone is willing to expose the hairloss from keratin treatments, I would like to recap my case.

Had a Brazilian blowout on 8/2012. Two weeks later my scalp peeled off in 1cm pieces. At this time, burning, tingling and pain started. I would wash about 200 hairs during showers plus non-stop all day long. If I would stand in one spot for 5 minutes, I would drop 5 hairs. I have lost about 60% of my hair and my temples are now see thru. I used to have tons of hair. My hairline has receded up to about 1/2" in some areas. 3 1/2 years later I still lose over 150 hair from washing and drying every 3 day plus another 50 a day in between. I try not wash at home because I don't want to see my hair all over my house. In my case, the stylist applied the solution to my scalp which caused me to develop seborrheic dermatitis and my scalp became very sensitive and can only wash with non fragrance baby shampoo. I think that this treatment weakens your follicles as formadelhyde is supposed to kill cells (our irreplaceable hair cells) plus the corrosiveness of the treatment caused me to develop seborrheic dermatitis (which is even listed in the MSDS of yhe product). What they hide completely that it causes hairloss. Why??? Because they wouldn't sell a single bottle of this poison. I would not like to be part of any shows but I hope you can share this.

Feb 05, 2016
Response to Carinda and Dani
by: Sandra

Hi Carinda and Dani
I really hope that there are some people on this forum that are willing to share their stories for the TV show. And thank you so much for making an effort to publicise the dreadful side effects of this horrible product. It's so important that others are warned! I'm sorry that I can't help you as I'm in London-UK. Believe me, if I could help you, I would, as I'm keen that nobody else should ever suffer in the way that I have. Good luck with the show and please could I ask you to publicise on here, when the show will be aired so that I can at least try and watch it? And if you have any evidence that can explain why so many of us have suffered hair loss it would be so appreciated. If you scroll down you will see that I mention several times that there is some research about BB associated hair loss that has been done at The University of Berkeley .. many thanks !

Feb 05, 2016
The Dr. Oz Show - PLEASE READ
by: Carinda

HI EVERYONE!

I work with Dani at The Dr. Oz Show and I'm reading the comments below from people who had a bad experience with a Brazilian blowout.

I'm a producer for the show and I'm looking for ladies who can share their terrible experience with this so that we can informs other about this chemical procedure.

Did your scalp burn from it, hair loss, or hair thinning?

Our show is in NYC and is taping next Wednesday.

If you have questions about this show please call me at 212-259-1529 or email me at cbenson@zoco.com
Thank you!

Feb 03, 2016
PLEASE READ
by: Danni

Hey everyone! I'm doing some research for my internship at the Dr. Oz Show and I'd love to talk to some of you who have had a bad reaction to an at home brazilian hair straightening treatment. Please email me at danni1352@aol.com if you're in the tri-state area and want to tell me about your experience. I could really use the help and you can be featured on the show!

Jan 27, 2016
It will stop eventually
by: Lisa

My hair loss from the BKT lasted over a year. The shedding has slowed down a lot, but I'm not noticing much new growth yet. My hair is still very thin on top and on the sides where I lost the most. My hair also doesn't feel very healthy right now. I'm taking a bunch of supplements and babying my scalp/ hair. I don't know if it will ever be back to it's full glory again, but at least there is some relief from watching all my hair go down the drain. Good luck everyone. I really hope they remove that product from the market. It's horrible.

Jan 26, 2016
A Question!!! 9 months post Keratin
by: ALF

My hairloss was diffuse thinning after three shittiest keratin process. My question is tje next; in rcovery proccess the hair pass for diferents cycles and throw this cycles the hair sheds to grow more thicker and dark? or from the same strand the hair change his texture? because my hair has been shedding throw cycles to grow more thick and dark; i am better than 9 months ago; but i think this gonna take a little more time to comeback to my original thickness. what do you thinl about my point? sorry for my english and good luck to all!!

Jan 22, 2016
Thank you Sandra
by: Deb

Thank you so much for letting me have some hope that this can grow back. Or at least some of it. Washing is the worst. Very very scary. I just can't believe how much comes out I thought I saw some regrowth in back but now I'm not too sure. The top is just awful. So thin on top and scalp is showing at my side part. Did u ever use rogaine or anything for the hair growth? I was trying to just pretend nothing is wrong and go back to my regular shampoos and conditioners before this stupid keratin. My scalp tho is getting dry now that it is exposed and itchy at times. So weird bc I can go hours with no itch and then suddenly it itches out of nowhere. I will keep u posted. I guess I'm am going through the most shedding right now
.. Or so I hope!!

Jan 21, 2016
Please don't worry Deb
by: Sandra

I know that some people on here have their hair loss for years but my extreme hair loss lasted for nine months. So you might have a little way to go yet but if you follow the same pattern as me, the end may well be in sight! Hang on in there, accept that the scalp is shedding the hair as a reaction to the chemicals/keratin/formaldehyde and that's what it needs to do. Share your joy with us when it does stop shedding.. !

Jan 20, 2016
:(
by: Deb

Hair still falling out. :( So sad....When will this stop? Did treatment in August

Jan 14, 2016
To Deb
by: Mina

Deb

Atm im taking Biotin, vitamin D, multi vitamins and iron pills ... Sometimes I even add omega 3 supplements .. gosh I hate taking pills !! But I'm willing to go lengths for my hair to come back or At-least to stop shredding!! I had an itchy scalp, therefor my doctor recommended me not to wash my hair with shampoo, since my scalp needed a break. Surprisingly it actually helped wit da itchiness!! I'm currently washing my hair once a week.
I also use almond oil for my hair..

I'm planning to wash my hair wit shampoo this week... I think my scalp can hack it now, since the itchiness is gone ..

Im seriously contemplating a wig!! Since my hair is too fragile for extensions.. (But I'm too embarrassed, of ppl reactions when they discover I'm wearing a wig) Lord!!

I seriously think I'm going to be bald! :'(

It sucks we can't share pictures, would have loved to see others with similar experience

Jan 13, 2016
Mina
by: Deb

Mina when did you get your hair done? What are you presently doing? Shampoo? What kind? How much washing? Vitamins? Anything else ? I wish we could also share pics too bc id love to see those with hair growing back , for some hope...

Jan 13, 2016
Hair loss
by: Mina

Hey Everyone

Like most of you a.t.m. I'm suffering from tremendous hair loss... This is a very harsh time for me.. I fear that I'm about to develop a depression... Being around people just makes everything so much more hard for me.. I'm so hurt!!!

Big curly hair - was my signature!! Now I'm left with straight extremely thin hair with bald spots .. It's almost not possible to cover the bald spots anymore ..

I've taken all the vitamins and healthy living ,.. It won't stop, for 2 months now!

I would love too see some pics of others ???

Jan 12, 2016
Yay
by: Deb

So happy to be reading some positive comments. Makes me definitely sleep so much better at night. I couldn't sleep thinking i would wake up bald! I am washing 1 x a week and just using regular shampoo right now with a leave in conditioner on my ends only. So much still coming out in shower so that's why I'm washing less. Scalp still itchy but notice if I don't scratch it doesn't fall out as much. I am trying not to touch hair, but I need to play around with top to cover up thinning hairline. I use tiny claw clips so it doesn't pull in front a few times a week. I haven't had the nerve to cut it yet bc I don't want to go to salon bc I'm afraid too much hair will fall out bc they are rough and I try to be as gentle as possible. It's been almost 5 months now and I think I'm seeing some fine baby hairs growing in back of neck where it started to mostly fall out, but top still thinning as days go on. I'm also taking Biotin. Will update with profess...

Jan 11, 2016
Update
by: Maria

Hi all, I wanna wish you all the best for 2016 and may your hair grow back to the way it was!
I am growing new hair,no doubt about that.My hair is now about 7-8cm long and bald patches are filling in.But they are not what they used to be and I did have few bald patches which I couldn't mask.Especially the large one where my hair parts.So I guess this is something different for everyone.I waited it out in hats for 6 month. I am also glad I cut the damaged part off as I couldn't look at it,dry,orange and had kind of ridges when you looked closely.
Anyhow,so still using Alpecin shampoo with coffin and it's doing it's job.However,I run out of Vatica cwctus conditioner I was using and start using Bio ionic and Alterna.Big mistake.I have sore amd itchy scalp again! Especially from Alterna.If I scratch the itch,I can feel a little dandruff coming off my scalp.I start to loose more hair again but for a while I was loosing nothing so this might be normal.Just don't want to panic.I blow dry every day but my hair it's short so it's just a quick blast.It's all very strange.Sulfate shampoo doesn't hurt me yet mild,repairing hair mask does.Well,I'll go back to what worked before and I'll let you know.I can find new growth at my hairline so I presume there will be more all over...I hope.
Regarding hair dye,Missy I think it's only henna with indigo which cannot be bleached after because it goes green.I think blonde henna can be done over with normal dye.I think that might be the root of your problem.Chemical hair dyes are very harsh.I think hair dye which isn't penetrating the hair but coating it is the way for you.I read some info on it on Khadi website.So I guess I cannot give more info or advise,just be aware that if your hair doesn't get proper wash,you are slowing it's growth.On the other hand sulfate is harsh chemical... so you choose.Ironic,isn't it?
I agree that worrying just makes things worse.Go and get yourselves busy,with time passing you will see improvement.I still get a lot of shocked looks but luckily now they are from seeing me with short dark hair as opposed to long,blonde before. So I always say to people: yes,my hair was ruined and now it's growing back.People accept that and I feel relief that I no longer hide.Much love to you all and keep posting!

Jan 10, 2016
low thyroid here again
by: Anonymous

Just in case anyone missed it- I have seen improvements.

Although my part still extends to the way way back of my head and although I have thinning and bald spots, the hair loss has slowed WAY down.

Aveda shampoos and conditioners, Biotin, Romaine for women and steroid scalp injections and topical have been my approach along with herbal DHT blockers.

New hair grows in and sticks up or is gray or lighter but hey, I'll take it.

Good luck!!

Jan 10, 2016
Positive news
by: Anonymous

I am so annoyed with the people who have posted of their keratin nightmares and not had the consideration to post an update as things improve. It is really unhelpful. I promise you all - in the vast majority of cases, your hair will, indeed, grow back. And it won't take years to do so. The first thing you need to do is go see a dermatologist and get them to take a look at your scalp. In the vast majority of cases, no damage is done to the scalp - it is just the shock of the harsh chemicals that are causing the hair fall. Most likely, what is happening to you is called Telogen Effluvium caused by the chemicals in the keratin treatment.

Once reassured that there is no damage to your scalp, now you need to focus on recovery. First, throw out your sulphate-free shampoos and get a regular shampoo - I use Aveda's Shampure. Using it a couple of times removed the treatment from my hair. I should add that after an initial couple of shampoos to remove the treatment, you should only wash and comb your hair once a week. You want to be touching / moving your hair as little as possible. That means no plaits, no buns - leave it loose, or at least make sure you aren't in any way pulling on your scalp.

You will lose around 50-70% of your hair's thickness but please be reassured that you will ALWAYS have enough hair on your head at any one time to hide the thinning patches. Most people, believe it or not, will not notice you are losing hair if you're clever about it.

You cannot repair the damaged hair although I found using Shea Moisture Restorative Conditioner as a leave-in, helped to hide the damage. The thing to focus on is getting new growth. I managed to get 3 inches of growth in 3.5 months by putting a few drops of peppermint essential oil in my conditioner and leaving it on my head for 30 mins each week. The scalp will tingle and stimulate blood circulation which is great for growth. Obviously you can stimulate growth by massaging your scalp but since this is not suitable for people with hair falling out, peppermint essential oil (which you MUST dilute with conditioner) is a great alternative and actually seems to work a lot better than massage.

I now have loads of new growth, which obviously looks ridiculous - very bouffant - as the rest of my hair is bra strap length and the new hair is 3 inches - but hey, it's progress! All I wanted to say is please do not stress about it, as that will increase hair fall. I promise you will not go bald and the hair will grow back. Just relax, treat yourself nicely - and focus on growing new hair. I noticed new growth around four months after my keratin treatment. Note: hair will grow back first in the first place you noticed losing it. It doesn't grow back all at the same time because you didn't lose it all at the same time. Best of luck.

Jan 09, 2016
Parsley girl and Deb
by: Sandra

Congratulations Parsley girl!!!! I hope that you have a fabulous wedding day today, that your wig looks beautiful and that 2016 sees all your hair grow back as it once was..

Deb, maybe some people have scarring alopecia as you say. It certainly seems that not all my hair has grown back as thick as it once was so maybe some follicles are not going to produce any more hair,as in scarring alopecia. Its so strange with my hair because it feels as though it isn't falling out as much as it was initially but the regrowth cycle seems completely messed up. I constantly seem to have lots of shorter hairs growing (more than is usual ) and the new hairs seem much finer than they used to be , creating a more fluffy look to my hair than it used to have. Hard to explain but it's just not as it once was.. A dermatologist will be able to give you an answer on the scarring alopecia and also tell you if the hair follicles are miniaturised (thinner than they should be) which is the case with me, probably resulting in finer hair. If you see a dermatologist,please let us know what they say. Any information gratefully received ! Still hoping someone will be able to access the research on this ..

Jan 03, 2016
Scarring alopecia
by: Deb

Is what we have scarring alopecia? As I read more and more about this it seems this may be the case, although some of you are saying that hair is growing back although it's very little. I have to say I'm soooo afraid to wash my hair right now. When I wash so much falls out. I used to wear my hair up in pony tails on days I wouldn't wash but now I'm afraid it will pull hair out. It looks so shaggy and part widening everyday. I'm going to try biotin and probably make appointment with dermatologist to discuss this and see if it really is permanent hair loss which makes me so sick to even think of! The nape of my neck is the worst bc I have a huge patch of no hair. Anyone else ? She put a lot of treatment on that part bc that was the most unruly part of my hair and I told to her concentrate on that! Ugh makes me so sick . My hair is gray in some areas so I need to color it soon but I'm so scared to do this after reading posts. It's weird bc I usually have more gray so maybe my hair isn't growing at all in some spots.. Anyone notice this?

Jan 03, 2016
For MH
by: Sandra

I really am so sorry to hear that you're suffering MH and thank you for posting a comment when I'm sure the last thing you want to do is be reminded of what happened. Please keep commenting as I'm waiting for the day that you say: It's stopped ! And beginning to grow back! It sounds like you're managing to stay positive and I just want to remind you that some people on here have said that they suddenly begin to see regrowth after 3 years. Can I just ask you if your product had lots of formaldehyde (you'd know if it did - fumes - strong smell) as I'm trying to work out if it's the keratin or formaldehyde that causes this. It really bothers me. Mine had loads. The whole hair salon was filled with fumes. The EU regulations prohibiting excess use of formaldehyde work very well for honest hairdressers that don't illegally import the high formaldehyde product from Brazil but there are always those that will disregard the law and clients' health in favour of making money. Good luck MH and let us share in your joy the minute this starts to get better ! Please let me know about the formaldehyde too ...

Jan 03, 2016
Update after 15 months
by: MH

Hi all

I thought I'd give you all an update. Hello in particular to the regulars Sandra, Missy and Parsley Girl.

It has now been 15 months since I had my BB in London. I'm sorry to say I have seen very little improvement...and it is an ongoing daily struggle but I am really trying to not let to get me down too much.

I still have dreadful and noticeable dandruff due to my hair being so thin. I use Clobetasol on a regular basis (my GP has put me on repeat prescription for it). I wash all the time with Nizoral -it is drying, yes - but the only thing that works.

The pain is gone but my scalp is still very itchy and for example over xmas I stayed at my Mum's and forgot my chemical-free conditioner and used her cheap store bought stuff and I am in a world of scalp pain again - I know now that my scalp is forever scarred and may never handle the shampoos/conditioners I used to use.

I lose hair daily and still shed every time I shower - it is maybe marginally less - but I still pull hundreds out of my brush. It is noticeably thinner (I believe I have lost 60-70%), and see-through from mid-way to the tips. It is very, very dry and frizzy. I have not blow-dried in 13 months!! I let it dry naturally - I have very little hair left, use powder on a daily basis and have huge gaps, although I don't believe I have obvious bald spots - I have stopped taking photos as they make me too upset. I have very little regrowth - I have asked friends/family/derms and none see any. I think this is the most frustrating thing - my scalp seems totally stilted and I can't improve it.

I really wish I had better news but sadly I am one of the cases where I think it will be years before I see improvement, I used to read this board and think - that won't be me, but it is! Though, at least I am not at wig stage yet.

One other thing, I know people on this board have speculated whether it ages our scalps and I think it might! The tiny regrowth I have had, I have notice a couple of grey hairs - I never had greys before. I have now just turned 25 and I checked with my mum she didn't turn grey until she was 30 so I think it has had a negative effect.

Sorry not to have better news but I promise I will keep you updated.

To those in pain or with really bad dermatitis get CLOBETASOL - it does not slow down the shedding but does noticeably help your scalp.

MH

Jan 03, 2016
Update after 15 months
by: MH

Hi all

I thought I'd give you all an update. Hello in particular to the regulars Sandra, Missy and Parsley Girl.

It has now been 15 months since I had my BB in London. I'm sorry to say I have seen very little improvement...and it is an ongoing daily struggle but I am really trying to not let to get me down too much.

I still have dreadful and noticeable dandruff due to my hair being so thin. I use Clobetasol on a regular basis (my GP has put me on repeat prescription for it). I wash all the time with Nizoral -it is drying, yes - but the only thing that works.

The pain is gone but my scalp is still very itchy and for example over xmas I stayed at my Mum's and forgot my chemical-free conditioner and used her cheap store bought stuff and I am in a world of scalp pain again - I know now that my scalp is forever scarred and may never handle the shampoos/conditioners I used to use.

I lose hair daily and still shed every time I shower - it is maybe marginally less - but I still pull hundreds out of my brush. It is noticeably thinner (I believe I have lost 60-70%), and see-through from mid-way to the tips. It is very, very dry and frizzy. I have not blow-dried in 13 months!! I let it dry naturally - I have very little hair left, use powder on a daily basis and have huge gaps, although I don't believe I have obvious bald spots - I have stopped taking photos as they make me too upset. I have very little regrowth - I have asked friends/family/derms and none see any. I think this is the most frustrating thing - my scalp seems totally stilted and I can't improve it.

I really wish I had better news but sadly I am one of the cases where I think it will be years before I see improvement, I used to read this board and think - that won't be me, but it is! Though, at least I am not at wig stage yet.

One other thing, I know people on this board have speculated whether it ages our scalps and I think it might! The tiny regrowth I have had, I have notice a couple of grey hairs - I never had greys before. I have now just turned 25 and I checked with my mum she didn't turn grey until she was 30 so I think it has had a negative effect.

Sorry not to have better news but I promise I will keep you updated.

To those in pain or with really bad dermatitis get CLOBETASOL - it does not slow down the shedding but does noticeably help your scalp.

MH

Jan 02, 2016
Comments
by: Sandra

I'm glad that you've found comfort from these comments. I do too! I'm always checking to see if something new has been posted, feeling so happy if someone says their hair is growing back and equally so sad when some people are suffering hair loss for years. Deb, you asked what shampoo to use and my experience has been to keep as chemical free as possible, using fragrance free organic and dimethicone free products has been the route I've taken. My hair is much better now and the initial bald patch on top has filled in with hair. It's still thinner all over but better than a year ago. I wonder how many people there are in the world suffering hair loss that just haven't made the connection between the Brazilian and their hair loss. Any update from anyone in the UK? I'm interested to know what dermatologists are saying as I had no help from mine. All the best to everyone..

Dec 31, 2015
Coping methods
by: Anonymous

I feel so much comfort reading this article. I've been fiercely trying to diagnose my own hair loss. I experimented with the Nuvaring birth control in June and opted against it. In August, I got my first Keratin treatment. I couldn't figure out if hair loss was due to getting off of hormones or due to Keratin. I've had all sorts of blood tests run and all vitamin levels are fine. Yesterday, I tested for Lupus. My hair loss started calming down, but I colored my hair in October and OMG it became so much more extreme!! It seems to have calmed down again. Here is what I'm doing while I wait this out:

- no more color. I'm using Oscar Blandi hair shadow to cover up gray hair.
- I use Redken One United and body full volume amplifier sprays along with Oscar Blandi hair lift thickening serum.
- because my hair loss also started at the hair line, I blow dry my hair differently. Starting from the back of my hair, I blow dry towards the front. I only wash my hair every 6 days. I also don't fully dry @ the roots to leverage some of my frizzy roots to cover some of the bald. Also I only use sulfate shampoo and conditioner.

I don't know what happens when this doesn't work anymore, but I'm prepared to be gray for the sake of getting my hair back.

Dec 31, 2015
Which Shampoo
by: Deb

which shampoo do you find best? Can I just use regular ? like herbal essence?

Dec 31, 2015
19 month update
by: Anonymous

It has been just about 19 months since my one and only Brazilian Blowout - huge mistake! 2 weeks after the treatment my hair began to fall and hasn't stopped since. It has fluctuated at times - but has always returned. I will say though that it seems to be slowly improving. I would say on average I was losing about 150 hairs per day( I used to lose probably 10 or 20 and always had insanely thick hair). Over the past month or so it seems to have decreased to about 75-80 per day. Still way too much, but better. My scalp also seems to be calmer and returning to normal. My biggest issue at this point is my thinner hairline. The front of my hair just seems so thin and not growing in. I'm hoping once hair loss totally returns to normal - it will thicken up. But I'm being realistic, I figure it's taken 1 1/2 years to decrease about half the hairloss, so it will likely be about another year before it decreases to normal levels. I think I will likely get bangs cut soon to hide my hairline. For anyone just starting to go thru this I will assure you that in my case no one has ever noticed my hairloss. My husband thinks I'm nuts. He thinks my hair looks the same. I have used clobetasol, which definitely helped - I'm considering trying another 2 weeks with that. Don't think it could hurt. I just have to be patient. I do color my hair which I believe has delayed my recovery a lot. I would be curious to know if everyone going thru this for more than 1 year colors their hair - it seems to be a common issue with those of us still suffering. Hang in there everyone - I do think it very very slowly goes away.

Dec 30, 2015
PG
by: Missy

Thanks, girl! Will check that out. I'd love to find something without the chemicals, but I'm gray and lighten my hair to almost blond so it's hard. I have dark hair and gray.

Dec 30, 2015
Try water works hair coloring
by: Parsley girl to Missy

Is another one nemed madison reed hai coloring I rush you girls the best of luck and please take care ....

Dec 30, 2015
Parsley Girl & Deb
by: Missy

I agree PG I'd like to go as natural as possible & thank you. Are you referring to henna? No can do on that plus there are folks that have reactions to that. I was told once you use henna, you can never again use regular color. I'm using the ammonia free version of Goldwell at the salon. The supposedly organic they used on me at a salon I went to made no difference. I don't blow my hair at all except for the heat they put me under at the salon while color is processing, for about 5 minutes only. I realized I was pulling bangs to straighten them blowing only those out and that is where my loss is the worst so I stopped. What natural color do you mean? I'd certainly try it. Otherwise, I don't blow dry it and bought a new showerhead that takes out most of the chlorine so it won't dry my hair out. Deb, you do need to get bloodwork done to be sure it's only related to the chemicals. Absolutely. You need to rule out iron, ferritin, Vit D, hormones, thyroid as culprits. Those can all cause hair loss so be sure (assuming you haven't had recent surgery, as anesthesia will cause it). If those are all negative, as they were with me, you know it's the chemicals. You don't want to be losing time you could fix this with supplements, etc if it's that. In the meantime, take care of your hair regardless. Coconut oil, cut some of the damage off, and use natural products, use your fingers to detangle if possible, etc. Good luck.

Dec 30, 2015
Girl you are using to many quimicals on your head
by: Parsley girl to Missy

Try vigen hair coloring but is one dimension do it at home and don't blow dry your hair vigen is a hair color that you mix with water or try to make your own hair color just for your greys go online and do diy on how to make natural hair color remember all those quimicals that you are putting on your head are going to be absorb by your body thru your pores and blood stream please go as natural as you can and don't waste your money on the salon and for Deb read all the old comment here your not sick is nothing wrong with your blood is that stupid kk I recommend cut your hair off because the quimicals on your head are going to leave you with no hair if you don't cut it is sad but true it happen to all of us the longer the hair the more you are going to shed and is going to take time don't be scared and don't think about it to much take care every one be strong and go natural make your own stuff remedies at least you will know what's in it with those products they call natural you really don't know what else they put on it take care

Dec 30, 2015
Salons reaction
by: Deb

I called salon and they suggested I go for blood work bc something is wrong with me internally!! Imagine! Of course that makes me want to panic bc they couldn't give me any advice on what to do so there really must be no treatment for this. I can't believe this is happening right now. I'm scared to wash hair. I've been taking women's vitamins and using a loreal sulfate free shampoo .. Should I not be doing this? I don't know where to start .. Should I go to a doctor? My scalp is itchy and burns but only really at night or when I'm completely still . It must be in the beginning stages since it started a few weeks ago so maybe I can somehow stop it before it gets worse. What has worked for you if anything has? Has anyone had any health problems since this treatment ? That's very important for me to know since my health has been perfectly fine . So glad you have responded to me. Thank you so much for your help.

Dec 30, 2015
update
by: Missy

Well, things have been pretty bad. The shedding is still bad. At this point, although it started happening after I started using a different mousse and more importantly, foiling color with some heat lamp at the salon, I'm now thinking the Clobestol is the culprit, maybe in combo. Despite it helping me before, maybe I'm not sticking with it long enough, but man, in 2 days even, my hair starts coming out in hand fulls. I realize that I had used it a couple days prior to my last hair color when I had the hair coming out & now I just tried it again for aggressive shedding & it's really coming out again. After 1x of use. So, I'm too scared to keep using it. When my hair is wet, it comes out like crazy. I think every hair would come out if I kept touching it to the point I'm too scared to brush it because it keeps coming out. I think it's worse than it was. I don't remember it just coming out like this after the initial damage. So March 11th will be a year since I did the Keratin, & this is still going on. I refuse to leave my hair gray. I will go back to the foiling as I tried it just trying to avoid the scalp under the lamp no foil last time. As far as I can tell, it sounds like the plasma injections work. The issue is they are used in combo with I think this stuff Acell that comes from pigs. A protein. I'm scared of kicking off an inflammatory reaction in my system because of a scare I had 20 years ago so I won't do it. But I think it does work . So has anyone else had mass shedding with the Clobestol? Maybe it's the alcohol in it or whatever. So I can't use monoxodil, or now the clobestol, or the injections, and I'
m paranoid about putting lights next to my head. It's horrible. I'm doing coconut oil on the scalp again, and I need to find an alternative to the Nizoral, because as I said, it has lots of lousy chemicals in it I don't want all over me. Any suggestions? Very scary and sad. I went back to the organic store and spent a fortune on stuff and also will try this organic version of monoxidil to see how that goes. I finally got serious about being healthy and taking off weight, 20 lbs almost, so I said, I'll be thin again, but now I'll be bald! It's sad but it is what it is. For me, estrogen could be the issue as well since my hysterectomy, but that only accounts for some loss, not like this. And I can't take estrogen- family history of breast cancer and cardiovascular disease. I won't risk it. This is totally damage to the follicle and sensitivity that's permanent now to any chemical or heat, etc. I don't have hope it's going to go away. I thought i was out of the woods because it was so much better, but using the color, etc, it's back. And as I say, I refuse to walk around with old lady hair, little of it as it is. Well, I wish everyone a great New Year and hope we all have some better results for the New Year. Maria, a big hug to you :)

Dec 30, 2015
Thank you for your wishes
by: Parsley girl to Sandra

I was thinking of letting it grow my hair is really curly but after the kk some pets of my hair grows stray and other part curly is hard to style it because the strait part won't take gel or nothing to get curly and if I try to make it strait it looks like if I got electrocuted it just don't look or feel like it use to maybe because I wash my hair to much but if I don't wash it often I get to much biuldup from dandruff my scalp change so much after the kk that I just feel like I don't want to deal with it that's one of the reason why im keeping it very short I will try ones more times to Se how it grows and how much falls because wen is long that's a different story well thanks again Sandra you been a support for me :)

Dec 29, 2015
To Parsley Girl
by: Sandra

Hi Parsley girl! Thank you for the update - it's always appreciated! I remember you mentioning your wedding on this forum when your hair loss first started. I'm pleased that it doesn't fall out as much. It's such a relief when that initial extreme hair loss stops and it begins to slow down, even if it does still fall out more than it used to. Will you start letting it grow soon? Maybe after the wedding ? I would be interested to see how it grows back - if it comes back thick or it becomes finer. My regrowth does seem to be more flyway and finer than before.. Anyway, I wish you happy new year and I hope that the wedding is everything you dreamed it would be and that the wig stays firmly put !

Dec 29, 2015
Hi Sandra and Deb
by: Parsley girl

Well let me start by saying that I keep cutting my hair every 3 to 4 weeks with the machine until my hair is even I stil have a nickel size bald spot on the back of my head hairs still fall out not as much as before I have dandruff which I never had before that stupid kk I'm not usin quimical stuff on my hair everything home make remedies for hair loss parsley blended with water and mixin with shampoo before washing hair or just putting that parsley water in my hair and just leaving it on my scalp and hair since it don't smell bad for dandruff I'm using apple cider vinegar 5% and baking soda before washing hair that seems to control it and I try no to think to much about it don't want to get stress out by the way wedding is on the 9 super nerves hope my wig doesn't fall of hahahaha we'll take care every one happy new year and hope we find a solution that works for everyone since the same product made our hair fall out... God bless...

Dec 29, 2015
Response
by: Sandra

Deb, I hope you've been ok over the holiday period and not too scared. Just to give you hope - my story - the hair did keep falling and morning pillow hair was horrible but it eased up after about 9 months. Not all has come back sadly: when in a ponytail you can see some scalp at the side of my head (that was never the case previously ) but the bald patch on top has filled in although not like before. I was also scared but calmer now. I've used natural shampoos and dimethicone free conditioners. That is all. Was your hairdresser any help?

Is there anyone out there that can give us an update on their hair loss? It would be nice to start the new year with some news and hopefully some of it might be reassuring for Deb.. Happy New Year to all of you .. I often wonder how everyone is doing, especially regular contributors that somehow you feel you get to know after months of sharing our pain and hopefully recovery !

Dec 21, 2015
Scared with hair loss :(
by: Deb

I'm so scared after reading this. In August I had a global keratin treatment done for the first time. It felt funny from the start but looked good after I blowdried and straightened it. It always felt rough and dry and very knotty. Now it's been 4 months and I have noticed so much hair falling out from root! My pony tail is so thin and it feels like at night the hairs are literally popping out of my head! I'm so scared reading all these stories and don't know what to do first. My hair was very thick and now it is so terribly thin. I have a bald spot in the back underneath section of my hair ! I had such thick curly hair here . Now it's just so thin and fine and .... Gone! If there is anything you can do to help me please let me know .. I'm going to go to salon tomorrow and see what they suggest :(

Dec 16, 2015
Low thyroid checking in
by: Anonymous

Hi All.

I think my hair loss has finally slowed down.

I have been putting steroid topical on my scalp, getting scalp injections, taking DHT inhibitor herbs, and using Damage Remedy by Aveda. (They tried to sell me on the Invati but it's way too pricey.)

I have also been using women's Rogaine.

The derm said he sees new growth but I still see bald spots and a part that travels into the back of my head.

It was in May that I allowed a hair stylist to apply a supposedly formaldehyde free PURE BRAZILIAN to my hair.

The Aveda color gloss that I have been getting helped tremendously with the appearance of my hair which got very orangey and dry.

I cut about five inches off my hair of totally dead and destroyed ends from that damned treatment.

Dec 12, 2015
Update
by: Sandra

It was 18 months ago that I first had my Brazilian hair straightening at a hairdresser in London in England and I can't believe that I'm still contributing to this forum. It has been the most horrendous time of my life with all over hair loss, especially around the hairline at the sides and large patches of hair loss at the top of my head that looked as though it was the start of female hair baldness. It happened quickly and within a couple of weeks of that ghastly product touching my hair. It continued for almost a year. My eyes still well with tears when I remember waking up in the morning and removing hair after hair from my pillow. My wish for everyone is that nobody should ever be tempted to touch this product thinking that they won't be the one to suffer because it could well be anyone that has this reaction to the strong chemicals. I have pretty much recovered (I have less hair than before but it certainly has grown back) and I don't know how or why other than I use shampoo and conditioner that is as natural as possible. Interestingly, the Green people shampoo that I use has salicylic acid.. For those of you that are still suffering hair loss I pray that you will recover soon. Thank you to all you kind people that contribute to this forum and have helped me get through this. I will continue to post for the benefit of others when I can .. And if there are any hairdressers reading this, that in their ignorance and arrogance continue to use this product in their salons I have no words that are strong enough to express my disgust at putting the pursuit of money over the health and well being of their clients. The evidence here in front of you ...

Dec 11, 2015
Hairline
by: Maria

Hi,my hairline receded about 1cm but that was from overall hairloss.Once my hair start to regrow,it regrew at hairline as well. I think if your hairloss would be from keratin,it would be everywhere,not just your hairline.I am sorry,cannot give you any advice.M

Dec 10, 2015
Receding hair line and keratin treatment
by: Anonymous

Hey guys I was wondering if any pros here can help me I can't really find any information online. I'm a guy about 22 hair is receding a bit its a given. I've done a keratin treatment before I was wondering if it has any negative side effects to the receding hair line or increases the rate at which it goes.

Dec 07, 2015
Missy
by: Maria

Hi Missy.I am sorry to hear your troubles but you are brave to keep positive.You just have to.I am sure hair dye isn't doing your hair good but I understand your need to look pretty.I blow dry now every day but my hair is still very short.I think I loose reasonable ammount.Missy all that stuff you mentioned sounds expensive and experimental.I think it still comes down to calming your scalp.As I already mentioned,I found shampoo with salycilic acid great relief for my itch and pain.I recently saw my dermatologist for different thing and I mentioned to her it is helping a lot.She was really surprised and said she would never believe that but prescribed to me salycilic acid liquid to dab on my scalp.I haven't start using it yet but I will just to give you a feedback.My scalp feels just little dry but no other issues.That was the turning point for me I think when I start using that shampoo with salyciluc acid and cofein.Everything else till then just irritated it no matter how natural it was.My hair feels dry too but all the patches are filling in.Aren't you experiencing shedding now because you came off rogaine? Because that causes massive hair loss but some of it will come back I promiss.I have no problem with minoxidil,still using it twice a day.So I guess I am lucky but it doesn't mean it won't have side effects which will show later on.I wish you lots of strength and please keep updating us.Have lovely holidays.M

Dec 06, 2015
4 years?
by: Anonymous

Anyone almost at 4 years with any luck?

Dec 06, 2015
Plasma shots
by: Missy

Has anyone tried these? The hair loss specialist so I saw offer them, but I did not discuss them. Did any of you see Dr. Oz? He showed that. Also, I wanted to see if any of you had tried, not just the blood plasma injections but the laser light caps, combs, etc.? I don't know what I think about any of them. The laser lights have me very worried. You know how they say something is safe and OK now and then three or four years from now they tell you it gives you cancer. That's my fear. I would use it and try it but I am not thrilled with the concept of laser lights right up against my scalp and brain. Please let me know if any of you all have tried any of these things and if they have worked.

Dec 05, 2015
To Parsley Girl, Maria, Anonymous et al
by: Missy

Thanks so much for the BP info, PG. points taken but I'm saying my BP was under control until I used the Rogaine. It made me feel anxious and BP went up each time I tried it :( Maria, hope the Rogainr is working for you and doing well. I'm really freaking lately because the hair is coming out again A LOT. I hardly blow dry, but did realize I had bangs that I blew straight and my hair thinning is most in the front. Think it's stressing the hair so stopped. I'm frizzy/ curly. My hair has dried out big time not being able to use all the heavy duty conditioners I always did for frizzy hair with silicone. I'm sticking, rightly or wrongly, with theory silicone is bad and suffocates hair and scalp. Even the Biotene shampoo and conditioner from Vitamin Shoppe is irritating my scalp again. The big difference is I am using Goldwell organic color that she foils in. I left my hair alone for months but also used organic hair stuff that I haven't used much. Maybe that's it but I think it's the color. Also, in watching a YT video, she raised issue of chlorine in water. Lightbulb went off. I'm trying to get healthy again after surgery and meds and working out a lot. I rinse my hair with water nearly every day and shampoo every 2nd or 3rd day. I think the chlorine is drying out my hair as is the Nizaol shampoo. But it's the color I bet but I,m not walking around with grey. But my hair is really coming out again and I was advised it's also female pattern loss so you need to keep what you have because it won't grow back on top. It's devastating. I had gorgeous hair my whole life. I just brought out the clobestolliquid again. Anonymous, you need to watch that. Cortisone shot should be used a very short time. They thin the scalp and cause systemic issues. This liquid I think is for 2-3 weeks at most 1 x a Nite and rinse in morning. I'm disgusted. Bought desert essence shampoo & c fragrance free today so will see since my scalp is so sensitive. I'm getting a shower head filter. Should've years ago. Chlorine kills hair and skin. Anyway, I'm trying not to freak too much with the ball of hair I get daily. Read to try jojoba oil with a little rosemary and lavender oil for hair loss and dandruff. Tried it last night but now that I'm using the steroid, will only put a little coconut oil on again to moisturize. I'll try not to think about it because I've reached a dead end with Ina Iliad for Rogaine use. The shedding is unreal. Keratin get was in March! They did say TE could last a year. It was down to almost no loss before I colored, but I'm choosing hair loss over grey. Anyway, bigger fish to fry. I wear pretty makeup, I'm working on getting off 25 lbs to look better and that's that. I hope everyone has a wonderful Christmas and holiday season. :) thank God there are weaves and wigs as a last resort.

Dec 03, 2015
To Missy
by: Parsley girl

Hi Missy for your blood pressure use beets if you have a juicer you can drink that and also wild garlick tea it don't taste like nothing and an herb call llanten in Spanish make tea of that and it will lower your blood pressure my husband suffers from high blood pressure to and with thous tea and juice it comes down also try to cut your salt intake you probably now that some other things that I keep away from my husband is ginger root and cinnamon because it naturally bring your blood pressure up well I just wanted to let you know what I do to help my husband with that hope you are doing well take care...

Dec 03, 2015
Dear pure Brazilian
by: Parsley girl here

Your hair stylist is crazy to tell you that,it don't matter what brand is it if he or she used the same proses to apply the bb then yes your hair is going to fall, wen I had it done not even one hair fell off but time went by an girl it started raining hair off my head until the point of 9 bald spots and they were big not little I look like a Dalmatian but with skin color spots now it's better my bald spots are grew the hair but the hair is not the same texture it was before and I still lose hairs but believe me if I can turn back time and not do that bb I would in a hart beat take care all Sandra, Maria, Missy and all the girls here reading your comments and advise had help me a lot thanks to all God bless and have a merry Christmas and a wonderful new year...

Nov 23, 2015
Yes I had the pure brazilian
by: Anonymous

Yes I had a pure Brazilian. Yes it made my hair fall out.
Please take the time to read these comments below.

Nov 23, 2015
Pure brazilian
by: Anonymous

Hi:) its a bit much to read through all the comments, but I just had a PURE Brazilian blowout, my stylist said that kids and pregnant women can use this.
I have not lost any hair. But after reading a bit here I'm afraid I will... Did any of you loose your hair after an PURE Brazilian blowout?

Nov 23, 2015
Janette E. Ramirez
by: Janette E. Ramirez

:)

Nov 21, 2015
hair loss
by: Inna

I also faced the problem of hair loss after the Brazilian straightening. I'm from Russia. Hair falls out with the bulbs become dry and greasy roots. But I see that the loss has decreased. Recipes:
1) Salt peeling scalp. 1 teaspoon salt, 1 teaspoon of balm for hair, mix, apply to wet hair, massage for 1 minute, rinse, then wash with shampoo.
2) Massage the scalp with the help of micro electric current, we have such devices, for example Darsonval. It stimulates dormant follicles and strengthens the follicles.
3) Oil Bay. Araganovoe oil - a few drops of arms and smear wet hair
4) Hair mask with pepper

Of course, the massage device to dry hair. The sequence is as follows: cleaning heads salt scrub, shampoo, mask, oil device.

Sorry for my English

Nov 20, 2015
Hair loss treatment
by: Anonymous

I've been losing my hair since I had a Keratin treatment earlier this year. I have a sore and itchy scalp and a dermatologist has put me on strong steroids. I haven't noticed any improvement from the steroids - maybe the itching has gone down a little but my scalp is even more sore and so tender. I'm not sure if I should continue the steroids? Also I say a hair loss specialist today who has me using a coal tar shampoo. Does anyone have any experience with coal tar shampoos? I'm so scared everything seems to irritate my scalp and I've lost almost 50% of my hair and I'm 25 years old.

Nov 18, 2015
to Missy and all fellow sufferers
by: Maria

Hi,here is what is new with me.Painful scalp reacured mid August. Eucerin shampoo seemed to agrivate it even more.Went to all herbal Khadi shampoo. Pain lessened but didn't go a way. Occasionally was really hurting a lot.I concluded I will have to go for more steroids even though I hated that thought. Since a lot of people here wrote scalpicin helped,I wanted to order it but could only get it shipped from US. So I searched what is main ingredient and foud out it's salycilic acid. I found shampoo with same ingredient Alpecin and ordered one with coffeine. It's a full sulfate shampoo but it worked for me! I start using it on October 30th,washing my hair every day (short hair look so yuckie unwashed).After exactly 5 washes scalp pain went away and my hair is growing bit faster.Had hair cut second week in October and it's really out of shape by now, a lot! So keep fingers crossed for me,this seemed to have work so far.Maybe there are more shampoos with same ingredients but sulfate free. I wasn't searching any more as I wouldn't want to risk changing what works for me anyhow. I still feel my scalp little dry but it's improving. I use any conditioner with it.My hair has filled in on the top so I no longer look sick.I am still using minoxidil but now I use 5% solution in the morning and 2% in the evening trying to gradually over few month swap to 2% only. I haven't died my hair and I don't intend to for at least a year.All the oils for scalp I was using was just very temporary (few hours) relief. Good luck guys and don't give up.

Nov 18, 2015
Type-os
by: Missy

Oh autotype! That was SHEDDING has picked up again. Only reason I think maybe coloring my hair. In foils, no scalp. Still shedding. And problems with the shampoos itching scalp with any fragrance, even all natural. That keratin kicked off an allergy or follicular damage that hasn't stopped 8 months later. Yes, to others, after seeing 4 specialists, vitamin d, thyroid, iron, all vital to hair health. But none of those were an issue for me.

Nov 18, 2015
Not Good
by: Missy

I didn't have burning from the Rogaine foam, but I got a fast heartbeat and I got very anxious from it. I didn't realize are connected until three days later and then realize that was the only thing that changed. I am only talking about using the recommended dosage on the top part of my scalp and I absolutely could not use it. That is beyond depressing meaning that I will never be able to grow back here because I'm not going to be able to use that product. I have high blood pressure and it was more the anxious feeling I had using Rogaine that was the dealbreaker. Also, my shutting his continued. My scalp seem sensitive still but the shouting has picked up again. The only thing is I am using the color and for oils rather than on my scalp. But I cannot walk around with all gray hair. Whatever hair I have left. It's just really depressing because I'm losing it in the top on the front, and as the hair specialist said, my hair is curly, but it will show. I do OK with the Biotene shampoo and conditioner, but even that has too much fragrance in it for my sensitive scalp. The free and clear made my scalp itch and Leslie. I do not know what a good shampoo is and I have very dry hair and I need a very rich conditioner and shampoo that doesn't dry out here. Any recommendations would really be appreciated. The shame oyster has too much fragrance to it and irritated my scout despite it being a great product for me to use before the Keratin incident

Nov 18, 2015
Hair Loss
by: Hayley

Hi all,
I too have experienced extreme hair loss after having keratin nano treatment in June this year. About 10 days after the treatment I had severe contact dermatitis. Then things seemed to get better but after 2 months I started noticing excessive hair loss and my scalp itches all the time. I've been to 2 doctors and seen a dermatologist. They all say that my scalp is inflamed but they are not sure why. I am on my second week of used topical steroids but I haven't really noticed any improvement. I feel very sad about my hair but I am learning that I must accept this is happening and try to get on my life although I am finding this extremely hard! Reading this site is good to know I'm not alone but it feels so sad that this has happened and that it is not being acknowledged or recognized by any medical professional. I feel so powerless.

Nov 07, 2015
One more thought
by: Sandra

It might be worth getting Vitamin D levels checked. Apparently, that can contribute to hair loss and many of us are deficient in this part of the world as we don't get enough sun..

Nov 07, 2015
Hair loss
by: Sandra

Hi Roxy. As a fellow U.K. resident (London) I thought I had better answer you straight away as most people on this forum are in USA and will be asleep right now! This is scary, I know. I remember how it felt when I first noticed it happening to me. Roxy, you will just have to grit your teeth to get through this as there is nobody on this forum that has mentioned any one thing that has seemed to definitely work,straight away to stop the hair loss. Furthermore, not everyone's reaction has been the same. Some people have lost hair in patches, others all over. For some people they've had an obvious allergic reaction and had dermatitis, itching and pain, others less so. So you can see with different symptoms (other than significant hair loss that unites us all) different things have worked. I just want to reassure you that my hair loss did stop and return to normal levels after about nine months. Much of it has grown back but sadly it's nowhere near the same thickness as it was. I'm also slightly anxious watching as each hair falls, that there is new hair to replace it. I'm sure you've scrolled back and seen me mention that Daily Mail article. I have mentioned this before but I'm going to tell you what I've used , for what it's worth. I'm not saying it worked as I don't know. I started with Aveda products for hair loss (Invati) I think. Then I moved on to Jason's tea tree shampoo as I had a bit of dandruff, then John Masters organic shampoo and now Green People unscented shampoo and Liz Earle conditioner. The reason behind choosing all of these is that I wanted to be as chemical free as possible and also dimethicone free, I just picked up bits of information from what others had said on this forum. I know that low iron can cause hair loss but I do believe you that the Brazilian has accelerated this. So do get your iron levels up and do stay positive. By all means, visit a dermatologist but don't build your hopes up. They just don't seem to know about the chemicals used in this product and their effect. Good luck Roxy. I know this is so upsetting but use this forum to help you as I've found others to be so kind and supportive on here and I always try and respond if I read someone else's pain on here as I've been there myself .. . I'll keep posting on how things progress

Nov 06, 2015
Rapid hair loss
by: Roxy

My hair was shedding anyway but since having the Brazilian blow dry in Manchester UK 18 weeks ago my hair is falling out at a rate that is scary and I am willing to do anything to make it stop. I have low iron so I am taking iron tablets now as well as vitamins. Any advice please. I'm very scared xxx

Nov 05, 2015
More shedding
by: Missy

So my scalp had improved then I used color with ammonia that she foiled on my hair and seems like the shedding has picked up. Seems that it was since the monoxidil that burned. My scalp is sensitive again. Saw the hair dr down at UM again and she said use Rogaine foam 5% for men since the propylene glycol in a liquid aggravates people. I'll give it a try again. More shedding though for me now for about a month and a half or more. I was doing great until the monoxidil. I also felt a fast heart beat when I used the monoxidil. I'll have to see. I have high blood pressure. It's so depressing. But hopefully, the shedding will diminish again. I hate the idea of Rogaine because it's forever. I hate medicine. But as the dr said, you've gotta hang on to the hair you have while you have it so you have to start it. Also, they all said by the time someone sees a hair specialist, they've usually lost half their hair. But thank God there are weaves and extensions, etc. I didn't want to use the clobestol again because its alcohol is strong for the scalp. I do coconut oil still whenever I think about it. This damn keratin kills your scalp. I think that's what's happened. Ruins the follicles and damages the scalp like others have said. My friend takes meds for her thyroid, which is now normal, but her hair comes out all the time. Anyone with shedding has to get bloodwork to make sure it's not from something else. Just have to deal with it and focus on other stuff and hope for the best. Good luck to all.

Nov 05, 2015
Low thyroid
by: Low thy

Thanks sandra.

I looked back on Instagram to get a sense of when I had the keratin treatments and I noticed something interesting.

85 weeks ago I got my first keratin treatment. I know this because I took a photo on Instagram which dates the weeks.

My hair was thick - still fine because my hair has always been fine but I had a lot of hair. At 85 weeks and prior to it my hair was thick and pretty gorgeous.

My hair was my thin.

As I scrolled through the photos I noticed how my hair thinned which at the time I thought was from stress.

A few months later my thyroid was a little low so I thought that's why I was losing hair.

And then not knowing the culprit,

6 months ago I got another keratin which left my hair bent and like straw.

Then the hair loss accelerated.

Looking back at the photos it's so clear to me that the keratin destroyed my hair.

It's paper thin now- bald spots every where.

I want to sue the FDA!!!

Nov 04, 2015
Stay positive
by: Sandra

Please don't lose hope 'low thyroid'.. It has only been a few months since your excessive hair loss started and as Lucy (thanks for your lovely post!) said, it was three years before hers stopped falling excessively. Obviously, daily hair loss is normal but I think we all know on here what excessive hair loss looks like. I know what you mean about the parting getting wider towards the back and looking like a bald spot. That is exactly what I had.. That and overall hair loss. My hair has grown back ( had mine 16 months ago) although much thinner and I went natural and 'chemical free' pretty much as soon as this happened to me. I don't know if it helped or not, I don't know if it was an allergic reaction to keratin/chemicals on the scalp as some people have suggested or whether it was a reaction to formaldehyde as the research suggests. I'm actually hoping it was just an allergic reaction to keratin and not the 'formaldehyde scenario' as that is much more scary. If the formaldehyde has created this, then I'm playing a waiting game to see if new hair grows as each hair goes through its natural life cycle of several years and falls out. If the dermatologists don't know then how can I possibly work out what has happened. It's just comforting to know that I'm not alone although I would rather that none of us were having to face this. Scroll back and look at the stories of recovery , there are some there .. And good luck ..

Nov 03, 2015
low thyroid checking in
by: Anonymous

My thyroid has been normal for so long now. I am convinced that the two Keratin treatments that I had about a year apart have caused the bald spots on my head.

Yes, when I put my hair up I have bald spots and my part gets so thick towards the back of my head that it is a bald spot as well. I can't put my hair up without knowing that my scalp is showing in several places.

My friends and family are shocked. No one says, "It doesn't look that bad," anymore.

I am mortified.

I have been taking biotin for months. Nothing.
I have been taking NuHair DHT blocker for two weeks. Nothing.
I have been putting women's Rogaine on my head for four months. Nothing.
I have putting steroid ointment on my head that a dermatologist gave me for two weeks. Nothing.

Hair hair everything. In the car, on my bathroom floor, on my food, on my clothing...

I guess I am sad because I KNEW that with as much hair as I was seeing come out in the shower and every where else- I KNEW that I was bound to have bald spots in no time.

And I do.

It's been six months since my last Keratin treatment.

I hate hats, I refuse to get a wig, and I don't think scarves are cute.

I am so angry.

I want to sue the FDA, the makers of Pure Brazilian, and the makers of whoever made my first Keratin treatment too! What started as an idea to make my hair healthier turned into something that makes me look soooooo disgustingly unhealthy.

I suppose I'll be single for a few more years.

I've spent so much money trying to make my hair grow. It will likely be years before it is ever back to normal. This feels like a nightmare.

Oct 30, 2015
Thank you Lucy!!
by: Lisa

This gives us all some hope. Thank you for sharing.

Oct 29, 2015
Ideas
by: Scott Duncan

Thank you for such informative post.

Oct 28, 2015
Lucy
by: Anonymous

Checking in to see how everyone is doing. Almost 3 years and my hair slowed down to almost normal within the past two months. Hopefully it continues to stay this way. I can run my fingers or a brush threw it and only 1 or 2 hairs falling. After blow drying twice a week only 20-25 hairs each time. Hardly any hair throughout the house. Hair feels thicker but still lost a lot that I don't think is recoverable. Can this really be the end? Is this vicious cycle over? Am I normal again? Keratin is like a disease and I am hoping the fight is over!!!
Please keep posting and keep everyone updated.
We need each other.

Oct 21, 2015
Clobetasol !!!
by: Anonymous

I had a Brazilian Blowout in June 2014 (almost 17 months ago!). About 2 weeks after the procedure I noticed huge hair loss in the shower - shocking really. I tried everything - Nioxin shampoo, coconut oil treatments, different sulfate free shampoos, selsun blue, scalpicin (actually did help a little), etc etc etc. I finally made an appt to go see a dermatologist a week ago (took 6 weeks to get appt). I told her that my hair was falling out, but also that my scalp was not the same. Irritated at the back, hurt when I put my hair up for any extended period of time, itching etc. She said it was from the treatment - allergic dermatitis. She said it is not Telogen Effluvium (which I agree) - this was caused by STRONG chemicals coming in contact with scalp. It has nothing to do with your hair - hair is not alive, it is dead. It is falling out due to condition of scalp. She told me there was nothing you could do to directly help the hair grow but wait it out - but need to get scalp better. This is the same type of thing that can happen to some people as result of different hair dyes ,etc - not unique to keratin treatments. She prescribed me clobetasol (potent topical steroid) scalp treatment. It is a liquid in small squeeze bottle - to be applied twice a day. It is challenging to apply between hair but I just dab it over all areas of scalp and rub in. After only 2 days huge improvement! I am just starting 2nd week - and plan to use for 3 weeks total. I will update after I have stopped using it to let you know how scalp reacts when treatment has ended. My dermatologist was wonderful. Made me feel much better - If you are having this problem I recommend you see a dermatologist - tell them your hair is falling - but make a bigger deal about your scalp. They will treat that and hopefully you will get better.

Oct 20, 2015
Message to Anonymous in UK
by: Sandra

I'm so sorry that this is happening to you too.. It really is a scary experience. I wouldn't waste a penny of your money on seeing a private dermatologist or trichologist. I have spent hundreds of pounds on both! I live in London and I didn't waste any time in going to top trichologist and a top London dermatologist. Neither of them acknowledged that it could be caused by the Brazilian. I just wanted to scream at them - You don't get dramatic hair loss a week or so after a treatment for it to be unrelated ! After I had seen them I came across the Daily Mail article that refers to the research that I've mentioned. I wish I had taken it to show them! When you get your NHS appointment take the article with you so that they believe you.. Google Daily Mail, Brazilian blow dry , hair loss and you'll find it.. The dermatologist actually told me it was female hair baldness and it wouldn't grow back . Well it has... If your Brazilian was only done a few weeks ago please don't lose hope. My hair regrowth wasn't noticeable until several months after the hair straightening. I don't believe it was the keratin that caused this , as the product didn't really touch my scalp although I suppose it was on my hair for several days before washing. I believe it was the formaldehyde gas that penetrated the follicles in my case. My product was laden with it and my hair still doesn't have its original curl over a year later, that's how strong it was. EU regulations are supposed to protect us from these high formaldehyde treatments . My hair loss has lessened and there is regrowth although I can't pretend to you that my hair is like it used to be.. No more bald patch on top but very much thinner all over . At the moment I use Green People fragrance free shampoo and Liz Earle conditioner (contains no dimethicone).. I hope that I've been of some help to you and I wish you lots of luck. Please keep posting.. Especially after you've seen the NHS dermatologist ..

Oct 20, 2015
Sandra - can you recommend a UK dermatologist?
by: Anonymous

Sandra, I can't access the research but I notice you're based in the UK, like me, and hope you can help. My hair is falling out since having a Brazilian Blowout. I have a couple of small bald spots and extended partings. I have lost over 50% of my hair. My doctor says there is no scarring, which is good, but also no new growth. It has been falling out for several weeks. And it will take several weeks before I can see a dermatologist on the NHS. Is there a reasonably priced private dermatologist you can recommend? They seem to cost £250 plus just for a consultation!

Oct 12, 2015
Research on hair loss
by: Sandra

There is research about the effects of the Brazilian hair treatment ! And the research mentions hair loss in relation to this hair treatment!! I have tried so many times to access it but I can't get past the first page. If there is anybody out there that can manage to access this research I would be so, so grateful to know what it says. I have mentioned it on this forum before.. The research was carried out at The University of California, Berkeley's school of public health. It is written about in The Journal of Occupational and Environmental Hygiene ((August 2013). I did manage to get the journal to load on my iPad but I think you need to pay something or be a subscriber maybe in order to open all the pages. Or maybe I'm just not computer literate enough .. Also, I'm in the UK , so maybe that made a difference . Maybe if you have a dermatologist in USA you could ask them if they can access it - at least then they would believe you and have an understanding of what happened !! The research is referred to in a UK newspaper which is how I know about it and the newspaper article refers to hair loss. please please someone please try to find this and let us know how you get on.. There has to be an explanation if nothing else .. At least if you can take the journal with you when you visit the dermatologist they might be able to understand what has happened ... Thank you all for your messages

Oct 12, 2015
to Missy and all fellow sufferers
by: Maria

Hi,here is my little update. After scalp pain came back at 5 month post treatment, I was sure it's from minoxidil use.It was by coincidence I found out it was my shampoo which was causing this. I washed my kid's hair with it and they both start to scratch like crazy. I've been using this shampoo right after the treatment ruined my hair so I had no way of noticing that was the problem. I switched to garlic shampoo-normal sulfate brand.Once finished,I went back to this s..t Eucerin,dermo capilaire,sulfate free,paraben free,etc.Man,how could I not notice this caused the pain,even got dandruff from it. Once I realized (a month later) I switched to Khadi natural shampoo for irritated scalp with tea tree to treat infection and lots of oils to pamper scalp.Pain went away after 2-3 washes.What a relief.So I am back on minoxidil 5% twice a day (I lowered previously to 2% because of the scalp pain).My hair is growing,still thin where bald patches were but getting better.I look ugly because my hair is still very short but it was important for me mentally not to have any burnt hair on my head.Part of getting better,start clean. Lots of strength to you all.Dermatologists are clueless about this problem,stop wasting your time. Oh and before I forget,when my hair was done falling out,it stopped completely.Nothing fell out for a month. Then normal shedding restarted and it's been like that already for almost 2 month.Good luck and keep getting better.

Oct 12, 2015
Thyroid anonymous
by: Anonymous

My hair loss started a year ago after my first keratin treatment but it wasn't bad and since my thyroid became hypo at the same time, I thought that was the cause.

But my last keratin treatment was in April and my hair starting coming out in amounts I never thought possible by May. By June I had bald spots and I still have excessive hair loss today.

Can someone start a blog or a page where we can post photos?

I would like to start a class action law suit as well.

I am also having a very difficult time in my life right now and the hair loss makes me feel like I'm living in a bad dream.

Of all the things are going wrong right now I have to add that I'm mortified about my hair falling out like crazy all over the place.

So let's see since my last Keratin treatment it has been 6 months and there are no signs that the hair loss is slowing down.

My hair is paper thin and doesn't even feel like MY hair. You can see my scalp. I show people and they don't say "oh it doesn't look so bad!"
People are saying, "Oh my god you're going bald!"

So I know it's bad.

Oct 12, 2015
Wish I'd never had the Brazilian Blowout
by: Anonymous

Anonymous, How long have you been experiencing hair loss? I'm at a year and I am still losing well over 100 and can totally relate to showers being a nightmare :(. I wash every other day but think I need to slow down. My scalp no longer seems to produce oil and my hair is so dry because of that.. I have cut off everything from the keratin treatment (9 inches in one lop was so sad, but I wanted it out of my hair and that was the only way I could be sure). I have been to 5 different dermatologist, taken every blood and health test imaginable -I am really healthy...except my hair loss..from the Brazilian blowout..None of them can figure out what the BB did to me that is causing it. I take a pile of vitamins everyday (all related to growing hair and preventing hair loss). I use purador shampoo for hair loss and I have been using rogaine for the last 3 months. I started at 2%, but the last dermatologist told me to go to 5%.. I really didn't want to start using it because of the side effects and the need to use it forever, but it was really a last resort.. my hair is so thin and I have bald patches that i can no longer camouflage with hairstyles. The 2% rogaine did nothing at all for me. I'm hoping the 5% might work better. Good luck to all of you. Please keep posting... I'm hopeful someone will post positive stories to give us all hope

Oct 12, 2015
YEARS???!!!
by: Anonymous

I can't believe that people are posting that they have bald spots after YEARS.

My hair is in better condition thanks to biotin and expensive conditioners but I am still losing well over 100 a day and taking a shower is a nightmare.

Please people- is there anyone who didn't have this problem for years!!???

My bald spots are crazy!!! It's a nightmare!

Rogaine doesn't seem to be working.

Oct 03, 2015
Be careful with Drs.
by: Parsley girl

Doctors most of the time they don't know, don't care and since no one is doing research about that they're just guessing what could probably is wrong so don't believe that doctor when they tell you that is not the keratin because is no coincidence that so many of us from different parts of the world and different countries have the same problem with the same product. Thanks God my hair is growing and I have my bald spots filled with hair so quickly I use folicure look it up, it really work for me unlike rogain that when you stop using it the hair that grew falls of and is expensive to girls just keep searching use your instincts and try to use as many natural or organic stuff as possible and most of all be patient with your hair remember that keratin penetrated the scalp. Hair can't breathe we have a very dangerous chemical on the scalp and is making our hair to fall off from the root so please take care of yourself and your head in anyway way you feel is best for you. Take care all you girls we are in this together be strong...

Oct 03, 2015
Dermatologist is no help.
by: Anonymous

I cut five inches off my hair and had a gloss added.

It looks better but I am still losing so much.

I saw a second dermatologist and he said it's TE probably from stress and thyroid. He dismissed my concern over the Keratin treatment and gave me some scalp oil that burned my eyes and was like putting peanut oil on my scalp so I won't be using it. It's normally prescribed for Psoriasis which I don't have so I have no idea why he gave it to me. He said the steroid in it might stimulate hair growth.

I am still using Rogaine and taking biotin.

I don't see any improvement and my Keratin treatment was in April.

I'm just glad the color gloss make my hair look better and not worse because the color got so orangey after the Keratin it was pretty nasty.

Oct 02, 2015
hair
by: Anonymous

Amazing post!!!

Sep 29, 2015
Same as below
by: Anonymous

Almost 4 years and still a nightmare. My hair is still very thin and barely grows back. The only thing I hold onto is that the shedding has decreased, I barely shed during the day but feel like normal hair loss is not being replaced. I'll never forget that horrible day I let someone pour that horrible Brazilian blowout onto my head. Still very depressed over it. I loved my hair

Sep 28, 2015
Almost 4 Years
by: Anonymous

Its been almost 4 years and my hair still falls out. I lost about 60% and it never returned. It grows but thinner and much slower than before. I still cringe when I have to wash it b/c I still lose so much. Blow drying is still a nightmare. I went into a deep depression for the first 2 years but have now learned to live with it. I still think about it every single day and how it has ruined my life. I am treating it as if I have a disease and have no choice but to accept it and move on. Thankfully, I never went bald. Thankfully, I had enough hair that losing 60% of it wasn't noticeable to anyone. My hair is baby fine now. It used to be thick and coarse. It is as light as a feather and used to be heavy as can be. These changes are only noticeable to me. I wore scalp powder for 3 years but thankfully, my part has filled in slightly. Still sparse but I guess I am just used to it. This is permanent and I am 1000% sure my hair will never be the same. Good luck to everyone.

Sep 24, 2015
Two years plus for me
by: Anonymous

It has been two years and the hair is still falling. I am happy that the scalp pain stopped awhile ago.
My hair is dry, damaged, brittle and thin. My hair is so light. Its really a mess so I always wear it up in a clip. I tried pony's but the thinness and wrapping the elastic around 4x to the size of a dime bothered me too much. I wash 2x a week and the hair loss is about 60-80 plus hairs that I recover from the floor. I would love to buzz it off but just cant. Since I wear it up constantly then washing 2x a week for a total of max 160 is not bad since they say that you can lose that in two days however its the paper thin unruly mess that I can not take. My hair is growing but not as the same texture. My hair is now baby fine and it was NEVER like that. Also the shine is gone. I tried Aphogee 2 step from the recommendation from a lady at Sallys for people who had problems with relaxers, she said it should work on Keratin disasters too and really liked it.. It has tamed my hair however you can only use it every 6 weeks. I have only used it once but I wish I knew about that BEFORE keratin treatments. Bottom line-my hair is still a mess and who knows how long this will be. The keratin has been cut out along time ago and I am still "not my hair". Good luck all!

Sep 23, 2015
Hairloss stop n new growth
by: Suraya

Hi everyone! I'm very happy to share to you all about my success in stopping my hairloss and regrowth new hair. I get my relaxer n hairdye done in march 2014 and it continue to shed like crazy and i lost about 40% of my already thin hair. I tried many things to stop hairloss like minoxidil, hair treatment vitamins and many more but nothing could slow down my shedding until last may I decided to get buzzed haircut. Its very short and almost bald. I started to massage my scalp with castor oil and tea tree oil alternate with vitamin E oil like 3-4 times a week without fail and i can say that it immediately stop my hairloss. Now its already 4 months and I continue to cut my hair short for now because its easy for me to treat my scalp and hair with that thick castor oil. And i am so happy that now i can see so many tiny hair growth all over my head its very thin but i can see that it's slowly filling in. I hope that this may help you guys.

Sep 22, 2015
Almost a year and my hair still falls out
by: Lisa

I had a Brazilian Blowout on October 5 , 2014 . It looked great at first and I did notice more hair loss almost immediately, but I had such thick healthy hair (although frizzy) that I didn't think much of it. About 3 weeks later is when the nightmare started. I was in the shower washing my hair and I looked at my hand and it was completely full of long hair that had come out from the root. This hasn't stopped since then so I am left with very little hair now. It's so thin and I am seeing more and more of my scalp. I am worried it's not going to stop :(. I have a visible patch of bare scalp right above my forehead and it's very hard to hide. I still lose a lot everyday when I comb it very gently or run my fingers through it. I have had every blood and health test available and I am in perfect health. It's just that I had this terrible treatment. I started using rogaine about 2 months ago but haven't noticed much regrowth yet. Since it started happening, I have been taking tons of vitamins (biotin, etc) using all the hairloss prevention products (Nexium) but nothing seems to help. This is really sad and I have been very depressed and can barely look at myself in the mirror anymore. The creator of this product should be locked up. It has been a nightmare for me and it looks like many others have experienced the same thing. I am just wondering what happened to all the people who posted in 2011. Did their hair ever come back. How did they get this to stop?

Sep 19, 2015
My hair story with the Keratin Brazillian Treatment
by: Nika

Okay to Start, I am mixed race so my hair is curly, its between 3b and 3a. I have struggled with managing my curls my whole life and when i heard of the Brazilian treatment I had to try so in December of 2012 I did. Then I did it again in October of 2013. Then not again until September 2015. The last time i did it January 2015, I did it with a new hair dresser. I believe that it was the last treatment that I got that messed up my hair. I found that my drain was full of hair, so was my carpet and my bathroom floor. I couldn't brush my hair unless it was over the sink because of how much hair loss there was. Now my hair looks 50% thinner, especially at the front. My hair is a mess I have cut it, tried millions or treatments and it only seems to be getting thinner and more dry. Please help me find the solution I just need it to grow back. Its been 8 months since the last treatment. Please help!

Sep 18, 2015
Keratin treatment gone bad
by: Debbie

I, too, had a keratin treatment about 3 weeks ago. I was hoping for less frizz and more shine on my platinum blonde, highlighted hair. It turned out horrible. My hair is completely fried in the front around my face and thinner on the sides. I have been using Aveda damage repair shampoo, and conditioner(which I don't rinse out). It helps with the frizz but now I have absolutely no body. Thank God I had just bought some clip-in extensions. Although they aren't comfortable because my hair is so thin and my scalp is tender, I am grateful for them. I have a consultation to have permanent extensions sewn in next week until my hair grows back. I pray it grows back. This treatment may work for some, but not for me. I feel your pain.

Sep 17, 2015
Hair treatment
by: Anonymous

Ladies it have been almost a year since I keratin treatment, now I have cut my hair all up to my ears because all it was looking looking like straw. I am taking biotin and use home-products like and egg protein to shampoo my hair all all natural coconut oil my hair is growing and thickening up and have stop shedding. Sorry ladies but you are going to have to cut all the damage hair out and condition the balance with coconut oil to make it better.
I wish we could sue the FDA for what they have done to us. I use to have pretty curls and only did the proceeds because I want to wear my straight in the heat for work and now my hair is short and regrowing but it will never be the same thickness and curl.

Sep 17, 2015
Keratin Shampoo has quickly ruined my scalp
by: Anonymous

I am a blue-eyed natural blonde with very fair skin. A couple month ago, I asked a young woman how she got her hair so shiny and pretty. Her response was "Keratin shampoo, and taking Biotin". So I bought some Keratin Shampoo & Conditioner, plus Keratin "Hair Shine Spray". I haven't even made it halfway through the bottles of shampoo and conditioner yet (as I use another kind regularly), yet I used the shine spray on my hair almost every day. My scalp has become terribly afflicted, and I haven't been able to figure out why until tonight! "It's like a scab or cut you keep picking - it doesn't have a chance to heal." - The user who wrote this is exactly correct. I have scabs ALL OVER the back of my head/within my hair. Not even using Neosporin has healed these ultra-thick scabs. I CAN'T BELIEVE THE FDA ALLOWS THESE CONSUMER PRODUCTS ON THE MARKET WITHOUT LOUD WARNING LABELS OF POSSIBLY CANCEROUS REACTIONS.

Sep 17, 2015
Yes Anonymous it will grow like I said
by: Parsley Girl here

Before not at the same pace and it will grow thinner than what it use to be...patience and a lot of care with your hair

Sep 17, 2015
Maria and others
by: Missy

Maria, so sorry to hear about your scalp. Oh, mine for sure is aggravated again after the monoxidil. I used a shampoo that totally bothered me because my scalp was sensitive because just a few weeks prior it didn't bother me. I heard 5% produces more issues than the 2%. I have to look but I think mine had 2%. But it's the other ingredients- which lead to my thought- if monoxodil doesn't work, does anything else grow hair? If you can't use monoxodil, are you screwed? I'm feeling really discouraged about that. I just don't know that's it worth it for me to spend a day driving down to the hair dr again if there's nothing else that's going to grow hair. He's not going to be able to do anything else for me, assuming it's not the brand, etc. Maria, I do the coconut oil on scalp, I use the shampoo from Vitamin Shoppe which is the one that's collagen, aloe, Biotin H24. Calms my scalp. Nothing fragrance for sensitivity. I spend a fortune for color with foil so it's not not on my scalp. I think I see more shedding since that aggravation of the scalp. Good luck, hun.

Sep 17, 2015
Will it grow back?
by: Sandra

From my experience and reading the experience of others both on this forum and other places: yes, there is a possibility that it will grow back although maybe not as thick as it used to be. The bald patch on top of my head and wide centre parting that I had a year ago has filled in with hairs during the course of the year although it is not as thick as it used to be. I had all over hair loss as well as the bald patch and not all of it has returned but others have spoken of hair returning after more than a year so I live in hope. There are of course others that have not had any hair regrowth so it's difficult to say for sure. It seems that the treatment affects everyone in different ways, some having bald patches , some all over hair loss, some having pain, others not etc with one common factor being hair loss. Please let us know how you get on and good luck.

Sep 17, 2015
Bald spots
by: Anonymous

CAN someone please tell me if my hair will grow back!!??

Sep 14, 2015
Yes Low tyroid I feel your pain.
by: Parsley girl here

And wait it will keep falling,but it will grow back but not the way it was before my advice is take all the hair off is contaminated. Some girls here don't like that suggestion but I'm telling you it work wen I first cut all my hair with the machine like they do in the army I had 9 big bald spots all over my head it was not pretty before the kkt I didn't had dandruff images that a bald head full of dandruff well I started using Folicure but not the shampoo or the conditioner is a liquid that you put on your scalp after you wash your hair and you live it in and now I only have one little bald spot on the back of my head, yes I cut my hair again this time with number 4 because I look like a crazy sheep it was 4 inches long but I wanted to see how my scalp was doing, and it's doing better I wash my head every 2 days with a detox shampoo its call herbal essences naturals wild detoxifying shampoo deeply clean with Thai lemons basil it works for me not everyone is the same so this is going to be a proses of learning what works for you and everyone reading this.

My wedding is in December I already have my wig that I had to costumise to my head and to my liking that was a lot of work hahaha well I wish everyone here the best. Don't forget to drink vitamins for the hair specially biotin is really good for people with thyroid problems oh by the way my hair was shedding when it was 4 inches long. I think this is going to be the never ending story wen my hair gets longer thanks to the stupid kkt. God bless each and everyone and give us strength to get pass this problem that we all have in common take care everyone.

Sep 14, 2015
Low thyroid
by: Anonymous

Sorry I should clarify it was a keratin treatment.
It looked straight but stringy when she was done and she kept telling me that the treatment would make my hair like "spun silk"
But after I slept on it it was bent at right angles and linked and awful.
She blamed my thyroid.
Then it got really dry like straw.

Now it it is falling out by the root - at the follicle.
I have bald spots.
Showering is the worst part of my day.
Hair everywhere.

Sep 14, 2015
FF Blowout or Thyroid?
by: Anonymous

I don't know if it's my low thyroid or the supposedly Formaldehyde free Brazilian blowout that I had a few months ago (for the first and last time) but I lost a tremendous amount of hair. My part is thicker and I have bald spots.
It's awful.

After the BB treatment my hair was all bent and pointy and it ended up like straw. Now it is just falling out.


Sep 11, 2015
to Missy
by: Maria

Missy,do you have any update on your scalp? I have recently so much scalp pain,I could cry.I don't know what happened,it was all calm for couple of month but now... :( At least I am not shedding again.Hair keeps growing but I am so scared it will start falling out again.Since you mentioned that minoxidil irritated your scalp,I start to wonder if my scalp could hurt from that as well even though I cannot imagine why it wouldn't do that before.I use this one for 6 month now.I am thinking of switching to my old 2%minoxidil which I used for years but again,too scared that I will start shedding from lower potency minoxidil.I can't think of anything else.I cut my hair really short,about 4cm.I've never looked this ugly in my life.No bald just ugly :((

Sep 05, 2015
In answer to your questions
by: DB to mh

Hi MH
I started wearing wigs probably 2 or 3 months after my second treatment my hair did grow back very slowly but kept breaking and falling out it use to just come right out of my scalp with little touching it's still very sparse and I use organic and very mild products to style it. I am 61 and blow dry my hair on low setting every other day I still notice people looking at my scalp.my only saving grace is that when I wear it curly it's not as noticeable. .

Sep 05, 2015
To DB
by: MH

Hi DB

God 5 years that is just horrific. Can I ask you some further questions if you don't mind?

1. How many months/years after the second treatment did you have to shave your head/start wearing wigs?
2. So you currently blow dry your hair?
3. How much re growth would you say you've had?
4. What is your age range?
5. How kind do you keep your hair now?
6. Do other people still notice your hair loss/parting?

Thanks vet much. I'm coming up to a year in a couple of weeks and have lost so much hair and have severe dermatitis over my entire scalp which no steroid has been able to help. Luckily I do not have grey hair yet so don't have to deal with the nightmare of colouring it. But I cannot blow dry it now it is so thin.

Sep 04, 2015
to Brittany
by: Anonymous

I used HLCC products for about a year or so. I posted on here a long time ago about the vitamins. I ordered the products after reading the same post on the long hair care website. I do believe that the vitamins slowed down the shedding. I still lost a lot of hair but I think the DHT blockers helped compared to when I didn't take them. They are quite pricey. I think they are 99.00 per bottle plus shipping. I even drove two hours to a tricologist (spelling?) who swore by the entire HLCC line of hair care. So I used the shampoo and conditioner along with the scalp cleanser and maximum hair growth serum. I think it helped. I got pregnant and I'm nursing so I've stopped taking the vitamins for now. I use a hair tonic made from sea buckthorn..stinging nettle...burdock root and fenugreek. Once I wean my son I'm going to start taking the vitamins again. I also believed they worked becuz I got lazy and stopped using all the products. Now thinking back...I got lazy because my hair shedding had slowed down and I got comfortable.
My hair thickened up during pregnancy but around the 5th or 6th month post partum it started coming out in handfuls. It's been about 3 and half years since my one time keratin treatment. I used the Global system and I think it was an extra strong formula for hard to manage hair. And like a fool I let a hairdresser apply this on top of having a relaxer. I was told it was a conditioning treatment. I didn't do any research and I regret it!
I've lost about 40 percent of my hair. I am thankful that I started out with a lot of hair. My strands are still straw like. My hair is def not the same texture. It feels like plastic. My roots feel softer but my hair texture is weird. It feels rough and it tangles easily. I've cut about 4 inches off and that has helped the appearance.

Sep 04, 2015
Still losing
by: Db

It has been at least 5 years since I had my 2nd keratin treatment the first using Coppola the 2nd using pravana after the 2nd treatment almost immediately after my scalp was on fire tight then numb I followed the same routine most of you I went to derma. I even had MRI people thought I had a tumor with the way my hair was falling out.I tried everything creams,special shampoo vitamins nothing helped I eventually cut whatever. Wadley on my head and purchased 2 cheap wigs then 2 professional ones I woreally them for about 1 yr as my hair started to grow I used organic hair dye to cover the gray everything I used irritated my scalp I cried for a good 2yrs now my hair still falls out very easily breaks off easily and it's so frizzy no matter what I use sorry to say ladies my hair has never gone back to the way it was prior.my scalp is still very noticeable as is my wide part I regret my decision to have keratin

Sep 04, 2015
Forum/HLCC Hair Recovery/ Questions
by: Brittany

I found a forum online with a woman who had regrowth from a bad keratin treatment. She mentioned that she used the HLCC's DHT inhabiting products. I am considering purchasing some of their products since I am also having excessive hair loss from a global keratin treatment done in May 2015.

Has anyone had any success or failures from using their products?

Here is the link to the recovery story. https://longhaircareforum.com/threads/how-i-finally-recovered-from-the-keratin-hair-loss.690423/

Sep 03, 2015
Some comments and questions
by: Sandra

Losing hair after my Brazilian hair straightening was horrendous! It has been painful and scary and shocking! My hope is that this forum will alert others to this fact and protect them from the pain that I have been through. To minimise this in any way is hurtful. You cannot say the hair will grow back as some people on this forum say that there's hasn't, you cannot say that you will not go bald as some people on this forum are almost at that stage. We have a responsibility to others to share our stories, without giving false promises or inaccurate information. I am so sorry for all of you that are going through this (as am I) and I don't have any answers but I so, so appreciate all of you that share the things that they have tried and that offer support on this forum. Anonymous, that has had so much hair loss after three years.. Did the product used on you have lots of formaldehyde or do you think it was the keratin that caused this? In my case, there was lots of formaldehyde. After a year my curl has returned but is still not what it used to be. I have read that the more formaldehyde used, the longer the hair stays straight. I really hope that you get some re growth. I have read that, for some people on this forum it suddenly just starts re growing so I hope that will happen to you. MH, you're in England like me and I wondered if you knew what product was used on you or where it came from. Was it a high formaldehyde product as I have been researching and I think they are illegal in England. Did you contact Trading standards or Environmental Health? And finally, MG , I know you've been contributing to this forum for a long time... I am so pleased that your hair loss seems to have reduced and I so, so hope that this has continued for you. Please do update us.

Sep 03, 2015
Mh
by: Anonymous

My scalp. I can see through to my scalp. It's been 3 years.

Sep 03, 2015
To anonymous
by: MH

Anonymous, how long ago did you get your treatment. I think I am very close to having to purchase a wig. When you say see through do you mean to your scalp or that your hair end are just so thin that it is very happy?

Sep 03, 2015
To YD
by: Anonymous

YD, you just proven the effect of Keratin just by saying you never got your curls back after 4 years! That is not how it suppose to work!! There are women who like to go straight but not in expense of loosing their natural curls to a misshaped retarded looking wavy hair. And yes, there are many who thought like you and went for second and even third treatments. Some were lucky but some went partially bald. So... go ahead and play the Russian roulette but please don't try to convince others that it is worth playing this game.

Sep 02, 2015
To YD please don't get another keratin
by: Helen

It will make your hair fall out it is just a matter of time I dint believe it until my hair started falling of know is growing but not at the same pace an now I have dandruff it is a nightmare my hair is not the same.

Sep 02, 2015
To the person below
by: Anonymous

This is by far the most ridiculous post. My hair is 90% gone and see through all over now. There are women on here in wigs! You want to get another one? Maybe you should start reading about the chemicals are that are in. You wrote that like you think people don't know what's happening to there own hair. If you get another one after reading these comments, I pray you lose all of you hair

Sep 02, 2015
Keratin Treatment lasted 4 years
by: yd

I got the Keratin treatment in 2011 and you can still see the effects of the treatment on my hair. My hair was super curly, I do remember losing a bit more hair than normal but I lost a lot of hair to begin with. for me it wasn't a problem because i had an enormous amount of thick hair, so losing some hair actually made my hair look better. My hair is now wavy, it will never go back to the spring board curls i had before and I am glad about it. My hair can still curl with product but not to the intensity it had before. I am planning to get the keratin done again because the effect has worn off a bit. I know people say it's only suppose to last months but in my case it lasted 4 years. I wouldn't worry about the hair falling out that is normal for this treatment, it will grow back and it won't get to the point where you get bald. I lose a big hair ball of hair when I shower and when I Iron my hair but I believe I still have a huge amount of thick hair.

-Hope this helps

Aug 24, 2015
One more thing
by: JP

If you are going to try the scalpicin be sure to get the one with hydrocortisone. There is also one with salicylic acid - I have not tried that one.

Aug 24, 2015
It's all because of inflammation
by: JP

I had posted here back in January or February and at that time reported that my hair loss was getting better. But not long after that the hair loss returned (about 100-150 hairs/day). It has remained about that since then. I have not been to a derm (probably should have much sooner) - but did recently make an appt. for mid Oct ( long waits!). However a week and 1/2 ago I have started trying selsun blue shampoo and scalpicin. My hair is sooooo much better already. I can't believe it. Here's my routine: every morning I take Claritin antihistamine and biotin. At night I wash my hair with Selsun Blue shampoo, condition with Neutrogena triple moisture conditioner ( don't rub into scalp). After towel drying hair I apply scalpicin rubbing evenly into scalp, then apply Paul Mitchell leave in conditioner to ends of hair. I am losing maybe 50 hairs per day, not falling all day etc. I rinse my hair with cool to cold water. The scalpicin and antihistamine are fighting the inflammation so I am convinced that is what is causing the hair loss. I plan to continue this 6 days a week (taking a day off each week) thru the end of September. We'll see if it keeps doing well. My BB was 15 mos ago - so I am sure time has helped too - but these things are making a big difference! Good luck :)

Aug 24, 2015
11 months and still going strong
by: MH

Hi All

11 months today this hell started and I just can't believe how bad it has become. I have just got out the shower and lost may 2/300 hairs! I'm pretty sure my hair loss has picked up.

I am now down to 40% of my original hair and using hair filler spray everyday. Most my hair at the front has gone, when I get out the shower I just see scalp which is devastating.

I cut it short 3 weeks ago, thinking losing another 5 inches would improve it. It has made zero difference.

I caved and went to see a dorm knowing that few have ever had a satisfying dorm explanation on here. she gave me clobetasol scalp application as my scalp is still incredibly inflamed and said she thinks it is scarring alopecia. That has devastated me. I keep hoping she is wrong.

My hair loss I s now noticeable to friends, who say it is still normal but now admit it is not the mane they were all jealous of a year ago.

I am now having to google wigs, to those years in, is your hair loss noticeable? I feel like if I have another year I will have no hair left, there is just so little.

I can't believe at 24 I am having to deal with this, my life is ruined. I just don't do anything anymore and live in a lonely bubble doing nothing at weekends.

Aug 11, 2015
Maria, thank you
by: Missy

Thanks for looking, Maria. I have to call the dr, but I heard that. That's why I was thinking maybe the foam because it wouldn't have alcohol and propylene in the base. I don't know. I'll call the dr's office to see. Also, this is a question for any of you using the minoxidil or rogaine. As a practical matter, doesn't it have to get at least rinsed off the next day? So that means never being able to blowdry your hair straight because the next day you have to rinse it? I've been my natural curly and not blowing it, but I'm just thinking if my scalp ever gets better, I'd blowdry and wonder how that works. thanks again and wishing everyone the best

Aug 10, 2015
To Missy
by: Maria

Hi Missy,
I checked in Neocapil and Balohair (both minoxidil solutions I used in my life) and both have exactly same ingredients,ethanol and 96% prophylene glycol.Other than that just destilled water.How strange because one is greasy and other feels like pure alcohol.Both worked for me the same.5% is meant to be used by men only for obvious reason.I shave and wax non stop :( But I remember having similar reaction to 2% solution years ago.It subsides after a while.I hope your scalp will calm down in a while because minoxidil really does what it promises including shedding when you stop.Try some khadi oils to calm your scalp and aloe vera straight from the plant.That stopped the burning instantly for me.I wish there was a way I could help you.Feels kind of bad to have progress and seeing other people here with very little improvement at all. This was a life lesson for us all :( Take care.M

Aug 09, 2015
To Maria
by: Missy

Thanks for the info. I actually am using the version made by my hair dr's compounding lab, which is monoxidil with a little of a milder version if clobex, which they say is there because many shed from the monoxidil. It's 2%. I'm going to call them to ask what's in there specifically, and if guess try another type of the m. I hear it's propylene glycol that many have problems with and one other agent. I also guess I can try foam and see if that's any better I guess in Rogaine. Very discouraging because I have to do something but on the other hand this scalp irritation makes it impossible to color hair

Aug 09, 2015
To Missy
by: Maria

Hi Missy

Don't you have different brand of minoxidil you can switch to? We have here 3 brands that I know of and they all have different ingredients judging by consistency.I am actually going to swap soon from 5% solutin to 2% because hair is growing....everywhere :/

Aug 01, 2015
To anonymous
by: Missy

Yes, anonymous. I used clobex for 3 weeks after the keratin burn & it absolutely slowed the shedding. Good luck

Aug 01, 2015
To Missy
by: Anonymous

Missy - sorry to hear that. I have not tried minoxidil. I want to ask you if you thought the clobestrol helped stop your shedding? After using it how much would you still say you shed each day? Thanks

Aug 01, 2015
minoxidil burns
by: Missy

Using minoxidil about a month and finally I can't take the burn on my scalp any longer. I'm beyond pissed that minoxidil has inflamed everywhere I put it after I spent so much time getting my scalp calmed down. They say many can't take the propylene glycol. Mine is liquid and Dr. from whom I get it is a hair specialist. They add a little bit of a steroid since apparently minoxidil makes you shed initially so it keeps the shedding down. So now there's no way for me to use that any longer.

Jul 24, 2015
....
by: Anonymous

I wouldn't lose hope though. A lot of people had there hair grow back. I think it all depends on how much the hair dresser put in your hair and the product they used. A few people on here probably had this treatment done horribly wrong like myself and it just happened to already have an extreme amount of formaldehyde in it.

Jul 24, 2015
Sadly it has not stopped
by: Anonymous

After 3 years I no longer lose chunks but the 60-100 I lose a day is not being replaced. I honestly think by now my hair is living put it's normal life cycle then dying. My hair is now see through when down. Like I can see through to the sides.

Jul 23, 2015
To those losing for 3 years +
by: Anonymous

For those who say you have been losing hair due to BB for 3 years or more can you tell us what your hair looks like now? It would seem after 3 years you would have barely any hair left - unless your hair is also growing in. After 3 years maybe your hair loss/growth has stabilized to a point where it will remain the same.

Jul 23, 2015
Anyone with any luck?
by: Anonymous

3 years and still no luck for me. I really don't want to wear a wig.

Jul 15, 2015
To MG
by: Anonymous

So glad to hear things are improving for you - you have been dealing with this for so long. I just had a couple questions: how many times per week do you shampoo and do you use the Tsal every time? What kind of conditioner are you using? Also, how long after you started using Tsal did you notice improvement? Thanks and I really hope improvement continues for you. Please keep us updated.

Jul 14, 2015
Update
by: Maria

Hi all, what a heartbreak to read all those new stories and posts with no improvement so far. Keep strong,this gets better in time. I know,easy for me to say,I om on the recovery road and improving. But everything comes at price.I put 5% minoxidil in my hair morning and evening.My hair grows.Hairline moved forward and new hair on my forehead are now about 3 cm long.Where my bald patch was and it was about 13cm v 5cm big,I have now over 4cm long spiky hair.Density nowhere near what I used to have but I am thankful for any progress.With overhead lighting you can still see my scalp shining through.I made my peace with a fact this may never go back to normal but it might look descent in 2 years time.Lengths of my hair are getting thinner as I still loose a lot but by now it's only about twice of average daily loss.Lengths of my hair is orange and fried despite putting hair mask on every second day.They are just dead.I plan on cutting my hair completely short very soon but I am worried with short hair all thin patches will be on display.On the other hand,after 4 month I cannot stand to look at this straw on my head.As a side effect of minoxidil I am growing more hair on my legs,arms and on my face (thin peach hair but a lot) so I vax non stop as I plan to keep on 5% minoxidil for further 2-3 month.I know once I go down to 2% solution the hairiness will slow down but so will the hair growth.Here is a tip what helped me most with that painful scalp: aloe vera rubbed in straight from the leaf, panthenol spray (yes the one for burns) sprayed all over my scalp and kept for 2 hours prior to wash. I wish all of you lots of new healthy hair and no more heart ache. I must say being extremely busy helps my mental state,no time to think about it,wearing hat now for 4 month.

Jul 11, 2015
TSAL
by: MG

I forgot to mention that I only apply the shampoo to the scalp as the main ingredient is salisic acid which will dry your hair. I prime my hair with coconut oil before I wash it and use a super moisturizing conditioner.

Jul 11, 2015
TSAL
by: MG

Hi,
I have been using TSAL shampoo from Neutrogena for the past month and the condition of my scalp has improved. I feel like my scalp is less inflamed, less buildup and less hair loss. I have suffered extreme hair loss from a Brazilian Blowout for three years. I was brushing almost two hundred hairs when I washed and lately it has been about 60. I know it is a lot still but for me it is a big improvement. I dont dread washing my hair anymore. Also, I dont drop hairs all day long and when I dry brush I lose about 10 to 15 hairs as opposed to 50 to 100. I am also able to wear clips again because before even the lightest hair accessory would make my scalp hurt. I dont want to jinx it but I wanted to share my improvement.

I think that you need to find something to help with the pain and burning and inflammation. Someone posted somewhere else that Scalpicin Extra Strengh and Selsun blue worked. I think that anything that keeps inflammation down is the key to use.

Jul 11, 2015
Response
by: Sandra

I'm trying to think of what advice to give you and I really don't know but I'm answering you as I know the pain I was in when I first found this forum and I just want you to know that there is someone here! I'm just wondering if maybe it's not cream on your scalp but perhaps it is the skin on your scalp that is reacting and feels as though it is cream that is stuck to your scalp.... If I were in your shoes I would see a doctor sooner rather than later so that they can see what they think is on your scalp. Maybe it will flake off by itself - I had some large flakes for a while. I wish you luck with this and hope that it begins to feel better soon...

Jul 11, 2015
Cream sticks to my scalp
by: Golden Sunshine

I have thin straight hair, but highlighted for several times so it had split ends and my hairdresser recommended a botox treatment, but i believe she did for me a keratin treatment not botox because she used the same product to another customer with frizzy hair and told her its keratin. After the treatment my hair had better ends but i felt clumps of dried cream sticking on my scalp and it's painful. I tried to remove but i couldn't, i had blood on my fingers. I tried to soak my head and to remove them with shampoo but useless. Now im afraid its inflamed as i feel its swollen and more painful. What should I do?

Jul 09, 2015
Don't take Propecia!
by: Anonymous

I've been reading through the comments since I've done keratin treatment for my hair around 4 to 5 times in a year for two years and then twice last year. My hair is thinner but I am not sure if it is because of male pattern baldness or because of Brazilian blowout or both. My center parting is just thin and you can see the scalp through the thing hair where it was really thick before. Under the strong light it really looks bad. Seeing how some people here got scarred just from one keratin treatment I consider myself lucky because I've had more than 10!

Anyway when I've noticed my hair getting thinner I've started using Rogaine, Ketoconazole shampoo, biotin, vitamin B, zinc and even went to mesohair treatment where they roll your scalp with a dermaroller and inject vitamins and hair boosters into your scalp but nothing helped thickened my hair.
I've become desperate and seriously started considering taking Propecia but then found all these young men complaining how Propecia killed their libido, erectile dysfunction, made them permanently impotent, depressed, gave them brain fog. I thought all of those stories were fabricated but then I've met a guy who had the side effects from Propecia first hand and he told me about propeciahelp.com website where there's thousands of men post on the forums who have been damaged by this drug. It doesn't happen to everyone, but nobody knows who can get these irreversible side effects from Propecia and like I've said if it hits you, they are permanent, messes up your hormonal system really bad. Some report they never regained their libido or overcame erectile dysfunction. There were even reported suicides from people who have taken this drug and haven't recovered. Please, inform yourself before deciding to take Propecia. Just google Propecia side effects. Hair is not worth your life. I am fanatical about my once glorious long hair and I am a guy so it devastates me to have really thin, short hair and a comb over but I would never trade my health and sex life for aesthetics. I would rather to for the hair system than risk my life like that.

Jul 01, 2015
My theory
by: Anonymous

I had 1 keratin treatment just over a year ago. I would estimate I still lose 100+ hairs per day. It has improved since its worst - but is still way too much! My hair doesn't look terrible - but visibly thinner to me, especially front hairline. I see some new growth but not a lot. I do not believe any of us have telogen effluvium - that is caused by some sort of internal shock (stress, etc) We are losing hair due to a chemical reaction/poisoning on our scalps. And I believe the more chemicals we put on our scalps - the longer it will continue(I also think that the initial amount of damage done determines how long it will take to get better). It's like a scab or cut you keep picking - it doesn't have a chance to heal. Within the last month I have decided to use only Free and Clear (very little chemicals) shampoo, conditioner and gel. I have to color my hair and have cut down from every month to every other with demi- permanent. I don't blowdry (never really did anyway). I am taking biotin and multi-vitamin everyday. I am also starting weekly coconut/tea tree oil treatments to condition my hair and scalp, I have never been allergic to anything but I think this treatment has caused a significant chemical sensitivity to my scalp. I will update in few months with progress - promise!

Jun 17, 2015
Extreme hair loss
by: Teri

Every since receiving my Keratin hair treatment I am experiencing extreme hair loss. It is frightening but I intend on doing something about maybe even legal action.

Jun 17, 2015
I use Folicure
by: Helen

And it works the box is $ 20 dollars and you can buy it online I haven't try the shampoo or the conditioner but the ampolla works it's made of the same components of human hair research it online good luck girls...

Jun 17, 2015
Upps sorry the lace wig comment it's for Nina
by: Helen

Don't give up HM you are junge and I think your on the rite path for your hair to grow it takes time take care....

Jun 17, 2015
My real name is Helen yes that's a wierd name for a Dominican lady
by: Parsley girl here

Thanks Sandra and Maria and all the girls here I look like a crazy sheep with my hair, I'm going to embrace my curly hair and take better care and be thankful for what God gave me. Sandra I was looking on the news that were talking about the Bb and they warn people not to use that stuff but in my case i dint know about that report until it was too late and no it's no regulations for beauty products or hair products for what I heard and read here in the USA and if there is not to many people know about it. For the 24 year old lady be careful with those wigs and the tape of glue that is going to be use on your scalp you want to let your scalp breathe unless you are going the shave your head and don't care about your hair anymore, those wigs sound expensive i never tried them before. I use a regular wig because I don't think I can sleep with a wig on my head. Well don't give up girls and try to find what works for you. God bless

Jun 16, 2015
Update and message to MH
by: Sandra

Gosh, it's so painful reading all of this, although very happy for Maria and Parsley girl! I'm hoping the hair in bald patches will
grow thicker for you Parsley girl .. Is there anyone that has tried to take this further to get these products banned? When this first happened to me I found the blog of a lady in Canada who had gone to the newspapers and was interviewed on television, attempting to ban these products in Canada. Has anyone done this in USA? In the UK I found newspaper articles in a national newspaper (Daily Mail) documenting possible hair loss but hairdressers are still using it and trichologists and dermatologists seem unaware of it. What is going on ?!! I'm so frustrated ! Does nobody regulate hairdressers ?
MH - I am so sorry to hear that you are still suffering so much. It's unbearable to think that whilst I suffer, the hairdresser responsible still has the sign in his window making money out of this! I don't care if he's done lots of these Brazilian hair straightenings and I'm the only one to have suffered (so he told me). One person is too many ! This is an unacceptable side effect and one that we should have been made aware of ..
It's been a year for me now so I'm going to update.. Hair product used very strong, lots of formaldehyde, burnt my eyes and throat. Hair very straight and silky for a long time. Maybe lots of keratin used .. Who knows? It has lasted in hair for months. Even now, a year later the curl hasn't completely returned to my hair although it's no longer straight and silky. First week, bald patch along middle parting at top of my head. Maybe the product was dripped onto the scalp in this area? Bald patch got progressively wider along the hair line. No other bald patches or general hair loss at this stage. Itching and a bit of dandruff. Within 2 to 3 months I noticed massive hair loss that continued for several months (about 8 months) leaving hair much thinner. Hairs covered my pillow in the morning- I was so traumatized by this. Scalp visible when in a pony tail, pony tail visibly thinner. Used Aveda hair loss products initially and then used Jason's natural tea tree oil shampoo and conditioner as recommended by someone on here. I have also used Malibu Undoo goo shampoo as recommended by a hairdresser in Florida. Hair grew back along the middle parting almost immediately and has continued to grow. At first , spikey like yours Maria but as it gets longer it blends in with the rest of the hair although makes it look fluffy on top. Excessive hair loss appears to have stopped. Praying it never returns ..I feel sick if I see any hairs on pillow.. Regrowth on top, so no bald patch anymore but still very little all over regrowth so hair is much thinner than it used to be. In conclusion, after a year of hell, I'm left with hair that is much thinner than it used to be: my parting kinda goes down the back of my head whereas I used to have a lot of body on crown area, no visible bald patches but just thin hair when it used to be thick. I will keep posting as I know it's so nice to hear from people after years.. MH, I really hope that yours will suddenly stop falling.. I also read that formaldehyde exposure can make you sensitive to other chemicals afterwards, developing allergies where you didn't once have them. I have tried to stay as natural as I can with all products these days ...


Jun 16, 2015
Try vinegar wash
by: Anonymous

Apple Cider Vinegar rinse worked for me. Actually a miracle immediately. I am older than most here, but had the BB treatment and for 4 yrs a night mare. Been using the rinse twice a week, and maybe, 3 strands come out instead of the 11 or 12 every time I ran my fingers through my hair. Yes it's smells. I but the vinegar in shampoo leave it in for a while then condition regularly. When I have no plans i use it in conditioner also.

Jun 15, 2015
MH pls go chemical free
by: Anonymous

I HATE to read all these comments about hairloss. I really do. I'm still losing hair 3 years later after just 1 keratin treatment. Here's my 2 cents...please please please leave the chemicals alone for awhile. Your system needs a break.
Try to go natural. It won't completely stop hairloss but it will ease your scalp issues. Try herbal tea rinses. Or pure oil treatments that are infused with soothing essential oils. Lavender. Tea Tree. Sea Buckthorn. Coconut oil. Garlic. Fenugreek. Stinging Nettles. Black tea. Peppermint Tea. Clary Sage. And the list goes on...
Steriods do calm the scalp but our bodies are already full of toxins and we need to cleanse. I'm not knocking prescriptions by any means because if they work for you then yay! But if they aren't working then it may be time to detox your systems and try some holistic treatments.
My scalp was tight and itching and aching all day. I started doing tea rinses and it immediately calmed my scalp..my hair is dry as a bone. It's brittle and feels like straw but I use marshmallow root to soften it and I also sleep in olive oil mixed with conditioners. I had a temporary win...my hair stopped shedding when I was pregnant but now it's back shedding like crazy.
My heart goes out to everyone. It's not fair. It's insane to be losing this much hair for so long and these "experts" can't help us.
Anyone out there who has had success please chime in...we really need to hear something!

Jun 15, 2015
Thinking of you MH
by: Anonymous

MH - I am so sorry to hear you're not improving. Have you seen an allergist? It sounds as though you are maybe having an allergic reaction to your shampoo on a continuous basis, in addition to the original reaction you had to the keratin treatment. I have read that it is possible to become chemically sensitive after one exposure to something. Stay strong !!

Jun 15, 2015
Sorry to hear MH
by: Missy

Sorry to hear. The clobex foam is best because it doesn't have the high alcohol content that the liquid has. The liquid is good though. I had to settle because my insurance didn't pay for it. That liquid is loaded with alcohol and dried my hair. But the clobex helps calm everything done. Can only use for 3 weeks. I don't like the shampoo because you don't want that steroid in your eyes and ears, good luck

Jun 15, 2015
Getting worse....
by: MH

Hi everyone,

Thought I'd give another update - it has been a bit quiet on here lately. Congrats to everyone growing new hair - I would be lying if I said I wasn't jealous, but I am really pleased for you!

My hair loss is getting worse and worse and my scalp is showing everywhere. I took some photos of my scalp and back of head and nearly had a panic attack - ignorance really is bliss. My hairless is now very visible. I can't believe I'm 24 and obviously balding.

The thing that is really upsetting though is that my scalp is just getting worse and NOTHING eases the pain, itchiness and dandruff. I've had it severely for the last 9 months since day 2 but the last 3 months it is really bad. I apply steroid cream, only wash with Nizoral and conditional - I haven't even blow-dried in 7 months - not once! And my scalp and hair loss is just accelerating!

My hair has also lost any remaining shine and texture and is totally snapped and dry all over, it is also flat as a pancake. I have NO regrowth and my hair is paper thin.

I think I may have to cut off all my hair... I know people say it can go on for many more months but I just won't be able to go out.... I have bald spots and see-through hair and I'm 24. It has ruined my life, I barely go out, have awful hair in a top corporate job and have no idea how to remedy it.


Also - any suggestions on another steroid shampoo? The UK does not have access to Clobetasol Shampoo only cream....and to top that Clobetasol is having an EU shortage os no idea what else to try.

Jun 15, 2015
Anyone here know about Full lace wigs?
by: Nina

Hi everyone, my hair is getting worse i'm getting tired of it so i'm thinking of just shave my hair and wear a full lace wig. Has anyone here wearing them? Its very different from traditional wig as you can shower with it , sleep with it and do your activities without worrying that it will fall off as you can chose a cap construction that you can bond the lace at your perimeter of your hairline and it can stays for month without removing it. Its look so real and undetectable . Take a look at this review i view many positive comments about this company they selling very nice full lace wig.

https://m.youtube.com/watch?v=_YE2mU7vYVM

Jun 08, 2015
Getting better
by: Maria

Hi all,
First of all I would like to congratulate parsley girl to her new hair growth.They will get stronger the longer they get.Important thing is, they are there!
I can report a lot of hair growth all over my head. Very visible. My hair line is filling in and where I had large bald spot (where I used to part my hair) is now 2 and half cm long chunks of hair standing up.Very punk style :) But I know when it gets longer, it will lay flat.They are thin but I think they will get thicker the longer they get. I know I owe it to minoxidil and I use way more than I should. I mean mote sprays per application but still applying only twice a day. I still also use hialuronic acid liquid twice a day, every day. Basic vitamins and sulfate garlic shampoo as it needs proper wash after all that every second day. My fried and dead hair is still dead. No matter how much treatment I put in it, it's like a straw. It's been 11 weeks this Sunday and progress is good.As for shedding, it's day 5 today of loosing significantly less hair. But don't take me wrong, I still loose a lot. I just have hope now that in two month or so I might be able to cut my hair short and get rid of all visible damage. This is off course if my hair won't start shedding more again and if all my bald patches fill in as it is much easier to cover up thinning long hair than short. Well I will keep you posted but all that energy and scalp massaging while putting products in is paying off. Using hair oils and masks over night on the other hand is not doing much so I try to think that at least I condition the new hair. To sum it up, medicaments are working, cosmetics are not. Lots of luck to you all and don't give up!

Jun 06, 2015
We'll
by: Parsley girl reporting

I have good news and bad news the good first since I cut my hair I'm seeing less hairs falling out my hair is growing on my bald spots but here comes the bad one is growing thinner and slower than the est of the hair I also notice that my white hairs on the bald spot dint got affected they still grow thick and strong that's wierd we'll I did stop taking vitamins and everything else that I was doing so my hair is now growing slower i guess I will start everything back I'm wondering whys going to happen when my hair grows to my shoulders if is going to keep falling I feel that we still have hope that we are going to find a remedy for this problem stay strong we are in this together........

May 30, 2015
keratin straightening horrors
by: Anastasia

Hi! I'm from Russia, as well as you faced with the problem of hair loss after applying Brazilian keratin straightening composition from Inoar company. Made 3 times, the last in August 2014 and as a result, hair loss can not be stopped for almost a year. There were receding hairline, hair falls out evenly throughout the head, but on the sides and top of the head effected most. My hair always been my pride, curly, very beautiful, and now there is only a quarter of I had left. What will happen next is terrible to imagine. Conducted examination by trichologist, dermatologist, endocrinologist, neurologist and everything is normal. The only reason left for such hair loss is this chemical! Hair fall is long and thin with short roots. The scalp became necessary to wash because of oiliness every second days, and 1 soap every 3-4 days. I feel itchy. Considering that the action of keratin in the hair gone, they supposed to go back to original texture, but the hair is like straw (((. At the moment, I do hair mesotherapy cocktail F-HAIR, I drink tablets of iron and zinc, changed sulphate free shampoo to a regular sulphate. I pray to God that it will produce some results, and stop Baldness!!! My hair has always been very thick and dense and now all remains is dry straws and balding problem areas with translucent scalp and thinning hair. I am in a panic. Here in Russia there is a continuous advertising of "miracle treatments" and there is no information about this terrible product. Research before you do this straightening. I went to foreign sites (((Everyone confronted with this horror. I wish you luck, not give up and believe in victory over this chemical!!!

May 29, 2015
To anonymous
by: MG

You sound just like my case. Mine will be three years in September. I used to have black, abundant and thick hair. I miss it so much. I have lost over 60% of my hair and on top of it I have tons of gray hair. Most of the loss is only right side which where I would say I have about 30% left. My bangs cover most of the almost bare spots. I had to say good bye to pony tails because it shows the loss; I can only wear my hair down. Now I take the chance and color it every 3 months because gray hair makes me afraid of my reflection in the mirror. I have it done with aluminum foil so it doesn't touch the scalp.

I stopped paying attention to my hair falling out (even though it does a lot). I wash at the gym instead of at home and just don't look at the floor and run away as soon as I am done blow-drying my hair. It was hard for me to get to this emotional state as I was a wreck for two years. My hair textile is cotton candy now. They should ban products with formaldehyde.

May 29, 2015
3 years...
by: Anonymous

Anyone over 3 years with any luck?? I've gotten 2 scalp biopsies that come back tele effluvium. Which is now obviously chronic. I just have this feeling that doctors have no idea what it did to our follicles. I'm 29 and extremely depressed over this and ruined a 8 year relationship. I can not stand to lose anymore hair. I do know the hairdresser did it extremely wrong and used wayyyy to much of the product and sadly the product contained more than 10% formaldehyde... I had hair down to my butt and it was so thick. I miss it very much. Hair loss for women should be taken more seriously because it does totally can make a girl feel horrible. If anyone recovered please post?? My original texture never ever came back either. Kinda has a reddish tint?

May 27, 2015
Good luck Laurie!
by: Sandra

I'm sorry that you had to join an ever increasing number of us that have suffered hair loss as a result of having a hair straightening /keratin treatment. You may have a long road ahead of you but hopefully you have read on this forum that many people do have hair that grows back so do remain positive. I know it's hard.. The actual strands of my hair didn't break, the condition remained good. It was just the scalp that was affected. I wished so many times that it had only been hair breakage. I felt I could have dealt with that as new hair would at least have kept growing. Please do keep posting with anything that you have found out about what has happened to us all and if there are any miracle cures out there! Rest assured, that even if you don't always get responses or comments on here, there are many people that are silently reading and post only occasionally. I probably read this too much but I live in hope that somebody, somewhere will post a cure on here.. I wish you all the best ...

May 24, 2015
Wish I would have seen these posts before
by: Laurie

...getting my keratin treatment in March 2015. I began getting most of the symptoms listed in previous posts, starting with losing the color I had just had done 2 weeks prior. I waited the 2 weeks on advice from my stylist. No big deal since I actually liked the lighter, slightly reddish tone on my dark brown hair. But then a couple weeks in, I noticed an increased amount of hair loss in the shower and after combing/brushing/running my hands through my newly straightened hair. I also noticed my scalp was totally flaking off! I didn't experience the burning or itching so much, but maybe I was so distracted from the other side effects, I didn't have a huge problem with those things. A month after the keratin, I noticed my hair breaking off at the ponytail line so that the hair on the sides and the nape was sticking out when I tried to scoop it up in my scrunchie. No biggie, just hairspray it down. Then my friend noticed "a lot of bald spots" when I proceeded to put my hair in a ponytail before a segwaying adventure. I brushed it off as the sun shining through my hair. Not worried. The whispy short hairs on the temples? Again, spray 'em down. But when I got up today, I noticed the sides getting really thin, hair sticking out all over (out of my ponytail) and I decided it might be time to get a haircut to fix it. Then I went online and posed a question about keratin. Wow, are my eyes opened! I too, cannot believe this process is allowed to be done on people looking to improve their appearance or make doing their hair not such a nightmare. Yes, I would take the previous regimen over the current nightmare any day! Reading these comments has made me realize that we have all been poisoned, and left out to dry by the hair industry and medical professionals. Unbelievable. Ok, so now what? First step, get rid of as much of the formaldehyde as possible = haircut (maybe even a new pillow). Second, more research on all the possible remedies re: vitamins, hair-growth products, shampoos and moisturizers. Third, more research on legal ways to influence the ban this product. And finally, report back here on progress. Wish me luck...

May 22, 2015
Thanks, Maria
by: Missy

Thank you for the post. I especially appreciate what you said on the henna. The trichologist said to do a patch test but I will wait on that after what you wrote,gray roots or not after all my chemical damage. A friend did an organic hair color and couldn't stop itching. Good luck to you as well. Hope the shedding calms down. I do think the clobestol slows down the shedding and has calmed the scalp, but will have to see in a little more time.

May 22, 2015
minoxidil
by: Maria

Hi Missy,

I use minoxidil for past 20 years in 2% solution.Right now I use 5% as I did with my previous hair loss.I even came off it at one point (for the same reason as you mentioned, god knows what it can cause in long term) but after my retex experience, I start to use it again. Only thing when you want to stop using it is to phase it out slowly. If you stop from one day to another, you will experience shedding.
So that much about minoxidil from my experience. I am having a lot of new hair-growth.Even pass my normal hair line.My shedding also slowed down a bit but than I used khadi hair henna as I had to go to an event and my hair looked just fried orange and despite it being all natural, hair loss picked up again.I am hoping it will stop soon.I am keeping positive because I see new hair and I made my peace with the fact that all my old hair which went through this chemical shock will fall out in near future.
I agree with this being a problem of chemicals irritating our scalps more than matter of keratin, retex and whatever else.It'all harmful chemical crap which destroyed our hair and we have to put in maximum effort to get our scalps back in healthy state.
Wish you all fast recovery and please post updates.

May 18, 2015
Update again
by: Missy

So the clobex liquid was covered so I'm using that. That's strong stuff that can only be used for 2 wks. It has calmed my scalp down. What surprisingly really bothered my scalp was the Free & Clear shampoo. My scalp was itching like crazy after I used that. I don't think I used anything else. I have dry hair & scalp and have always had dandruff but nothing crazy. What is freaking me out is found a forum where women have, I forget the name now, but this girl was saying she didn't have inflammation red or anything on her scalp but a biopsy revealed she had this condition from chemicals on her scalp it you need antibiotics for like months and months and it can cause permanent hair loss. Mostly I saw in women who are some type of birth control pill. Anyway, the point is she was treated wrong for years until she got the biopsy. I get a reaction to epinephrine so it can be an issue for me but i want a biopsy. The clobex has slowed some shedding but i don't know what happens once I stop. Sandra, basically i think the reaction the drs said to the keratin is common in sensitivity to the chemical, or it got on the scalp, etc. When I think in hindsight, so many times I squeezed my hair out after a keratin treatment and remember thinking how much less volume hair I had and thinking it was just the treatment straightening and changing the texture. Now I realize- hell no!- that was my hair thinning out from those damn chemicals. But I never had the shedding like I did now, which they think will go away at some point but then there's maybe another issue which is hereditary hair loss potentially must be seen on microscope hair analysis that must be biopsied or just start monoxidil. I hate thought of monoxodil because does anyone really know what that does years later to your body? well, anyway, after my scalp hopefully calms down- no more serums, etc- just nizoral, biotene shampoo and shea moisture conditioner without silicones and no fragrance, etc.

May 18, 2015
SALON FAVORITE KERATIN TREATMENT - BEWARE
by: Anonymous

My friend purchased this keratin at home pack from eBay and gave it to me, telling me that it was a treatment for my hair.

Not knowing anything about keratin at the time, used it. It claimed to be formaldehyde free.

It has been 2 months and I have experienced dramatic hair loss. It started off as strands and now it is clumps.

My friend never experienced this, as she concentrated on the ends of her hair where as I used it all over my hair thinking it was a treatment.

I am going to a dermatologist next Thurs - will provide an update of what he recommends.

I have stopped straightening and blow drying my hair and I have started using Nioxin. Will provide also an update if I notice improvement.

I am also taking hair skin and nail tablets and am going to buy silica liquid to take.

I am really disappointed that this company has sold this product to use at home when it is clearly unsafe for home use. IT SHOULD BE BANNED.

I strongly recommend for others NOT to use this product.

May 12, 2015
Update
by: Flo

About 8 months after my Brazilian and many hair regrowth treatments I notice that my hair loss is slowing down. One of the treatments I used was the Clobestol topical steroid and that really helped sooth my scalp and made my hair seem thicker. I wouldn't recommend using it long term though. My hair seems to be growing back and it seems so much curlier now, really hard to straighten the hairs around my face.

I'm grateful to still have some after all of the hairloss though so I will not complain. My most recent products are Aveda scalp benefits shampoo and Roots from Lush. I'm trying to go a natural route since the chemicals did so much damage. I wash my hair every other day, I used to be able to go longer than that before the Brazilian but now my hair gets oily quicker. I can't quit the blowdrying and flat ironing though, I wish I could but I still prefer my styled look. I try to only do it in weekends though. I also cut my hair every 6 weeks. I like my hair long and now it's around my shoulders but I noticed it helping a lot. Thank you all for your posts and support. It helps to know I'm not crazy thinking this Brazilian Blowout ruined my hair.

May 12, 2015
Thank you and update
by: Sandra

Thanks for all your updates: Missy, Maria,Spring Owl.. It's helpful to compare experiences and in particular to hear feedback from hair loss specialists who might have more of an idea about what's happened to all of us. Did the dermatologists know why the keratin has caused this Missy? Did they offer you any hope ? I presume they have seen it before. At least they recognised it for what it is . The ones in London had no idea..

My update goes as follows:
Had my Brazilian hair straightening last June. Immediate hair loss at top of my head leaving a bald patch that got burnt all Summer long. Diagnosed as alopecia firstly then as female hair baldness and told it would not grow back. It has grown back on the crown but not as thick as before. A couple of months after Brazilian, terrible hair loss. Waking up every morning to at least 20 hairs on the pillow and several hundred after washing. Hair loss has slowed down considerably after 10 months but no significant regrowth although some small patches of new hair coming through at the back of head (according to my hairdresser).

Thinking of you all and hoping these products will be banned one day ..

May 12, 2015
Update
by: Missy

I saw 2 hair loss specialist dermatologists. My scalp is inflamed from the reaction and they recommended Clobestol? which is a steroid for the scalp to calm inflammation and slow down shedding. So it's generic and it ranges $400-750! for generic! I'm trying to see what else I can use. Several things can cause the TE so that's no surprise. I had bloodwork to rule out thyroid, and will have bloodwork to make sure it's not iron or vitamin D. I'm writing this to help all of you to see what might be causing it. It's unlikely it's these things as I take a high iu of vitamin D and I do eat a lot of protein and have no symptoms of anemia. Anyway, then there is the question of whether there is hair loss in the family. Scalp biopsy lets them see exactly the cause. They all said lots of topical supposed hair growth things like hair serum, various whatevers, don't work. They said the only thing that works is Rogaine, etc. In fact, the other stuff may aggravate an already sensitive scalp. Probably need to use keto, etc dandruff shampoo to help scalp as well. One recommended Free & Clear shampoo for sensitive scalps. They both said shedding from keratin, and there are cases of people having chronic TE that can go on for years. I'm afraid of that and also afraid the formaldehyde damaged the follicles from doing one a year for at least 6 or 7 yrs. They said hair vitamins are good with the vitamin C, biotin, etc. It is really important to go to a hair specialist that has those microscopes, etc in the office to do an in-depth look at the scalp and hair to see exactly what's going on. The other dermatologist didn't have that and didn't really know what she was talking about. It's got to be a hair loss specialist. Good luck.

May 08, 2015
Retex-update
by: Maria

Hi guys, it's been a few weeks since I posted here and I wanted to give an update even though my damage is from Retex, not from Keratin but the outcome is the same.Huge hair loss,painful scalp,etc..

My hair was shedding intensely as mentioned below. Probably about 1000 hairs a day. Every time I passed by the mirror I wondered if I am bald already and refused to look.This lasted over 3 weeks or so. Luckily it stopped because at that rate, one more week and I would be bald.I lost so much.I have bald patches and broken off hair.I am still shedding but now it's maybe 2-300 hairs a day which is still a lot and it's visibly thinning every day but it's nothing compare to what I was loosing before. So now it's been I guess 2 weeks or so loosing hair at this pace. But I am not here to cry and feel bad, I am here to give some positive news.

Despite shedding, I am having new hair growth at many places and they are growing quite fast.I concentrate on that instead of my dead,straw like hair.I am using 5% minoxidil which helps enormously but not Rogaine brand, that is way too greasy. I also use product from hyaluronic acid,collagen and vitamin B claiming to help hair growth.Supplements as we all do. I had same experience as Maurice about the shampoo.I found sulfate shampoo somehow worked better and that's a lot for me to admit since I am sulfate free for quite some time. I bought garlic shampoo (with sulfate) and I use also garlic oil from Vatica.I asked dermatologist about my suspicion that sulfate currently works better on my hair than gentle remedies and she said it's all just a big trend and that sulfate thoroughly cleanses the hair of all the oils and therefore hair can grow.Unless hair gets proper cleaning, oils and dirt are blocking them from growing.Btw as I mentioned before, I had corticosteroid cream to rub in my scalp and after two weeks the scalp pain is gone. I stopped using it as recommended.

And lastly,I have event coming up and I wondered if I should get wig since I have bald patch where my hair parts.I went to see few people about this and they all recommend just hair integration. Just a clip in patch, best from real hair and custom made so I can pull my own hair through to give it a complete natural look. I must say this idea took a lot of pressure off as knowing that I look pretty yet I am wearing my own hair is something I didn't expect to happen for at least another year or two. So I just wanted to share all of this with you. Not sure if it's good news but it's some news :) Hope you all stay well and keep fighting and winning this battle. BTW my 4 year old asked me about my hair and I told him that my hair is sick and he said: it doesn't matter mommy, you are still pretty and I love you!

Apr 28, 2015
to Dead Hair
by: Missy

Your story sounds so familiar. Almost like me. Yup, I never should've been given the Keratin in the first place. The trichologist said they should do a strand test. I wish you the best of luck in your quest, hun- all good things you are doing. I'm doing basically the same. And yes, if I am ever lucky enough to stop losing hair like this, I will be so happy to have my thick, kinky hair- it's hair! wish you the best, hun. I thought I had less hair loss in using coconut oil warmed, massaging in and then shampooing hours later, but today I still had a good amount come out. I think maybe the Pura d'or shampoo causes shedding? I notice a difference between that and when I use the mild shampoo or coconut cowosh. Anyone else see this? I'm using all natural products to try to get moisture back in to my hair and not blowing it or coloring it, which is hard with gray.

Apr 28, 2015
Keratin Will Not Win!
by: DeadHair

Six months ago my hair died. RIP hair :( I've always been known as having the biggest, thickest, longest, naturally curly hair in my entire family. Maybe in my town? Any way, I was known for my lion mane of hair which I babied and didn't perm for over 10+years opting to only add blonde highlights.

That was until I found a so called "natural hair care specialist" and it all went down from there. Looking back on it, my hair's destruction was a case of buyer beware. When I think back to the day I was pressured into getting a Keratin treatment, I remember the buzz cut stylist looking at my bra strap length mane with utter disdain. Disgust actually. But being the naive, trusting, uneducated and misinformed natural client that I am, I trusted her when she said it was not a perm or chemical but a "protein treatment that would make my hair shiny, grow longer and healthier". This was the biggest lie I've ever been told in my life.

I immediately noticed the lack of volume when I left the salon. Not wanting to panic I went home and inspected it. Ok, super straight and shiny. Maybe I was imagining things? Fast forward a week and my hair is so greasy and non existent, I mean I have the same length but at least 85% of the volume of my hair is gone, gone, gone, gone, gone! My highlighted ends? Destroyed, paper thin, breaking, greasy, sticking together and horrid to look at. I could have died! When I finally wash my hair, there is a strong chemical odor like a perm strong enough to burn my eyes.

My beautiful, luscious natural curls were reduced to a hard, cardboard like, stripped out feeling, rough, sand papery dry, crunchy, corn silk type of foreign substance that I don't recognize, can't untangle and dread combing. All of my blonde highlights are falling out, shedding, breaking off and disintegrating before my tear filled eyes.

I went in to a severe depression at the loss of my hair. And I mean, severe! On a business trip, while styling it, the angle of the mirror and light revealed a clean, shiny, sparse scalp--which I've never seen before because of the density of my hair--that stopped me dead in my tracks. Although my hair is dense on my scalp, the hairs are not thick plus they are bleached blonde which is how I found out after the fact that I never should have received this treatment because I was a horrible candidate based on my hair and history of bleaching.

All of my beautiful, thick, luscious curls are gone but I refuse to let Keratin win and destroy my hair.

I've stopped flat ironing my hair and although my hair was always thicker than a wig, started looking for a wig in order to give my hair a break.

I've also incorporated the following in my new bring my hair back to life routine in order to fight my depression and win the battle against Keratin hair loss:
1. I started working out 3-5 times a week now, starting with a spin class until I can increase cardio and maybe even start some weight lifting
2. Started taking Biotin and Mineral Rich by Maximum Living after watching youtube videos of their hair testimonials
3. I'm doing a pure coconut oil one hour deep condition once a week
4. Started drinking a full 64oz of water every day whether I want to or not...sometimes I mix cranberry or tea in it if I can't take it
5. Wash and condition with OGX Thick and full Biotin shampoo and conditioner 3 times a week
6. Started taking care of myself both inside and out including my diet, water intake, vitamins and exercise routine, trying to stay positive and focus on loving my hair back to life instead of crying over what I've lost
7. Bought Jamaican black and regular castor oil to use on my now non existent edges
8. Tie my hair in a silk scarf every night and won't sleep on cotton pillow cases because of fear of losing my hair and moisture
9. Just recently bought hot oil treatment to try and incorporate that into my routine either once a week or bi monthly....not sure yet
10.Finally, and most importantly, I am going to fight to bring my hair back! To go from my hair being my crowning glory to almost having no hair at all is indescribable in words. I know that it's only just hair but it's my hair! I have discovered a new love for my wild out of control curls that I never knew existed. The sad part is that it took this tragedy to make me realize that what I hated about my hair was everything I actually love about it. Once it's back I am committed to caring for it, loving it, and pampering it if that means I never see the inside of a salon again. I'm fine with that and finally, at the age of 40 I can honestly say I will be at peace with my hair.

Yes, I've lost my hair but I'm still alive and I've gained an overall new perspective on life. I'm learning take care of myself from the inside out, love my wild and naturally curly lion's mane and appreciate the fact that no matter what, I'm going to fight to turn this keratin damage around!

I wish all of you ladies the best of health, wealth, happiness, hair growth, well being and success!

xoxo,

Summer

Apr 25, 2015
How much I'm losing
by: Anonymous

I would estimate I lose approx 100 per day. I had my BB approx 1 year ago. If I skip a wash day I will lose 200 the next day. I know they say 100 a day is normal, but not for me! Before the BB I might have lost 20 per day, maybe!! When will this end? I so wish more people would post regarding recovery. I see no regrowth so far.

Apr 21, 2015
How much hair are you losing per day?
by: Anonymous

I know its impossible to count every strand, but roughly, how much are you losing? How often do you wash? and does washing less (i.e. 2x a week) cause more shedding on wash day? What is normal and what isn't?

Apr 20, 2015
Hi you all I think we need to take things slow and relax a bit more
by: Parsley girl

I'm 36 years old I have two kids a boy 13 and a 4 year old girl they see my 9 bald spots on my head and they don't get freakout about it I explain to them that my hair is falling out but it will grow, if they see you calm about it they will be calm you know things happend and we have to try and be brave and confront our problems I told my husband what happend and he said that now we look the same bald hahaha and then he told me that I look beautiful and sexy, I don't think so but he gave me confidence what I'm trying to say is that be strong love yourself you know things happend and thank God we are not loosing hair because of a cancer or quimotherapy I believe this will pass it's not going to be fast but we need to keep trying my heart is with all of you take care...

Apr 20, 2015
Websites
by: Missy

Have you all seen this site? Just came upon it looking up the dr I'm going to see. North American hair
http://www.nahrs.org/PatientInformation(FAQs)/TelogenEffluvium(FAQ).aspx

Apr 20, 2015
scalp
by: Maria

Do you guys all have noticeble scalp irritation? Because mine feels tight at times, sometimes burns or hurts at random places but you cannot see any dryness, redness, chage of colour....Nothing at all! I read somewhere a statement from dermatologist that pain in scalp/hair occurs when hair falls out.So I wonder if it hurts because it's shedding or if it's shedding because the scalp is not ok.

Apr 20, 2015
db & others
by: Missy

Interesting you mention Pravana. I'm pretty sure they used that on me for color and I found it harsh so we switched a while ago. I didn't know they made a relaxer. But I think it's whatever chemicals these things have (especially formaldehyde) that's enough to straighten hair can also ruin it. I went to a reputable salon with a tech that's done keratin many times before- interestingly it was his first time using that BB. Who knows, but what we all know is that stuff happens. I had the burning scalp and major, huge flakes. That's chemicals from all assessments of the doctors I've seen so far. Assuming everyone here had bloodwork to make sure it's not thyroid or any other issue, there are enough stories to show chemicals can really hurt your hair. I just hope for all of us something works. Seems like only monoxidil can actually re-grow hair and the rest is hoping the regular process of time will with maybe some help from vitamins and supps. I wear a hat to cover my gray and frizzy hair that I can't blow out. Makes me feel lousy anywhere I go. I have a party to go to next weekend- I don't even want to be seen. This is a new age of adopting to a new reality for all of us. Just pray it's something that changes for the better soon.

Apr 20, 2015
it's been almost 4 years
by: db

Hello all, In answer to you questions about my experience: I've had three keratin treatments the first one in late 2009 it was Coppola no problems, 2nd 2010 Coppola again no problem last June 2011 was Pravana then it all went bad...That night burning,itching numbness you name it day by day my hair started to fall by the summer of that year most of the hair on the sides and top was gone I started to wear wigs several of them. I tried vitamins,sulfate free shampoo, went to dermatologist, had MRI's you name it they didn't find a thing medically wrong. Needless to say I was a wreck. I finally stopped wearing a wig a year later just cut my hair really short . My hair has never been the same I still lose a lot of hair everyday. I only use organic hair products and I am so gentile with my hair. I stopped coloring my hair for a while and when I did I only used the organic hair dye. I even contacted the president of Pravana and guess what? He sent me shampoo and conditioner for my balding head! I would never recommend that product to anyone . That is one of my biggest regrets in life. Also now that I'm older 61 your body is not as resilient so you have to work harder to protect your self. Good luck ladies.

Apr 20, 2015
Retex
by: Maria

Hi,
Yes, I neutralized exactly as instruction says. I think it was 5-7 min. Now by writing your comment you made me wonder if I shouldn't just try to slap it on my head again, I mean the neutralizer to see what would happen.. But the thought of those chemicals going anywhere near me... it's just insane :( On the other hand,I am heading for baldness anyhow :(

Apr 20, 2015
To Maria
by: Anonymous

Hi Maria - I am not familiar with Retex - but have been researching a lot about straighteners and relaxers since having my BB almost a year ago ( and still losing hair). I just quickly googled Retex and it does state you have to use a neutralizer to remove the chemicals ( and stop the chemical process from continuing). You cannot substitute regular shampoo. Are you sure you neutralized for long enough? I have read that failure to use neutralizer after a relaxer will result in hair loss. Sorry for your situation!!

Apr 20, 2015
Retex damage
by: Maria

Hi all,
Thank you for sharing, I read through all and it helped me enormously to understand what is happening to me. Unlike you all, I didn't have BB or keratin treatment. I did Retex and I did it myself. Left it on only for 20 min. First my hair just looked burned and start to shed a little.One week later it start to get more intense and hair was just falling out by handfuls.It's been 4 weeks today and I lost about 50-60% of my hair. I am almost sure it will all go.I read review from 2 girls who ended up bald from retex.They didn't come back to discussion to state if it was permanent. I don't even know what chemicals are in Retex since they have it registered and therefore no ingredients have to be listed.I feel guilty for putting my family through this. I have 2 little kids and every time they hug me, I die a little inside knowing soon they will start asking what is going on. I cut my hair to ear level last week.It didn't help at all but I had anyhow just few chunks hanging on my back so it was needed.It's horrible and you can see my hair is basically dead.Bald patches start to appear on top and back.
What I wanted to write here about is use of minoxidil (rogaine).I have been using it since early 90's in 2%solution.It always worked for me.Now I start using 5% to try to give it some boost.Dermatologist prescribed me corticosteroids after I insisted but as you all know, they are clueless when it comes to retexturing treatments. I had similar episode with anti-malaria medication which also made me loose about 50% of my hair.Scalp was hurting as it was poisoned from inside.Same treatment,corticosteroids and 5%minoxidil was used and 3 month later I had short regrowth all over my head.However, this time,I think it will not be so easy.I already have bald patches and I loose every day 500 hairs at least.If I try to put oil or any treatment in my hair,I end up with handfuls of hair in each hand.I think it's matter of 2 weeks or so till it's all gone.I wish I could shave it all off like parsley girl did but I feel that would stress the kids too much.I am trying different things and I promise to update here if any progress will occur.I am in Czech Republic.Best of luck to you all and keep fighting!!! You are all amazing!

Apr 19, 2015
Coming up on two years
by: SpringOwl

I do come back here every few months to see how people are doing.

In May, 2015, it will be two years. Within the first five months, I lost 70 percent of my hair. My scalp was fire red and itched like crazy. My hair fell out from the follicle and I was certain I would be bald.

As of today, about 40 percent of the hair that fell out has grown back. My scalp still itches in flares and my hair still sheds.

My hair is thin but you can no longer see my scalp. I use Soingee brand shampoo that's sulfate free and that's it.

I find if I do anything to my hair (and I have tried EVERYTHING), it flares things back up.

I did cut it about four inches initially and it only grows about three inches per year so far.

I'm fairly certain it will never be 100 percent normal again. I have no idea what could happen to change things permanently.

I do not have dandruff but I do have itchiness. The burning is gone, thank god! The burning was horrible. I thought I would shave my head and pour aloe all over it. I was tempted more than once!

I have enough hair to fake it but it's about 60 percent of what I once had.

If you are reading this and never had a straightening treatment, DO NOT DO IT!! It's not worth the horror you may have to endure. If something goes wrong, it will change your life forever.


Apr 18, 2015
Anyone try garlic shampoo?
by: Anonymous

I've come across a lot of info online about garlic shampoo and how it seems to help a lot of African American women stop shedding hair (seems many African American women have hair issues due to use of relaxers) Anyone tried it?

Apr 17, 2015
Response to MH
by: Sandra

Firstly, thank you to Anonymous for keeping us upbeat and positive! There has to be hope and yes I agree if I were male I would have cut the lot off! I I wonder why some people stop posting on this forum after a while. I hope it's because they recover and not because they just resign themselves to living with thin hair that falls out. I don't think there needs to be any underlying health reason for this other than the Brazilian treatment we were all exposed to. In the same way that some people react badly to a hair dye some people react to this horrible stuff that was put on our heads and others don't . The difference being that an allergic reaction often lasts a few days and is treatable whereas this hair loss goes on and on. For many people it does eventually stop.
MH I seem to remember that like me you are in the UK. If you are in London (as I am) then try Lucinda Ellery for scalp powder/spray. I have a friend with female hair baldness who has a spray from them and you would never know that she doesn't have a full head of hair. It's amazing and she also said that they are really lovely and supportive. Waiting for the day that someone posts on here with some miracle cure! Also, hoping that people will stop using this awful product. My heart sinks every time I see somebody new posting on here. There must also be others that have had this experience and just haven't found this forum. Sending good wishes to everyone that has helped me with their support and hoping this nightmare ends for us all soon.

Apr 16, 2015
To Aman
by: Anonymous

Sorry to hear you are going thru this too. I wish I could tell you different, but based on my own experience, and I think most of us here, you will likely be shedding hair for a long time ( for me 10 mos so far). So please don't say you are losing hope after 1 month! This may sound sexist - but if I were a guy I would have shaved my hair off months ago. I just think it would be so much less stressful! As a woman that is much more difficult to do - kudos to parsley girl!! I do think we will recover from this but it takes a long time. I'm thinking once I hit the year mark I'll be half way there. Then hoping the 2nd year will see slowing of shedding and regrowth. We'll see - I'm honestly just sick of worrying about it so much. Best of luck. I am curious - when you went to the 3 doctors did they say they have seen others with keratin hair loss? Did they say what their recoveries have been? Bye...

Apr 15, 2015
Hi every one you guys are breaking my hart and I feel your pain
by: Parsley girl here

Well I cut my hair like a month or 2 ago with the #2 and I discover that I have 9 bold spots on my head and dandruff like I said before using natural remedies are working for me for the dandruff lemon, beet juice and coconut oil is going to sting a bit if you have cuts on your scalp but it works for me I leaver on for 10 minutes then wash my hair sometimes I clean my scalp with peroxide and I'm using folicure liquid and it's helping my hair grow I see my bold spots growing hairs and it makes me feel better my hair is realy short is less than an inch long and very few hairs fall out wen i go outside I put a hat on or a wig is nothing wrong with that don't be afraid I know is a big deal for some of you to take the hair off but belive me your hair is still contaminated with the keratin so is your scalp and a good way to get tide of that is to take it off and then start treatin your scalp belive me wen you don't se your hair falling of you feel relieved is better tu cut it off I drink my vitamins don't forget C biotin and try to read labels before you buy any shampoo or try to make your own is a lot of information online about things you can do to help your scalp and hair and be patient with these dont give up keep trying good luck every one take care....

Apr 15, 2015
MH
by: Update (sadly not good...)

Hi everyone,

I wrote and update last week but it didn't load for some reason...

Anyway, I've had a horrible April, my hair loss had really picked up again (now month 7 for me). I don't know whether it's because I stopped taking my vitamins in March as I really didn't think they did anything. I think I will start taking them again. The bulb is on EVERY hair.

Whenever I wash my hair I always use nizoral now - even if it does dry out my hair it is the only thing that begins to tackle my dandruff.

My hair is 60% gone and I think I will need to buy scalp powder - any recommendations? My fringe/side parting is just all scalp and whenever I move I have to scramble to move my hair back into place.

My hair is still quite long as although very gappy the curls make it look a lot thicker. I have had it cut once which was traumatic as the hairdresser just kept brushing no matter what and taking more hair each time. However, the knots are getting very bad. I know some people have cut their hair super short and report that this improves - is that really true?

Missy, Sandra thoughts are with you it's horrible.


Apr 15, 2015
hair loss keratin
by: aman

Hi there,

I have had a keratin treatment done. Biggest mistake. From thick wavy hair, my hair is super fine, limp and falling from the root. I have been to 3 dermatologists and all say it's telagen efluvium. It has reached a point where the doctor has put me on Propecia (I'm male). I have changed my shampoo to phyto, and clarify once a week. I am extremely depressed so much so that I have stopped eating much and cannot concentrate at work. I have been for blood tests etc. everything seems fine. Please please can somebody give me some advice. Has anybody recovered from hairloss after a keratin treatment? I see alot of ppl posting online about their hairloss post keratin treatment but nobody posts their recovery. I had the keratin done about a month and a half ago. Please help me somebody, I can feel myself slowly losing hope.

Apr 15, 2015
A Hug to All Struggling
by: Missy

This is awful. For most women, I'd say all, our hair means everything to us. Losing my hair is devastating because it's one of the things I liked best in my appearance. I always had beautiful, thick hair- frizzy, but blown out it was beautiful. I'm so sorry I ever went down this road. It's so humid where I live, but it's the worst mistake I ever made. The dermatologist & trichologist said it's a 3-6 mth process, which is horrific to me, but hearing you ladies talking about years- my goodness. I'm worried that stuff got on my scalp as well. This blog has been so helpful. Sandra, you seem to have a good attitude and I'm praying for you and all of us that we all get back to what we were and if not, that we are granted the strength to make peace with it. But I will not give up on finding an expert to try to make my situation better no matter what.

Apr 15, 2015
Thank you
by: Sandra

Thank you so much, both of you for your words of support. I can't put into words how much I appreciated your responses. You can probably tell from the amount of times that I message on this forum that I'm really struggling with this. This was the first time I had ever had a Brazilian straightening and I have no health issues that could contribute to hair loss. The loss was so quick and so dramatic within a week of the treatment that it could only have been the product. I'm trying to stay positive! Your messages helped :) I wish you all the best for a recovery from this..

Apr 14, 2015
Try to keep things in perspective
by: Anonymous

If these treatments caused people to go bald there would be thousands of bald people walking around due to keratin. I have to believe also that they would be against the law if that were the case. Although these forums can be helpful -- when people post that they are losing hair for 3 years with no additional info, except that they have used keratin - it stresses me out. I think no 2 of our stories will be the same. These treatments cause different degrees of damage to the scalp - like a burn is classified - the damage might be 1st degree, 2nd degree, 3rd degree. Depending on how many treatments you received, how much got on the scalp, the type used, how long it was left on, amt of heat used, your skin sensitivity, etc etc etc - everyone will be different. Try not to stress and just do what you can to baby your hair. Personally based on everything I've read we will recover - it just seems to take a long time. (When I called my hairdresser after I noticed my hair falling, she told me she had never heard of that (which I find hard to believe!) and basically admitted that although the product is applied above the roots, some will still get on the scalp) I think it would be impossible to not get on scalp - it should be illegal.

Apr 14, 2015
More
by: Missy

Sandra, so sorry, hun. I'm scared about that formaldehyde on the scalp thing. I assume you have seen a doctor to rule out anything health wise? And the only ones I think who know about hair loss are at those places that are there to make money peddling whatever.dermatologist said be leery, but I'm going to pay $285 for one of those places while waiting for the UM dr. I won't do plasma injections.

Apr 14, 2015
Response
by: Sandra

As the months go by (nearly a year for me now) I become more and more distressed as I see my hair get thinner and thinner each month. I keep thinking about the newspaper article (Daily Mail) that I referred to. It basically says that if the formaldehyde enters the follicles then when the existing hair falls out it is not replaced with a new hair. I think this is happening to me and I don't think that I will know how bad it's going to be for several years. My understanding is that the hair cycle is 3-5 years after which time the follicle rests for a while and new hair starts growing in the follicle again. So at any one time on your head there are lots of hairs at different stages of the growth cycle. It's normal to lose hair at the end of its growth cycle but my feeling is that as my hair reaches the end of it's growth cycle and is falling out, there is no new hair to replace it. I'm guessing that I won't really know the extent of this damage for 3 to 5 years until each hair has been through a growth cycle. That's what I'm thinking but I'm praying that I will be one of the lucky ones that gets regrowth. Even as I write this I can't believe its happening to me.. I hope the dermatologist listens to you Missy and is able to offer some support. This is a unique situation and doesn't seem to fit the pattern of other hair loss scenarios although it seems that many dermatologists attempt to make it fit a particular diagnosis that they are familiar with. If your dermatologist is able to access the research it might offer a solution or at the very least an explanation..

Apr 14, 2015
Response
by: Missy

I understand from everything I've seen and heard that there's no way the formaldehyde doesn't get on the scalp in some way. I used this product for the first time. I later had burning on my scalp and huge flakes. My scalp is still so sensitive I can't really put anything on it. I can't color my hair, I can't really put anything on it. I'm just leaving it without blowing it or coloring it (grey frizz is so attractive). I read that scalp biopsy is the gold standard and I'm waiting to get that in a few weeks with an appointment I have with a dermatologist who specializes in hair loss. I see what you all mean- doctors not really versed in hair loss, etc are not helpful. Also, I presume everyone has had bloodwork to make sure it's not thyroid, hormones, etc. I'm freaking reading your stories saying it's YEARS! OMG! If you all have been tested to ensure it's not thyroid, hormones, etc, I'm nauseous thinking this loss of huge amounts of hair every time I comb is unsustainable.

Apr 14, 2015
A couple more ques's for those losing for 3 yrs+
by: Anonymous

To those who posted recently re: losing hair for 3 + years would you mind sharing some more specific info? How many keratin treatments did you have done? What kind were they ( Brazilian blowout, etc), did you do them yourself or did a professional? Have you had any scalp biopsies done? With no hair growth for that long seems a Dr should be able to tell if follicles still active and capable of growing hair. Any additional info is much appreciated. Thanks!

Apr 13, 2015
A couple of questions
by: Sandra

Those of you that have had very little regrowth after three years, did you have strong Brazilian treatments with lots of formaldehyde? Did the product touch your scalp? I'm trying to work out if it is the formaldehyde touching the scalp as suggested by the newspaper article that I posted or the keratin in the product.. I don't know what difference it will make to me but I'm trying to make sense of this.

Thank you for the update Missy. Appreciated !

Apr 13, 2015
I am at 39 months
by: Anonymous

I am over 3 years and still losing tons of hair. My hair is super thin and falls out every time I touch it. I just don't know what to do anymore, so I do nothing. I have grown immuned to it and don't stress as much as I used to. About how much hair are you losing per day? I don't really count anymore, but the amount is the same as it has been since the treatment. I never remember losing hair before so maybe it is normal to lose some but losing every time I brush, style, move, or sneeze, can't be normal. I have lost about 60% of my hair and maybe 1% has grown back.

Apr 13, 2015
Anyone any luck past the 3 year mark?
by: Anonymous

I'm still shedding bad and it's been over 3 years. The back and sides are almost gone. Does it stop? Anyone hit 4 years?

Apr 09, 2015
Update
by: Missy

So here's my update. The woman from Salon Zero was very helpful and she also has a hair supplement that I bought (by mail) and just started taking. I did one of those Malibu C crystal treatments. My hair comes out like crazy so I'm now using a wet comb rather than a brush. I'm avoiding products with silicone like Salon Zero suggests. Still taking some basic supplements. I saw a trichologist who said no more crystal treatments because my hair is too fragile, but she does like that product and uses it. She has some lovely truly organic products (unlike many that are supposed to be a health food store) that I'm using. I like the Pura d'or shampoo as it has good ingredients for hair loss, but my hair is SO dry and damaged. Once that silicone comes out from the keratin with that crystal treatment, my hair is a bail of hay. I saw a dermatologist who said the burning and flaking was the keratin, but she's one of those who says just wait it out. She says nothing helps other than just taking care of yourself. My diet has always been very healthy in terms of juicing, mostly only organic food, exercise,etc for years but going out of my way for more salmon, which I generally don't care for. She said plasma injections could actually do more harm than good. She's of the opinion to just be gentle on the hair and wait. I got home & kicked myself because I forgot to ask her about a scalp biopsy. An article in NYT from a woman on this said that's the gold standard and tells you the reason. So I'm waiting for a hair specialist next month because he does that. I saw another hair guy but he was unfamiliar with this situation. My gyno said it's the chemicals that caused it also & she said also it's the TE, which is temporary loss from a shock to the hair. I'm freaking still because, if this loss keeps up with every combing, I'll have bald spots in a while. :(

Apr 09, 2015
havent had a problem
by: Anonymous

Hello, sorry to hear about your problems with your hair loss. I have had keratin treatments for a few years now. I get the treatment done at least 2 times a year. Although I don't get pin straight hair from the treatment. I keep using it cause it manages it well. I no longer have frizzy hair. My hair begins to get a bit curly after about 3 or 4 months but my curls are manageable. I used to have to infuse my hair with gel and mousse and hairspray to keep it managed. And even after about 6 months I can straighten my hair and it will last all day without the fizziness. before I ever had a keratin treatment ever. I would try to straighten my hair and within 2 or 3 hours my hair would frizz it was no point.
I'm sure that there are many treatments out there.
I've had the chocolates keratin treatment. I have not had severe hair loss at all. I do have some hair loss but I also have a thyroid problem which causes hair loss. But nothing so severe. Maybe you should see another doctor to find out what is really going on. Or at least finding out what type of keratin treatment was used on you. Good luck treating your problem.

Mar 30, 2015
Thank you
by: Sandra

Thank you for all your comments everyone. Any piece of information really helps ! The reality is that we are all just doing our best to make sense of this in the best way that we can with limited information. If doctors and trichologists can't make sense of this what hope is there for those of us without their qualifications? I went to a well known top trichologist and a top dermatologist (specialising in hair loss) in London. The trichologist said it was alopecia and had no real knowledge of how the Brazilian could cause hair loss. The dermatologist only a few weeks later said it was female hair baldness and would be 'progressive and permanent'. I begged her to consider that it might be the Brazilian keratin and she said it was unlikely. Now months later, the hair on top of my head has grown back, so it hasn't followed the pattern for female hair baldness at all! I do however have all over hair loss which hasn't grown back but I'm hoping it will, like the patch on top of my head. The only research I'm aware of is the one that is documented in The journal of Occupational and Environmental Hygiene August 2013 ( case study formaldehyde exposure during simulated use of a hair product ) . This was researched using the Brazilian blowout Acai professional smoothing hair solution. I think you need to be a health care professional to read the whole document although I have managed to download the first page. If anyone can get to read it and let us know what it says please do as it might help explain this shocking and disturbing hairloss we are all suffering. I actually can't believe that this product is still on the market .. How is this being allowed to happen ?! Missy, please do share with us what your trichologist says about this. I hope you have a more positive experience than I had. It's so frustrating to be doubted! A healthy person doesn't just suddenly and rapidly lose hair following a strong chemical treatment for any other reason than the treatment itself, in my opinion!

Mar 30, 2015
Supplements
by: Missy

Thank you, Flo. You are right about the supplements. Generally, I take the lowest dose of anything. I'm taking the hair and skin one by Gaia (which has like horsetail, burdock, etc), bought 500 mcg of Biotin and will be taking 900 of Wild Salmon oil. That's it. I'm not doing the fat soluble vitamins. Good advice. I have, however, spent a lot on hair products. Based on that Salon Zero recommendation, I saw they use Malibu products so I ordered several of their products that seem good for the restructuring of hair and scalp. I also today got Biotene shampoo because it's pretty much all natural- just a very simple, not strong ingredients shampoo although I'd still like to get the saw palmetto, non DHT shampoo from Sally's. I didn't go because I wanted to see the trichologist first. Hope to get in for an appointment tomorrow to analyze hair and scalp. Made an appointment with a hair specialist dermatologist at UM, but can't get in until May.

Mar 30, 2015
To flo-
by: Anonymous

I know you may think you had vitamin A toxicity but you may want to look into the formaldehyde that's in these treatments. I highly doubt it was vitamin A. I got head to toe body pains 3 months after treatment along with extreme hairloss. The brazilian blowout is TOXIC. It stays on your head for almost 6 months

Mar 30, 2015
Please Read
by: Flo

Please be careful how many vitamins you are taking to try and correct the hair loss. I had my Brazilian Blowout in August 2014 and the hair loss started about 2 weeks after. It continued for many months. I eventually tried Phyto products from Ulta and did not see any results. I then tried Kerastase products and the hair loss slowed down but I couldn't condition my hair without it falling out so my hair became very dry. I then cut 4 1/2 inches off my hair. After months of research I found the symptoms of Vitamin A toxicity. I had massive hair fall, nausea and headaches. I had been taking prenatal vitamins for about a year and the vitamin A levels finally caught up to me. The prenatal vitamin had 4500 units of Vitamin and I should've only had 700 units, that nearly 6 times as much as I needed. I completely stopped all vitamins and can say that the hair loss has stopped. I can even condition my hair and hardly lose anything! (Knock on wood). I wish you all the best and please be careful what you put into and on your body. Remember, it took some time for my levels to get to the point where I felt the symptoms. To much of a good thing is not for you too!!

Mar 29, 2015
Thank you for helping
by: missy

Thank you MG and Sandra. No, I did not have the product apply directly to my scalp. And they do shampoo with whatever that stage 2 part is and rinse. I shampooed 2 days later. And actually, I should have noted that I bought a keratin shampoo that I used twice after my treatment and really that is when I noticed the burning and some irritation on my scalp. Maybe that just irritated something that was already going on. I was going to make an appointment with Dr. Tosti who I read about as being a specialist in hair loss at the University of Miami. I do not know if she is still there. But I will also check out that other doctor. Yes, I live in South Florida so I will see. Thank you for the salon zero tip. It is farther away from me to make it impractical to go, but I can call them and maybe get the products delivered to me. I will also look at their website and see what they say about getting the keratin out of your hair because I'm going to Ulta and Sally's today to get products. I saw that salon zero uses Minardi products. I went on Minardi's website and they pointed to several salons as using their products. The weird thing is that when I went to the sites of all those salons listed, none of them showed those Minardi products on their website. They all used other products. But one I found says that they do organic hair color. I'm going to be calling them and trying that instead. I also should have said that I had highlights on my hair and color and then went & had keratin done about four days later after one shampoo with a mild shampoo, not the keratin shampoo. So maybe it was just a lot of chemicals. I do not highlight my hair except maybe once a year, which is generally when I do the keratin as well. Hmmm.. In hindsight, I do think I had an episode where I'd lost more hair than usual after a prior keratin treatment. Different product. They used some straightener on my hair though for five minutes. So I thought for sure it was that and it was a few years ago. My hair had breakage, not the loss like now. All I know is that I'm going to do everything possible and, if I am lucky, and maintain my hair, I will never put another harsh chemical like that on my hair ever again. Yes I live in South Florida and it's humid as hell and I have frizzy hair that blows up every time I walk out after I blow dry it, but it's my hair and I want to keep it. This is just awful. I cannot believe what all of us have been through with this. Thank you again.

Mar 29, 2015
Missy
by: MG

There is a doctor in Miami Dr Greco Who does platelet rich plasma scalp injections. It works for some people to stop hair loss. I had one done and it helped with the inflammation and saw more regrowth. May be worth paying a visit (since you are close by I am in California) I am still shedding non stop but I definitively saw an improvement in the health my scalp. I should have gone to several sessions but just procrastinated and also It is expensive $1200 a session. I would go visit and see what he says. I emailed him once and he said that the PRP can definitively stop the loss and said that he has successfully treated Brazilian blowput hairloss victims. By now am skeptical of whoever says can stop the hairloss but you can take advantage of a free consultation.

Do you know if the treatment was applied to the scalp? It shouldn't because it is highly corrosive to the skin. If it didn't you may be having an allergic reaction and some people have gotten better with clobetasol shampoo which your dermatologist can prescribe. Anyways good luck it seems like being in Miami gives you access to several places to try. I have also read about salon zero and Hoped I lived near by.

Mar 29, 2015
For Missy
by: Sandra

Hi Missy
Try Salonzero.com. There are some posts about removal of keratin on the website and they may be able to help you as they are in Florida. Please let us know what the dermatologist says..

Mar 29, 2015
Me, too
by: Missy

I decided to Google this after I've had hair loss following the Brazilian Blowout with Acai. My scalp does feel burned and sensitive. I didn't realize this was happening until just this week. I had BB about 2 1/2 weeks ago. I'm not sure when I first noticed the hair in my brigs after shampoo. I'm freaking out. It's not thyroid, it's absolutely related to this. I always had thick, pretty hair. I'm going today to buy I think it's Coconut Cowort at Sally's beauty that has saw palmetto and product for the DHT. I'm also going to buy the Nioxin to see how that goes. I'm supposed to color my hair this week, which I need to do for gray, and I'm really concerned. I also ordered the Pura ad' or shampoo because I don't like sulfates, etc. I have very dry hair. So I see many posting to do all you can to get the keratin out. How do you do that please? What products get the keratin out? I'm also going to go to a dermatologist who is a hair loss specialist in Miami. Calling Monday to make an appointment. Thanks for your help with these posts and please let me know on the way to het keratin out. I'm also starting to take Gaia Hair, Skin and nails. I'll let you all know what happens with all these. Also will avoid blowdrying.

Mar 28, 2015
you have to cut your hair
by: Anonymous

Hi all, I cut my hair up to my chin and been deep conditionin to add the protein back to your scalp. It is working my hair is not shedding and it is thick again and growing. I really wish we could sue who ever made this treatment that has destroyed all of us.. I am sure we all used different treatment but someone she be held responsible for us lose our hair.

Mar 28, 2015
Stay Positive
by: Anonymous

To the ladies who feel they will go bald....of course I am no doctor. Nor can I see you physically but I don't think you'll go bald. I have been losing hair for 3 years. I am talking about a LOT of hair I used to keep it in plastic baggies with the date so I could see progress if the shedding slowed down. I bought tons of products. Cried. Got depressed. Felt like I was no longer attractive because my hair was thinning. But after a while I got used to all the hair loss. I used to stand in the stand in the shower too afraid to shampoo or condition my hair. I spent hours reading and researching hair loss. I never found any answers. Just hundreds of people who were freaking out because of the drastic shedding. I am not happy about the situation. I am mad as hell for not just appreciating the thick frizzy hair I was blessed with. BUT you have to move on and live your life...thick or thin hair. Still pamper your hair of course but please ladies DO NOT allow it to consume you like I did. I accepted my hair loss and stopped stressing. I think about it. I regret it. But I can't change what was done.
So I hope you find some peace. I really don't feel you will go bald. I read so many comments on so many blogs. No one ever said they went bald.
What works for me a little are tea rinses. They soothe my scalp they seems to slow down the shedding. It's not a cure but it helps me. When my scalp is sore the shedding increases. I think it's the build up of DHT on the scalp. I also ordered HLCC vitamins. I can't take them now because I am nursing. But I think they also slowed down the shedding.
I hope this helps. Oh the teas I use are black...fenufreek...burdock root...stinging nettle...saw palmetto...amla powder...and marshmallow root (it softens my hair).

Mar 28, 2015
Going bald
by: Anonymous

This thing has destroyed my life.I cannot sleep i don't want to eat i cried myself in the shower.. Before i sleep.. Its very heartbreaking to see I'm losing so much hair n knowing that i will be bald soon. I feel like i had lost myself. I used to be fun n positive person but this has taken everything away from me. I was always known as pretty one. So much of who i felt i was a person who was tied up in my looks. This has affected my life in every way. My relationship..my career..i just want to die..it's really sad i'm only 22 years old.

Mar 22, 2015
never brazillian again
by: Samantha

I have had three Brazilians . I thought this was hormonal but the only thing I have changed is having the Brazilian done and a keratin rich shampoo and conditioner. My hair has been straight for months and I have lost 50% of my hair . My hair used to be so thick it was freaky, now I am convinced I will be bald I am only 42. Does it ever come right again. It's only been a few months. I get an impression that not everyone gets this reaction. I hope one person will take my warning in case you happen to be the "lucky" one that loses 50% of your hair.

Mar 17, 2015
Response
by: MG

The doctors said (back then when I got a steroid shot and did not improve) that the chemicals on my scalp may have made my scalp age. My hair comes out so is easily even when I brush and I have a knot instead of my hair detangling all the hair in the knot come out. I think that there are two things simultaneously contributing to her hair loss. Honestly, for those of us who had the treatment touch the scalp, we have seborrheic dermatitis plus the chemicals in the treatment weakened our follicles now are easily attacked by androgens.

I think steroid shots on the scalp may not be a bad idea after all. Also the platelet rich plasma shots can help. I wonder if any of you had ever taken any medicine for hair loss like spironolactone or Propecia?

Mar 17, 2015
Thank you
by: Sandra

Thank you for responding to me - it's useful as we both had our Brazilian at the same time. Mine wasn't actually Brazilian Blowout it was Brazilian straightening and keeps hair straight even longer than the BB and probably contains more formaldehyde. Hairdresser couldn't even tell me the name of product as he couldn't read the language on the packet he told me - ugh! Stupid me .. Just one question that you didn't answer .. Have you had any regrowth at all ?
Suraya, please let us know if the steaming helps.. Don't just disappear everyone, after recovery, it's so helpful to know what helped and when the nightmare ended for you.. Thinking of you MG and Faith and all the others that have posted several times over the years and that continue to suffer with this. Hoping so much for good news from you ... And hoping my hair will grow thick again :(

Mar 16, 2015
Dry scalp cause excessive shedding
by: Suraya

What i realize that after i did my relaxer in march last year, my hair and scalp conditions become very dry and brittle. My original hair is fine and straight but i did a relaxer for the first time in my life because i don't like the perm that I've done before and what cause this trouble because i let the stylist applied the relaxer really near to my scalp. After that relaxer i notice that my hair is easily pulled out whenever i ran my finger through my hair. From what i read in those articles they said that relaxer and keratin treatment or whatever chemicals threatening product can dried your scalp. Dry scalp causes excessive shedding and the hair produce by the dried scalp is also dry and prone to breakage and dry scalp also cause very little hair regrowth. I've read that anyone who had relaxer or dry scalp should deep conditioning the scalp to moisturize it. I tried so many things to stop this shedding such as rogaine for 3 months but it only makes things worse. I went to several dermatologist and trichologist but nothing helps. I steam my hair once or twice a month because i heard that steaming help to remove chemical in scalp.. Now I'm going to try deep conditioning my hair using natural remedies like tea tree oil and using TRESemme renewal hair & scalp deep conditioning mask.. Who knows it may help. Sorry for my bad english.

Mar 16, 2015
To Sandra
by: Anonymous

Hi Sandra - I have not been to a dermatologist. I don't think our follicles are clogged - I do think that the keratin wears away with time. I would hope after 10 months ours is gone. I have had no dandruff, no pain. I have thought at times that the back of my head feels more sensitive - but I don't know if I am imagining that. I think that the chemicals used in these keratin products injure the follicles and maybe cause them to go dormant. I do think with lots of time they will recover (based on everything I have read - I have found NO stories of anyone going permanently bald. Please keep that in mind. Although these forums are helpful, they can also stress me out because people tell their stories when at their worst - but usually do not post back after recovery - because they no longer care about it). I am using sulfate free shampoo, multi vitamins and biotin, and weekly coconut oil treatments ( I leave in with shower cap at